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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

999 replies

Bladderama · 01/10/2013 18:12

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
happylilme · 18/12/2013 18:24

jcakec - I know what you mean, I have a little kip about an hour after I get up and then again in the afternoon. Im lucky really as a heal fairly quickly, not in any real pain I just get a lot trapped wind. Blush lying in bed now. Im a very impatient patient.

Dragonroad · 18/12/2013 20:38

Jcakec, thanks for the message. It is hugely frustrating. I might get a taxi over to my daughters house on the other side of town on Friday and sit on her sette but I am going to have to get dressed, put a bra on!, organise my painkillers to take over and so it goes on. All feels too much like hard work even if I am desperate for some company and a change of scene. On a more positive note I can sit more comfortably now and I have moved around a bit more.

happylilme · 18/12/2013 22:09

Dragon a change of sette might do you the world of good lol variety is the spice of lifeXmas Wink My bra is constantly off, so liberating lol

Dragonroad · 19/12/2013 21:03

Hi, finally got around to looking at all the paperwork I was given at the hospital and can anyone tell me what 3/7 and 7/7 mean? It was for how long I should take each medication for. Is it for 3 weeks and 7 weeks or is it 3 days and 7 days?

jcakec · 19/12/2013 23:09

Sorry I have no idea what those numbers refer to, hopefully someone else will shed some light. It may feel like a huge effort but a trip out to your daughters might be good for you.

surewoman · 20/12/2013 07:32

I went to a choir practice last night for Christmas carol singing and... there was the blooming Gynae who had operated on me- VERY Blush!!! Found it extremely difficult to concentrate on the music and only managed to mumble 'hello' afterwards, before disappearing fast!!!

Hope everyone is well - for all those recently operated on, please take it easy over Christmas and remember standing up and still is very bad for prolapse recovery, so no volunteering to do washing up! Rest, rest, rest for 2 months and you will be fine xxx Xmas Smile

Dragon - change of scene will do you the power of good x

About the numbers, depending what the medication is, I think 3/7 is for three days etc. (those might be the anti sickness pills post op etc.)

KosherBacon · 20/12/2013 19:06

Dragonroad- 3/7 is 3 days and 7/7 is a week.

Hello! Can I join you guys? I'm 33 and have a uterine prolapse. Had sex on weds night- it felt slightly weird, felt period painy yesterday so thought I should check my coil strings and got the shock of my life.

I got the trusty old mirror out after a frantic phone call to a GP friend and can definitely see my cervix! Arghhh.

Of course, with holidays I can't get in to see a female GP for a fortnight, so am going to have to get the ball rolling.

I have no idea what to do in the meantime. I normally use a mooncup but am now stressing about that as I can't see how it will work with a prolapse and using towels will be horrific as I'm so heavy.

I don't even know if we can have sex. We had sex on weds and it didn't hurt.

happylilme · 20/12/2013 19:55

oh surewoman i'm sure you were mortified. Blush Think I would have been under the pews. Thanks for the advice. I find it hard to take it easy having a 20 month old son, DH is coping relatively well, Just a few little snaps over 2 weeks is not too bad. I think he might finally understand what all I do in a day.
Kosher It's unfortunate to have to welcome you here but I have found the support on here a godsend to be honest, I hope you find the support to. I had a rectocele which is back wall prolapse so can't really help with your type of prolapse. However I know only to well that shock, horror feeling when you first see it Shock. You have my sympathy, I'm just coming 36 and never expected to deal with this so young.

KosherBacon · 20/12/2013 20:27

Thanks Happy. I'm lucky that it's not severe as there's nothing hanging out (dies talking about such a tmi subject) but if I get a mirror I can see. I'm hoping that I can have physio however there is conflicting arguments about how effective this is. I'm accepting that this is all going to take a while to start, as I know it's GP, gynae and then who knows where.

Dragonroad · 20/12/2013 21:03

Thanks foe sorting out the numbers for me. The 3/7 referred to how long the hospital suggested taking the tramodol. I spoke to my gp on the phone a day or two ago and said how much pain I was in and he said to keep taking it. I prefer his advice so will ignore the hospital advice. I only take it morning and night now anyway.
I did have a change of scene and spent the day on my daughters settee. She was just home with her 15 week old baby. After 6 weeks of being in and out of hospital with her, she has been diagnosed with 'the worst reflux we have ever seen'. She is now tube fed and on huge doses of medication. Although I couldn't even hold the baby I was able to offer my daughter some mummy love and reassure her she could cope nursing her on at home. Poor kid.

Dragonroad · 20/12/2013 21:06

Second kosher to our merry band! As happy said, advice and support here is great and as you will have seen by reading through, there isn't much about our droopy insides and symptoms that isn't discussed and understood by all.

surewoman · 21/12/2013 01:57

Hi Kosher - try doing a head-stand (not joking) as all the fallen down bits go back up, then when you stand up, squeeze your PF muscles tight - sometimes it works well and makes symptoms go away for a while!!

Dragon - your poor daughter, what a miserable start to enjoying a new baby. Hope it's all sorted out soon.

KosherBacon · 21/12/2013 06:49

Oh my, *Surewoman". I haven't done a handstand since I was 8 and even then I couldn't really do one!

surewoman · 21/12/2013 08:53

Try lying on your back and raising your pelvis with your arms until it is higher than the rest of you, with your legs in the air (your body weight will be on your back/shoulders)!!! Does relieve all prolapse symptoms! xx

fusspot66 · 21/12/2013 09:01

what about a yoga houlder stand on the bed, with your legs up the wall? would that be more doable ? I've been lurking for reassurance about my prolapse identified by the gp while i wait for gynae appt.it's been more scary than reassuring but i may well try the headstand before my exercises. i had improved symptoms after dtd but there'll be none of that this xmas as i had 2 teeth out at the front this week and have an ill fitting temporary denture and could not feel less like it. wedding anniversary next week.Grin So that only leaves birthdays next year for prolapse realignment. Ho bloody ho.

gottagetthroughthis · 21/12/2013 22:40

fuss sorry but wot is dtd please (Blushes)

Dragonroad · 22/12/2013 07:54

I have no idea what dtd means either,,,
When I was reading this thread before my op I found accounts of how people were doing really helpful, so:
Day 11 today. Really want to have a little walk but don't think I will make it very far. I am more mobile around the house now and can do short stints of tidying up or making a snack. Pain is less now and although still on the co-codomal morning and night can move without bending over and shuffling.
As I have got more mobile I have started getting a dragging, heavy sensation in my under-carriage if I stand for more than a few minutes and the puncture wounds from the TVT have bled a bit. I wrote before about doing bm's! Still very scary and a challenge but am on plenty of laxatives and will be for sometime.
I am still finding it a bit difficult to eat as I don't have much appetite but I am only burning about 3 calories a day so won't be worrying about it any time soon.
I was worried before the op that I live alone and would struggle. It has been scary at times and I have been very dependent on other people's good will. So far everyone has been lovely and I have had a visitor every day but it is not the same as having someone in the house to look out for me or to talk about meds or ensure I ate something. Booking the cleaner 3 times a week has been great. To all those still to have the op, ensure you get enough help and don't be afraid to ask for help - you will need it. I have ended up having to bath rather than shower as I was wobbly on my feet and have probably not eaten enough because no one was here to help. The isolation has been the worst and made even more so because my baby granddaughter became very ill and my daughter was unable to visit. Couldn't be helped and both my daughter and I have missed the support each of us would have given the other if the timing would have been different.
All very long winded but, in summary, still feel it has been worth doing, seems to have sorted the symptoms as far as I can tell and although progress is slow, it has been ok.

Dragonroad · 22/12/2013 07:59

Happy - how are you doing? I see you have a 20 month old. How are you managing?

KosherBacon · 22/12/2013 08:26

DTD- doing the deed!

I think I actually need to get the sofa cushions out and start practicing head and shoulder stands. Heck, why not a handstand (don't think it works when you weigh 12st).

happylilme · 22/12/2013 09:30

Hi Dragon, well I am 16 days post op and on the whole I don't feel too bad. I have discovered that the surgeon has done all my stitches from the back of my vagina( feel so rude saying that word lol) so can only see threads where he has tied knot in, think he said it was to stop any scarring inside so when I DTD(new to meSmile ) it shouldn't cause pain. Things are quite tight in there now, I think it looks like it did before the world of babies.
My body lets me know if im doing too much as I get that dragging feeling in my nether regions. When I feel this I know to go and lie down.
Having this op is a challenge with having a toddler. I am lucky in many ways that I have the support of my husband and my older boy has been a bit more helpful than usual.
It does put a strain on things a bit as we don't have any other family around us and we have had little spats at each other.
My baby has been vomiting for the last 2 days which, bless him, he doesn't understand what is happening and why mummy cant pick him up. Breaks my heart. Unfortunately I had to be quite selfish about the decision to go ahead with this surgery but it really got to the stage that pooing(sorry) was impossible.
Physically I can do quite a bit now walking etc I sit and peel the veg and that so I feel im being of some use. I have no pain now and swelling nearly gone (I really do think the arnica tablets helped with this)
I too am on lactulose and various other medication for my bowels but im happy with this as the thought of a normal poo scares the poo out of meSmile
Would I recommend this op, yes definitely, it is still early days but already I am feeling the benefits physically and emotionally.
I am sorry to hear about your little granddaughter, reflux is horrible to watch a baby so small have. MY first had it and colic for the first few months. As a new mum it is emotionally draining but just having those reassuring words for your daughter will mean the world to her. Where would we be without the love of our mummys. I needed mine after my op just for reassurance.
Sorry it's so long and a lot of waffle probably. Need to lie down again.

gottagetthroughthis · 22/12/2013 11:03

Kosher - thanks for the explanation of dtd -

Fuss - nowi know what dtd means you gave a laugh and ikwym! Grin

fusspot66 · 22/12/2013 16:12
Grin
Dragonroad · 22/12/2013 21:54

Just feel the need to say I bent I over and folded in the middle beyond what was comfortable. I now really hurt. Wishing there was someone here to tell but have popped more pain killers and will go to bed. Bit fed up with this now.

happylilme · 23/12/2013 13:31

Dragon can you stay around at your daughters for Christmas, you could support each other maybe ? Hope you are feeling better today. ThanksWineCake

Dragonroad · 23/12/2013 20:16

Thanks happy, I shall be going over to my daughter's tomorrow and staying over night and I am looking forward to it.
Had a better day today. Went for a very short walk outside and was more active than I have been, so I feel like it is all on the up. I just keep reminding myself that all the symptoms that made the operation necessary seem to have improved and that if I look back a week things really are much better. Also got on the scales and I have lost 5 pounds so woohoo!