Tamoxifen 28

[Gigondas]

Another shiny thread

Blimey that sounds loads..!

at waiting room. Dr Amber would clearly have top class fbs. How are you Lime? Have you sorted out all that legal nonsense yet?

Am fairly hammered now .
But I reckon , once all my good news sinks in , that I need to make a few lifestyle changes .

Need to start being more sensible about my diet , and possibly start up an exercise program !

Although the surgery and treatment I have been through in the last year has left me pretty damaged , so I don't know how much is realistic . But I reckon I owe it to my second chance to try !

So listen all you wobbly ladies put there , if I get a second chance , it can happen for you too .
According to my original diagnosis , I should only have 10 months left .
And today I spoke to an oncologist who seemed fairly certain that I have seen it off for good .

I'm not trying to boast here , I am really trying to give hope .
And also say that even if you are not cured , then I really do feel that cancer secondaries are rapidly becoming something that can be lived with .

It's still bloody daunting , but together we can get through it xxx

(waffle over ...)

And on a lighter note , someone me fed pig/dog scrambled eggs this morning as he had explosive diorrhea yesterday .
Let's just say it was a mistake .
He no longer has the trotts , but he is farting for Ireland

Hugs for topsy - I think it was the tom
Jones patronus that helped.

But you enjoy your wine - am feeling but wobbly so maybe I need some too.

Very sound waffle, Topsy. I reckon Gig's right; Orange Men have definitely contributed.

Gigs, why wobbly? Is it the chemo or emotional? Either way, hugs from me. xx

Tom Jones Patronus most definitely helped , infact think they should be prescribed on nhs !

What's a wobbling Gig ?
Can I help ?

Reading this thread, I've mentions of darkened Roos, aspirin, blueberries etc. can someone please give a brief summarise of these complementary therapies, and why they are thought to be beneficial ( I appreciate its anctedoctal, and not official medical advice).

Well done to everyone who has had good news.

I don't know why- emotional really (aside from usual steroid disturbed nights that get first few days post chemo seem to be bearing up except have huge bruises where picc went in).

I am just struggling a bit with dx and thought of more treatment - i think it is a bit of case of wobbles I think lots of people have when finish treatment but I am scared not only about what "being free" (which is good and bad) but also may end up back in treatment soon .

It's probably partly dh fault bless him for reporting what onc said about how long will probably go without treatment and also mine for scaring myself reading the very medicalised letters .i know how long roughly they say and all pitfalls - it may as well be etched on my bloody heart so it is just that being told/reading makes me fret.

Hugs for topsy from me too, - I am so pleased for you, - I know the words look very ordinary written down, but really I am feeling all emotional, it is such an astonishing journey you have been on (sorry - used the j word). And you are such a great lass - upbeat, funny, quirky, lovely topsy xx

Can I join the owner of a farting dog clique? - mine has some new food from Lidl - beef and veg in gravy - she loves it, but my God, she has been clearing a few rooms this evening.

Gig - hugs - anything we can help with sweetie?

Lime - I noticed that dosage in the article - maybe I need to up mine! - I'm not sure where you would get 8000 iu from - it only goes up to 2500 in our health shop. T'internet maybe?

How many more chemo have you got to go Gig? You must be so sick of it all. It's been constant and as you say probably more ahead. I doubt it helps, but I think you're incredible. Wish we could work out why Topsy's in remission and do similar for you. x

Do you want to say out loud what they have said Gigs ?
It took me quite awhile to vocalise what my Onc and surgeon said to my family and friends .
I spoke to you ladies on here first , and it helped me to get over that initial hump .

If I have yet again got it completely wrong , then tell me to bugger orf

I shall fly to London and rub my bacteria all over Gigs Smee

KK mwah !

Right , not even 10pm and I feel like its time for me to pass out !
G'night lovely ladies xxx

night night x

nighty night topsy you are amazing :)

My nice gp has prescribed a high dose of vitamin B, but I'm not sure what for!!

topsy hooray!!!

gigs chin up - its a wobble. x

gig sending you much love- things written down seem so much more real somehow.
Hope odorous dogs have ceased !

re Dr Amber. I'm no such thing, y'know.

Gigs, what did it say??? What manner of wording has caused eek?
Vit D - blimey, yes, 8000 sounds high to me too. I'd ask one of the team what they think to that, 'cos I can't help thinking too much Vit D is also bad.

Invicta, those things (aspirin, Vit D etc) are the scientific research 'end' of things. They have a known benefit in preventing cancer or slowing it down. Same with sleeping in a very dark room and the effect of eating a goodly amount of broccoli/cabbage/blueberries/raspberries etc. None of it is a certainty, but all of it has been proven to have an effect for most people.
Hence people who have been told they have 'months to live' try them whilst on the main treatments as well, and find that amazingly the cancer has stopped/shrunk/sodded off. All of them help reprogram the body's genetics to be more efficient at spotting what's cancer and what's not. There's a complex scientific explanation involving methylation, bacteria symbiosis as an aide to that process, and outcome - but it's too early in the day for me to don my white lab coat and arrange my hair in an Einstein like way. Oh hold on, it looks like that already! That's handy!
Will attempt it later.

Thanks Amber

I have checked vit d emulsion and it's 2000mi - I think it is just easier to absorb like that.

The aspirin thing is to do with how cells travel in blood and was pretty conclusive.

Yes mas I think it being written down and reinforced makes me fret over it (I have a tendency to do that, plus believe the worst etc ). Also I tend to think of myself as damaged/defective so if someone suggests something is wrong/bad outcome , I assume I applies to me (glass Half empty). Its not a new thing but cancer exacerbates it (its why I find therapy helpful as can separate what is real from my natural tendencies).

topsy they said probably 6 months treatment free- If I get to a year onc will be pleased and longest she has known treatment free is 21 months (and going).

All of which I think is probably pretty standard but I keep remembering how she was right when first saw her about her concern on cancer spreading. On other hand I have borne chemo well and it seems to be working ok and she did warn me about side effects etc so not all bad.

Sorry -I didn't mean to take away from all the lovely news - just it seems a strain. Part of it was reinforced by fact up all night nearly with mini gig (teeth I think- she is as right as rain, dh and I are shattered). That in itself would be enough but it felt like a luxury to be "well" enough to do that.

Promise normal orange men service will be resumed soon.

Oh the wording starts with about two paragraphs going over every treatment I have ever had . Before you get a para sayif done Round 4 borne it ok- then copied into the world and his wife...

I was talking about this thread with a good friend the other day, and I was trying to articulate what it means and why it is so important. I have found the card my lovely sister sent me that I misquoted the other day, so I thought I would write out exactly what she said, because it sums up for me what we are all about here. . . .

hold on to your courage, let it make you strong and brave. . .And remember, on the moments, hours and days when you lose sight of your courage, and it is OK, those times will come. . . at those times I'll be right next to you, I can be your strength for as long as you need. . .

Might possibly have had a big soggy little weep typing that out. . . Just wanted to know how much you all mean to me.

Morning All

Gigs I was told I had possibly 2 years survival outlook , given the spread and stage of my cancer .
Keep on plodding through my love , off load your wobbles here .
Outlooks change constantly !

I hope I am wording this right . Just don't want to come over all "ooh look at me , I got rid of my cancer" smug face .
Your fears and wobbles are all perfectly justified , it's a bloody scarey thing to go through . And I think it changes your outlook on life forever .

Anyhow , enough waffle from me
Am off to feed my hangover ...