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Original poster

*TAMOXIGANG* All the fours...44!

960 replies

GoodbyeRubyTuesday · 21/10/2013 19:43

Apologies for the bingo reference, couldn't think of a witty title but the other thread is very nearly full.

In honour of our new thread I have piled extra apple pudding on the trolley so tuck in :)

OP posts:
malteserzz · 27/10/2013 08:36

Sorry to hear you're feeling rotten foo foo Hmm sounds horrid have you got a chemo helpline to ring ? I've got a 24 hour number I have to ring with any concerns rather than going to the gp

Anyone worried about the storm ? I'm in the midlands and it's very windy but sunny, keep telling dh we need to do something with the trampoline but he thinks I'm being ott

amberlight · 27/10/2013 09:41

Foofoo, I agree with Malt about starting with the chemo helpline. They should be able to ask an on duty Onc who will be able to refer to you someone else if needs be. You definitely need your blood to be at a good level.
Malt, you should miss most of the storm there. It's now forecast to hit the South coast, so Midlands might see gusts of 60mph (still v windy). No harm in weighing things down or tying them to something very solid.

PictureThis · 27/10/2013 09:48

Funny you should say that about curry Malt, I normally love a hot curry but can't take them at the moment, they're too spicy. Lemony things taste weird too, and chocolate Sad

foofooyeah · 27/10/2013 10:02

My oldest son has rung my sister who is coming over. And him and youngest are now cleaning kitchen. I'm not used to feeling this low and indecisive.

topsyturner · 27/10/2013 10:38

FooFoo call your chemo help line number .
Honestly love , it's what they are there for x
(I have been through periods , since diagnosis , where I haven't been able to decide what to have for dinner ! So I understand you completely !)

Shootingatpigeons · 27/10/2013 10:54

FooFoo I had a couple of horrible periods during chemo, it messes with your hormones. Do ring and see whether the helpline can help. I am sure it is common. I was very relieved when they packed up.

smee · 27/10/2013 10:59

Yes, call them foofoo. That's why they're there. If you don't watch it you might need a transfusion to replace levels you're losing. Hope they are helpful. xx

foofooyeah · 27/10/2013 12:00

Called them. Reassured. Blood levels were good on Monday and won't start dropping just yet from chemo in Wed. Said f I feel any worse to call again, and they will talk to doctor about medication t help with periods. Thanks fr your dice.

Sister just gone for pizza and we re planning on watching some old films.

malteserzz · 27/10/2013 12:23

Glad you were reassured, pizza sister and old films sounds a good tonic for you Smile I've rang the helpline a few times just to check things and always found them helpful

Marshy · 27/10/2013 13:12

Afternoon all,
Feeling a bit pants here this weekend. Can't motivate myself to do much and a bit tearful, fretting about op on Weds. Also paranoid I'll catch something and won't be able to have it. Both dh and ds have a bit of a sore throat and sniffles/cough so I'm trying to keep my distance. We gave a lift to ds and his friend yesterday and he was full of cold so I kept my nose covered and wound all the car windows down after he got out - I think im going a little bit mad.

Gonna cook roast chicken this afternoon and then chill on the sofa.

Foo glad you got some reassurance. Can you top up on iron rich food? Sounds like you have a nice afternoon planned.

I'm just listening to the weather forecast - sounds exciting. Watch out for flying trees everyone. It would be a bugger to beat bastard cancer only to get a donk on the head from a passing branch. What are the odds amber?

Malt I'm in the midlands too Smile

amberlight · 27/10/2013 14:04

Marshy, I'd say if you're nowhere near a tree in the gales, the odds of living remain high Grin

Marshy · 27/10/2013 14:22

Yay! May put a hard hat on when I go out though, just in case Grin

malteserzz · 27/10/2013 14:45

Wonder how far you are from me marshy I'm east,sorry you're feeling down must be something in the air today :(

DollyDeeDee · 27/10/2013 16:45

Hi, Thenight & Ruby, just wanted to know what other effects occur following your op. Are you able to eat as usual? Does it affect your social life at uni at all? just curious as my daughter (aged 15) is due to have the op in the summer hols. And anyone further down the line with FAP following surgery, are there any career choices that you would avoid or is it possible to do what you like? Worried for my daughter in a high pressured environment- don't know what to advise for the best....guess we will wait and see. It was a shock for us, too many questions and still so ignorant....God bless you and your strength...

Original poster
GoodbyeRubyTuesday · 27/10/2013 17:30

Dolly what surgery is your daughter having? There are different operations depending on the severity of the condition etc. I had a two stage ileo anal pouch surgery.

I have no idea about careers etc with FAP as still at uni myself. My geneticist advised me to get a financial advisor when I need a mortgage or big loan as I'm less likely to get one, but I think that's partly because I've already had stage 3 cancer as well. I'm hoping your daughter's has been caught before cancer developed? If so she might have better chances, still worth getting advice though.

OP posts:
thenightisyoung · 27/10/2013 22:43

Hi Dolly, my operation was less drastic than Ruby's as it wasn't the whole of the large bowel that was removed and I didn't have to have chemo. For me now I have very few side effects and certainly none that stop me living my life pretty well as I used to. In fact I'm probably more active and fitter than I was before. That being said I'm nearly 50, I don't stay out late and I hardly drink so quite a different life to a student!

That being said I commute into London every day and have a fairly high pressure job which is all very do-able. I found that for me things seemed to improve in chunks of three to six months - it took about three months post op to stop feeling extremely delicate and not have to be really careful about what I ate, then six months a lot better though some foods would still make me uncomfortable, then at a year more improvements and now nearly two years post op feeling more or less back to normal. Basically it's a big op and takes a long time to recover from it and adapt to any changes though it's still possible to live your life whilst you are recovering.

It must be such a worry for you but I think you are right with taking a wait and see attitude.

thenightisyoung · 27/10/2013 22:44

Btw, I got a new mortgage recently and no one asked any questions about my health!

foofooyeah · 28/10/2013 07:48

Good morning all, hope everyone is safe and dry. I'm still in bed and plan to stay here for a while.

kitkat1967 · 28/10/2013 07:52

Morning. Had another bad night but as no-one else is up here I'm going back to bed in a mo. Despite being in the SW there wasn't much of a storm here after all - lots of rain but not the wind that was predicted - DCs will be disappointed.
Oh and it's DS's (10) birthday today but as it hols I'm not expecting him to surface until lunchtime.

foofooyeah · 28/10/2013 08:14

Happy birthday to your boy Kitkat! Hope he has a good day

malteserzz · 28/10/2013 08:26

Morning all
Just rain here and a bit of wind bit of a damp squib really !
Happy birthday to little Kitkat Smile

Original poster
GoodbyeRubyTuesday · 28/10/2013 08:59

thenight that's good about mortgage, thank you. Maybe my geneticist was just being alarmist! That's been one of the things that bothers me most about it all. Also pleased to see you are coping with commute etc. Like you I'm much fitter, or on my way to being, than before surgery, apart from the bowel stuff. Even with that disturbing my sleep most nights and being slightly anaemic still I have so much more energy now than I did for probably years before the op! Apparently my bowel would've been sapping my energy as it was trying to heal itself and because it had to work so much harder to absorb stuff etc.

Morning all, it's been incredibly windy here overnight. The tree outside my window was almost bent in half and as I had my window open the wind managed to fully draw back my curtain twice! Very powerful but I found it beautiful and fascinating, didn't have a great night tummy-wise so spent some time watching it all.

I hope everyone is having a lovely day so far x

OP posts:
BetsyBoop · 28/10/2013 09:10

Morning all

happy birthday little kitkat :)

Lots of rain here but too far north or much in the way of wind.

We walked into Alston yesterday, only about 2.5miles in total and a gentle incline, but I almost didn't make it back. I won't be doing that again! Six months ago I wouldn't have given a second thought to such a tiny walk, it's so depressing how weak and feeble I feel :(.

DollyDeeDee · 28/10/2013 09:43

Thanks Ruby and TheNight, very encouraging. She will have the partial bowel removal. Interesting about the bowel draining your energy as she sleeps alot and is always tired...I put that down to being a teenager but this may have something to do with it too..perhaps. As far as finance is concerned ..it's the life insurance that could be prohibitive, but again we shall see...

Shootingatpigeons · 28/10/2013 11:51

dollydeedee if your DD's doctors are saying that she has been treated and the chances of recurrence are no worse than anyone else's then they cannot discriminate under the legislation. I have now had a few run ins with various insurance companies and they have all backed down. We just took on our own private medical insurance as my DH has retired and they didn't even try and apply higher premiums for me (my odds of recurrence became less than the average woman's after 5 years). Mind you my existing life insurance company having paid out a large cheque for critical injury cover tried to lose us when we moved, and then said they couldn't speak to is because they didn't have our current address. I am sure it was an admin mix up Hmm there are though specialist brokers who will find you the best deals, Macmillan are very good on financial matters.