Yeah, she started out with a bug and never fully recovered, it went on and on and then had a very nastly barking cough and took what they thought was tonsilitis. I kept returning to the doc because she had a very high temp for 5 days which I was only just keeping under control with 2 hourly Calpol/Nurofen. To cut a very long story short after just returning from another visit to the doctor she turned worse again (fell asleep and I couldn't wake her, lifted her jamas to see a horrid rash appearing before my eyes, temperature sky high) and I made a dash to the hospital, where we remained over Christmas.
They never gave us a final decision......I think its maybe more likely SJS because of the blistering but who knows. The nurses all felt it was Kawasaki. I will try to investigate privately whether she took a reaction to Penicillin). In truth, none of the doctors seems to know whether she could experience it again, what caused it and whether my other children are likely to get it. Her main doctor said she must have been very run down for it to develop and she was, 6 weeks of not getting better from a bug.....
She shed just about every bit of skin she had in great sheets and I had to apply dressings twice a day to prevent infection. She lost some hair and all her finger and toe nails (probably due to the severe temps, dehydration and weight loss). Her doctor at the hospital recommended probiotics (we used Actimel) to get the tummy filled with good bacteria again after all the drugs, vitamins, a very healthy diet (we do anyway but made it more so).
Summer came, I made sure we went somewhere sunny for a holiday - she has very fair skin and although she needs lots of high protection, I wanted the goodness of the sun to help build her up again. Since then she positively shines - her skin glows, her hair is shiny, her nails strong again.
I've totally hi-jacked your thread. I guess I just wanted to share because I didn't know anyone at the time with experience and would have loved to have had the chat....
Sorry, ignore what you're too tired to read .
Hope he gets well and truly on the mend very soon. Don't rush him back to school (although I agree they do need routine to kick in again to complete the getting well or else they feel 'ill') . I feel guilty I maybe sent my DD back too early from her bug and maybe thats why she got so run down and ended up that way. Now, unless its just a mild cold I keep her off until I'm sure she's totally fine.
What age is your DS btw? My dd was nearly 5 at the time and I was told Kawasaki tends to develop in under fives....
Take care of you too. I got very upset about two months later when I felt able to cry about it.