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******The 36th TAMOXIFEN thread******

999 replies

NedSchneebly · 10/05/2013 20:02

You all out there? Pop this way!

OP posts:
KurriKurri · 28/05/2013 13:31
topsyturner · 28/05/2013 13:48

Afternoon All

Thanks for the link Copt , I think I'll order one tomorrow (when there's actually some money in my bank !) .
I bought a coral strapless maxi dress on eBay the other day , so the bra is for that .
If the bloody surgeon would give I'm and perform my rebuild instead of telling me I'm too bloody fat then I could actually go break less for the first time since I was 12 Grin

Copt I think if my DH were to be at home all the time , he might trip and fall and repeatedly bash his head off my garden spade - and them bury himself under my patio Grin
Think you need to find him a hobby !

Earth I don't think people really understand how debilitating , not sleeping properly is . Maybe a trip to the gp for some tabs , just to get you back into a routine , is called for ?

Gigs hope that you are resting properly . Applying Mr Gigs false tan is bound to make your arms ache ... Grin

DH at work .
DS at school .
DD nerf gun warring outside in the sunshine with her friend and a neighbours cat ! (Cat thinks he's a dog and always comes out to play with the kids , much to pig/dogs disgust)

I'm having a coffee in the sun , in the back garden . And contemplating whether to have lunch or chocolate not .

topsyturner · 28/05/2013 13:49

Bloody fat fingers (surgeon might have a point !)

MaryAnnSingleton · 28/05/2013 14:03

at the risk of playing the devil's avocado I kind of agree with your dm trice - diabetes,if not controlled would kill you, as would cancer without treatment and mets are now regarded as a chronic illness which can be managed by drugs. This I think is a healthy way to regard it- of course you must let out your feeling, but grizzling about imminent death isn't helpful. Sorry to be blunt, but I do think that it's better to actually get on with living than thinking you might die.

Sometimesiwonder · 28/05/2013 14:09

Well said, MAS.

We have lots of ladies with mets on here and they aren't planning on going anywhere. Too much life left to live, and thank heavens for that! x

Gigondas · 28/05/2013 14:16

Thanks for that mas as I needed that reminder - only place I am going this afternoon is chocolate cupboard .

Or for Kurris crumbs.

Topsy- I am not encouraging any more fake tan Smile. Last night I was watching the voice with the nanny who is from Slovakia . It's fair to say point of Tom jones was lost on her .

malteserzz · 28/05/2013 14:22

Feel it's usually me who starts talking about dying honestly if you'd rather I didn't just say I won't be offended

Gigondas · 28/05/2013 14:24

Malt - it's a phase . You should snap out of it. If you don't, I would echo whoever it was who suggested Cbt as way of stopping the negative thought pattern

MaryAnnSingleton · 28/05/2013 14:34

gig is right,it is a phase but in time you should feel more positive -am not offended by talk of death, I just think a bit of perspective helps.

MaryAnnSingleton · 28/05/2013 14:34

I'll also join gig for coffee cake crumbs and a visit to the chocolate cupboard

malteserzz · 28/05/2013 14:38

It does help, you have all really helped thank you just by showing that you're getting on and still enjoying life
I think it's just all still new to me and I'm struggling to come to terms with it but hopefully will with time

amberlight · 28/05/2013 14:56

If it helps to see statistical things first-hand, try www.lifemath.net/cancer/breastcancer/condsurv/index.php which may or may not help. Only as good as the info put into it, of course. Wild guessing will yield silly answers. But it shows the worst-case results. Current results are better than this lot, because of newer treatment regimes etc.

KurriKurri · 28/05/2013 15:13

Cakes finished at last - have managed to salvage a few edible bits form the wreckage.

malt - you can say anything you want on here, and it is a place where you can say things you might not want to say to you family or RL friends.
But I think it is easy to get into a very negative cycle of thought that can
be hard to break out of and very exhausting for you.

I was very very much like you when I was diagnosed, absolutely terrified and always thinking of the very worst case scenario, - it is scary and because you haven't actually started on your treatment plan yet, your mind and thoughts are all over the place, - it's the uncertainty and the steps you are taking into the unknown. It does get better, it really does, once you have had your op and you have a follow up treatment plan - just hang in there Smile xx

KurriKurri · 28/05/2013 15:16

Oops clicked too soon - coral maxi dress sounds lovely topsy - is it for a particular special occasion?

MaryAnnSingleton · 28/05/2013 15:33

I was looking at coral nail varnish for my foot claws earlier...lovely colour.

Copthallresident · 28/05/2013 16:01

amber I was just feeding, out of interest, my details into that although it doesn't do double figures for years since diagnosis Grin my current risk is as advised by Dr Geek but it was interesting to put in my original details as if diagnosed now, my risk, then 40% would now be 20%. Even more interestingly friend rang so we fed her details in and her risk, 50% 12 years ago would now be less than mine, 19%, the effect presumably of adjuvant use of Herceptin. Although our odds then were based on some finer details, eg she was breastfeeding it just underlines how things are changing. She is going to tell Dr Geek "I bloody told you so" as she tried hard to persuade him to give her Herceptin but he refused as not enough evidence on side effects v benefit Grin

Topsy yes that fate for DH was in the subtext [ grin] , or Oleander, friend had aged aunt who claimed to have poisoned her horrible husband by making tea with it and was never found out Shock . My negotiating position on ground rules will be strengthened by my handyness with spade (not today though) and a new oleander bush Grin .......he has all sorts of ideas for hobbies , cooking (think pan instead of spade) , helping old people (Zimmer frame) and Big Copt just told me he has confided he would like to open a barbecue restaurant Shock, (mad chef) and she is worried about her inheritance, he knows better than to run that one past me as I turn into marketing bore at every failed restsurant and business in high street, gigs will tell you it makes me very boring....

malt I still think it is early days, and pre op, it took getting the first chemo out of the way ( which you may well not need) for me to start seeing the future horizon clearly as a hopeful one . However it really does help in the meantime to try and not give dark thoughts too much space, CBT , visioning etc.

gigs Thanks for tips, it is probably the weight of my brain, rather than manhandling banana trees around garden [ grin]

jchocchip · 28/05/2013 17:34

Malt ime it is normal to plan your funeral when you get your first diagnosis. Its a shame you have had to wait so long for your op. I found I came to terms with it when I got my path results 2 weeks after my op. At the moment you are peering over the edge into the abyss, you will feel much better with treatment plan which is like the ropes and equipment you need to move on...
Dress sounds nice topsy, hope you get the scaffolding sorted :)
Mas, gig, I had nice coffee out today too with my db and rather nice cake. Too much traffic rain on m6 though...

Gigondas · 28/05/2013 17:41

I am eye rolling from across the channel at restaurant idea. Something needs to be done about our high street but another restaurant isn't it.

Stats are dire for my condition as its so rare so I stay off google and don't ask. Sometimes dh tells me stuff which isn't always helpful. But let's face it no stat in world will tell you it will all be ok which is what we all want so its never a complete comfort.

Need to get some enthusiasm to get off sofa and ready to go out.

malteserzz · 28/05/2013 17:53

Thanks for all the support
I daren't look at stats

malteserzz · 28/05/2013 18:00

But a week today hopefully my op will be done and can start looking forwards a bit
Raining all day here it's finally stopped now, just been out for a walk which was nice
Hope everyone has a good evening x

amberlight · 28/05/2013 18:06

I'd already told you that yours are above 94%, Malt, and that's accurate info. I've never told anyone rubbish in my life, honest.

malteserzz · 28/05/2013 18:12

Thanks amber I appreciate that I think it's just the waiting getting to me x

Copthallresident · 28/05/2013 19:45

Well ground rules should have been set up a couple of hours ago because I just woke up to terrible smell of burning onions, he has been to pub with alcoholic best (since school) friend (first ground rule will ban this, or at least only allow it to take place in Reuben's as friend badly in need of nutritious cake) and he is drunken cooking Angry Keep me away from large pans.......

trice · 28/05/2013 20:10

I just had a phone call from my onc nurse. "What do you weigh. We forgot to weigh you." so I told her and she goes "You have to come in and be weighed we don't trust your scales" so I sorted out some child care and flogged over to the hospital. And it turns out that I have been taking too many pills and I should take seven instead of eight due to my surface area being less than they guessed last week. What are they like?! They just don't follow their own procedures. Scary.

I had peaches and cream for tea. Which is better than drunken burned onions.

amberlight · 28/05/2013 20:17

Copt, yikes!!
Trice, arrgh!!
I cobbled together a spag bol. It was edible, which is something. Watching a bit of Springwatch now. Wonder if that means we'll get spring soon Hmm