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******The 36th TAMOXIFEN thread******

999 replies

NedSchneebly · 10/05/2013 20:02

You all out there? Pop this way!

OP posts:
malteserzz · 26/05/2013 23:25

Night all hope everyone sleeps well and there are no 4am conversations on here!
Have come to bed dh up still with his family I hate the thought they're probably talking about me thought it will all be nice. Just want to be me not the poorly person
Sleepy vibes and sweet dreams to all x

sparklesunshine · 26/05/2013 23:43

Sorry to hear its hard ruby. Hopefully tomorrow is easier.

Copthallresident · 27/05/2013 06:48

ruby how many more infusions? I found it harder as I went along and in the end I was sleeping pretty much all the time. I also felt very weak and faint if I did try to do anything. KK and I have shared dramatic passing out stories. All the side effects increased as well, i think my last treatment got delayed 3 weeks because my white blood cell count stayed stubbornly low. It also affected my mood. I became really quite depressed. Of course this is not how it affects everyone but it was my experience. I know it is frustrating but once you are finished you will feel a lot better very quickly, two months post chemo my mood went completely in the opposite direction and I felt almost better than I had before, some of my friends had a dip, because with the treatment ended they felt defenceless IYSWIM so I felt quite guilty I felt so good.

It can't help having Dr W. It does help to feel your poisoner cares and worries about you Grin it might help to have a chat with your bowel nurse. She will have seen this all before and may have tips on how to cope.

Also do every little thing that makes you feel good, massages, even if they are DIY, crap TV, plan holidays (still do that!) , your return to uni? Whatever floats your boat.....

Lots of hugs, it is shit, but every day is a day nearer to getting it over with.

sparkle if you have finished FEC do you move on to taxotere next? All those groups sound great, you would not have been youngest in my informal group, average age was 35, I was ancient at 43Grin . A couple had babies and had found lumps whilst Breastfeeding . Those babies are now at secondary school !

MAS excellent A level choices, the first three served me well Grin

Not sure If awake too early or still up too late Confused might try and sleep a bit more

Love and hugs to everyone else that needs them ......

NedSchneebly · 27/05/2013 07:05

On French motorway (DH driving and swearing at French motorists) in early morning sun.

Hope everyone had a reasonable night?

Big hugs to all, especially ruby hang in there lovely x

OP posts:
trice · 27/05/2013 08:29

I have been off tamoxifen for a week now after taking it for five years. This morning my libido reappeared! So weird to suddenly get the horn. But very welcome. Dh surprised but happy. There you go, a silver lining to all this. I am now fretting that I am full of oestrogen.

malteserzz · 27/05/2013 08:36

Ned have a good time in France
Trice bet dh was pleased ha ha
Hope ruby is feeling a bit better this morning
I slept well and looking forward to shopping day in London with dd and sil today. From my bed looks like the sun is shining too Smile
Mum and dad on holiday today they changed the dates so they could be here for my op which means its only a week tomorrow now
Hope everyone has a good day x

trice · 27/05/2013 08:40

I hope Mr Figgy is recovering well from his op.

Hope you can find something to enjoy today Ruby. Can you get out to sit in the sun for ten mins today? I have only been having these chemo side effects for a week but I remember from last time how hard it is to fight depression while dealing with pain and sleepless nights and everything else. Big hugs.

trice · 27/05/2013 08:43

Oh shit. I used the fight word. Slap me.

malteserzz · 27/05/2013 08:44

Slap for trice !

MaryAnnSingleton · 27/05/2013 09:25

Grin @ trice
Have a lovely shopping trip malt
love to all - have a very fab time in French France ned(I am dense-hadn't twigged you were going there -doh !)
Waves to copt

amberlight · 27/05/2013 09:33

Hi all. Feeling alright now mostly.
We had our pension forecast through yesterday with a big note about how we could get higher rates for 'impaired life' Hmm Er, thanks, I think.

Meantime, we shall s*d off to a country pile and have a walk round, after a bracing bit of gardening. Next time I buy a house with a 300 ft garden, have me shot, please. Stupid, stupid idea. Made sense 13 years ago though, I guess.

jchocchip · 27/05/2013 09:39

Mmmmm brioche and coffee. I've got a Brew here in Welsh Wales. Beautiful day yesterday to drive in a greenhouse, saw plenty of mountains/ sheep/ lake. forecast dire today (woke up to sun though) but better tomorrow. Play tonight.

Hugs for Ruby. Yay for trice's found libido Grin.
Earth hope dd makes the right decision whatever it is.
Topsy is it raining with you? I think the weather here is coming from your way...
Waves to mas, smee, kk, ned, copt, malt, sparkle. Does anyone hear from the other sparkle who was here when I joined? also cakes and butterflies?

topsyturner · 27/05/2013 10:11

Morning All

Yep , rainy day here Jane

Trice someone's getting lucky today Grin

DH at work .
DCs still in bed .
Can someone make me a large coffee and a grilled cheese sandwich please ?

malteserzz · 27/05/2013 10:57

Amber 300 foot garden ds would love that for a football pitch!
Jchoc I did look at some earlier tamoxifen threads and noticed some people weren't posting any more, I did hope it was because they were busy I don't want to think about the alternative
Topsy I've had coffee juice and cooked breakfast made my mil yum, it's sunny here :)

amberlight · 27/05/2013 11:13

It'd be a weird football pitch; only 30 ft wide maximum, sloping, boggy at the bottom and with a stream running through it. I reckon the ref would give up and go home Grin.
Malt, I believe most others have recovered nicely and gone off to resume normal life.

KurriKurri · 27/05/2013 12:06

(((Hugs))) for Ruby - it is shit and hard, and wears you down so by the end you are fairly battered, but you are getting there xx

T's 'A' levels sound like good ones MAS (Govt and politics sounds interesting - we didn't have such wide choices when I was at school -I did History, English and Economics)
Do they still exams after the first year like my two did? (IIRC DS did 5 subjects and dropped one at the end of the first year, DD did four subjects and dropped one - she did music 'A' level, and it is enjoyable if you know the teachers are good - her teachers were terrible and made it all very stressful for the students)

Ned - I didn't know you were off to French France - have a great time, and Jane in Welsh Wales - beautiful - its years since I was in Wales.

Trice - banners and bunting out for the return of your libido Grin

waving to all - I'm off outside to garden before the weather reverts to foul.

Copthallresident · 27/05/2013 12:22

Amber Envy You are describing my dream. I've run out of space for my "projects" Sad Already imagining wildlife area by stream. A lot of work though I am sure. I have evil thoughts of dismantling the Copettes trampoline at dead of night to make another room, especially as now only play value comes from it being place they go for sly secret smoke and drink with friends Shock as if I don't know . They won't shift from negotiating position that they will only allow it to be taken down if replaced by a Polynesian thatched hut Hmm the perfect venue for drunken teenage drinking and smoking

Actually I am quite Shock at the number of them who smoke, I came from the first group of teens to appreciate that it kills you and so it stopped being cool, now it seems to be cool again Angry. I suppose it is another way of rebelling against us......

Trice get you!! naughty words AND deeds searches in vain for libido that isn't Damien Lewis related ie purely theoretical

Jchoc Does it ever not rain in Welsh Wales? Brew

Hope all the travellers are enjoying themselves in French France

topsyturner · 27/05/2013 12:34

Ok , made my own grilled cheese . You useless bunch Grin

Rain stopped .
Sun out .
Do I risk laundry on the line ?

DS up , showered and dressed . And heading off the the cinema .

DD floating around in pjs , painting her nails random colours .

jchocchip · 27/05/2013 13:30

Still pouring it down here but db has lit the wood burner and is making lunch Grin

sparklesunshine · 27/05/2013 13:52

Boo, I wrote a post but the phone ate it. Just to say I'm thinking of you all.

MaryAnnSingleton · 27/05/2013 14:05

sunny here but windy and a little cool just now in the garden (had lunch outside) The starlings are deafening -must be a starling convention,or something.
kk there are exams after the first year,i do find A and AS levels confusing - think his choice is good in view of his chosen career (politics!)
I did art,English and Biology and managed to fail English as I chose to leave out all the questions on Wordsworth (not deliberately-I mistakenly thought he was optional- terribly dull anyway) Managed to pass biology though,just about.

MaryAnnSingleton · 27/05/2013 14:06

malt those who have left the thread did so I think because they felt able to get on with their lives happily without the support - no one has pegged it !

jchocchip · 27/05/2013 17:30

:) malt, there are a lot of people who have the op and move on. Once back at work it is harder to find time to mn. I hang around with these lovely people because they are so lovely - I wasn't a mumsnetter before I googled tamoxifen and found thread 13 :) Life has moved on and I don't think of myself as having cancer really- they cut all my lump out when I had my lumpectomy. I have an occasional wobble around mamogram time but know I have to get on with whatever life throws at me next. If I get a recurrence or spread, I know there is life after a cancer dx...

MaryAnnSingleton · 27/05/2013 17:57

jchoc thank you for writing that - you've summed it up brilliantly -may I add too that there's life after a secondary diagnosis too -I have just launched my new website and am busier than ever,feeling more creative than before my initial diagnosis- i do believe that keeping as much as you can to the life you led before diagnosis is such a help in keeping your soul flourishing amid the disorder.

amberlight · 27/05/2013 18:47

Ah, grilled cheese! Thanks, Topsy!!
Jchoc, the mind boggles re making lunch on a wood burner. Grin
MAS, yup. Fab website, too.
Evening all! Leaving Wine out.