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***Tamoxigang - thread number 40!***

992 replies

GoodbyeRubyTuesday · 26/07/2013 22:08

Hello all! New thread as we have almost filled the last one. Help yourself to chocolate chip muffins from the trolley! :)

OP posts:
jchocchip · 04/08/2013 22:12

Aw thanks gig. I got off at Leeds. Only one stop to York... Luckily I made a connection and got home ok. Work tomorrow :( Where did the weekend go?

topsyturner · 04/08/2013 22:20

Right there with you Trice
Scan itself doesn't bother me , but going into the clinic for the results puts the shits (literally , as I always have to go for a poo whilst waiting !) up me !!!
I have another week to wait for my results . Monday week . And it's a bastarding afternoon appointment .
Sigh ...

malteserzz · 04/08/2013 22:21

Trice will be thinking of you tomorrow
Jchoc glad you got home ok
Gigs lovely pics on the beach glad you're having a good time
Amber the party looked great congratulations !
Another day ticked off here wish they'd go a bit quicker
Night all

Gigondas · 05/08/2013 07:20

Good luck today trice - candle lit.

Raining in York so think it will be indoor activities today. Also got call with dr later to find out more about op- bit apprehensive as any dr call makes me wary now but at least should have more idea of what's involved after.

Hope everyone else had good nights sleep/weekend.

malteserzz · 05/08/2013 07:36

Are you doing the touristy things like the Jorvik centre gigs? I remember there was somewhere where they introduced archeology for kids think it was called dig that was good
Slept all night thanks to the wonders of sleeping tablets Smile
Got my wig consultation at 5 today
Side effects nearly gone now, furry mouth is much better and hoping now I've had more sleep I'll be less tired today, been lucky really no sickness and no real nausea either, sometimes felt a bit off/weak and had a ginger biscuit. Sure will be worse next cycle

Trice thinking of you x

amberlight · 05/08/2013 08:17

Trice, good luck x

Gigondas · 05/08/2013 08:19

No reason to think it will be worse as will be getting same stuff so would expect same reaction.

Jorvik is on list for later in week (mr gigs has a very organised list of stuff to do Grin) - Copt was telling me good things about it. Think it may be trip on steam railway today.

Do post some wig pics later - FB secret area good. I love some good hair pics. And if you do want to use scarves i can try to some demos.

malteserzz · 05/08/2013 08:46

Love steam railways have a good day
I thought it built up each cycle though
Don't think I actually get it today, it's a consultation then they go off and do it and I get it in a few days

BetsyBoop · 05/08/2013 08:55

thinking of you trice xx

trice · 05/08/2013 09:39

All done. It was a quick and easy appointment. Apart from the fact the previous person had coughed blood inside the tube and it was all splattered. You couldn't see it until you were in there. They sorted it out smartish though.

They said results will be ready tomorrow. Which is really good.

I love York Gigs, I like the shopping and the Merchant Adventurers Hall has a horrible histories exhibit on at the moment. Ds likes the train museum,

Lilymaid · 05/08/2013 10:02

Hope everyone had a good weekend. I'm back from a lovely weekend in Suffolk. We stayed in a very nice B&B near Yoxford (inland from Aldeburgh and Southwold). Spent a whole day mooching about in Aldeburgh, ending up eating fish and chips overlooking the sea as the sun set (behind us).Then on Sunday we went to Southwold and to Framlingham on way home.
So nice to get away from home and the sofa and the day time TV and we have other little trips away planned for the good weekends in the chemo cycle just to keep our spirits up.
Isn't it strange that at home I can scarcely eat breakfast, but in a B&B I managed a full English!
Now feeling a little better about the chemo going up from 6 to 8 sessions so instead of getting half way at my next session, it will be another 3 weeks after that.
Now back to washing to salt out of the wig (which stayed in place despite a pretty strong wind on the coast!)

KurriKurri · 05/08/2013 10:06

Well done trice, - I'm glad it was quick. And good that your results will be in so soon -loads of love xx

BetsyBoop · 05/08/2013 10:30

sounds like a lovely weekend lily :)

thaat was quick trice, glad you don't have to wait too long for your results. Everything crossed for tomorrow. x

GoodbyeRubyTuesday · 05/08/2013 10:39

Morning,

My skin is finally healing and pain is almost gone! Grin

trice it absolutely does suck, I hated them being able to see something I couldn't (same reason I hate eye tests Confused), but glad it went well and results will be ready quickly :) eek at the blood spatter!

malt good luck with wigs. Apart from my "lucky dip side effect", my side effects were pretty similar each cycle once they stopped changing the dose, and as you've fared well it's less likely they'll change your dose, it's mainly the tiredness which is cumulative. Hopefully next cycle will be better than this one as you'll know what to expect :)

gigs have fun on the steam railway! :)

amber hugs and Brew for you

lily glad you had such a lovely weekend :)

Waves to kk and everyone else, have a fabulous day!

OP posts:
Copthallresident · 05/08/2013 10:47

lily it is frustrating when the treatment stretches out but it is very common and something you have to prepare for. I didn't get more treatments but my white blood cell counts delayed all my treatments by between a week and three weeks so what was supposed to be over by Christmas stretched to the end of February. It felt endless but you do get there in the end. Your trip sounds lovely. I have a painting of Aldeburgh beach opposite my bed, it makes me feel calm just looking at it.

Trice glad you have the scan over, I too hate hospitals, always felt someone had made a terrible mistake dragging me in there as I really didn't belong and certainly shouldn't be treated as a "patient". Will be thinking of you and Topsy waiting for results though as Topsy said you know you are feeling better.

gigs lovely pics on the beach, but where are the fish and chips? Grin have you made it to Betty's yet, the hot chocolate is amazing. As Little Copt said when she was about 7 with a satisfied sigh, "well, you don't get hot chocolate like that everyday" , perfect for a rainy day. I am sure a tray of them on the trolley would be much appreciated Smile

malt the tiredness builds up but I wouldn't say the level of nausea changes. I was one of the ones who just felt nauseous and off food but was never actually sick, and that stayed the same to the end. I think as others have said it seems as if you are predisposed to it, and you are lucky not to be. It was more the need to languish on the bed /sofa that built up and it got harder to cope with the downing effect on my mood.

I'm on my own Sad which is strange after all the tour guiding and DH finishing work etc. Dropped little Copt off with big Copt at her student flat, after a terrible in car conversation about the exact nature of the squalor, big Copt lives with three boys,tmi doesn't cover it. I know our student house was like that all those years ago, in fact famed for it's slugs but I'm afraid I have now developed more fragile sensibilities Grin the flat next door was raided by the drugs squad a couple of weeks ago too. But I 'm not worried that dreamy little Copt will fail to be sufficiently streetwise, no not at all. Hopefully the loo and bath will drive her home early.......

Anyway the garden calls....... Hugs to everyone

Copthallresident · 05/08/2013 10:50

ruby so glad your skin is finally healing and you can get on with getting stronger and fitter, not too long to starting back at uni as well, you must be getting excited about that.

kitkat1967 · 05/08/2013 11:10

morning all.
Great news Ruby - am glad the soreness is finally going.

Well done on getting the scan done Trice - are you going in tomorrow to get the results?

sorry to hear you are going to get 8 cycles Lily but you sound very positive and as you say if it's what you need you'll have to go with it.

Malt - I don't think you will suddenly develop any nausea/sickness if you didn't have it this time. I am still struggling with nausea (despite variety of meds) and the tiredness is def cumulative. Feeling better today but it's the first day I will be able to venture out (chemo was Thursday). Good luck with your wig fitting - hopefully you'll find something you like.

Gig - your beach pictures are lovely - almost makes me miss the early years!!!

Copt - am struggling to follow the vast number of visitors/family you have coming and going but enjoy the peace and quiet. I don't like it when both my DCs are away (in fact they are off tomorrow for 3 days) so keep busy in that garden.

amberlight · 05/08/2013 13:45

www.ncbi.nlm.nih.gov/pubmed/23896199 Seems there really is a link between aluminium and breast cancer/spread of breast cancer. Worth swapping to non-aluminium based antiperspirants, perhaps. I have.

malteserzz · 05/08/2013 14:20

I'll have to check mine amber presumably they say on them if they contain aluminium or not ? I'm still getting used to roll ons rather than spray

amberlight · 05/08/2013 14:51

Yes, it should list aluminium something or other (chlorohydrate?) as one of the ingredients. I use Bionsen which is available in most chemists and big supermarkets and it's worked very well so far. No aluminium.

malteserzz · 05/08/2013 16:01

Thanks amber Smile

SparkleRainbow · 05/08/2013 17:37

Have posted in special needs children, but I don't suppose any of you lovely ladies have any info (insider or otherwise) on GOSH's Neurosurgical team do you?

Sparkle's thought for the day......

Panic down!

When you feel the fear gripping you, and get that here we go again sinking feeling, wait before you go into absolute meltdown.....all might not be as it seems. Better to do that than sit in a consultation with eggy embarrassment on your face! Believe me sparkle knows, has done and now has the Tshirt!

Seriously thinking of getting a t shirt made up with panic down on it....I think it is a winner!

Ooo in that case I hearby copywrite it!!!!

Love to all

GoodbyeRubyTuesday · 05/08/2013 17:37

Interesting, thanks amber :) I use Bionsen and Sanex 0% (I find the Bionsen isn't quite strong enough for hot days Blush unless I reapply during the day). The Sanex says 0% aluminium chlorohydrate but it does contain "natural mineral alum", I don't know if that's troublesome or not, I shall have a read and see if it's mentioned!

OP posts:
GoodbyeRubyTuesday · 05/08/2013 17:39

Sparkle cross posted there. No knowledge at all of GOSH but I hope everything is okay and sending you lots of hugs and a calming Brew :)

OP posts:
amberlight · 05/08/2013 17:51

No personal knowledge of GOSH either, alas.