Tamoxigang New Year, New Thread, *46*

[BetsyBoop]

Hands round a for everyone.

wren you are right, it sounds ridiculous but it feels so much better now we know what's going on, the waiting in the last few weeks has been awful, even yesterday, when he had the CT scan, we had to wait until today to see if it had spread (thankfully they think not) I know it's gonna be a struggle but DF is, at the moment, positive which I hope continues
The course of radiotherapy is daily for 6 weeks,

Good luck tomorrow really. I bet you will be celebrating afterwards. Fingers crossed for you.
Have you chemo later this week too? I know our schedules are similar.

Yes momofTwo I'm due Chemo number 5! Second Tax!! On Friday! Assuming my bloods are okay and the scan results don't cause any issues! Was dreading it before, but after today's drama, I'm really dreading it! I just want this week over with.

Morning all, I say morning I've been awake since 3! TRYING to keep myself away from 'google'! I succeeded, which is good. Because quite frankly I'm panicking enough, without adding to my list of what could be causing this

Oncologist appt is at 10, so not too long to wait! You never know I could be off celebrating by 11 (she says hopefully)

Anyway I hope everyone else is having a better week. Thanks again for all the hand holding and positive thoughts. Xxxxx

Morning everyone
Will be thinking about you at 10 really and sending positive vibes, hopefully soon after you'll be celebrating and catching up on some sleep !

Good luck really thinking about you this morning

Yesterday was incredibly busy. No rest for the wicked in hospital. Lol
Ups n downs. Can't say I didn't cry a couple of times yesterday (exhaustion after walking in corridor and having had no sleep - pain every 30 mins). But rest of the time I was v happy with visitors galore and seeing such amazing progress in my Ealing. Even climbed the fake stairs (all 3!). Lol
I'm being released discharged today after 8 days in hospital and feel sad. Yes - sad. I'm going home to little sympathy and a lot of effort (not easy with DS or... Thjngs aren't easy). Dreading it but hope it'll be easier and more pleasant than I fear. I'm afraid of waking in the night in pain, being in charge of my medication with addiction issues. Although these have never been with drugs (food), I know I'm susceptible and I'm scared. I'm scared of waking every 30 mins in pain as DH tells me that HE couldn't tolerate this as he'll need to sleep to take DCs to school/ nursery or to go to work!
I'm worried about getting to the right Physio. Doing the exercises properly, arguing with DH. Overdoing it without realising that I am. I'm just worried.

Good luck this mornig Really -I am sure you will b eoK - it is most likely the effects of chemo plus the lack of rest that you have had.
Don't forget to tell your onc about your anxiety and lack of sleep - you need to get it sorted for Friday.

Just whizzing by to squeeze really's had really tightly.

Will catch up properly later.

Goodness good luck with your "Ealing" (Broadway?) and hope you get decent support at home.
First day of my new drugs regime (Capecitabine). Collected two bags of drugs from hospital yesterday, including mouthwash! Then went to another hospital to collect DH from hernia op (we are now into competitive invaliding). And it was my birthday ... And we didn't open any champagne!

Putting out soothing for all

Thinking of you all and especially really today.

I have another two weeks to wait for my appointment "to discuss genetic implications". I'm taking the wait as a good sign. Still want the lump removed though - I want the fecker gone.

The chemo has whacked me again - physically and emotionally. I have now done 6 out of 8 treatments, so I am three quarters of a way through, but that thought is not lifting me. Maybe it is because of the labour like stomach pains, unable to move away from a loo and a mouth feels shot to pieces - there is no pleasure even in chocolate at the moment.

Really - Thinking of you today - will check back in later to see how you are doing.

Goodness - Hope you are doing okay? I have missed alot of your recovery due to my bum being firmly plonked on the loo, (no wireless at my Mums)! When do you get your results?

Wren - Wishing you all the best for your first chemo tomorrow.

Lily - Happy Birthday for yesterday! x Hope the new meds work out and that you will be able to celebrate away from a hospital setting!!

Love to everyone else. x

and

thanks for hand holding. Be back on later. Just need some time to think Xx

oh Really sorry to hear you have not had the best news - have been sat here thinking of you - hugs.

Lily - Happy Birthday.

Tiny - That's tough. Only 2 more to go, you'll get through it. I've only 2 more to go too. I get the taste bud problem too. Chocolate tastes vile for several days during the first week and then gives me heartburn the following. Same with wine.. But on the bright side, it is great for weight control!
Can you take anything for the stomach problems? Have you mentioned it to your chemo team?
Hope you start feeling better soon.

Goodness Good luck on your homecoming. I hope you get some support and rest. Also, if you can manage your nighttime meds yourself, have your DH sleep in spare room, etc, so he can have his rest. My sleeping habits can be terrible during chemo, lots of waking up and tossing and turning, and DH snores! DH is in spare room except for weekends. We both benefit from the resulting improved sleep.

really I'll just let go of your hand very briefly to give you a great big - been thinking about you all morning too.

Big hugs really. We're all here when you're ready

Lily happy birthday hope the new drugs go ok

Tiny sounds horrid, it does get tougher towards the end. Have you had anything to help with the stomach problems ? Hope you feel better soon

'Competitive invaliding' made me smile.

Really thinking of you x

really popped back to see if there was an update, but when you ready. Holding your hand.

Me too really, lots of love x

just popping by to leave more hugs for really - been thinking about you all afternoon.

Hope the SEs on your new drugs are minimal lily and happy birthday for yesterday at competitive invaliding

tiny hope you are doing okay, I found each round just that little bit harder :(

goodness any news on your results? Hope you are doing okay - did you get discharged today as you thought you might?

honey gladto hear your DF has no spread. Compared to chemo I found rads fairly easy. They tell you to drink lots of water and it definitely helped me. Also regular smothering with whatever cream they recommend for the skin at your DF's hospital. I think rads to the neck can often give you a really sore throat, so perhaps have some soft foods ready. The SEs build up though, so he'll probably be okay for the first week or two. It's just a bit tiring and tedious being at the hospital every day (I did 3 weeks and that was bad enough!)

Another one just popping in to hold Really's and Goodness's hands