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Yesterday, I found out that ... and I'm scared.

606 replies

GoodnessKnows · 12/12/2013 02:53

I will be brief as I feel like I've entered a time warp where my brain has frozen, incapable of long sentences:
Had hip pain and have been waking at 3am most nights with back pain (not terrible) for about 1-2 years.
Thought I needed a firmer mattress.
Finally went to consultant.
Two MRIs and an X-ray later, I was ushered into a private room having just been told that a large tumor is at the base of my spine.
They called me back in within one working day of the second MRI.
I'm now waiting for a biopsy which will be on Wednesday or Saturday of next week - to determine its 'nature'.
Scared
Shocked
There was talk of chronic bone erosion in the lower back as a result of this thing. Also discussion of nerve paths and tumors, rare cases and cups of tea.
Now, lying awake as usual in mild discomfort, I'm in utter shock and disbelief.

OP posts:
GoodnessKnows · 18/01/2014 06:09

Tough day yesterday and DH going away to India for 'my last week' before The Op. I'll PM you, Rosa feeling low.

OP posts:
GoodnessKnows · 20/01/2014 04:31

Give medical calls to take / make today. As if I've nothing else to do! I'm overwhelmed! My life was going so well Confused

OP posts:
LadyMacbethWasMisunderstood · 21/01/2014 13:36

I hope things are better today.

I've been lurking since early on but didn't have any real advice. Just wanted to hand hold and wish you well.

GoodnessKnows · 21/01/2014 20:53

Feeling low. DS being Right Royal fucking pain. Behaviour off the wall ... and I so neeeed him to be good. Doing everything I possibly can to help him to be but he's sensitive n is bound to be picking up on all this. Feeling low. Hmm

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Alibabaandthe40nappies · 21/01/2014 20:56

Goodness I have lurked as well and not really known what to say.

I'm so sorry you're going through this.

How old is your DS?

JuliaScurr · 21/01/2014 21:10

hospitals usually make arrangements for home care when you are discharged - is this system the same everywhere?

cjel · 21/01/2014 21:30

Evening Goodness. I was around in December and then lost you. Hand holding is all I can do I'm afraid. Maybe offering some more sand to make sure you don't have to come up too often?xx

GoodnessKnows · 21/01/2014 22:32

He is 6 (just )
and I'm holding all glands offered. They're keeping me from falling in a scary hole ;)
Thank you

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BehindLockNumberNine · 21/01/2014 22:33

My hand is still here too xx

GoodnessKnows · 21/01/2014 22:41

Squeezing tightly.

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BehindLockNumberNine · 21/01/2014 22:57

Ouch!! Wink Smile

GoodnessKnows · 22/01/2014 03:31
Grin
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cjel · 23/01/2014 17:50

thinking about youFlowers

SauvignonBlanche · 23/01/2014 18:29

Bloody hell, I can't believe I missed this thread, it's so similar to mine here.
I was supposed to see the consultant on Christmas Eve, I'm so lucky the clinic was cancelled and my Christmas wasn't ruined, like yours.
All the very best OP. Flowers

GoodnessKnows · 23/01/2014 19:39

Thank you for thinking of me.
I'm going to read it now!!!

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ancientbuchanan · 23/01/2014 23:08

Hand holding here too.

GoodnessKnows · 24/01/2014 07:40

Thank you ancient. Things have become very quiet since the last of the diagnostic tests, pre ops, visits to consultants and surgeons were made. Until Wednesday it's been almost daily with visits, tests and calls Hmm
Now it's quiet.
But my DS is ensuring that it's stressful and that I'm distracted while waiting. Holy cow, he's doing a fantastic job of that!

OP posts:
ancientbuchanan · 24/01/2014 08:28

It's uncanny how they pick it up...

When does your Oh get back? And what three cherishing things are you going to do for yourself before you go in?

Eg a bath with a glass of wine, a half hour with a kindle, and that last chocolate? Or buy a new nightie to be brought in for afterwards or new slippers?

helzapoppin2 · 24/01/2014 11:18

Goodness, just wishing you all the best for the weekend, and hand holding!

gingeroots · 24/01/2014 19:57

Thinking of you as well goodness . It's so horrible to be in a situation where you have minimal symptoms and have to have major surgery which will take serious time to recover from .

Don't take anything too new or special into hospital - I had to throw stuff away afterwards as it took me back to how I felt before I went in .

Head in sand girl and focus on how surreal it is and how it feels like you're someone else going through it .

And let the little ones watch too much TV ... and eat too many biscuits ?

SauvignonBlanche · 24/01/2014 20:08

Where are you having the op, Stanmore or the Wellington?

GoodnessKnows · 24/01/2014 20:43

A reply to you all (how DO you all remember who write what?!):
I'm giving to have an Indian head massage on Monday. Luxury known only to me on my hen day!
Children do puck up on things but his behaviour us ridiculously bad for him. I understand why (maybe) but it's v worrying when I'll not be here to deal with it or support/ inform the school.
RNOH Stanmore
Definitely more TV and biscuits! Lol

OP posts:
SauvignonBlanche · 24/01/2014 20:51

I'm glad to hear you're going to RNOH, it's the place to be in your neck of the woods.
I did my orthopaedic nursing course there (many years ago), they really are a centre of excellence despite being in the middle of no where.

GoodnessKnows · 24/01/2014 21:25

Yup
Looks like the place has been constructed by the flipping Wombles!
DH home
Thank The Lord!

OP posts:
really1234 · 24/01/2014 21:40

Just read all if this. Good luck Goodness, will be thinking of you next week.