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Tamoxifen 28

992 replies

Gigondas · 03/09/2012 13:36

Another shiny thread

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KurriKurri · 11/09/2012 22:09

Night night MAS xx

topsyturner · 11/09/2012 22:11

Night Mas , and everyone else .
Hope Gracies apt went well this evening , and that Gigs isn't giving the night staff too hard a time !

smee · 12/09/2012 00:08

Gig sleep well. MAS too. Good to hear Margarita went down well. Gracie hope you're okay. Am off on one of my epic day trips to Cardiff tomorrow. Will pop by if I can, but if not will be with you in spirit. xx

Gigondas · 12/09/2012 06:29

Good luck on your trek today. smee

Was a good girl and even managed some
Sleep tho didn't finish chemo til 1am (but still on track for Friday release).

Brew anyone? How are you doing mas gracie otm and anyone else in need?

amber i love your party idea.

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MaryAnnSingleton · 12/09/2012 07:25

have a good trip smee and glad you're still on track for release gig
Slept ok,but weird dreams about cocktails. Am worrying more today that things are further advanced than I think -I suppose that's natural. I feel well,apart from bit of chest discomfort (nothing really bad)
Hope gracie is ok.

Gigondas · 12/09/2012 07:33

I worried about that too. Could chest discomfort be anaemia as that is what mine was? topsy may have more to say but IMe the lung spots have been pretty silent in terms of symptoms.

Sorry about bad dreams- That could be tequila related .

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MaryAnnSingleton · 12/09/2012 07:38

yes,tequila influenced dreaming ! Not anaemic I'm sure as the doctor in my first appointment said my blood count was tiptop !

Gigondas · 12/09/2012 07:54

When you seeing dr next to discuss mas? Is it Friday so you could ask then?

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topsyturner · 12/09/2012 08:01

My lung spots (I thought) were more or less symptomless Mas
They responded extremely well to chemo .
As you have only 9 or so areas , it might be worth asking your onc about cyber knife . I had too many areas for this to be viable .

But basically I learnt to think of it as a disease I just had to live with long term , like asthma etc , as it is controllable in so many cases (if not curable)

Glad you got a full nights sleep and that your dreams were no more bizarre than normal Smile

topsyturner · 12/09/2012 08:05

Smee have a great trip , is Wales on alert Grin

Gigs good news that you are on course for Friday release .
So what did Onc say about your CT results ? Was he/she pleased ? Are you pleased ?

Gracie can you post and let us know how last night went ? I still have everything crossed for you and it's starting to get uncomfortable Smile

Gigondas · 12/09/2012 08:10

Lung spots all shrinking as is bone spot and bone healing up. I didn't speak in detail to onc (as Prefer to focus on what I can feel good/bad so dh does detail). She did tell dh that it was probably a better than average response but may not see much more change as typically last 2 cycles don't do as much (that said my cousin was still seeing shrink of spots 3 months after so I am not sure that is a hard and fast rule). I am pleased but I am also mindful that will move again so it's moderate happiness. Plus still got two cycles to go and this blinking picc (my arm very sore).

Also wondering how you are gracie

Any rl plans for today? I have various family visiting incl my lovely cousin who has ovarian cancer so is a rl support and inspiration.

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Gigondas · 12/09/2012 08:11

And yes professor mcgonagall was pleased with me but more keen to laugh at dh naïveté about holiday with 4 kids.

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Gigondas · 12/09/2012 08:20

On a more mundane note I love the fact dh does Internet shop but we can end up with some odd purchases often bought in bulk. Like 3 kilos of frozen broccoli

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graciesmall09 · 12/09/2012 08:29

mas hope you managed to get some sleep inbetween the dreams.

gigs that is really good news about your results but grr re; that awful picc.

sorry I didn't get to post last night my appointment wasn't until 8.45 pm and clinic was running late so I didn't get a chance to post as I wasn't home until after 10 pm. You lovely girls were right, he had a feel said he was 99% sure it was fat necrosis but would do a biopsy to check. So I had to wait around while the lab had a look and that is what it was. I am so relieved so have to arrange another review in December with my lovely surgeon.

I had a long chat with my nurse yesterday as I was telling her how worried I was and she got chatting about treatments, etc. She was saying that her next patient on the list was very ill when she first visited and is on continuous treatment. She said she is like a different woman now, never off the go, always travelling and full of life. She has lung and liver mets and has been on treatment for over 3 years. She also told me they have patients still keeping well 9-10 years with continuing treatment.

Thank you all for thinking of me. Nice to see you back baskets but sorry you aren't feeling too good.

Gearing up for my last chemo this morning, hoping this picc lasts and then it is being pulled out.

Morning to everyone.

Gigondas · 12/09/2012 08:32

Meant to send big love to baskets- I am
Glad you lurk and I love your posts as so full of good advice.

Great news about fat boob gracie - and the lovely positive news from your Bcn.

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topsyturner · 12/09/2012 08:39

Brilliant news Gracie
And good luck for chemo today !

Gigs your results do sound good , but I understand you not wanting the finer details . I'm more of a big picture kind of girl too .

It's piddling down over here today , so my plans include lying on the sofa in my pjs eating lots of fbs ...

amberlight · 12/09/2012 09:27

Hurrah for secondary bits shrinking and sodding off. There's more and more tailored treatment now, which means cancer is becoming the same as having diabetes -a pain in the whatsits, but livable with long term. Exceptions will apply, alas. But the outlook now is vastly different from even the research done three years ago.
Friend of mine was given three weeks to live....two years ago. She's been on chemo and all sorts pretty constantly since then but still runs her local council and sits on about ten other committees, goes out to London and etc on a regular basis and is having a great time Not Being Dead. That's my aim, if there's bad news tomorrow - have a great time no matter what.

Sometimesiwonder · 12/09/2012 09:27

Gracie - so pleased you got a good diagnosis for that pesky lump. Smile

And what a very heartening chat with your nurse. That's probably done all of us a power of good to hear today.

Hello Baskets my lovely. Sorry you aren't in tip top shape - hold tight. This too shall pass. xx

overthemill · 12/09/2012 09:28

gracie that is wonderful news!
mas that is crap news - i am sorry, sending you hugely positive vibes and agreeing with everything the wise ones say about continuing treatment and quality of life.
gig stay calm and channel meryl streep!
baskets sorry you are low - i do know what it' like, ironically at Easter I finally came off anti depressants after 5 years because I felt so well (though still knackered, now i know why) and i really do understand the up and down journey. I can't add anything to what others have sad but take each day/hour as it comes. Though these last few days have been hell or me and I felt that maybe it wasn't worth it, when that sun comes out it is wonderful.

dd brighter yesterday and we had a great huge row! Hurray, normal service resumed. school ave been in touch and they keep a list of young 'carers' and on friday there is a 'freshers fair' for all the clubs and societies. She could do masses of stuff and i want her to understand that mum having cancer shouldn't put her life on hold.

NedSchneebly · 12/09/2012 09:38
NedSchneebly · 12/09/2012 09:41

X post OTM great news about DD - it's so hard for our DCs. Glad she's feeling a bit brighter x

overthemill · 12/09/2012 09:45

thanks ned it is hard and because she has two step sibs who wft in and out (being at uni and age 16 respectively) she feels, i think, that she has to be here for us all the time. but we want her to live her own life.

btw, are you teaching at the moment? (snuck a look at your profile Grin) i feel guilt at not being there...

overthemill · 12/09/2012 10:10

omg! I just posted 'for gods sake grow up' in an aibu thread about having an affair! damn, need to get off mn before i get thrown off. i have no sympathy for silly people at the moment

Gigondas · 12/09/2012 10:15

Admire otm - I feel that too but too cowardly to post as don't want bunfight or thrown off.

There was one on using medised and calpol that produced some frankly odd responses.

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Gigondas · 12/09/2012 10:17

Yep they wouldnt even give my cousin (secondary ovarian 4 years ago) a time scale as said likely to be short. Still here , working and dealing with teenage kids despite various chemo and ops for secondaries (in lots of places) 4 years on.

So that's my sunshine story for today.

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