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Original poster

My Husband is dying and there is nothing i can do, but there is something you can do to help

171 replies

misdee · 29/10/2006 08:58

become an organ donor

give blood

thank you.

OP posts:
Original poster
misdee · 31/10/2006 11:07

thank you all.

peter is stable-ish. its the constant infections, the tiredness, the erratic temps etc that scare us. we know he has an open wound direct to his heart, so any ibnfection on the lvad leads could be fatal.

he will always be in this state untill we get that call through. and unfortunatly that wont happen until the right person dies

OP posts:
Californifright · 31/10/2006 18:14

This reply has been deleted

Message withdrawn at poster's request.

fubsy · 31/10/2006 20:05

Is it O negative thats universal donor? DP has that group, so I will push him to go along too.

geekgrrl · 31/10/2006 20:14

misdee I'm sorry, sounds like things are really getting you down

have been on the register forever but have't donated blood since I go pg with ds - he's nearly 3 now so have pencilled the next available session into my diary. Thanks for the links.

mrsdarcy · 31/10/2006 20:42

I think baby-grade blood is blood that has no antibodies to cytomegalovirus, which is one of those bugs you don't notice you have but can be devastating for littlies.

I signed up for organ donation after one of your last threads, Misdee. Can't give blood as bfeeding but will when I'm eligible again.

Sorry you are having such a difficult time.

Californifright · 31/10/2006 20:50

This reply has been deleted

Message withdrawn at poster's request.

frumpystumpy · 31/10/2006 20:59

sorry for hi-jacking misdee....

fortyplus, thanks for that. My dd required an emergency immunoglobulin transfusion last christmas due to kawasaki/sjs but I'm pleased to say she is fully recovered and beatifully well again. It did give us a fright.....glad your friend had no lasting problems.

essbee, frightening eh! Ours came in an ambulance with emergency lights and like you I didn't think for a moment they wouldn't have it. Blood donation is close to my heart.....

Misdee, hijack done. Its such a bittersweet hope isn't it...someone has to pass for Peter to benefit. Still, if I (or, heaven forbid, one of my loved ones) go tonight, I'd be glad for someone to benefit. I'll try to be sure the stamp has Peters name on it [crap joke emoticon].

Original poster
misdee · 31/10/2006 21:03

thank you all again.

Without organ donation people wont live, \link{ \live life then give life}

OP posts:
fuzzywuzzy · 31/10/2006 21:04

Misdee I never post on your threads because I never know what to say. My family is on the donor list though......and you and your family are always in my prayers (hope that doesn't sound patronizing or offensive to you in any way).

Original poster
misdee · 31/10/2006 21:05

try again

OP posts:
Original poster
misdee · 31/10/2006 21:06

not patronising or offensive at all.

remember to tell your next of kin your wishes as well.

OP posts:
agalch · 31/10/2006 21:38

Have signed up to become an organ doner.

Can't donate blood have been bfing for the past couple of yrs and will prob be doing so for another couple of yrs at least,but will donate asap.

saggarmakersbottomknocker · 31/10/2006 21:43

Misdee it's time that bleeper went off. I'm sick of bad news (HL made me weep today ) need some good news.

Original poster
misdee · 31/10/2006 21:45

HL has had me weeping for weeks now

OP posts:
saggarmakersbottomknocker · 31/10/2006 21:46

It's just so crap misdee - hugs to you and to Peter.

Original poster
misdee · 31/10/2006 21:50

thanks sagger. we have lost so many people lately, young and old

OP posts:
bubble99 · 31/10/2006 21:57

misdee XX I couldn't pass by without posting but, as usual, I feel that I have nothing useful to add. As you've said, it's a case of waiting for the 'right' person to die.

I think of you and your family whenever I see an organ donor campaign/poster. Mr Bubble has volunteered everything in the event of his death and I have too. So Peter has raised awareness for us as I know he has for many other mnetters and their families.

Lots of love XXXX

Original poster
misdee · 31/10/2006 22:00

knowing we have reached people is enough bubble99. i always feel i am putting all my emotions out on the web about this, but stats say around 4000 people a year are waiting for organs. thats just a number. but by telling people about peter and our lives, we are making a difference in getting people on the organ donor register.

does thta make sense?

OP posts:
bubble99 · 31/10/2006 22:05

Perfect sense, misdee.

If you could bear it, I wish there could be a TV advert featuring you and your family. It would make the need for donated organs more real, somehow. If people could see how much of a difference donation could make I'm sure more would sign up.

littlemissbossy · 31/10/2006 22:12

I've just registered, carry a card also
can't give blood for health reasons
HTH in some way misdee

Original poster
misdee · 31/10/2006 22:13

i know its only a small people that have registered because of peters story. but it makes all the difference.

90% of [people in the UK agree with organ donation, but only 22% are registered. we need to change that figure to give Peter, Emily, Michael and all the other nameless stats on the list a chance of life.

OP posts:
laundrylover · 31/10/2006 22:38

Hey Misdee, was just thinking about you and Peter and then saw this thread.

I have just come to the end of my 5 years of not being allowed to give blood 'cos of malaria exposure so reckon I'm going to fib about the bfing so I can give once before we go to Cambodia and i get struck off again.

Anyone else think that they are a bit too stringent over here? In Cambodia you can give every week so guess I can squeeze some out over there too!

MissingMySleep · 31/10/2006 22:46

Misdee my prayers are with you and dh. Apparently there is scientific evidence that people who are prayed for have a 33% increased recovery rate. The prayers and good wishes from all your mumsnet friends will be helping Peter a little.

I have a ridiculous number of friends who send emails around when they should be working - I have emailed the links out, and am sure most, if not all, will sign up. I hadn't ever seen these links before.

It is so hard to be wishing for a transplant to save your loved one, when it is at such a tremendous cost (my brother is also on transplant list, and in gradual decline while we wait).

God bless you all.

Original poster
misdee · 31/10/2006 22:54

missingmysleep, what is your brother waiting for?

dh is under harefield for a new heart. has been on and off the list since march 2005.

OP posts:
SamhainWitch · 01/11/2006 10:31

Already signed up to every list I can be, as is DH.

Morning bump for others.

Thinking of you and Peter as always misdee xx