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*TAMOXIGANG* 43 *

993 replies

MaryAnnSingleton · 01/10/2013 08:24

New thread !!

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MaryAnnSingleton · 17/10/2013 23:24

Oh foofoo that's terribly sad, I am sorrySad
gig am v glad Paris Tesco is on but sorry that mets are being pesky. I can be a chemo buddy too as am permanently on it !

Lots of love to all- am v bad at following everyone's progress and hate to miss people out.

Saw breast surgeon in my Waitrose this afternoon, which was odd as he doesn't live here. Obviously drawn by the wonderful ness of it.

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Knittingnovice · 18/10/2013 03:00

Crap, just wrote a lovely long post and it's got lost in cyber space

Here is my blog linky

I'll be having 6 sessions of chemo initially over a 12 week period, including monoclonal antibodies, then a CT scan to see if the tumours have shrunk, although my oncologist expects to have to do more than that.

I had my blood transfusion today in my local hospital, but unfortunately they don't do my kind of chemo on the unit, so I have to travel to St Luke's in Guildford which really eats into already stretched finances.

I have my nurse led chemo information clinic on Monday, PICC line being fitted on Wednesday and then chemo commences on Thursday. I hope I don't react to badly as we are supposed to be going to Cardiff on Saturday as DH has tickets to take DS and DD1 to the rugby while I wander the shops.

Sorry I haven't replied to anyone I am still getting my head around all your stories.

malteserzz · 18/10/2013 07:05

Morning all
Knitting sorry you were awake innthe night, I looked at your blog good idea to keep everyone updated though I'm sorry you're going through this again, this bloody disease it's so unfair

Foo foo sorry about your friend Hmm

I didn't sleep too badly, was tired all afternoon but only had a half hour nap so by bedtime I was shattered

The kids are going away with Nanna and grandad tomorrow I'm dreading it as we should have been all going on a lovely cruise similar to ambers Hmm in the upside dh is taking next week off to be with me so we are planning on chilling and doing bits and pieces as I feel up to it

Hope everyone has a good day, any appointments today ? Sorry I can't remember chemo brain or just my age !

reallyreallyworried · 18/10/2013 07:07

Morning

Shouldn't of read this board this morning. Sad foofoo I am really sorry to hear your sad news. Sending you a hug. My heart strings were tugged when I read it. I lost my best friend in February this year. She died suddenly and I didn't get to say goodbye Sad she left behind twin sons, who were just 4months old.

I still miss her so much, and reading your post brought it all back. But you make a good point. Never put things off till tomorrow. Because no one knows what tomorrow will bring. Xxxxx

kitkat1967 · 18/10/2013 07:17

morning. Rubbish sleep here again - I seem to only be able to get a couple of hours at a time at the moment but not wide awake to want to do anything so just lying in bed - still kids have just left for school so will go back for a couple of hours now.

Sorry about your news foofoo - it is very sad and must be distressing for you.

I read your blog when you posted the link before Knitting - you certainly do have to do a lot of travelling for your treatments.

Have you asked to have them at home? I have mine at home at the moment (as I am private) but my nurses tell me that about 50% of their home based chemos are for the NHS. When I was on my LGFB course I met 2 ladies having NHS treatment at home.

jchocchip · 18/10/2013 07:27

Oh (((hugs))) knitting, just read your blog. Hope you managed a bit more sleep?
Will put a Brew on.

Gigondas · 18/10/2013 07:32

Foofoo so sorry for your loss (and really - that is so sad ).

Brew For a all those on crap sleep. I had bad night as mini gig up and messing about for an hour .

Mas that's good you will be cancer buddy too. I am going to do a series of photos for you and post on FB so can finally do that picture for the kids.

I am trying not to scare myself thinking of mets moving but focus on staying strong and that treatment works as well as possible.

Malt sorry you are missing out on cruise but week with your dh sounds nice

Going to see therapist today, meet my cousin for lunch then do done shopping.

jchocchip · 18/10/2013 07:33

Xposts (((hugs))) for really so hard losing your best friend :(

MaryAnnSingleton · 18/10/2013 08:05

gig have been thinking of ideas for mini and big - I do need to get my book illustrations done first,then have 2 pics to do,then I can immerse myself in Frenchness Smile
malt sorry that you re missing out on cruise,but kids will have fun am sure and you can do lots of jolly things with dh (that sounds a bit rude)

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MomOfTwoGirls2 · 18/10/2013 08:55

foo foo That is very sad. My condolences to you.

Weebarra I'm just ahead of you on chemo. I had my first treatment on Monday (AC). SEs from this first cycle weren't bad at all, though today is first day I don't have a chemo foggy head. I found I felt better after moving around a little and after small snacks. I tried to get a little walk outside in the air most days. Even when my legs where tired and slow.

I was very thirsty all week, with a dryish mouth. I kept a water bottle near and drank loads. I also didnt like the taste of certain foods, especially dairy. I switched to peppermint tea for the past few day. Taste OK again today. Just finished a lovely mug of real tea! I didn't have a great appetite, so I snacked on little bits throughout the day.
Also, I had steroids Mon-Thurs, and didn't sleep every well. I woke a few times during the night and generally had restless sleep. I didn't sleep much during the day either. So hoping for some sleep catch up at weekend!

All - I have a sore foot - which I am pretty sure is unrelated to chemo. I was doing lots of walking prior to chemo and arch in left foot was beginning to hurt. But since chemo, it is trobbing. (And of course I've continued to do little walks on it). Is this anything to be worried about? Should I mention it to Onc Nurses?

topsyturner · 18/10/2013 09:36

So sorry to hear that Foo
Bastard disease Hmm

I'm on the bus into town .
Meeting a friend for coffee and I have to give her a crochet tutorial !
(Honestly , I'm not 97 !!!)

Still got the skin of a hormonal teenaged boy .
Am v v v pissed off that new skin care regime hasn't given me glowing youthful skin over night Grin

smee · 18/10/2013 09:49

worried, that's awful about your friend. Such young children too. Sad

Malt, that's so annoying about the cruise. Can you plot something nice for next year once you're through and feeling better? I had a lot of fun doing that. We went on a bit trip to Marakesh about 4 months after I'd finished rads. Looking back, I was still a bit wiped out, but it was amazing to be in the sun exploring. Hugely life affirming. Smile

Love your blog name, Knitting, though you've got a heck of a lot on haven't you? Small children and recurrence is incredibly tough. Glad you've found us though. This place really does help. Smile

Wee, how are you feeling today?? Hope okay and no sickness?

Mom, a foot problem sounds unlikely to be chemo related to me, but who knows. Could you give your unit a call just to double check?? I had all manner of aches and pains on chemo. I think it's because the body's being zapped so hard, so I reckon it's just that.

Did you sleep at all, Gig? Therapist sounds timely after your news yesterday. Hope they can help you sort your thoughts. All you can do is trust your team. They sound like they're totally on it, so whatever's next WILL WORK. Have a nice lunch with cousin. Smile

Did you decide not to swim, MAS? How are you feeling?

Fingers crossed for Tiny today and of course Marshy for her results. Will keep all crossed for you.

Hope everyone's okay today. Lovely day here. Been off on my bike doing local things. Leaves are starting to look rather beautiful even if they are falling. Smile

HerNextDoorAt21 · 18/10/2013 10:05

Morning all.

gigs so sorry to read of your need for more chemo ...... I really am .... It's just one thing after another isn't it ? I truly hope you have a lovely time in France at Le Tesco.

Foo so sorry to hear about your friend that is awful :(

No pub night tonight ... topsy is on the bus and I
Am on a train bound for Southport .... Just at Wigan as I type ! Soreness still there as a result of the burning process but feeling less hot and swollen. I'm looking forward to a weekend with friends here in England.

foofooyeah · 18/10/2013 11:16

thanks for you condolences - as I said I was worried about posting but it was taking up so much of my thoughts

really sorry it stirred those memories for you. How incredibly sad: twins of 4 months! that is just unthinkable.

Working this morning, then off to babysit my friend who had an MX on Tuesday for a couple of hours Smile

Bloody big hugs to all of you

Shootingatpigeons · 18/10/2013 11:21

hnd sorry it is sore but glad it is feeling different this time! hopefully this is the beginning of the end of your problems. Have fun in Southport Smile

gigs just remember the mets aren't on a planned route march, they are a bunch of mindless idiots who are breeding irresponsibly as mindless idiots do. The chemo is going to knock them out. The world does not need more Katherine Jenkins's (can't remember who was pain in the bum). You will also have that nice French rugby team on your side, and mini gigs who is clearly indefatigable, especially at 3am. Glad we can keep up the outings Smile

Foo I am sorry about your friend, it really is a bugger. And do not worry, we post everything on here, and especially don't hide away from talk of death. One thing is for sure we have all looked/ are looking over that cliff. You get over pretending it doesn't happen. It is a lot less scary that way.

really that is very sad, such little babies.

mas how is your swimming elbow, it's that pesky breast stroke again, unnatural movements that are hard on your joints and ligaments. I always vary my stroke to give them a rest. I am weird though in that my favourite stroke is backstroke which also has the advantage that if there is a splashy /obnoxious man I can plough into them and pretend I didn't see them Grin.

wee I think it was you that wrote that you wish you had checked your breasts more(sorry if it was someone else but I really struggle with my memory, dyslexia not age and chemo brain. ) I did check my breasts and my 1.7cm lump was definitely not palpable the month before, yet you couldn't miss it when I did find it. Dr geek said some lumps are like that, some don't even show up on a mammogram. There isn't much point in what ifs psychologically but actually in terms of breast cancer you can have done everything right and the bugger will catch you unawares. I do worry though that all this focus on lifestyle etc in the media does encourage people to think I am young and healthy, eat, exercise etc so it won't happen to me.

Topsy little pigeons was moaning to one of her classmates about a zit, he looked unimpressed, turns out he is on steroids for acne, that would be a miracle cure......but then it wouldn't be the spots deterring people from being attracted to you!

malt yes get planning that post chemo trip. The picture of me emerging from the waves on Port Fairy beach three months after finishing chemo looking like a navy seal in my wetsuit and lesbian haircut is one that sums up how good it felt to be healthy again and able to get on with life.

smee I have an image of you cycling around Hackney in manner of heroine in romantic comedy, they always ride bikes, Meg Ryan, Julia Roberts, and actually it is lovely sunny day like it is in romcoms. Any Tom Hanks /Hugh Grant type heroes around, erm DH just setting off on his bike, beware not a romcom hero.....

Last night it was DHs chance to choose the film we went to see. He came out very upset because he thought Captain Phillips was going to be all action heroes and navy seals when in fact both goodies and baddies had feelings and it was all a bit ambivalent, like it would be, and he hates what he calls "relationship" films! which is a coverall that includes Fatal Attraction Grin Good film though, Tom Hanks is brilliant in it.

Hugs to everyone feeling in need of them

Shootingatpigeons · 18/10/2013 11:26

This by the way is the beach if anyone wants it for the purpose of visioning belfastcoveportfairy.com.au/uploads/sliderimages/img23.jpg

weebarra · 18/10/2013 11:40

shooting - wasn't me but of course that niggle is always there. I know the biggest lump only appeared after I had DD - which is why three GPs diagnosed it as a breast abcess/mastitis and it was only the breastfeeding midwife who referred me to the breast clinic.
Hoping that chemo doesn't start tooo quickly as want to take my fabulous mum away for a night to say thank you in advance for all the help she's going to give me.

Shootingatpigeons · 18/10/2013 11:50

wee Sorry! my friends who found their lumps Breastfeeding had exactly the same story. GPS should be more aware because although rare half of BC in women under 40 or 45 occurs whilst Breastfeeding. I am glad you had a midwife who was on the ball. My GP went white and shaky when she felt my lump, I didn't realise until after that she was traumatised because a month before she had misdiagnosed my friends lump as mastitis, and then sent her to a not very good Consultant. My feet didn't touch the ground so quickly did she refer me to the brilliant Consultant my friend had found.

smee · 18/10/2013 12:29

Grin at Pigeons, as yes of course I look like both Julia Roberts and Meg Ryan (I wish!). Though surely you haven't forgotten we both look like Julie Christie?? Wink

HND, am sure a glass or two later will help with the scar pain. Have a fun weekend. You more than deserve it after op, plus 10 year old birthday things. Smile

MaryAnnSingleton · 18/10/2013 12:36

elibean !!!!!!!!!!!!!!!!!! I love you xxxx

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MaryAnnSingleton · 18/10/2013 12:42

cryptic message for elibean who has been very naughty and very,very generous and thoughtful...
Dashing by as have to get sandwich for my mum and get to hospital...but wanted to send love to all.
Have had elbow massaged by dh so it's feeling a bit better- the breastroke obviously aggravates it but it's the only one I feel that I can do decently -have also been quite tough on it trying to improve strokes
I always imagine smee on her bike when I think of her Grin
love to allxx

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Marshy · 18/10/2013 13:58

I just rang the BCN as I couldn't wait any longer - lymph nodes all clear!!

MX pencilled in for 30th Oct and will be seeing Miss Surgeon on Tuesday to finalise.

Off to buy a bottle of fizz and intend to drink most all of it myself.

DD is on her way home from uni for the weekend. I'm so pleased I have good news to send her back with.

Hugs to all, Marshy x

reallyreallyworried · 18/10/2013 14:01

foofoo I wasn't in anyway criticising you for posting what you did. I apologise if that's how it came across.

My heartfelt condolences to you and her family.

I was just being pathetic. Sorry xx

kitkat1967 · 18/10/2013 14:08

well done Marshy - great news.

malteserzz · 18/10/2013 14:20

MAS that's lovely you deserve it Smile
Great news marshy enjoy your fizz !

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