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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
RainInTheSky · 03/01/2014 23:29

MissyTJ, definitely go for a c-section if you have another. I thought the damage had been done with number 1 so if wouldn't make any difference to have the others naturally and that I should avoid damaging other bits of myself by having a c-section but actually it has made everything much worse to give birth twice more.

I had a mild prolapse without symptoms after number 2 and I did actually ask a doctor if this made it a bad idea to have number 3 vaginally. He said that sometimes prolapses get a bit worse after another delivery sometimes a bit better. I should have done my own research because the more vaginal deliveries you have the more damage gets done and the worse things get. Frankly I am yet to hear from any other source of prolapses improving after further vaginal births.

Anyway number 3 was actually the worse delivery of the lot. He was bigger than the others, the midwife was hopeless and the delivery was rushed. Then they missed the fact that I had had a third degree tear and didn't get me sewn up properly.

Now I have a damaged internal sphincter and a cystocele. Finally a consultant has suggested that if I have any more I should have a c-section. But I am definitely don't want any more.

IDoAllMyOwnStunts · 04/01/2014 10:47

Well I was all of a dither when the anaesthetist put me on the spot and asked me to choose between a general and a spinal block. I got the feeling she wanted me to choose a spinal, so I went with that(crap reason I know!), she did say the recovery time was better, not sure what she meant by that as it took 7 hours for my legs to work again afterwards due to numbness. Don't think I was really thinking straight to be honest. Think if I'd have had a general I'd have been walking about sooner and they'd have sent me home that night. As it was I stayed in (which was lovely, own room, meals cooked, TV, didn't want to go home!)
Anyway, it was an experience. Didn't realise how squeamish I was until I saw them doing the op, very weird, no screens up, nothing. Around 8 people in theatre stood looking at your fanjo, with your legs in those stirrup things, mortifying!
Anyway, all done now and so glad I had the op. Was wary beforehand as all I could find were horror stories on the net.
No funny stances when I sneeze, have not peed myself since, and I've had a cold recently with humungous sneezes, before this op I'd have been soaked through and singlehandedly keeping Tena in business..
Best of luck DoINeedHelp, hope yours is a success I'm sure it will be, take it easy after the op though, I left it a good 3 weeks before driving or lifting etc. x

Kveta · 04/01/2014 12:36

wondering if i need to join this thread.

have had atrocious cough for past month (2 different colds, so cough has not had a chance to go away!), and after 2 forceps deliveries (2009 and 2012) I have had incontinence problems every time I get a cold. Went to GP for that in the autumn and she told me I have to lose weight before she'll refer me anywhere (am size 16-18, down from a 20 last new year!!).

Anyway, the other day I coughed really hard whilst on the loo, and when I went to wipe, felt rather more of my cervix outside me than should be. managed to push it all back in, and got DH to have a look later (his assessment is that I need to see a doctor as my bits are not normal now Hmm). So I do plan to see GP in next few weeks, depending on when I can get an appointment. But I'm worried they will just tell me to go away and lose weight again (easier said than done when piddling constantly during a cold!) and I'll be no further forward.

Just a bit clueless about what to do next, because who can I talk to about my innards falling out without them just recoiling in horror!

Sorry for the stream of consciousness, I'm a bit lost Confused

Footle · 04/01/2014 13:21

This reply has been deleted

Message withdrawn at poster's request.

aciddrops · 04/01/2014 21:11

Just marking my place as I'm trying to pluck up the courage to go to the GP - 8 years after my 3rd child. I can't jump, run, cough, sneeze etc without a leak. I've done loads of PF exercises to no avail and I would love to go jogging. I just watch those women in envy!

Kveta · 04/01/2014 21:46

thanks Footle.

Plucking up courage to call GP on monday and see if/when I can get an appointment! It's all so icky though! I spent years avoiding any internal exams (following sexual assault in my teens), and now seem to have to drop my knickers every time I enter a doctor's surgery. So undignified.

MissyTJ · 04/01/2014 22:50

raininthesky that's awful, are you awaiting surgery now?

happylilme · 04/01/2014 23:12

Raininthesky your third birth sounds very familiar to mine. It turned out that I had a 3rd degree tear after quick delivery. Very busy delivery suite. Stitched wrong. Turned out also that I tore vaginal back wall muscle. After 16 months explained to gp my symptoms, she had a look and referred me straight away. Consultant said that a surgeon should have done my stitches . Left feeling very angry about it. You have my sympathies.

IDoAllMyOwnStunts · 05/01/2014 10:38

Aciddrops you must get to the docs. I left it 10 years, and having just had tvt surgery I am honestly feeling such a fool for leaving it so long. Best of luck, grit your teeth and get that docs appointment made! Having been not able to walk downhills, sneeze etc without leaking I can now do anything, even trampolining. My friend are all very jealous! You really don't need to suffer in silence. X

aciddrops · 05/01/2014 12:57

Thank you IDo I'm impressed at the trampolining! When I tried that I was just like a giant water bottle being shaken without having the lid on. Not nice.

RainInTheSky · 05/01/2014 15:55

happylime, sorry to hear that you had a similar experience. I keep thinking back to my post birth experience. There were two young doctors taking it in turns to stick their fingers up my bum and debating as to whether it was a third degree tear or not (unfortunately and wrongly they decided not) while I inhaled gas and air. I so wish I had intervened and insisted on a second opinion from a more experienced doctor. The ward was also very busy that day. I had to wait an hour and a half from the birth to even be examined while I lay around on blood soaked towels not able to breast feed properly.

MissyTJ, I am having physio at the moment. I have a feeling that I will end up having surgery for the cystocele but probably not for the internal sphincter defect. That is because my external sphincter is still intact and apparently to operate would risk damaging that too. I might seek a separate opinion on that though.

IDoAllMyOwnStunts · 05/01/2014 17:01

Aciddrops I am annoyingly evangelical about getting this sorted, like a reformed smoker. I was so embarrassed I sobbed to the doctor when I first went, thought I'd be fobbed off and be told to put up and shut up. At no stage has anyone ever made me feel like this, so wish I'd done it years ago. Let us know how you get on. X

happylilme · 05/01/2014 17:24

Raininthesky, scarily familiar. I waited ages to get stitched, sitting in the pool of blood trying to feed my baby. No-one checked in that whole time I had to press the buzzer as my baby was turning blue. Turned out he had fluid on the chest, was took away and I was still left there bleeding.
Like I said im still very annoyed about the whole process. Midwife stitched me up without realising my back wall had teared.
I was told no amount of pfe would improve my situation. Hopefully your physio will do the job Smile

lotsofquestions000 · 05/01/2014 17:43

checking in quickly so haven't read all comments - but no lolly I haven't dtd mainly due to illnesses over xmas and not getting on that well with DH!! To happily I think it was - yes I did feel quite lumpy for a while but it feels great now 12wks on - I get quite excited about it and kind of want to use it haha! But really scared still if have big BM or do too much lifting etc! Noordinary - you poor thing really feel for you lets hope you don't have to wait too much longer x

Dragonroad · 05/01/2014 18:50

Happy - how are you progressing?
I have driven a short distance today but will leave it a few more before doing it again. Bit dangerous!
The pain is generally gone now and I have aches and twinges that are better the less I do. My belly looks about 5 months pregnant most of the tine and is really hard. That is my main issue now. I waddle less but find sitting upright hard and I don't choose to sit on hard chairs at all.
I attempted sainsburys today but it was a big fail! Got two items but the queue was too long and left with nothing. Standing still for too long makes me feel like it is all falling out! I don't think it is as I am in full working order down there and mostly it is ok.
I still sleep every day and if it has been a busy one ( by which I mean more than being home alone with tv, settee and kettle) I feel it the next day.
I don't know if you work, but if you do when would you consider returning? I am a teacher in a school with challenging children and parents and I often have to be hands on with them. I am feeling I might not be back this half term! Had thought before this that it would be much sooner but unless something maraculous (sp) happens I shall be off sick for quite a while.

Good question for everyone else who has been through this - what did you have done and how long were you off work.
(I had a rectocile, TVT, periioplasty and back wall repair)

happylilme · 05/01/2014 20:35

Hi Dragon on the whole I am not to bad, bit like you aches and pains. If I do to much I get these odd feelings around my bum cheeks lol very strange. Im still afraid of getting an infection as my stitches is still in place. (think one has gone a bit pongy) Watching that little blighter.

I have not tried to drive yet was thinking perhaps school run to see how I feel.

I am up and about a lot more went shopping today. I do get that feeling standing for too long as if my insides are about to fall out. My husband has to remind me to stop holding my bits as we are in public Smile.

Regarding work, I work across 3 busy children's centre running groups for babies right up through to five year olds so very physical. I also do home visits and some of these can be "difficult" from being stuck in the middle of dog fights to fisty cuffs. My consultant recommended that I should take 8 weeks off. I have been signed off for 6. Work is very stressful at the mo as we are facing more cut backs and are facing interviews again. So all in all I don't know if emotionally and physically I will be able to cope anytime soon.

By the way how's your granddaughter now??

happylilme · 05/01/2014 20:44

Smile lotsof it's funny the things we get excited about, I keep having little peeks at my new designer vagina. I forgot what it felt like to be this "small". My friends are quite jealous.

Dragonroad · 05/01/2014 21:11

Your job sounds much like mine Happy, in that our clientele is quite challenging and our children centre staff would say much the same as you about their jobs. We get the little blighters into school and as deputy head I spent my days getting children out from under tables, breaking up fights, restraining children and dealing with their charming parents. Like you, I have to be physically and mentally ready to deal with it. Can't really say to them to behave or mrs R's bits will hurt or her bowels will fall out!
Just read that back and I am clearly more of a bouncer than educator!
8 weeks sounds about right to me. I was given a 4 week sick note and told to ask gp for more as I would need to. Was so keen to leave hospital didn't bother to argue about the sense of that.
I am very pleased you are happy with your new designer vagina. Just a shame you can't go back to work and show it off! I feel a bit sad that mine looks different. I am sure it would score more highly to the viewer now but I look like a (hairy) 12 year old! Really can't wait to get a wax tidy up.

Granddaughter really quite poorly. She is now on continuous feeding via a tube that bypasses her stomach and goes straight into her gut. She now also has a second tube that goes up her other nostril to her stomach fot shed loads of drugs. Half her face has disappeared under tape.
They think she has seriously reflux but that it doesn't come alone, as a rule. She is likely to have other issues and is being investigated for a heart condition. Either way she has an alarm that goes off when she stops breathing in her sleep so that someone can shake her awake again. Scary to say the least.

Noordinarygirl · 05/01/2014 21:12

Can I just ask also (along with Dragon) what did you all have done and how long were you off work?

I have written a letter of 'massive disappointment' more than a 'complaint' really, to hand deliver to the hospital tomorrow. I'd just like some answers to my questions ie. who the hell will be operating on me and WHEN!

On another note - I too am quite excited about having a vagina which is where/how it was in my early 20s prior to having children. I guess it'll eventually feel amazing, once totally recovered. I shall look forward to being the envy of my friends. I just hope I won't be one of the unfortunate few who go on to have the mesh eroding through.

Dragon, Happy and Lotsof I', glad you're all recovering OK although it sounds like you need to lay off the long shopping trips and driving a bit longer than expected. Isn't it just so difficult to get people to understand that you're not fully recovered when they can't actually see that anything is wrong - it's all inside. Initially it's easier for people to sympathise but when you're up and about it all gets forgotten far too quickly doesn't it?

Big hugs to ALL ladies out there - try to keep smiling....

CallMeNancy · 05/01/2014 21:29

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Message withdrawn at poster's request.

happylilme · 05/01/2014 21:38

Maybe you should threaten your pupils with your bowels falling out, threaten the little blighters into submission. [Grin]
I really do think I will need the 8 weeks or at least do a phase return. Work is usually fine with this.
How sad about your granddaughter my brother had that. He was lactose intolerant and found he had a narrow valve in his heart. He grew up to be big and bold 27 year old that runs marathons (I give out the oranges). Babies amaze you with their resilience better than adults. Hopefully this is just for a short period Smile

aliasjoey · 06/01/2014 13:17

Please forgive me as this seems quite mild compared to what some of you have gone/are going through - but I'm unfortunately a hypochondriac so worry about it too much (tell me to bugger off if I'm just being silly...)

About 20 years ago I had several bowel operations, they also fiddled about in the rectal area. Since then, permanent diarrhea (caused by missing bowel)

10 years ago, had emergency caesarian 6 weeks early. Doctors said they didn't know why waters broke, but to me its clear my body was unable to cope. Baby pressing on bowel, diarrhea was getting worse and even incontinent Sad After baby was born, things returned to normal.

Apart from diarrhea (and my rectal muscles are pretty strong!) sometimes incontinence and a feeling of 'fullness' in the bowel which is like an urge to go even if there's nothing there. (I've just remembered I had this when I was pregnant shortly before going into labour)

The last year or so, started leaking urine. Blush at first I just assumed it was age (suspect I'm peri-menopausal) but after googling came across this proplapse business. So now I'm doubly incontinent (well not usually faecal unless I've had too much coffee) The dribble (urine) is usually just after I've been for a wee, finished and stood up. Or sometimes just standing up on its own.

I thought if it was menopause related, I should look into HRT - but if it's prolapsy then that won't help, will it? Or is it going to get worse over time/age ?

Thanks for taking the time to read. Just thinking is there a connection - rectal surgery - premature birth - permanent diarrhea - ???

Footle · 06/01/2014 18:47

This reply has been deleted

Message withdrawn at poster's request.

aciddrops · 06/01/2014 19:05

aliasjoey I get that dribble too after I have been for a wee. I need to make sure it is all out / wiped away.

Kveta · 06/01/2014 19:34

Got an appointment with different gp at the end of January (first one available, sheesh!)

Going to write a list so I'm preparedprepared I think!