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Tamoxigang - 41 and counting

994 replies

KurriKurri · 20/08/2013 09:55

Morning all, new thread, croissants on trolley, and I'll put a brew on.

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notJenkins · 06/09/2013 12:21

Can I sneak back in please ?

Apologies for being very behind with what has been going on but just read what HND wrote and wanted to say hole he gets some help. Has the MH crisis team been involved ? He needs to get some help poor lad. All that angst is horrible.

Well we put in an offer on a fantastic house and it was accepted but mortfpgaage company dragging their heels and 12 year old estate agent failed to tell me we should have proved finances before offer so now I am worrying we will lose the house. AAARRGGGGHH just what I don't need right now.

I am all achy in weird muscles already after meds change and Tuesday is my stop the tablets day so I will be feeling crapola from wed. Of course a healthy dose of paranoia has returned and my neck is full of tumours.

The news of EMIN has hit me quite hard too. My thoughts are with her family.

Sorry marathon me me me post.

smee · 06/09/2013 12:24

Kitkat, the perky teenage breast thing amuses me hugely. I had an expander implant after mx, then replaced with a saline one. Then had another preventative mx and same process, so another temp then saline one. Means I now have two v. pert, (though scarred and nippleless) breasts and no need to wear a bra. I feel a bit Frankenstein's monster, but still nice to have shape and no faff with softies, etc.

Ruby yay for knowing what's causing the headaches. Hope antibiotics kick it into touch asap. Have a good time with your friend. Smile

smee · 06/09/2013 12:25

x-posted with you NotJ. Waving, though sorry to hear about your house and aches. Come sit on the paranoia box and we'll stuff it all in there. x

amberlight · 06/09/2013 12:28

HND, heck! Brew Can't add to the wise words of others.

kitkat1967 · 06/09/2013 13:50

Smee - what were your/there reasons for going ahead with the preventative mx? Was it your idea? Had you had something particularly pesky?

My surgeon says the reconstruction will be tissue and maybe a small implant depending on how it goes/what method we choose. Got to wait until 6 months after Rads finish though Sad.

smee · 06/09/2013 14:10

Kitkat, it was partly cosmetic as after the first mx I had one v.pert implant and one 40 something breast fed one. The Surgeon suggested an op to raise/ tuck the remaining breast but I realised I'd have better odds against recurrence (and matching breasts!) if I just went for another mx. I was grade 3/ stage 3, with 4/22 nodes, so v.aggressive. The Surgeon was very resistant at first as she didn't deem it at all necessary, but I went back to her with research on my statistical chance of recurrence which won her over, as she couldn't deny a second mx would give me better odds. I still had to go and see a Psychiatrist before she'd say yes though.

kitkat1967 · 06/09/2013 14:23

thanks Smee. I asked as I think I will be left in the same situation although like you surgeon has suggested lift/implant on other breast. I don't think my histologies (to be confirmed again now Op is done) would support a preventative mx.
Maybe as my 'new' boob will be mainly tissue it won't be as pert as yours and he will be able to get a reasonable match.

Shootingatpigeons · 06/09/2013 14:24

hnd I am so sorry and I am not surprised you need to vent. I have no experience with teenage boys but I did have a school friend who staged a few dramatic teenage suicide attempts, a few stomach pumps and had to have her wrists sewn up. She is now a very capable Chairwoman of a certain city financial regulatory body with three children of her own and sailed through a messy divorce, one of those superwoman types, and it is hard to believe that she was ever such a mess. You can still see the scars though if you know where to look. The teenage brain seems vulnerable to getting problems out of perspective.

I can only say from that experience, and that with my mad (bipolar) friend, and indeed DH, that the brain can go some strange places. I completely understand your anger, but one thing I have learnt is that mental illness can make people incapable of seeing beyond themselves and their own (completely out of perspective) sadness, worries and anxieties. Whatever you say to them in the line of trying to bring them to their senses gets turned into another part of their baggage of woe, especially the realisation of the implications of what they have done. With mad friend we also tried writing and we still have the letter we got in reply, with bits in red and pressed so hard on the page it goes through, most of it was complete crap and very frustrating, but evidence of the dark place she was in. I do think that at the right time you have to point out these things as part of keeping them in touch with the real world and a normal perspective but in the context of also keeping them in touch with the fact they really are loved and valued. I hope your Ds and your family get support but I know it is patchy and teenage suicide attempts are too often dismissed as just that. You may need to fight for the support you feel you need via GPs etc. the problem will be that since DS is 18 they may well try to hide behind confidentiality and that they cannot discuss his case with you. However that does not preclude you from writing, repeatedly if necessary. Unfortunately GPs have widely different attitudes and knowledge of mental illness, so keep trying with others. I hope this advice isn't over the top in the circumstances. I may have got my own experiences out of perspective Sad

However gigs and I were commenting how good the treatment you and topsy have had in NI, hope the support for mental health problems is too.

Also feel free to vent, the group of friends who supported my mad friend through the worst highs and lows kept up a string of emails to help us cope, we refer to them as the Queen of Sheba emails.

nj hi, will be thinking of you through these next difficult weeks. The paranoia box has quite a bit in it at the mo but always room for more. House moving is of course another source of life's shit, along with death and divorce, I hope you can get through it. I think we must have had about 6 sales and purchases fall through before we nailed this house, but it was the right one in the end, still here 15 years later and it had by far the biggest garden which has turned into my passion. Anything smaller and we would have had to move again.

kk thanks, we had a good time but feel grateful to have dodged the bandits, prostitutes and protesting teachers that had Mexico City in a stranglehold....... I think the term is colourful, or perhaps terrifying..... Frida Kahlos house was a fantastic experience though, very moving. Get thy'sen on Facebook Grin How are your DS and DDIL?

ruby glad you have found the cause of the headaches

gigs as you can see still on Mexico time, it's just I get up at 1 7 to get little pigeons breakfast which given I finally nod off at 12 is interesting.

Laughing at all pert boobs

KurriKurri · 06/09/2013 14:44

DS and DDIL seem to be coping well atm - they are applying for lots of jobs, and the prison governor has said he will write them glowing references. DS is meeting up with a friend who is a police officer tonight as he is considering joining the police force as an option and friend is going to help him with his application.

nj - good luck with moving - I know how stressful that can be, hope you don't lose the house you want and everything goes smoothly from now on. Loads of luck with upcoming appointments - will plant my ample bum on the paranoia box along with everyone else.

Glad you have some Ab's Ruby - tonsillitis is horrible, no wonder you felt lousy.

Can't remember if I said, but my Mum finally managed to complete her sale (after endless buggering about on the par of her purchasers and moved into her sheltered flat on Tuesday.

Actually I think I did say about it, oh well I've said it again , Grin

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smee · 06/09/2013 14:44

kitkat, I think I probably went too far, but am a bit of a dog with a bone once I've got an idea in my head. At the follow up (post 2nd mx) appt I asked Surgeon why they couldn't take my ovaries too, at which she put her arm around me and said v.firmly no. Blush Am still a bit put out that my new implants don't act as a float when I swim. Grin

Pigeon's would so love to go to Mexico, but the trouble there's scary. You are clearly v.mad brave. Grin

malteserzz · 06/09/2013 15:02

Can't believe cancer even finds its way into downton, grr is there no escape !
Better make myself look presentable to pick ds up don't want any head tilting !

KurriKurri · 06/09/2013 15:07

ta da - I have just signed up to Facebook - you will have to guide me through finding where you all are, as I am a clueless Luddite. At the moment I just seem to have a profile (plus some names and photos of people I vaguely remember from school, - all looking far more glamorous than me - seem to have appeared Hmm)

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smee · 06/09/2013 15:20

Kurri, search for and request to join the 'Tamoxifen Ten' group, then we can all find you easily. Smile

malteserzz · 06/09/2013 15:27

How exciting kk I love to see what people look like in real life :)

KurriKurri · 06/09/2013 15:37

Thanks Smee - I think I have done that now - will wait and see, I'm not sure I clicked on the right thing.

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KurriKurri · 06/09/2013 15:38

I haven't put a photo up yet malt - I'll get DH to help me with that later - it took all my technical resources just to sign up Grin

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notJenkins · 06/09/2013 15:46

This reply has been deleted

Message withdrawn at poster's request.

KurriKurri · 06/09/2013 15:48

NJ - I am hoping to get down to Dorset in the not too distant future, to visit my Mum - I would be well up for lunch. Smile

I am looking all your profile pictures - you all look lovely Smile

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notJenkins · 06/09/2013 15:51

Fuck . bastard hormone removal making my brain go to mush . Did not mean to put this here .

KurriKurri · 06/09/2013 15:55

Oh no - i did wonder NJ - report your post and MNHQ will remove it for you.

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malteserzz · 06/09/2013 16:00

I can't see you on tamoxifen kk ?

KurriKurri · 06/09/2013 16:14

I think I have done something wrong malt Sad - I clicked on request to join, but nothing happened Confused - i am rubbish at these sort of things.

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Gigondas · 06/09/2013 16:17

Think you have to be confirmed into group by mas or amber??
Back later to post properly but hugs for Nj as seems having not so great day.

KurriKurri · 06/09/2013 16:18

Ok - it says 'join request pending' - so perhaps I have done it right

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KurriKurri · 06/09/2013 16:18

Thanks all - sorry to be so stupid!

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