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Original poster

My Husband is dying and there is nothing i can do, but there is something you can do to help

171 replies

misdee · 29/10/2006 08:58

become an organ donor

give blood

thank you.

OP posts:
frumpygrumpy · 30/10/2006 13:29

essbee, after my dd had kawasaki/sjs I asked at the blood donor centre how many donors would have been needed for the immunoglobulin she'd had. They told me probably thousands of donations . It is just a little part of the blood donated and that shocked me into asking all my family to donate instead of buying me birthday gifts.

PandaG · 30/10/2006 13:45

Updated my details on the organ donation site. that I can't give blood as I had a transfusion after my m/c.

sylvm · 30/10/2006 14:19

Misdee I don't think we have "spoken" before but I have read about yuor problems. We are both on the register, afraid I can't give blood due to transfusions after both DDs were born. Like yuo I am a Herts girl and I think I read a letter in the local paper a little while ago on this very subject. I think you probably have come across J at Harefield who got her transplant when it seemed there was little hope - so do keep positive though I know how hard it must be.

Pidge · 30/10/2006 14:25

misdee - I'm am a registered donor and give blood. Just wanted to say I'm thinking of you.

Also I was given different advice re breastfeeding - I'm still feeding dd2 (19 months), but have already given blood and will do again in a couple of weeks. I discussed this with them and they were happy for me to give blood after 9 months (or it might have been 12).

Pidge · 30/10/2006 14:26

Have just seen mears already said the same thing about blood donating and breastfeeding! Sorry - reading the thread too quickly before dd2 wakes up!

alphonsa · 30/10/2006 15:13

I am on the register but I've always been a wimp about giving blood. Misdee - this has given me the kick up the bum I needed to make sure I get round to sharing some of my O neg.

EliBoo · 30/10/2006 15:51

expat, thanks for info - thought as much. Even though I've tested negative for it about ten times in the last eight years (had to be checked for IVF etc, and for my own peace of mind!). Ah well

CKMUM · 30/10/2006 15:58

whats this about nto donating if you're breastfeeding, i was told after having a baby you cant donate until 9 months later nothing was said about breastfeeding. If thats true I wont be able to for ages. Breastfeeding two toddlers and another baby on the way

CKMUM · 30/10/2006 16:00

oh just seen other posts about feeding. I cant because I am pregnant but before getting pregannt again I didnt weigh enough!

Original poster
misdee · 30/10/2006 16:00

CKMum, thats what i was told over the summer. i think they were worried abour dehydration. but now mears has said its fine, i will be donating blood next session, even though i will very likely still be breastfeeding dd3.

OP posts:
Original poster
misdee · 30/10/2006 16:04

sylvm i know justine. i had an email from her a few weeks ago.

OP posts:
IdrisTheDragon · 30/10/2006 16:06

I've updated my details on the organ donor register.

I'm another person who can't give blood any more after having had a transfusion after DS was born.

fubsy · 30/10/2006 20:49

Wasnt sure if I was on the register (used to carry a card) but have registered anyway. Also made a list of local blood donor sessions.

best wishes

billiejo · 30/10/2006 20:59

have just joined the reg misdee, thanks. best of luck.xxx

tigi · 30/10/2006 21:41

Thinking of you. I can't donate as anaemic, but am on the bone marrow reg. Had recently had a newsletter from anthony nolan asking for employers/businesses to host a donor clinic. I asked my employers and it's being done! I was really pleased about this, as it makes it so much easier to get on the register this way.

essbee · 30/10/2006 23:34

Message withdrawn

Californifright · 31/10/2006 00:50

This reply has been deleted

Message withdrawn at poster's request.

scarysuejonez · 31/10/2006 01:45

Californifright - what is "baby grade blood"? I have visioned of a lovely pastel shade with little fluffy bunnies hopping around in it.

ELF1981 · 31/10/2006 06:21

I am a registered donor, have been since I was about 12 years old and my mum explained what her donor card meant, and I decided I wanted to donate too.
We have blood units visit work every so often, but they also refuse to take blood if you are breastfeeding, which has been the only thing holding me back - might pop to the proper blood unit and see what they say as I really want to donate

fortyplus · 31/10/2006 09:51

frumpeegrumpee - just thought I'd say that I know a lad who had Kawasaki syndrome that wasn't diagnosed for over a week - he's 19 now, fit as a flea, has always played loads of sport and leads a totally normal life. When he was young his parents lived every day as though it was his last, which looking back seems quite sad as he now shows every sign of living to a ripe old age.

pamina3 · 31/10/2006 10:08

This reply has been deleted

Message withdrawn at poster's request.

pamina3 · 31/10/2006 10:11

This reply has been deleted

Message withdrawn at poster's request.

kandi · 31/10/2006 10:15

I'm really sorry to hear about your dh misdee. I hope he gets a transplant soon. I'm on the organ register. Haven't given blood I'm afraid as am a bit squeamish about stuff like that, but will try to overcome my fear soon

andie82 · 31/10/2006 10:32

Think I was already registered but just done it again in case I'm not.
Going to give blood on Fri afternoon, I used to be squeamish about needles but seem to have overcome that since being used as a pin cushion when pg

staceym11 · 31/10/2006 11:06

oh misdee im sorry, no that that helps at all.

im a blood donor (tho not at the moment as am pg)
and im registered as an organ donor too. am currently tryign to convince dh into blood donation have already managed to get him to register as organ donor so shouldnt be too long.