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*TAMOXIGANG* 43 *

993 replies

MaryAnnSingleton · 01/10/2013 08:24

New thread !!

OP posts:
malteserzz · 19/10/2013 08:32

Morning all
Hope everyone slept ok ?
MAS glad you had a nice cuppa with your bcn
The night sorry about your sister, does seem strange that they think it's spread with no evidence my best wishes to her
Dh is making scrambled eggs I've woken up starving think it's the steroids, thankfully finished them now

MomOfTwoGirls2 · 19/10/2013 09:28

Morning all, 5 days after first chemo I finally had a good nights sleep. Feel pretty normal this morning. Dry mouth seems much better too.

But DD1 (11) is sick, bad headache and temp. And wants mom to look after her. Not sure how Ill avoid picking that up from her. Any tips?

Marshy · 19/10/2013 09:29

Morning all,
I've woken up with a champagne headache - twas lovely though Grin

Also starving! Scrambled eggs sound good malt but will have to make them myself as dh has gone off on a training course for the day. I did get my early morning cuppa though.

So just me with dd and ds today. I stayed up talking with her until 1.30am. She's grown up such a lot in 5 weeks away and took on board my explanations of recent events so sensibly.

Am planning a chilled day. Must do my arm exercises also. It's feeling sore and a bit swollen plus I can feel the tendon standing out when I stretch it - is this cording? I'm not keen on it!

malt are your dc off today? Do you have some nice things in mind to do whilst they are away?

malteserzz · 19/10/2013 10:28

Mom of 2 hope dd is better soon, I guess all you can do is keep washing your hands and try not to get too close hard though, could you ring the chemo helpline for some advice. Hopefully she's old enough to understand that you don't want to catch it

Marshy glad your dd is a support, yes mine go away today. I have very mixed feelings, glad that they have lovely grandparents to take them away, sad that we can't all go away as a family, glad that dh is taking the week off, sad that I won't be feeling my best I'm a bit messed up really Hmm

Ruby hope you are enjoying being at home
Gigs hope you are ok
Kitkat, Betsy, lily how are you all doing ?
Really how are you hope you are not too sad today
Sorry not to mention everyone there are so many but hope everyone is ok

kitkat1967 · 19/10/2013 11:17

Morning all. I'm fine but very tired today - I did sleep better last night but have a bit of Tax exhaustion I think - legs are like jelly!!

Kids are at orchestra at the mo so I have been resting but am taking DD straight to another music group and then I have promised her we can go to Hollister (emergency hoody situation due to her non-stop growing) so working up to that...... and she needs jeans......

Hope you are feeling better today Ruby - you sound like you have a lovely family and I'm sure you'll work something out about uni.

Sorry about your sisters news thenight - it does sound a bit confusing - hopefully her team know what they are doing.

Malt - remember that you only have 1 more Tax to do - you will all be on holiday together soon - make the most of being spoilt for the week (but I totally understand that it is not what you want and that you will miss your DCs).

Marshy · 19/10/2013 11:25

Completely get those conflicting feelings malt. It's a tough one.

Not much help now, but I think I'm going to look into developing some mindfulness ability. I spend lots of my time either in the past or the future and that's been especially so through all of this, and often is very unhelpful, makes me feel worse rather than better. I need to learn to appreciate the present. Do you know what I mean?

Hope everyone doing ok today.

Going to try to drag my teenagers out of bed!

Marshy · 19/10/2013 11:28

that sounds like an exhausting day kitkat! Pace yourself with coffee stops Smile

Shootingatpigeons · 19/10/2013 11:53

Marshy mindfulness is a good coping strategy but I also found visioning very useful. You crowd out the negative thoughts by focusing on something that you would rather be doing/ plan on doing. I had various plans, standing on a mountaintop with my chemo buddies, on a beach in Australia (we had had to cancel a holiday when I was dx) , watching a sunset with my friends and you concentrate on the whole experience, the smell, the wind on your face, the sounds, the warmth etc etc. put yourself into that moment. I made all but one of my visions of the future come true. I also had visions of a troupe of handsome LOrd of the Rings style heroes mopping up all the mindless Misshapen ugly Orcs/Cancer cells and then finding me irresistibly attractive enjoy having your DD home. Mine is only on the other side of London and can come home easily but we still get out the red carpet when she comes back.

kitkat if I were to have a vision of hell it would be the inside of one of those shops, in the dark with the loud music and stinky perfume, and the nagging..... Thank goodness they have grown out of it. ASOS is easier on the sensory overload Grin

the night that is very strange! I know plenty of people who had it in more than 4 nodes and it clearly had not spread because they are still here a decade or more later. It is difficult for you though as you are getting it at second hand and maybe your sister thinks that is what she heard? However second opinions are easily come by. My Consultant encouraged you to get two points of view on your dx since Consultants may arrive at the same conclusion but present it to you in different ways. No good Consultant will have a problem in you getting another perspective, and it is after all, your life and body.

gigs how are you today? When do you set sail for Tesco?

ruby hope you are being wrapped in love and cuddles at home.

Hugs to everyone else

topsyturner · 19/10/2013 12:17

Afternoon All

Done my housework .
Got to get dressed now .
Then I drop DD at horse riding .
Then ....... I'm having a ladies afternoon/evening with 2 of my lovely friends .
Good food , a small glass of wine ...

Hope you all have as good a day as I'm planning to have Grin

Shootingatpigeons · 19/10/2013 12:29

A small glass of wine Hmm

Marshy · 19/10/2013 13:01

hmmm, might give that a go shooting. It made me feel better just reading it, and now I get the beach picture upthread.

Wondering which was the 'all but one' and kind of hoping it wasn't lord of the rings Grin

reallyreallyworried · 19/10/2013 13:05

malt thanks for asking. Having a difficult time at the moment. Trying to be productive and get organised, before my Chemo starts. But everything I do reminds me how much I miss my friend and how hard this is going to be without her. Sad

Was going to say more, but don't want to upset anyone. So will maybe just hide away for a bit. But did appreciate you caring. So thankyou xx I hope you have a lovely week with your other half. Not long now and you'll be enjoying lots of family holidays Smile

Hope everyone else has a good weekend. Handbags hope you are on the mend. xx

foofooyeah · 19/10/2013 13:27

really don't hide away. We all have good and bad days. Just be kind to yourself, and try and get outside a bit - if the bloody rain lets up that is.

I was going to get organised before chemo but still only half way through the room I was planning to complete and nearly on chemo #3 !!

Gigondas · 19/10/2013 13:33

Afternoon all- trying to pack for Paris tesco (off tomorrow) but being sidelined into watching Charlie and the chocolate factory.

Quite tired after busy (but nice) day yesterday . Found out which chemo am having -Docataxacel and Gemcidine (? Not completely sure of this but it's gem something). Apparently tiredness main side effect (and hair loss but they are investigating if can use cold cap) so not much change there.
Ruby I hope you are being spoiled at home. It took me two years to split with my first big love at university so I feel for you as it's very hard.

Really please don't feel you can't share here. you are having enough to deal with so don't keep it in.

Topsy mind that cancer of the forehead tomorrow Wink.
Hnd how are you? Am pleased that this op seems to have gone well.

Pigeons thanks for timely reminder on visualisation - it does help loads.

Better go as being directed to watch film with big gig .

Gigondas · 19/10/2013 13:33

Sorry for quick post and hi to everyone else- I am trying to keep up.

Shootingatpigeons · 19/10/2013 14:09

Marshy It was the one sitting watching a sunset from a hill with a gorgeous view with a few bottles glass of champagne. I hope we do it one day but it was their lives not mine that intervened. One became, quite spectacularly, think Brittney Spears, bipolar, a "journey" that makes my Cancer journey seem like a walk in the park. She and other friend didn't speak for 5 years as result of her calling mad friend's toyboy "a loathsome little slimeball" . There is more Shock gigs has heard some, you really couldn't make it up, and KK has heard other friend's sad story. Reminder that when you get this shit out of the way, real life, in all it's infinite variety, goes on......

I have of course been ravished by Vigo Mortensen, Sean Bean, Orlando Bloom, David Wenham and now Richard Armitage...... and Ian McKellan is a good mate.

gigs Bon Voyage. As you may have seen from Facebook we are a Borlotti bean processing plant here, up to our necks, will have some for your toast when you get back Smile

malteserzz · 19/10/2013 14:27

Really don't hide away but keep posting, were all down at different times but can hopefully help eachother through it x

Shooting I will try and imagine myself in a nicer place would love to feel the sand in my toes and the sun on my back, hopefully one day

Gigs good luck with the packing and enjoy the film looking forward to seeing lots of cute pics of your girls on your hols

Shootingatpigeons · 19/10/2013 14:59

Sorry should have added really Yes, keep posting, I am sure many of us can relate to the big hole losing a person you are close to can leave in your life.

thenightisyoung · 19/10/2013 16:23

gigs have a lovely trip to Tesco

pigeons I think you're right about hearing stuff second hand. Still not sure why they aren't doing the node clearance but she is at one of the best hospitals in the country for cancer and she trusts her doctors so that is the most important thing.

really I would only stop posting if it's what you want to do, but if the support is helpful then don't hide.

I am off to the theatre in Richmond this evening to see Jeeves and Wooster. Booked tickets ages ago so nearly forgot about it! But it seems like a nice surprise now - one of the advantages of getting more and more absent minded with age Smile

Lilymaid · 19/10/2013 16:35

Hello - was feeling rather down yesterday and starting to think negative thoughts - not like me as try to be either positive or neutral. Just had a look through the thread and saw what Pigeons wrote about visioning and shall use that when I start to consider Googling my life chances again! Thanks Tamoxigang, as usual!

kitkat1967 · 19/10/2013 16:42

so Gigs you are going to join the Tax team!! - did you have either of these chemos last time?

Well I survived Hollister (although my bank ballance was seriously hit) - DD knew what she wanted so we didn't have to spend too long there. Also managed to get her a pair of jeans (not Hollister) which is good as she only has 1 pair that fits at the moment - bit wierd as she is now in the same size as me except that she can wear a longer leg length SadEnvy and as she is 13 everything needs to be skinny!!

Am totally wacked so will be welded to the sofa for the next few hours.

Gigondas · 19/10/2013 17:30

Lily stay away from google!

Kitkat thought name sounded familiar - yes will be hit by the tax truck too. Am shuddering in sympathy at hollister. Mercifully dsc outgrown this largely.

Packing ground to a halt. Am watching peppa pig instead. Need kids in bed so can watch strictly and montalbano in peace.

Anyone want to help name my rib/neck lump? We have had myleene, Katherine Jenkins , Harry styles and Gregg Wallace. I am thinking possibly Bruce Forsyth to continue the crap celeb theme.

Shootingatpigeons · 19/10/2013 17:41

Oh Claudia Winkleman, will enjoy her being hit by the tax truck Wink

reallyreallyworried · 19/10/2013 18:06

Thanks ladies xx

kitkat1967 · 19/10/2013 18:12

nice boots Ruby Grin.

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