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994 replies

MaryAnnSingleton · 26/09/2012 11:16

crikey !

OP posts:
Sometimesiwonder · 12/10/2012 09:48

Quick dash in with a smooch for MAS for today's appt!!!!! Thinking of you x

Hugs for Fab, and welcome to Birdland. My dd was 6 when I was diagnosed too. It's a bastard, isn't it? Sad But she's 9 now, and I am feeling pretty good so just keep putting one foot in front of the other, and you'll get there.

A great big 'HO' to everyone else (sorry, SR Smile )

Gigondas · 12/10/2012 12:07

Hello - mashope all goes well. And I think scan usually after 3 rounds? If niece staying does this mean you get a Disney channel fix.

Am doing ok topsy but trying to adjust to being out of hospital- it's not just chemo but all that went before incl pregnancy so feels bit odd not to be basing stuff around hospital appt.

Also although I luffs this thread , found was spending too much time on Mn and some of it is odd at times. And I may be sensitive to it but I don't really want to pop in and see a couple of threads in active conversation being about cancer (not to mention someone in another thread I posting about her mil and cancer which I thought was a bit fucking much when I was finishing chemo. But I suppose grief knows no tact Hmm so I have done a silent flounce from there). Now I know some of this is me being over sensitive but has meant am not on as much as usual although do pop by here.

Got bank sorted I think (useless gits) and found cake- in fact can offer some chocolate date loaf for those that want it.

KurriKurri · 12/10/2012 12:16

Loads of good vibes for todays appointment MAS

OTM - it's a hard decision, but I think you do need to allow a good amount of time for recovery after treatment - it often takes longer than you think, and it's better to wait until you are ready than have to keep taking sick days once you are back. I know Ned had to grapple with the decision when to go back - and I think ended up delaying it, -she is a teacher too, - so she may well be able to advise on that score.

But in general, I would say anything which can reduce worry in your life is a good thing. I wouldn't want to be worried about finances when I was trying to recover.

Fab - I was wondering if you'd been offered ultrasound? if not, I would ask your GP for one. They would be able to see if there was any cause for concern without doing a mammo. (They hesitate about mammo partly because they aren't so accurate in younger women like yourself because breast tissue is different, and also because it is exposure to x-rays which they will avoid unless they think necessary)
I do agree that saying you were OK a year ago is useless, you need to be reassured now, and given a proper examination. I sorry you have come away from your appointment frustrated and not reassured, - that is the very opposite of what should have happened.

Birdland - yes to the exercises, they really do help. It does take a while for your arm on the operation side to get back to something near normal - and in all honesty, mine is still definitely weaker than my other arm.
If you are having difficulty with fine motor skills ( which I did) - my DD bought me some of those 'grown up' colouring books you can get and I did a bit each day - maybe mad, - but it helped.
Just realised what that sounds like - I mean grown up as in degree of difficulty rather than 'porno' colouring books Blush (although I think I've just discovered a niche market!!) and with your dominatrix wig ............ Grin

How's the decorating coming along Topsy? --- and did you watch Inspector Banks on Wed? - I quite like Stephen Tompkinson in it, though normally he irritates me.

Waving to jchoc, gracie, Sometimes, Smee and anyone I've forgotten.

Amber - you're quiet too, - not running yourself ragged I hope Smile

I'm off to visit DS and DDIL this afternoon, - to have a nosey round the house they are doing up, - they hope to get moved in before Christmas.

KurriKurri · 12/10/2012 12:23

Gigs - massive , it is not over sensitive to want to protect yourself from tactlessness, - you have to do what ever makes you feel comfortable and good. Also the time after finishing treatment and not having regular hospital appointments does make you feel strange - you definitely need time to adjust.
lots of love xx

JustFabulous · 12/10/2012 12:29

KurriKurri, Last year I had a mammogram and an ultrasound but I got the feeling that wasn't routine and I had to have the mammogram done twice. Ironic that Monday is more likely to be bad news and I wasn't worried about this but now I am more worried and quite relaxed about Monday. Probably because the doctor was lovely and I know what the plan is.

jchocchip · 12/10/2012 12:48

Arrgh working from home today and was going to pop for a swim, but it's only 12 - 1 and I failed to set out in time :( will grab lunch and get my nose back on the grindstone :(

Hope you have a good appt today mas

topsyturner · 12/10/2012 13:02

Gigs I feel the same , kind of cast adrift ?
After everything revolving round medical appointments , I am now treatment and appointment free .

Jane get orf the Internet and do some work Grin

Mas hope it's all going well today x

What's for lunch ?
I have onion bagels and a few eggs .
Willing to trade for something yummy and cheesey ...

topsyturner · 12/10/2012 13:05

KK I watched the Banks thing . I do like him as Banks , but like you didn't like him elsewhere .

Decorating finished .
Carpet being laid on Monday , then bed will be assembled .
Have been surfing the Internet for window treatments
And have found a nicely embroidered white voile panel that I think might be nice
Will have to run it past she who must be obeyed DD later Grin

JustFabulous · 12/10/2012 13:11

I have some rhubarb upside down cake I made yesterday..

topsyturner · 12/10/2012 13:13

Any custard ???

JustFabulous · 12/10/2012 13:30

I probably do have a tin of custard in the cupboard but have been known to make it from scratch with egg yolk, etc. I gave it to the kids without yesterday though. DS2 loves custard and I decided I would wait to see if he asked for any. I think if it hasd been called rhubarb pudding he might have asked for some custard.

topsyturner · 12/10/2012 14:25

Ooh I love a spot of cake and custard !

smee · 12/10/2012 15:01

If you like cake and custard, eves pudding mini pots from M&S, are just amazing... Smile

OTM, I reckons it's taken two years for me to feel totally back to speed health wise. I've worked throughout, but work from home, so that's a lot easier. I still get all manner of aches and pains, though I think that's Tamoxifen. Take your time I reckon.

Birdland, my DS was 5 when I was diagnosed, so similar to you in a way. Like Sometimes, am feeling pretty good now, so keep trudging through it as there is light at the end of it all. Just takes a while.

(((hugs for Gig))) stay close to the fbt. Other threads can be way too weird xx

Waving to all others, as no time to post more. Just saying hi. Hope MAS okay at hospital.

MaryAnnSingleton · 12/10/2012 16:25

huge hugs for gig - the finishing of treatment and not revolving around hospital is indeed a very strange place to be - after the end of rads I felt quite cast adrift and very depressed. Feel free to email me if you need an ear Smile
Well -I am just back from hospital, my appointment was at 11 and I saw a very lovely oncologist from consultant's team - however the surgery yesterday neglected to take blood for a full blood count so I had to have another blood test (thankfully done by nice chemo nurse so no waiting around for that) but the results took 2 hours -argh ! They were fine so got new prescription and waited another half hour for that. I spilled everything to nice doctor and my beloved bcn and onc. said that she felt the pattern and size of the lung spots indicated that it was 99.9 per cent likely to be cancer -we looked at CT again and bcn pointed out that as well as the radiologist,the lung consultant and 2 oncologists had seen the scan too. So I am feeling a little more settled in my head- honestly though,they must think I'm completely barking. Onc offered to sort me out with some counselling but I think i'll manage and I know I have bcn and I trust her.

Custard is yum - I have a penchant for it cold on jelly...
Unfortunately no Disney channel access here,though parents probably can get it...it is my guilty pleasure when looking after Sophie - though she has taken to rewatching X Factor instead.

OP posts:
smee · 12/10/2012 16:37

Oh MAS, sounds like quite a day. Good that they all took time to talk you through it though. Have you nice plans for the weekend? I suppose it's back to pills on Monday? xx

No disney channel here either. My mum and dad are here and can hear them chortling away to Carry on Doctor on Film4. Smile

MaryAnnSingleton · 12/10/2012 17:49

am done in ! Getting my hair cut and some colour put on tomorrow and I really,really must work... Smile @ your Olds watching Carry on Doctor xxx

OP posts:
invicta · 12/10/2012 17:58

Over- have you looked at at what benefits you entitled to which may tide you over financially?

Birdland · 12/10/2012 18:43

Thanks everyone for such a warm welcome-its much appreciated ( and the suggestion about the 'grown up' colouring books/dominatrix wig combo kurri made me laugh as I was reading it at work-v frowned upon in a local government office!)

sandripples · 12/10/2012 20:16

Well HO everyone !!

Birdland - I was much luckier than others with Picc experience so would like to tell you how it changed my life. Just to balance things out for you!

I dreaded chemo and had a horrid time with vein-stabbing nurses who meant well but couldn't get into my veins - it got worse each time and then on one occasion I fainted due to the stress of it. Actually inserting the cannula became the very worst thing about the whole chemo experience. (This was partly because something had gone wrong after an op which required intravenous antibiotic and this was appalling - I later realised the cannula must have been badly inserted right back then and this got things off to a bad track )

Anyway, having never had any probs in my life with injections etc I became pretty phobic, and took myself to see a very nice lady at the hospital as rumour had it she might provide a picc line - I did this without arranging an appointment as I was rather desperate by this time ie after 3 ops and 4 lots of chemo. After being a little short with me she agreed, and the next week I got one inserted. This was a drama in itself involving the trainee PICC-line inserter and the line going up my neck... but eventually the expert nurse sorted it out under x-ray...

It was all worth it - I loved my line, he was called Lenny, and he took all the stress out of my blood tests and chemos from that point ie for the remaining 4 months. I had no infections and I was so relaxed about chemo that I drove myself on the motor way each way with no probs for those last 4 months..

So it does depend a bit on your luck but PICC lines can be totally brilliant - like mine. I was so glad I had it. I think I ad baths rather than showers and just rested my arm on the side.

Good luck.

Gig - I'm glad to hear you've finished chemo - hope the recovery goes well and you'll soon feel your energy rising.

Smee - DS is loving Imperial so far thanks- it was all very festive when we took him down and he's finding friends - I'm surprisingly Ok about it as he was getting bored at home and I knew it was time for him to fly.......also I've been busy with a wedding of a niece so haven't had too much time to think!

sandripples · 12/10/2012 20:20

PS Birdland - I also work in local government - are you working during your treatment? I am in HR and I wrote some guidance on dealing with cancer at work, including that some people manage to work - so perhaps you're an example? I did not work during my treatment but was lucky in that I had a little insurance which helped me until I felt ready to return. And I haven't needed a single day off sick since I returned 2 years ago [proud and lucky emoticon]

sandripples · 12/10/2012 20:21

PS MAS _ I am also a complete custardoholic - hot or cold!

Birdland · 12/10/2012 20:55

Hi sandripples-I think I should name my PICC line too as we'll be spending the next 4 months together!

I do a mixture of management and client contact in my job (some of it v stressful legal stuff). I'm finding that I can work 2 weeks out of 3 at the moment but I am moving on to a heavier chemo drug (taxotere) in a month so that might make a difference. I don't have any client contact due to possible risk of infection and don't do any legal work (as frankly I'm not up to it). I'm doing mainly office based admin tasks and looking at performance targets

My employers have so far been brilliant and they have had plenty of experience with other people in my position.I felt I needed to work to maintain some kind of normality and also I really like my colleagues who are all aware of my situation and supportive. The other issue is financial as I'm a single parent and I can't afford to go onto half pay unless its absolutely necessary. Its amazing that you have had 2 years without a days sickness!

MaryAnnSingleton · 12/10/2012 22:36

so glad that ds is happy SR

OP posts:
overthemill · 13/10/2012 09:40

hi all its sunny here! mas it sounds like you had a very good experience at hospital in that they listened to you and went over everything really carefully so i really hope it now allows you to be confident about next steps iyswim. sending you so many hugs and best wishes x

sandripples · 13/10/2012 10:32

Hi Birdland, that's great that you're coping so well and that work is supportive - exactly how it should be! I did find the treatment had a cumulative effect on me and felt I couldn't have coped with the stress of my job during it all. It was the right decision for me and I'm still glad that I made that decision. (Work was a particularly difficult setting as we'd just had a massive LG reorganisation and things were very stressful!)
I didn't have taxotere but yes I know it can be harsh, so take care.

MAS - DS's girlfriend has been very homesick so she's gone down to see him this w/e. This element is new territory as my DD didn't have apartner when she went off to uni!

I think about you mAS and send you a lot of hugs - I'm sorry I don't follow everything on here, but I saw it was (very naturally) tough for you to accept the diagnosis about the mets. Do you still have the same BCN and specialists you've had since the beginning? And do you have confidence in them? I hope so as that must be so important when there are further developments.
All - glad you enjoy the GBB as much as I do. I've just been reading all about Mary Berry's life and CBE in the paper. I also feel a bit smug that I've been a fan of her's for over 20 years, long before all this new publicity! Isn't she a star! What a role model, especially managing the tragedy in her own life. I didn't know she had lost a son in an accident - she's amazing. I now wonder if work is also a solace for her.
x

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