********The 37th Tamoxifen Thread, Fun and Tears in "Cancerland" *****

[Copthallresident]

Trolley Rolled over and "Its a small small world" playing on the ipod on repeat.

And small mercies about no mammo mas.

I am wiped out today .

Ignore last post I know googling is v bad !
Put your feet up gigs not surprised you're wiped out with France then hospital x

I'll say gig - feel a bit silly for not checking first. Not surprised you feel wiped out - can I fetch anything from town ? am going for my coffee exercise

Malt, they try very hard not to remove any more nodes than they have to, as it increases the risk of Lymphedema (arm swelling).
Have a
I am.
Anyone else?

Oh yes malt - am tons better than was as have learned not to google.

Would be good.

Malt, yes I googled obsessively when first diagnosed and am a total hypocrite as I tell everyone not to. Knowledge is helpful and helps with appointments, etc, but then that's what we're here for.

Hooray for no mammo, MAS. What's 'A Small World'?

Not surprised you're wiped out, Gig. Can you recline in the sun?

Have been doing smee. Now on bed as need to recharge pump.

Smee its a ride where you sit in a boat and go through lots of different countries with dolls dressed in the traditional costumes all singing it's s small world after all, very cheesy but cute ! Normally has a short queue too as lots of people can be going round at the same time I need a Disney fix

The song is a real ear worm.

smee Don't listen to them, they are just trying to lure you into a form of torture devised by evil Disney. Once you hear that song it will never ever leave you. Guaranteed to make your 3 year old want to ride it endlessly whilst the parents are just willing it to stop..... I think you are safe though, I reckon children realise it is actually torture around 7!!!!DH and I had to alternate or might have rum amok and murdered the cast members, who in any case, being French, were smiling with their mouths but with their eyes were saying "C'est rien que de la merde" (They may be a bit better trained now, it was only a year after it opened, far too soon to have overcome the gallic shrug) I bet all the shows and rides aren't in French anymore either, which they insisted on originally, very strange having C3PO wittering on incomprehensibly in French, and all the English, Germans etc. looking completely baffled.

Funny thing, especially considering how she started , but Little Copt really didn't enjoy Disneyland, age 3, looked bemused and a little phased by it. Now the Dyspraxia diagnosis makes me wonder if it was sensory overload.

malt How romantic! DH proposed to me when I was on the loo on Sunday morning, I should have been warned shouldn't I? He had completely failed to take the hint to propose in Kashmir on a Shikara like this one www.flickr.com/photos/spencerscomet/515741133/ called the Love Boat, or in the Shalimar Gardens, or in front of the Taj Mahal the week before, and we were at my parents and if he didn't do the deed we weren't going to be able to start making the arrangements in time, so he literally left it until the last possible moment before we left!!!

Would it help if we were to tally up all the lymph nodes involved amongst those of us still here? One here. Also I was treated before Sentinal Node Sampling came in and if you can avoid having the whole lot out you should really take the chance, had more trouble with that healing, and limiting my movement, than the entire mastectomy. I've avoided Lymphodemia but my armpit is still numb in places.

gigs I hope you are relaxing in the gorgeous sunshine.

Waves to everyone as she hurries out to plant things from garden centre before DH realises I've been there again...

Quick update on what turned out to be a very upsetting afternoon My sis arrived and we had a quiet chat over coffee, turns out she has been struggling with how we show our feelings, right out in the open as a rule!

She feels, as far as I can make out, that we should be a bit more reserved??? and not so cuddly. Ain't gonna happen so we have to agree to disagree on this one.

Next the assessing person arrived to see about converting a space for a small shower/walk in bath. She had me trying to climb the stairs without help which was mental pain as well as physical. It turns out they would want me to attend their bathroom unit to see how I can transfer from chair to bath because their aim is to get me back upstairs instead of downstairs living I'm coping ,bath aside, with well. Their preference is a stair lift other than a separate room because it would cost less to do. Bloody council, can't they see, I'm not going to improve. Sorry ladies been an awful day

earth sorry you've had a tough day - I always say I have an excellent relationship with my sister and mother because they live in Australia!

So to counteract those evil cliff richard posts here's a little Aussie something

speedos rule

Oh earth (((hugs))) it is very fast to get a stairlift put in which is a consideration. The whole dfg system is a minefield ime, but if you are getting grant for lift, could you put the grant towards what you really want? I know councils are not so ready to spend these days. :(

Smee you are blessed not to have had small world inflicted on you!

Earth hugs for your crappy day, families can be funny things what a strange thing for your sister to say :(
Copt thanks for your kind words and reassurance

oh earth that's not good, sorry you've had a crap day.

hope you are feeling better soon gigs

copt I'd love a list of node involvement, malt and I can obsess together then

In the end I only had a FNA on one node (axialla 3 I think he said? - between boob & armpit anyway) as the radiologist said the MRI would give the all the info the needed boob-wise without another biopsy on the other smaller area of concern. He did say that this particular node look "a bit suspicious" (which I guess is more hopeful than the "highly suspicious" I had when he took the first biopsy last week of the hardened area in my boob! He is a very lovely guy. I think I might have a bit of a crush best not tell DH that one :)

Now a bit more hurry up and wait. BCN said she would ring me tomorrow pm to let me know if I managed to make tomorrow morning's MDT meeting (not sure if MRI report would be back in time)

What a day, Betsy. If you don't fit into the MDT meet tomorrow, does that mean another week of waiting?!

Earth, does sound like an awful day. Have you any nice things planned for the near future? Sounds like you need somethings to smile at. x

A Small World, sounds rather wonderfully kitsch, but I doubt DS would let me near it. I might have to sneak off by myself and get strange looks from surrounding parents.

On lymph node count, I had 4 out of 22 involved.

at Coorong.

Lovely night. Have just been for a run. Well when I say run, more a waddle in the sun.

earth so sorry it's been a very crappy day
and a hug for betsy
Stopping work now for supper

Hi everyone, this thread moves so quickly that I can't keep up so sorry if replies are a bit random. gigs I hope you're feeling a bit better after your op, but I'm sure too many orange men can't be healthy! smee I have traumatic memories of A Small World from over 15 years ago - my then 3 year old dd adored it and the ride was so empty that we went round about 5 or 6 times in a row. I still sometimes sing it very loud early in the morning when she's at home and hungover just to get my own back . Malt I had one very traumatic google session with cancer #1 when the first hit I got was a medical paper about a woman who died two weeks after recurrence. What I didn't know at the time was that there are two flavours of my cancer, one well behaved and a rather poorly behaving one. I had the well behaved one and the article was about the other one. Mine can come back as the other type but hopefully they've removed enough of me to limit the chances of that. But yes, I managed to scare the sh*t out of myself for a good few weeks until I got proper information!

earth so sorry, I don't know how I missed your post - sorry it's been such a horrible day for you

mas you have just brought it all back argggghhhhhhhhh

yes smee if I don't make tomorrow's meeting it will be another week of waiting before they can agree the treatment plan...

The lovely lady radiographer at MRI was asking what happens next - so when I told her she said she would try her best to get the radiologist to look at it this afternoon, so fingers crossed.

I know I keep saying lovely staff, but without exception so far the have all been fabulous :) am sure I will find some annoying ones at some point

Betsy, hope you get results soon. Phew re your staff!
Earth, hugs for you. And for anyone else in need of one.

MAS. I like the first comment underneath: "the scariest ride in Disneyland"

Betsy, really hope they do fit you in then. The waiting's so gnawing. I had lovely staff all the way through. Just one mad Rad's nurse who failed me on dressings, but even she wasn't nasty just incompetent. I LOVE THE NHS.