Morning all, new thread, croissants on trolley, and I'll put a brew on.
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General health
malteserzz ·
09/09/2013 07:59
Good luck picture and Diddy today let us know how you get on
I was awake between 3 and 4,came down for a glass of milk and a biscuit as I was starving at least the cat was pleased to see me and had an early breakfast 
One gone off to school, next going in half an hour then then think I'll take a cuppa up to bed!
Gigondas ·
09/09/2013 08:01
I love er foofoo and have it on record on sky box.
Slept bit better but still need to get that sorted as I was wrecked last night.
What's everyone else up to? I am going to enjoy a day doing not much 
.
topsyturner ·
09/09/2013 08:05
Morning All
Welcome Diddy
You sound like you have an awful lot on your plate .
Get thee to Macmillan and see what support you can get .
Also there are social workers within most chemo units that you can ask to be referred to .
As for your husbands work , that's bloody shocking !!!
Hope everyone has a good Monday .
I have physio at 10.30 today , for my weeing problem .
To say I'm not looking forward to it , is an understatement 
Shootingatpigeons ·
09/09/2013 09:05
topsy you are having physio on your undercarriage? We want all the gory details not least because i may have the odd accident under pressure a lot of clenching I expect.... Good luck
Good luck also to picture and diddy one thing I would add to diddy is that though my chemo did lay me very low (it's a regime they don't give anymore because of the side effects) even on the worst days we had little rituals we went through that meant a lot to the girls. For instance they came into bed with me for a 15 min cuddle and talk before they got dressed and I always did their hair even on the days I couldn't get out of bed. Perhaps your DCs with attachment issues might appreciate some predictability like that. You will know better how you cope after the first cycle but agree that you should tap into all possible sources of support.
I seem to have overslept, alarm was set and no reason it wouldn't go off so I seem to have slept through John Humphrey's dulcet tones (and being drenched with sweat) thankfully not one of the mornings when little pigeon had to be shouted at coaxed out of bed and seems to have taken herself off without feeling the need to shout at coax me out of bed. All very 
. I'm off to Portsmouth to pick up big pigeons and friends, not looking forward to drive back with car full of the great unwashed, 5 days, no showers...... 
Meandering down early to have a look at the Mary Rose, always said I wouldn't as it was so magical to have dived it when at uni but as I am in the vicinity. I would visit the Victory too but seem to remember kk mentioning some terrible glass walkway that is torture for those of us with vertigo and I am a wimp
smee ·
09/09/2013 10:09
So many posts!! Diddy hello and really good luck from me too. Sorry you've joined us, but stick around x
Picture, good luck to you today too. Will be thinking of you.
((((gentle hugs)))) for amber. Slow down woman, or we'll be round with the duct tape x
Topsy, I did the pelvic floor wee physio after DS re-aligned my body when he was born. Seem to remember the physio and I falling about in stitches, as I couldn't believe her suggestion of a cure. Basically she said I'd got a post-birth tilt/ kink, so wee pooled - she described it like a rock pool after the tide had gone out, which makes me think of starfish for some reason.. Solution was a near headstand after each wee to tilt it out. I still have to do it now, but it does work.
Sorry not to post more. Got to run out to a meeting. Be back later if I can, but wishing you all an okay day.
HerNextDoorAt21 ·
09/09/2013 11:50
wow I am only just catching up after the weekend, I only tend to get any time on here when I am at work 
pigeons please don't ever feel your advice and experiences are over the top or anything. I was very glad to have someone who knew maybe how I was feeling and DSS might be feeling. I am going to only say three things to him .... 1. I love you dearly 2. Here are some numbers of alternative places to help you to talk about your issues. 3. Please dont ever leave a trail of drugs and booze in my kitcehn again.
He does desperatley need to unburden himself. I have listened to him talk through gritted teeth about his feelings about his mum abandoning them and also about some of the things that have been said to him. As a mother I find them shocking - only topsy really can defend me here that I am not some type of jealous stepmother who can see no good in the birth mother. I don't think he would talk to me about his 'teenage' issues but he does need me to tell him that there is only so much a person can take and to tell him how much better i feel after only 2 sessions with my therapist. Now my surgery is over I am going to go back and finish the 4 free sessions my GP prescribed. As DSS is an adult, I can't force him to go or make the GP force him, but like you said pigeons I can get his dad to write and state our concerns.
I hope that everyone who was having trouble sleeping has had some sleep and that everyone needing some TLC has had some. This place is such a great place and really I have not had proper cancer (so topsy says) and i find a great amount of support and love here and I am so glad to be able to give a little back.
topsy I will look for you walking with a clenched doofer from now on !!
In other news, I got my first ever bike yesterday and went with my four year old for a bike ride in the rain, he learned to ride without stabilisers thsi week :)
My DH is off to Brighton on a course tonight so three nights on my own with the children - we have birthday duties to perform for my nephew and god daughter the next two nights. Hope to be able to catch up properly.
KurriKurri ·
09/09/2013 11:55
Morning all - lots of posts to catch up on, - I got slightly way layed by facebook over the weekend! - it was my new toy, I've calmed down now
Welcome Diddy - so sorry you find yourself here, its totally normal to feel apprehensive about treatment - its a big leap into the unknown. And its a ll a bit suck it and see - people react so differently to chemo, so it is not inevitable that you will feel ghastly, and you might react badly to one round and be Ok the next. The main thing is to keep well in touch with your chemo unit - ring them and ask for advice about any side effects that are bothering or worrying you, - they very often have something that can help, and alternatives if the first choice thing doesn't help. A notebook to jot down how you feel each day and any side effects is very useful for when you have your second round - other wise its easy to forget how you felt early on in the cycle. Loads of luck - you will honestly feel mre in control after the first one is over, and have more idea of what to expect. My advice for what its worth - accept any offers of help, especially for tedious or boring household stuff, - save your energy for when you feel well enough to have a bit of fun time with the kids, or something nice for yourself.
Really - you could not be more welcome here my lovely, - this thread is for anyone touched by this bastard disease, - not just mothers. I'm sos sorry you are dealing with this on your own - I can;t imagine how much harder that must make it all, - please use this thread for support, and its not just for info about treatment, - its to vent and cry and shout and laugh and whatever you need to get your through. xx
Waving to everyone - apologies for being behind hand. I blame candy crush
topsy - hope the wee clinic goes OK - doesn't sound much fun, but I suspect clenching and exercises (and possibly some of those sort of weight thingies to improve muscle tone) but hopefully it will help, and I'm sure they will be very nice and kind, - nurses who deal with undercarriage stuff usually are
OP posts:
malteserzz ·
09/09/2013 12:32
Got back into bed after the kids had gone and lie in scuppered by the cleaners who asked if they could come today instead of Thursday, as they are lovely and I was just being lazy I said yes
Have had very lazy morning anyway watching This Morning, gigs Peter Andre was on you'll be pleased to know
I did one useful thing, applied for ds secondary school place for next September then sent sad text to dh hoping I'll still be here to see him in his uniform
Hope all the appointments today are going ok
Sometimesiwonder ·
09/09/2013 14:29
Well I'm just dashing on to say I have had a quick read of the latest pages, and I lufs you all, even if I can't post much at the moment. Hugs.
V exciting weekend chez sometimes - DH and I went gliding! It was supposed to be just DH but it looked such fun I had a go too. Dd was in high dudgeon because she's too young to go up, but the nice instructors let her drive the recovery vehicle (she's only 10 ) so she was slightly mollified
Hope all appointments are going OK, and I will place my ample bottom on the box for anyone who'd like a rest. xxx
amberlight ·
09/09/2013 15:47
Sometimes, gliding?? Yikes, that's quite something! Are you going to be addicted to it now?
Huskylover, welcome! Sorry you're having to be here, but glad you found us. Nope, no experience of brown marks, but hope the clinic appointment is soon and brings good news. If it helps, only 1 in every 10 lumps is cancer. And even if it's the 1 in 10 which is cancer, only 1 in 10 of those is really rudely behaved. So your odds of a death-defying experience are 1 in 100 at the moment. But waiting is indeed never easy. Pull up a seat and have a 
Sometimesiwonder ·
09/09/2013 16:27
Hi Amber
I am quite taken with gliding, actually! DH went up on an aerotow (ie pulled by a plane) but I went up on a winch because you need to book a plane in advance, and I hadn't. The winch-launch goes less high, but it's like a catapult that hurls you plus glider almost vertically 1000 feet into the air . Like the biggest fairground ride imaginable, followed by a nice gentle soar round and round the countryside. 'Tis very nice.... So nice, in fact, I did it twice!
smee ·
09/09/2013 16:59
Wow, Sometimes. How cool!
Husky sorry you're in the waiting zone. Honestly we're not at all brave. We're here because even the glimmer of a diagnosis is scary and we all get that. Solidarity and sanity in numbers is what we're about. No brown lines experience here, so can't help much on that front, but hope you get your appt through soon x
Lily, how are you??
HND, sounds like you're way too busy. Can you carve some time for you amidst it all. You deserve treats!
Got to run. Hope all on treatment not feeling too bad. I need new shoes. Only pair I have which I thought were waterproof are like swimming pool middles.
KurriKurri ·
09/09/2013 17:07
Massively 
of gliding activities Sometimes - how fab!
Husky - sorry you are waiting for an appt. - waiting and not knowing it is very hard, hopefully it will turn out to be nothing to worry about. I don't have any experience of brown marks, my first indication of BC was an inverted nipple, but someone on here may have more knowledge.
Hope your appt. comes through quickly and you can find out what is going on, - do let us support you while you wait - there is always someone around for a chat, and we may be able to answer any questions you may have about the breast clinic etc. xx
OP posts:
malteserzz ·
09/09/2013 17:31
Sometimes gliding sounds amazing !
Husky no experience of brown marks either but it's good that it's being checked out you should be seen within 2 weeks, hopefully will turn out to be nothing but we will keep you company while you wait
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topsyturner ·
09/09/2013 19:13
Evening All
Welcome Husky , me neither on the brown marks I'm afraid .
But you are more than welcome to hang out here whilst you wait for answers !
Wee Physio was actually less mortifying than it could have been .
Thanks in the main , to the lovely physio who made me feel very at ease .
Results of today's (very thorough) apt are that my pelvic floor is "lovely"
It's working really well .
She thinks that my undercarriage and insidey bits may have been traumatised by all the chemo and ct contrast fluids .
I have been barred from caffeine ignores the can of full caffeine coke in my hand and given stamina building pelvic exercises .
I've to go back in 4 weeks .
Sometimes gliding ?
How bloody fantastic !!!
Gigondas ·
09/09/2013 20:06
What! Chemo knackers your muff! That's not on the Macmillan list of side effects
welcome husky - sorry you are here.
At Peter Andre- I was wearing my pyjamas and dressing gown(as kurri said it was ok) and lieing in bed all morning malt.
Back to eating cake and watching jamie Oliver.
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