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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
kianaidan · 16/02/2014 18:18

Thank u all. I.m really sorry was having such a bad day. But I do feel a bit better and wudn.t do anything silly. I have 3 boys who need their mummy. Mine are 8, 6 and 7mths. I.m finding thing difficult as no diagnosis and having to gyn as well as a colorectal surgeon separately. I liked how u said walk in the park with NO IPhONE frenchfrogbutt - it nevet seems to ne far from me. I.m sorry ur all having to go through this. I thought France were better at taking care of pf after pregnamcy. I.d heard all women get physio after birth. Hopefully there just as advanced at treating problems.

Noordinarygirl · 17/02/2014 14:41

1 more sleep to go now. OMG please keep all your collective fingers crossed and pray for me tomorrow! I will FINALLY be having a sacrocolpopexy - almost 7 weeks after the original was cancelled! I am 'bricking it' to say the very least. I'll be back on to keep you all updated of my progress following my op.

I must say a big, sincere 'Thank You' to everybody who's supported me over the last couple of months on here especially Happy,Dragon and Alis. Tinkxx I shall PM you as soon as I can so you'll know what to expect!

Here goes............

Frenchfrogbutt · 17/02/2014 19:20

Hi kia
Actually France is indeed quite good at managing of maternity issues but i have myse?f a long story of hormons treatment to get prégnant plus constipation and big baby well s...t happens !
I dont know regarding treatment i am afraid most of the docs are not enclined to offer chirurgy to young women .it is difficult to get one unless
Everything falls out. They Will encourage me to live with IT to get physio etc . Especially as i am 4 pp and breastfeeding .
We also definitely pushed systematically on a very specific process to monitor the évolution colpo defecography , scanner , étc

Well i guess i Will have to lfollow the process and wait and pray IT doesnt affect too much my Life ans job i am travelling a lot Will i be able to going on like that ?
Did someone estimated your prolapse yet ? What are your symptoms?
Good luck noordinary girl ! !

happylilme · 17/02/2014 19:24

Got my fingers crossed for you Noordinary. You will be fine I'm sure. Although consultant may wonder why the hell you have brought your vibrating rabbit with you. Might think it's your lucky charm.

Keep us posted.

Kian so glad you are feeling a little more positive. Go armed with a list of questions and concerns. Say how it is effecting you emotionally. They are there to help you, feel strong you know your body better than anyone and don't let them dismiss your problems.Say exactly what you think is wrong and ask them what are your options.

greeningthedesert · 17/02/2014 19:38

Good luck noordinary!

And hang in there kian. You won't always feel so horrible about yourself and the pop. Really. Someone once posted a link to explain pop to partners. It may not have been on this site. I'll see if I can find it (maybe he'll have the patience to watch it if it's all set up).

Regarding the movicol. Its obviously your own choice, but I'm not sure how much I would rely on just one website. He's not a medical doctor and seems to have somewhat sensationalized and cherry picked the data. When i looked for peer reviewed articles on safety and polyethylene glycol 3350 (movicol), then I couldn't find any which were stating the same fears or risks. They have yet to do very long term studies, but my reading of the published literature is that it seems safe in the medium term so long as a. you stick within the stated daily dose and b. you make it up fresh each time from the powder rather than leaving a premade drink to stand all day or longer. Certainly one has to weigh one's own risks such as long term laxative dependency or electrolyte imbalances from stimulant laxatives, or risking the prolapse from constipation or sugar with diabetes. I certainly hope I can find way of dietarily managing things in the long term (tomatoes, clementines, oats etc), but will not totally rule out movicol use.

happylilme · 17/02/2014 19:38

Frenchfrogbutt, over here they only operate if you are finish having family. Unless everything falls out. My prolapse was measured,highly embarrassing as there where the consultant and two students. Mine was due to poor stitching after birth of ds. Mine was rectocele back wall prolapse.
My symptoms were
Dragging feeling in my pelvis area.
Feeling like something was going to fall out
Unable to poo without splitting ( had to place fingers either on perineum or actually just inside my vagina(sorry tmi)
I could actually see my prolapse at entrance.

Mine would not improve even doing pelvic floors.

greeningthedesert · 17/02/2014 20:19

Kian, the only link I could find was something by the well woman website, which may not be what you are deter, they are very anti surgery and do push their own agenda, which may be good, but just not very mainstream. This web page seemed to explain things very clearly, although it may not be something you want to share with DH. I was thinking about the babysitting aspect, if you go in school time, could you not just both bring the baby with you?

greeningthedesert · 17/02/2014 20:20

Suspect I meant after instead of deter...

happylilme · 17/02/2014 20:27

Greening did you back to work? How has your recovery been?

kianaidan · 18/02/2014 08:31

Thanks all. Happylime - he has been a bit better and coming to my appt with colorectal. Frenchfrogbutt - France sounds very similar to hear I.ve had a few very spaced out appts and no further forwatd 7mths pp. I have a diagnosed minor prolapse (not sure which orgN) But I wasn.t stitched up right and I think this may have created a rectal vaginal fistula. I have gas come through front and period comes through back. However I.ve had to self diagnose this as no one wud listen. But I do now have colorectal in March. I also have an awful clean up after bm and have to use baby wipe inside for some reason. Sorry for tmi.

Frenchfrogbutt · 18/02/2014 10:49

Hu The clean up after Bm sounds familiar too ( i have a rectocele diagnosed by a procto) the dragging feeling ( which drives me crazy) etc happylime do you Stills have this feeling after the operation ? Would you say that most of your symptôme disapeared or at least diminished ? I know we will never go back to before prégnancies but how much the operation is worth ? At last ( isorry i am in a question mood today!!) were you given choice between laparoscopy and vaginal approach ?

Have a great day !

mrsclairet · 18/02/2014 15:01

Good luck noordinarygirl.

happylilme · 18/02/2014 18:41

Frenchfrogbutt, my symptoms since op, just over 10 weeks ago, have gone. It has greatly improved my life, dragging feeling gone. That feeling that something is dropping is gone. At the moment just keep doing my pelvic floors. I'm on movicol twice daily. I don't mind this as I'm scared to push to hard during bm. Hopefully I will get to the stage when I don't need them.
My op was vaginally, not offered laparoscopic. Although uncomfortable after op, it was nowhere near as bad as I thought. Didn't have any real pain as such. I am back to full working order with husband if you know what I mean and sex is not painful at all. A lot more feeling than before. Smile

Frenchfrogbutt · 18/02/2014 20:15

Hi ,happy Its great you had a good healing process and i guess it Will improve again. You completely right to keep on the laxatives as long as you need i wouldn't Mind to take them forever if it takes that for the rectocele not to come back. On my side eventhough they Will tell me not to get the operation any soon i think i wont be able to wait too long i
Am just afraid to do the right choice of operation ( laparoscopy or vagina?ly ) and the healing process as i dont think i have a good scaring skin IT took me ages to get over the épisiotomies i had .
Well tonight not a good one just couldnt go to the toilet this morning went tonight and ooops felt a bulge at the entrancd of the vagina . SO disgusting IT made me feel SO low...
Tomorow Will be better !
Good Night

RainRainRaining · 18/02/2014 20:46

I was just wondering if anyone had any experience of a surgeon called Mr Stergios Doumouchtsis at St Georges? I am considering a repair and planning to consult him. Please could you PM me if you do.

Laughingeyes2013, your physiotherapist doesn't sound great. I was also sent to see a physio I didn't find helpful. However I now have a good one and it has made a big difference. I am seeing her privately but her fees are quite reasonable so if you live in the London area then do feel free to PM me and I will send you her details.

Good luck to all those planning, awaiting or recovering from operations.

Footle · 18/02/2014 22:34

This reply has been deleted

Message withdrawn at poster's request.

Frenchfrogbutt · 19/02/2014 08:03

Hi ! I should change my pseudo to question girl ! Were you proned to constipation before the rectocele.? What kind of éxams did you have ? Colpo defecography ? Irm ? Scanner ? Many thanks !

Nannasylv · 19/02/2014 14:30

Hi all, I almost feel guilty for saying just how well I feel, post-op (20 days), but perhaps it's a good thing that some fears may be allayed for some who are about to have surgery.

I am still sticking with the prunes, about 3, 2/3 times a day, and my usual high-fibre diet. If I feel like things are getting a bit sluggish, I sometimes have a spoonful of Andrews, just before bed (although I haven't needed it for a few days!). I drink loads of fluids (always was a bit of a tea-belly lol). Ibuprofen has really helped with the tenderness inside, and I suspect, has made going to the loo easier (less inflammation?), and Anusol suppositories when I've been a little sore as the increased bowel movement is rather alien, after nearly 18 years. I avoid Paracetamol and other painkillers, as they always made the constipation worse. I tried my smooth toy (only on the outside) this week, making sure I was on my back, as I couldn't think of any other way to gently exercise the inside, and everything worked fine! I don't know when I'll take it further, but I suspect I'll ask the surgeon (Mr. Harmston) before I chance it inside.

I have no regrets at all, and feel that this has given me a whole new lease of life, but (after reading what others have written here), I'm wondering if I have been exceptionally lucky?

Hugs to all. XX

happylilme · 19/02/2014 15:30

Frenchfrogbutt, I didn't have any scans it was so obvious what was wrong. The only thing he did was measure the size of prolapse then suggested I have reconstructive surgery on perineum. He actually asked was I always like that. Cheek.
If you do get the opportunity to have op I would recommend it. I know how you feel as I felt the same but as footle said the lovely ladies on here understand and unfortunately it's just something that happens.
I have been prone to constipation in the past so use to laxatives by now.

Frenchfrogbutt · 19/02/2014 21:01

Hi all , happy thanks i am just terrified to consider the operation and unhappy with the situation . I am somewhere in a no mans land .
Saturday i am going to see a gy very specialised on those issues just made the mistake to Google him and find and article where hé emphasized on the high rate of récurrence thats why i quote he wouldn't consider except very tough grade 3 thz operation under the mid fifties .... Well i guess thats IT for my hope on this appointement...

Dragonroad · 20/02/2014 09:54

Noordinary, I am taking your silence over the last few days as a very good sign. I hope all has gone well. I will look forward to an update when you are ready.

Dragonroad · 20/02/2014 09:55

Nanny, really glad you are trotting along well.

greeningthedesert · 20/02/2014 19:37

Happy, thank you for asking. I’m 5 ½ weeks post-surgery now and returned to part time work a week ago. And full full time parenting as DH is away for this week and next week. Things feel OK – although very lumpy and bumpy. I’m continually worrying that I’ll have caused the prolapses to happen again and it will all have been wasted. But I’m in no discomfort or pain, just exhausted. I worked two hours this morning then came home and slept for an hour. Is that how it is for everyone? I like reading your updates, and think this is how it might be in a few weeks time. Glad things sound as if they’re going very well.

Nannasylv, I’m also very glad things are going well for you. It says something about you that you can say you feel exceptionally lucky, when you had to wait so long and fight so hard for surgery. You definitely deserve a good healing.

BocaDeTrucha · 20/02/2014 21:43

First time poster on this thread but really just need a bit of hand holding. Gave birth to ds 5 months ago, forceps delivery, 9lb baby and 2 stitches. Recovery after birth was much harder than I ever expected but things seemed to sort themselves out.

However, as time has gone on, things have just started to feel heavier and heavier and things at the front have been to feel odd, with that dreaded bulge at the entrance to my vagina. Then I had awful diarrhoea and embarrassingly had a couple of little accidents when I couldn't get to the loo quick enough (luckily at home). Then I get constipated and find it impossible to have a poo, even though I know it's all there, I just can't get it out and it all feels very heavy down there.

I got an appointment with a specialist quite quickly and have now been told I need to go for rehabilitation for a rectocele. I'm not sure how serious it is or if it's more complicated as I live in Spain and although I speak good Spanish, things like this are so difficult to understand.

What sort of success am I likely to expect from rehab? I try doing my pelvic floor exercises but it just feels like nothing is happening. The doctor said squeeze, and I had to reply "I am squeezing".... Clearly bugger all going on when I do squeeze!

I'm only 40 and feel very nervous about this being something that's going to be with me for ever...

Frenchfrogbutt · 21/02/2014 07:16

Hello sorry for the gross détails but IT seems that my rectocele is getting worse everyday . I wasnt able to sleep since 4am bécause of the pressure the bulge was almost out i could feel IT when whipping after peeing. I hardly eat and takes lot of laxatives . I take small portions i dont understand the volume of my Bm is huge. How did you find a good diet balance , Shall i use glycerine suppositories at Night ? Any Advice welcome