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********The 37th Tamoxifen Thread, Fun and Tears in "Cancerland" *****

997 replies

Copthallresident · 29/05/2013 14:06

Trolley Rolled over and "Its a small small world" playing on the ipod on repeat.

OP posts:
jchocchip · 15/06/2013 07:36

for trice. Have you any plans for today?
Mil here and outing to parkrun planned. She is going to do one lap. My nose is all congested today so think mine will be a very slow run...
What shall I have for breakfast?

malteserzz · 15/06/2013 08:44

Morning all
Slightly hungover here after a few wines at ds school sports presentation night!
He won players player of the year for his football team so he was really pleased. His coach says he's like Gary linekar lol

Hugs for trice and anyone else who needs them
Earth hope you got back to sleep
Jchoc good luck with the run, dh just nipping out for bacon cobs here Smile

Seroma feels the same as yesterday

topsyturner · 15/06/2013 09:06

Morning All

Welcome to you Lily
In the nicest possible way , I hope you don't stick around !!!

Betsy I too was blessed in the bosom department (G/H cup)
I had left sided mastectomy and right sided reduction .
To get a mastectomy on both without cancer being present , you have to have counselling to make sure you are not looney tunes !
Think kk went down that route but the counselling clearly doesn't work as she is most definitely looney tunes

I can't keep up with you all .
I went to bed before 9 last night as wasn't feeling the best (think it was Cancer Of The Forehead again)

I shall go back and read properly later , but have to get DD ready for horse riding by 10 .
She went on a school trip yesterday to one of these out door sports places .
A day filled with rock climbing , archery , swimming , canoeing etc , resulted in her passing out fully clothed by about 8pm Grin

See you later ladies x

MaryAnnSingleton · 15/06/2013 09:27

poor non-sleepers Sad I did wake up ages before I needed to today,but that's habit-forgot I was allowed a bit longer.

Gigondas · 15/06/2013 09:42

Another bleary eyed person thanks to mini gig. Very achy too and leg more sore as think they were bit rough with dressing change (hnd had this issue). Feeling bit Sad as so immobile and wondering how can get about more.

Smee- hope you are resting up and doing ok post op.

Amber- think lightening all your many projects is a good plan. That will give you more time for bus shelter.

Topsy- dd activities sound amazing but hope forehead cancer is better.

Hugs for trice (I know the I still have it worry) and emin.

Malt- Grin for your ds and your hangover. You deserve a night out.

Waves to kurri, lily, betsy, Copt and anyone else.

topsyturner · 15/06/2013 09:50

Big slaps to the back of the head to Nurse Ratchett for you Gigs !
Think you might be entitled to an afternoon nap today .

Gigondas · 15/06/2013 10:05

Ooh scary nurse.

Am in sofa listening to graham norton on radio two with coffee - his problems are very entertaining distraction. Plus plays a load of 80s cheese music- Howard jones anyone? I was very pleased to find some massive Saddo person had made playlist of all the early now albums.

HerNextDoorAt21 · 15/06/2013 10:14

I know, I know, I am a such a terrible boardy - just disappear for week on end.

topsy told me there had been some congratualtions about my pump removal and I came by to say thank you. It was removed on Tuesday after the fat necrosis slowed down considerably. They wanted to see how it went until yesterday.

I saw my lovely surgeon yesterday and she siad that 'Sydney' and I could be separated after 12 ish weeks together. So we are well and divorced now as i slung him back into the hospital - I was sick of him hanging around me !

You won't believe how liberated I feel, I was giddy having a shower with absolutley no dressings for the first time in 5 months and 3 days !!! I still have to dress the 'holes' and allow the minimum amount of exudate out by use of funny little wicks that i have to poke inside but it is a massive improvement on lugging around the pump for all this time.

gigs how are you finding your VAC ?

I have now gone back to work on a phased return as financially i was going to be doomed. I had a biot of a fight with the occupation health (or environmental health as topsy calls it) nurse as she wanted me to stay off until October ! Anyway, I am now strarting week 4 of a 2 day week, then 2 weeks of 3 day week then I do 4 days then go on holday so thats good ! Back to full time in August but only two weeks then have 2 short weeks to sped time wiht the kids until they go back to school.

I chatted to the surgeon yesterday and I have decied for many reasons ( financial and having a bloody rest from hospitals) that I will have the reduction of the good side and the lipo sculpuring and nipple tattoo of the new bood done after Christmas.

Will try to pop by more often to keep in touch

sparklesunshine · 15/06/2013 10:22

Welcome Lily and hope the results are better than you expect.

Sorry to hear about the mx Betty. I'm in that club as well - mine should be coming off in Sept. it's very strange having it still there when you know it's leaving!

Doxetaxel went ok. The new nurse missed the slot in my port and injected saline into my shoulder before someone came to correct it. I wasn't nauseous much at all but turned bright red at the end. They said its a mild reaction but not to worry as it came at the end. I'm just hoping it doesn't build up like some allergies, but I only need 3 more rounds.. I've not been swallowed by the sleep monster just yet too so hopefully that continues. I would like there to be some ways I'm lucky in all this Grin

Gigondas · 15/06/2013 10:26

Another one down sparkle- reaction doesn't sound great but can they adjust the steroids to help?

Hnd - have missed you. Phased return sounds sensible (despite health and safety objections). But so Grin. That pump gone. I am fed up of mine already ( it's heavy and makes horrible groaning noises) and know exactly what you mean about the bliss of showers with no dressing.
Got at least another two weeks with mine!

Copthallresident · 15/06/2013 10:49

Waves excitedly to hnd great that you got rid of Sydney and are getting on with life

gigs sorry you have encountered a nurse Ratchett, a restful day with Howard sounds just the thing i'm so sad there may be those early NOW LPs, cue laughter from big and little Copt at use of word LP, in the loft, along with my 45s, even more laughter, they are called vinyl now Blush

betsy at my hospital they actually have a specialist hormone therapy unit but they are at forefront of studies into importance of hormone therapies, my Consultant says he probably would have recommended it instead of chemo for me, because my tumour was very strongly ER positive and I had a history of hormonal cancer and other problems. I think medical establishment quite wedded to chemo in spite of fact that for some of us the benefit is negligible, I would certainly ask the questions of the Oncy.

I'm very relaxed about my other boob, once I was on the Tamoxifen all the lumps disappeared and I never really believed my small and rather pathetic breasts were capable of such drama anyway, they couldn't even muster a cleavage without serious scaffolding Grin or a serious wonder bra with added wonder padding.Grin

ruby we are statistics twinnie's. I too was given 40 % chance of recurrence, actually come to think of it, that was of not surviving 5 years, but well it is 12 years so just goes to show, statistics , pah! Same goes for all my chemo buddies and some had worse stats, we were right that all the bad statistics are deep fried mars bars eaters........ Plus as I understand it with bowel cancer even more than BC they can just keep zapping it with lazers etc and there are people walking around who have had it for decades.

Waves to all

OP posts:
GoodbyeRubyTuesday · 15/06/2013 10:54

Morning all,

gigs that playlist sounds fun, shall have to look it up. :( for achey and soreness, hope you feel better soon.

Might venture out to friends' engagement party this evening. I had a rough time yesterday evening though, had an early night though and slept quite well in between wakings :)

Lovely to see you HND and fabulous news re pump divorce! And phased return, sounds sensible :)

Am currently trying to choose wools for my next project. I can't get out to the wool shop really but it's so hard to tell which colours go together from the little online pics!

jchoc hope nose feels better soon and good luck with park run

ned very jealous of nachos, one of my fave foods Grin sounds a lovely chilled evening chez Ned, enjoy London.

sparkle eek at clumsy nurse! Hope the reactions don't get worse :)

malt well done to DS!

Waves to all I've missed x

GoodbyeRubyTuesday · 15/06/2013 10:58

Cross posted copt yay for statistic twinnies Grin that's very reassuring, thank you :) I even work(ed) - Dr W said definitely no return before end of contract- in Govt stats so really ought to be more sensible but it's so hard when it's in black and white and scary medical words Grin I've never eaten a deep fried mars bar so must be doing something right!

Copthallresident · 15/06/2013 11:01

gigs goondog does not need to see it, he dreams about it, and he has lived the dream, when he pulled down my clematis, knawed his way through the very thick stems of an ancient climbing rose and unweaved a trellis to get behind the shed and tunnel under the fence to get at the fox next door. Yes he must have done this in stages, and probably put trousers on to carry the dirt away.......... Unfortunately he couldn't work out how to get back so we were calling him for at least 15 mins until neighbour found him with his head down foxhole.

He frequently comes in stinking in morning.......

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EarthMotherImNot · 15/06/2013 11:13

Back againBrew all round with mad muffins on the trolley. I did a batch with glace cherries, mixed fruit, white chocolate pieces and marmalade, all in the same muffin mind you! Why marmalade, I hear you say. No idea, it was there so in it went.

Lovely straight off cooling tray.

I've been having a bit of an ishoo, if this sounds familiar shout up please cos it's starting to be a bit ott. I'm pottering about, or typing/crocheting/ whatever and all of a sudden my whole body seems to jump.

I know I don't actually move so what on earth is it?

GoodbyeRubyTuesday · 15/06/2013 11:29

Sounds horrid EMIN I don't think I've experienced it but maybe your body coping with the shock/horribleness? Sometimes I'll suddenly remember the cancer out of the blue and it makes me shudder so maybe similar. Muffins sound fun Grin I loooove glacé cherries and where chocolate!

Copthallresident · 15/06/2013 11:32

EMIN that happens when I am tired, like a jolt?

OP posts:
Gigondas · 15/06/2013 12:04

New thread here here

malteserzz · 15/06/2013 12:06

Emin is it like the jolt you get when you are falling asleep sometimes ? Could be just because you are exhausted. Muffins sound random but yum !

Ruby hope you get to your friends engagement party tonight

Lazy day today I've not been dressed long Smile

EarthMotherImNot · 15/06/2013 12:29

Oh malt (Emin bows) your dressedShock

Could be tiredness, I'm not sleeping well at all. This bloody disease is a pain all round.

I will, hopefully be better informed on Monday when I get back from hospital with a schedule of treatments in my hot little hands.

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