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**TAMOXIFEN 29**

994 replies

MaryAnnSingleton · 26/09/2012 11:16

crikey !

OP posts:
topsyturner · 10/10/2012 15:33

Just Fab well done for getting through today's apt . Fore warned is fore armed eh ?

Grey good apt for you today , long may it continue !

MaryAnnSingleton · 10/10/2012 16:15

topsy I was looking up sarcoidosis (when I was wondering about what I might have)
amber bcn said lots of people think/hope a mistake might've been made- I guess it's natural.

OP posts:
Sometimesiwonder · 10/10/2012 16:18

I think it's entirely normal to think and hope that, especially as you were feeling pretty fit and healthy before hand, as I recall. x

Well done Fab and Greylady x

topsyturner · 10/10/2012 16:40

A friend of mine is being treated at the moment for sarcoidosis Mas , and part of her treatment is a low dose chemo .

Gigondas · 10/10/2012 16:54

You could ask for a second opinion mas - that isn't abnormal and no decent dr should object.

Well done fab and greylady

Am having battling my fucking bank now so may need cake Angry

jchocchip · 10/10/2012 18:54

will go and look for cake gig I must have been awol for a while, just had to look the thread up. Will have a read through after making tea. Think I will work from home tomorrow, that will save some time.

jchocchip · 10/10/2012 20:18

Just read through, gosh it is busy on here. Congratulations to auntyned hi to justfab sorry to hear of all the proddings you have been subjected to. Yippee for grey for mas and kk you have made me think of the condensed milk in the cupboard..... that is going to do my diet no good at all!

jchocchip · 10/10/2012 21:28

remembered the pistachio baclava in my work bag from the Christmas market - will toss some onto the fbs trolley.

Baskets45 · 10/10/2012 23:02

Hello, all. I see I was 'mentioned' a few days ago, have been awol, as not very well and hands playing up - today has been my first day back on MN for a
bit. Read all your news though can't remember a thing except ned's new RED car called Jayden, and Over got BRIL results last week frm her first few months of chemo. Yay! I was really very pleased to read that. oh, and two birfday girls - and gig was sprung AND finished chemo just before her birthday. Belated birthday greetings to you both. Someone's dh has a birthday tomorrow - is it Mr KK? I know not all of you are having a good time, but fear if I mention one or two i'll miss someone out. So all best wishes, hugs etc to all of you, esp those having tests or treatment or an especailly nasty time this week. Jings, who knew a left thumb was so useful. i am in agony so must stop this typing malarkey. Oh, is smee back frm the biscuit eating conference?? Good night, all.

MaryAnnSingleton · 10/10/2012 23:37

Waving to baskets !
I do trust my team and think I'm just going through an OCD doubting thing . will see them on Friday so I expect we'll go over this.

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overthemill · 11/10/2012 08:07

omgoodness what a busy day - n way am i going to remember all teh stuff. but justfab glad it wasn't too bad - anticipation is worse probably than the real thing. my imagination goes into overdrive. baskets welcome back so glad you are ok
new babies always look scrummy to me and i always want to steal them, comes from only being able to have one of my own, want MORE!!

ned - how's the car?
went to GP tuesday for new sick not eand more HRT and he took me off it because of thrombosis risk with chemo so now i may go into major menopause type symptoms - ho hum, always something! he also gave me a flu jab (ouch!) and suggested it may be 6 months to a year before i feel truly well after chemo so am beginning to think about applying for early retirement (am 54) - anyone else done this?

i have shortbread fingers and some kind of naughty choc biscuits for fbs

KurriKurri · 11/10/2012 09:55

Good morning all Smile

Hope everyone is feeling Ok today, - good luck to anyone with treatment today.

MAS - I'm sure your feelings are perfectly normal for anyone in your situation, not necessarily just because of OCD. I hope you can have a good chat when you see them on Friday, and can raise all the questions you have. xx

Fab - glad the appointment wasn't too awful and you felt prepared. Much easier if you know roughly what is going to happen I always think.

Waving to Baskets - nice to see you Smile Sorry about your thumb though - that's a pain.

jchoc - hello, nice to see you Smile - sorry for mentioning condensed milk Grin hmmm baclava .....

OTM - I would definitely concur with your doc. it does take a good six months if not longer to recover from chemo - at least that was my experience. It's largely the fatigue, you have to learn to pace yourself, and you will probably find that if you do a lot one day, you can't do anything the next because you are so tired. I suppose I have sort of retired - as in I haven't worked since I was DX, although I may return to work at some point in the future. But I wasn't in a job that involved having to decide to take retirement as such anyway.

Definitely worth considering, - depends how much you love your job (or otherwise!) and financial considerations I guess.

Mr KK is 52 today (still younger than me the swine). he decided to make a cake to take in to work, and started it at midnight last night. It all went disasterously wrong - wasn't cooked in the middle amongst other things. Anyway he abandoned it in the end and decided to buy a cake on the way in to share with colleagues. So I have a whole load of semi cooked, sunken sponge in my kitchen

Love to all xx

MaryAnnSingleton · 11/10/2012 10:28

Happy Birthday Mr kk - hope he has a lovely one.
Good luck today at breast clinic fab

OP posts:
KurriKurri · 11/10/2012 10:35

thank MAS - I'll pass on your b'day wishes.

And yes of course Fab - lots of luck today - we'll be virtually holding your hand xx

JustFabulous · 11/10/2012 10:36

Thank you MAS. I have decided I am having a day for me yet somehow this morning I have done the washing, dishwasher, cleaned out the microwave and made an upside-down cake HmmGrin. Kids will love that as I haven't baked for a few days as they were getting too expectant about baked goodies and not appreciative enough.

I am leaving at 2pm for my appointment. TBH I am worried he will send me away with a flee in my ear as there isn't a lump.

Gigondas - I hope you managed to sort the banking out and you enjoyed your cake.

Hope everyone has a good day.

JustFabulous · 11/10/2012 10:39

Thank you KurriKurri.

overthemill · 11/10/2012 11:06

happy birthday mrkurri , not sure what you can do about cake. my mum used to pour custard on any disasters and call it 'pudding'!

re early retirement, its from an old job when i was corporate whizzkid not now i am a teacher. wondering about going for it and then it gives me financial freedom (at around 50% of current salary when working) to not have to go back if i am not reallly up to it. love my job but it is very demanding (teacher of yr 5 - 8)

smee · 11/10/2012 11:58

Hellooooo! Am back from my conference. Biscuits were plentiful. Smile

Will try and catch up, but has Greylady returned to tell us she's okay?? And Fab am thinking about you today. Will keep thinking until you're back. xx

Happy Birthday to Mr Kurri! Smile

Ned, congrats on the power ranger car. Does it morph? I think power rangers do that.. Grin

OTM, teaching is hugely demanding. I really take my hat off to all of you who manage it at all, even before cancer I'm impressed.

MAS, I'd imagine questioning like that's all part of it wondering if it's right. I know I felt like that when diagnosed. It's all happened so quickly for you too. You must be utterly baffled. Second opinion might be an idea? Or are you going to wait and see what the next scan says. Have they got a date for that? xx

Gig no tips from me on jealous mini-Gig. Must be tough though. How are you feeling??

Better get on. Waving to all others though. Will be back later. xx Smile

JustFabulous · 11/10/2012 16:06

I am back. Don't think I will ever go there again.

KurriKurri · 11/10/2012 16:29

hello Smee- glad the biscuitfest conference was successful.

thanks for birthday wishes for DH everyone - I'll pass them on. Smile

OTM - teaching is a tough one - so demanding, I think you will have to just play it by ear and see how you feel, bit it sounds as if taking early ret, from the corporate job would be sensible financially (if I have understood you correctly - ignore me if I've got it all wrong Grin)

fab - how did you get on? - apart from not wanting to go back?

We have party snacks here for anyone who wants them, and there will be Moccha Cake later.

Baskets45 · 11/10/2012 17:01

Good to see smee back with custard creams. I always have a laugh when ppl mention custard creams as, yrs ago when boys were in primary school, i was on PTA (or PSA as called in these parts) and there was massive stooshie (Scottish word for fuss) over custard creams! apparently somebody had the temerity to donate said custard creams to an event which invoved cups of tea in village hall, and not the expensive M & S biccies the PSA chair preferred. She brought this up at next meeting, told us all off like naughty little people (she was definitely a person who needed to get a grip!) Can you guess the identity of the cheapskate who sent in custard creams. As I said at meeting, I like custard creams Grin Wink .

JustFabulous · 11/10/2012 17:04

I was expecting to see the doctor I saw last time as per my letter but it was someone different. Examined me in less than 5 seconds and started telling me I need to take EPO and had I had my bra fitted. Yes, 2 weeks ago.

Basically because I had a m ammogram a year ago I was totally fine. Her
"Yes, that was in October." Er, yes, one year ago as it is October now, not that I said that.) Said she would book a mammogram for reassurance. I nearly said don't bother if you are so sure but then I thought no, you haven't filled me with confidence and I would like a second opinion. Maybe I am expecting too much and a 5 second check is enough. She also didn't like it when I asked questions and just kept going on about EPO.

I came away quite upset and just feel why bother doing what you are advised too when you have changes if you are going to be made to feel like you are an idiot or a hypochondriac.

Baskets45 · 11/10/2012 17:41

Now I've reported on CustardCreamGate, a serious response to others on here.

Fab, I hope you are okay after your clinic appt. If/when you feel up to it we are all here to 'listen' to how you got on.

MAS, I've been thinking about your situation a lot, and agree with others that your response is quite 'normal' in the circs. TBH anything is 'normal' in the circs! I hope you will feel able to tell the onc about your doubts tomorrow, and he/she will talk you through the thinking on your dx. Part of your care is to be able to air your thoughts on what is happening to you, so you shouldn't feel you can't, iyswim.

OTC, not sure exactly which job you are thinking of retiring from, I think frm what you say it's the corporate one but not both?? Anyway, I'll share my thoughts and you are welcome to ignore me if it suits more! In no particular order, you are responding well from chemo so far, but it's early days. However, the disease you've got is very treatable, and 6 months to a year isn't a huge recovery time really when all the active treatment is behind you. You shouldn't feel guilty if you need to take several months more off teaching once your active treatment is completed and I'm sure your GP will support you in this. And the dr would probably recommend a phased return, though I know that's not always possible. Like Kurri says, it's the fatigue thing often that's most marked, but also a run in with life threatening illness does something with your head too, in terms of needing time to sort out how you feel about what has happened, and you may well want some time with the family when you are starting to feel better but when you aren't yet working FT and at risk of feeling utterly frazzled with the day job. Obviously you know your money situation best and whether you can afford it, and possibly you are looking to get a lump sum to use for the 'carpe diem' stuff, a natural desire we all get with serious illness, I think. I haven't really explained myself very clearly, i know. My brain is minced and I am very tired, so I'll drop by later/tomorrow after a break.

I'll stop now. Sorry for another megapost. My steam is running out again and I'm feeling sick - not sure if it's the lovely carrot cake and coffee I had when out this afternoon, or if I just need to rest more. Oh well. (I had a bout of 'common cold' last week, i think, but it has absolutely floored me. 2 youngest boys had it too and are fine. I just don't bounce back like others these days. At least my joints are better today, thumb aches but is not agony. I have a ghastly wart on other hand, which I've been treating with salactol and it's throbbing like mad, and bleeding - I suspect I've overdone the salactol. I need to post separately as need some guidance on what to do next). All in all, a bit decrepit.

Hope you all have good evenings.

Baskets45 · 11/10/2012 17:45

JustFab, sorry you are feeling so upset after your appt. Nothing to say really, just sorry it was all so horrid for you. Are you having mammo soon? I hope not too long for you to wait. Take care. xx

JustFabulous · 11/10/2012 19:42

Not sure when I am having the mammogram. TBH I never thought I did have BC, I am just not feeling reassured she did enough checking. Just Monday to get through now.

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