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Tamoxifen 28

992 replies

Gigondas · 03/09/2012 13:36

Another shiny thread

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overthemill · 12/09/2012 10:18

but now i am in shame cos i've just realised it wasnt an aibu ...shit i am a cow. but still think she's an idiot

MaryAnnSingleton · 12/09/2012 10:21

Grin @ otm -well said !
Hooray for gracie and gig - that is great news -am v pleased !
Waves to baskets too
ned bless you - I think I'll skip the tequila tonight,maybe a small glass of red wine - this is bad as we try to only drink at w/ends Grin but needs must...
Hope final chemo is soon over gracie !

Gigondas · 12/09/2012 10:40

Some of the relationships posts are in even more need of a get a grip emoticon than on aibu.

I know it's bad form but there is one on there about someone who has been with a drunk and not interested partner for months but no real change. I know it's hard to end relationships ESP abusive ones but when your kids are suffering Hmm

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Sometimesiwonder · 12/09/2012 11:00

MAS - smee is right. There is much to be said for defiant drinking.

It did me the world of (emotional) good when I was on chemo, whatever it did to other bits of me. And my very jolly BCN always swore that if it relaxed you it did more good than harm. Choose a very nice bottle and just go for it.

Ah, the relationships posts. I never post a comment because my experience is very limited when it comes to complicated pairings. But I do read and some of them are very, very frustrating. You do just want to shake them, and then give them a hug as well. Sad but also usually rather Angry

Baskets45 · 12/09/2012 13:14

Not sure now what exactly my point was - others' comments made me think of book and i recalled how good it was/is (I haven't read it all - sadly, I dip in and out of books but rarely read whole books these days), but, yes, it is The Emperor of all Maladies by Siddhartha Mukherjee. Very fat tome!

Confession, in case you think I've found all my marbles again, the book is beside me as I type! But I had good sleep and stayed 'au lit' as late as poss this am. Sun shining here again. Not sure what's on except laundry, dishes, maybe knitting group later (it's nice to have a quiet day as it's been quite tiring of late).

Something I got from here, from gig in fact, was to take magnesium supps to help with sleep and calmness. As always, i read up on it, to check it wouldn't do harm/clash with anything else I'm on, and thought I'd give it a whirl. 2 weeks in I do feel the difference - it might help others. I don't give advice, only information.< ha, ha! old jaded old health prof joke>.

Such a relief to hear Gracie's lump isn't a problem. OTM, glad your dd is more settled. Off now to try to find your cheeky post! Ned, i LOVE your news specs, and glad no calipers in sight at gym. I might get to wear my prescription sunglasses today. Yay! My eyes do feel the difference esp as the thyroidy eyes a bit 'jaggy' just now.

I hope you all have good days, or as good as poss in circumstances. Some home baked bread (not by me, I was on MN/in bed, but lovely DH) and strawberry jam on trolley. Shop bought jam, I'm afraid.

Optimistic thought on cancer from me- Jane Tomlinson - she did lots with her secondaries, though i always thought all that exercise was a tad tiring sounding. She couldn't have had much time for wine and FatBOy snacks with all that training ....

KurriKurri · 12/09/2012 13:54

Afternoon all, - been to yoga this morning, and realised how much I missed it while I was away, - it definitely keeps me sane (ish) Grin

MAS - you are bound to have lots of feelings and emotions going around your brain at the moment, - be very kind to yourself, - I sent my loving kindness and light your way at yoga today (so watch out for a big whack from the woo stick coming your way Grin), couldn't stop thinking about you last night, but gracie topsy and Gig have all posted great stuff - lots of people live well with secondaries these days, and it's great that you are feeling well. It will help when you get your treatment plan in place too, - so you know how they are going to tackle the bugger.

gracie - so pleased your lump was just a lump, what a relief Smile - and your BCN sounds great, it really helps to have a good chat with someone about it all.

OTM - I also have a tendency to get embroiled in posts where people are being daft Grin I can't help myself sometimes, - I think you are right, your nonsense/bullshit toleration-ometer is much more sensitive when you've been through bigger stuff.

Have fun in Cardiff Smee, enjoy the gym Ned (glad your gym is a caliper free zone!) Enjoy your party amber - sounds like a great idea (smile)

Baskets - I've also read Emperor of Maladies - very interesting book but a fat tome indeed. Interesting to hear about magnesium supps - I may try that. I have gradually and slowly weaned myself off ADs - stopped taking them altogether while on my hols. But I am feeling a bit shaky and in two minds as to whether to persevere, or go back to a low dose.

I have cheese oatcakes for the trolley (very moreish), DH seems to have eaten all the Scottish sweeties I brought back Hmm

love to all.

Sometimesiwonder · 12/09/2012 15:06

Today is my dd's weekly day from hell, with various groups one after the other all evening. And we're off tomorrow in the wee small hours to Ireland for a wedding, so we have to pack as well.

So I am signing off until Monday, but couldn't go without saying how much I am thinking of you all. xx

KurriKurri · 12/09/2012 15:08

Have a fab time in Ireland Sometimes, see you soon xx

MaryAnnSingleton · 12/09/2012 15:28

exciting sometimes have a fab time !!
kk tht's so lovely of you - I feel enveloped by your glowing woo.
BCN rang this afternoon to say she'll be there on Friday and that the onc. is lovely - she mentioned that they will most probably change me from tamoxifen to something else because it's obviously not working (interestingly I have had 3 periods all in normal sequence in the last 3 months,which is odd as it was very random before.)
T's piano lesson later- am drawing at the moment.

smee · 12/09/2012 15:33

AM ON THE TRAIN Grin sailed through big work presentation, so hugely relieved. I am debating a grab bag of Walkers Cheese & Onion from the buffet car to celebrate. Classy as ever..

Gracie, phew and hooray for you.that sounds like a good result. Smile

MAS, I like all these comments about longevity and am sure a drink or two with your DH will help ease you through. Am still astonished, not to mention angry for you. Bloody cancer seems so ridiculously random.

Have a fab time in Ireland, Sometimes. Hope it's fun. Long way to go if it's not.

Gig how are you feeling now? Hope not too icky.

Still no news from Pink?

graciesmall09 · 12/09/2012 15:56

Thanks for all your good wishes and the lovely flags and bunting from ned. I don't think it has quite sunk in yet that chemo is finished and picc line is out. I am a bit weird in that when I see them bringing out the syringes it makes my retch and then everytime I go to the loo and it is pink it makes me retch so looking forward to seeing an end to that. Feeling ever so tired so going for a lie down before everyone gets home.

sometimes have a fab time over here in Ireland at the wedding. It is in the north or south?

Hope your chemo is going ok gigs and that your stay in Colditz is a short one.

The night I was diagnosed my surgeon had asked me, as they do how much alcohol I drink, to which I told him a glass or two every weekend. Well he said now might be the night to open a bottle and enjoy your wine! So there you go mas it is medicinal.

NedSchneebly · 12/09/2012 16:22

Yay for gracie!!

OTM no, I'm not teaching at the moment - my GP said when I was diagnosed in January that I would be mad to, it was not worth it, why put myself and school through the stress? I have been signed off since then, and will be off until Christmas. GP said most people she's seen take at least a year to get through all treatment - I had lumpectomy, 6x chemo and 4 weeks rads - particularly in stressful job like teaching. Its been much less stressful for me and school, as I have not had to worry about how I feel and am I well enough to go in. And school have got long term supply. Much less disruptive for everyone. I don't feel guilty about being off, but I am looking forward to going back, iyswim. Hope you're doing ok x x

Gigondas · 12/09/2012 16:25

GrinGrinGrin about end of chemo FlowersWine for gracie. Am Envy about end of picc but do rest up and take it easy.

same goes for baskets- glad magnesium helping (zinc also suggested as helping). I know when I haven't taken it now I sleep much less easily so believe here.
Back later dh here.

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Gigondas · 12/09/2012 17:10

I know topsy loves this and there are new ones - ESP Olympic one dog texts

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OneInEight · 12/09/2012 17:54

MAS - so sorry to hear your news - look after yourself and make sure your dh and ds do so too. Hope the oncologist on Friday can offer lots .

Sometimesiwonder · 12/09/2012 19:29

Got 10 minutes and had to come back to see if Pink had reported in yet. I see not.

Gracie: woo bloody hoo for the end of the chemo and the picc line. Celebrate, celebrate, celebrate. I had forgotten you are are in Ireland. I am going to Wicklow (I think). It's DH's family and I don't expect to enjoy it that much - sounds ungrateful and horrid I know, but for me, going all that way to spend a lot of time doing the rounds visiting aged rellies I don't know, and going to Catholic masses for departed aged rellies, is always a bit of an anticlimax. I would much rather go and see the sights, and so I get seriously a bit bored, even though they are lovely and welcoming. I know I'm not always a nice person, and I promise to try hard to be better.

Smee - really, really well done for walking it in Cardiff. Smile

MAS - i am glad your lovely BCN is going to be there - she has been such a support, I know. And three cheers for a lovely onc. as well. I shall be thinking of you, and you know we'll all be round there rioting if they don't get you sorted with a sound plan. xxx

topsyturner · 12/09/2012 20:19

Evening All

I blardy love Texts From Dog Gigs
I see there's a book coming out ?!

How is everyone this evening ?
I don't know about you guys , but I can't believe it's only Wednesday .
This week has been going on forever .

I am back on anti bs . Last swab of my gammy boob showed yet another blasted infection .
So back on horse tabs 4 times a day for 7 days

Ah well , on with my knitting !

Gigondas · 12/09/2012 20:22

Buggering wound infections topsy. And I need to attempt knitting with a line in as on late chemo (won't finish til 11).

Also can I recommend if you need a laugh "shit my dad says" by Justin halpern -
Laugh out loud funny but affectionate and wise too.

thinking of all those who need support or lift tonight. I need it as There is nothing as far as I can see on tv Hmm

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graciesmall09 · 12/09/2012 20:36

What on earth are you doing to that gammy boob topsy? It is definitely about time you got a break. Hope horse tablets do their best.

Nightmare nothing that leaving you until near midnight gigs Hope you get sleeping after.

I love Wicklow sometimes, we have been their on holidays a few times and it really isn't too far from Dublin if you need somewhere lively. This kids enjoyed Wicklow Gaol. Next trip to Ireland you should take in Belfast - you never know I may be able to persuade Topsy and me to show you the sights.

pink hope you are ok. We are thinking about you.

MaryAnnSingleton · 12/09/2012 21:03

Yay for gracie - fab achievement.

Bah about infection topsy Sad
Have had a glass of wine tonight- (we had pasta for supper, you have to have wine with that !)

Shakey1500 · 12/09/2012 21:12

Hi, I posted this in General Health and someone has kindly suggested I post it on this thread..hope that's ok.

My sister has had enormous cysts come and go for the past 8 years or so. Each time it's a visit to the GP, referred to hospital, a scan/mammogram then drained.

She has large natural breasts and it is not only worrying, but an awful time waiting, being drained, waiting for the next one.

This time however, she has a particularly troublesome one. The GP gave her anti inflammatories for 2 weeks and she's just been referred again. BUT also, this time, her nipple has become inverted. In the same breast as the cyst. The cyst is not behind the nipple.

I'm really bloody worried it's more serious. Don't know what I'm asking really. Reassurance of sorts I guess that inverted nipples can come hand in hand with recurring cysts?

amberlight · 12/09/2012 21:33

Hi Shakey, welcome! I've not a clue about the answer, but I can do a good line in Brew whilst you wait? Others here may have more idea...

MaryAnnSingleton · 12/09/2012 21:34

not sure either I'm afraid - one of us will know I'm certain..I can offer giant chocolate buttons meanwhile...

Gigondas · 12/09/2012 21:39

No advice directly but will repeat the oft repeated mantra that breast issues 9/10 times benign and as those on here testify if you are 1/10 that have cancer are very often treated and there is life after.

I do know from own experience of galataceole (milk cyst) that only surgery cleared it - not draining- and it was persistent.

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Gigondas · 13/09/2012 09:23

Morning all - Brew and have fingers crossed and thoughts with amber today.

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