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**Tamoxifen** 27

992 replies

Gigondas · 31/07/2012 01:43

New thread

OP posts:
KurriKurri · 16/08/2012 21:11

Sandripples - your DS is an absolute star, - well done and congratulations to him, he must have worked his socks off, and I hope he has great time at Imperial - I'm sure he will Smile - Lovely to see you again - hope you are keeping well, and enjoying yourself generally Smile

graciesmall09 · 16/08/2012 21:18

smee feeling a bit more comfortable although have been horizontal on sofa all evening. Temperature has stayed down so far so will just monitor it. Arm still burning but not sore so hopefully not another clot.

MaryAnnSingleton · 16/08/2012 22:16

lumpy welcome- I think it was me who suggested coming here - all the advice so far I agree with most definitely- tke note of amber's statistics as she is stats queen. Stick with us and we'll help you through this horrid time.

Huge congratulations to ds SR - what a clever,clever Grin !!

And bless Mr kk - he's a star.

sandripples · 16/08/2012 22:51

Hi, thank-you for all your lovely messages re DS. I hope your various DCs are doing well too.

Lumpy - I know its easier said than done, but do persist in seeing your GP and also try to deal with the facts that you know and don't let your imagination run away. We've all been at that phase and its horrid, but if you can try to keep your mind on an even keel, it does help. Good luck.

Gracies - fingers crossed for you that your fever will calm very soon.

Laetissimus · 17/08/2012 07:47

Hi - popping back in again as having a wobbly start to the daySad
Had my MRI on the 14th and have been trying to put on a brave face since - still have to wait until the 28th to see the consultant ( scanning lady was surprised they had moved my consultant appt from 21st to 28th / she said they would easily have the results of the mri back to them by 21st??? )-
I can honestly say I cannot think of anything else! I have never experienced the roller coaster of emoticons that I have over the past few months ( this just isn't me! )
My bloody left boob ( that I now hate ) hurts - so I cannot forget about it as I have a constant reminder Angry
Have a friends wedding to attend today with hubby and my daughters which hopefully with a few glasses of wine will make me forget this wobble - why do the nhs make you wait so long? it's the agonising part.
X

sandripples · 17/08/2012 08:53

Laetissimus - I haven't been following your story as I only come here occasionally now (after completing treatment in 2010). But I just wanted to ask if you'd spoken to your BC Nurse about the delay in the appointment? The BC Nurse can often tackle that sort of thing for you especvially if its causing you you so much worry - I had top go through my nurse to hurry a couple of appointments along. Enjoy the wedding but phone her first!

Laetissimus · 17/08/2012 09:16

Sandripples -
I have not been given any numbers to call - I went to the doc back at the beginning of June I think,it was with nipple discharge from my left breast,he referred me to a breast consultant at my local hospital. I attended this appt where they sent me that day for a mammogram with a follow up appt for 21st aug.....
Had a letter in post which stated the radiographer needed more views before sending my results to consultant?
So they arranged an ultrasound - I attended this -
then another letter from hospital stating I have dense breast tissue and dilated ducts in outer left breast and that they were arranging an MRI - which needed to be in days 6 -16 of my cycle. So MRI arranged for last tues 14th (sounded like I was in the middle of roadworks) most scary.
Hospital said consultant needed 2 weeks to get the results so cancelled my 21st appt and re arranged for 28th.
I feel slightly in the dark having to wait for my hosp appt, I have not been given any contact numbers so thought I just had to wait for my consultant appt???
x

Laetissimus · 17/08/2012 09:18

(fri 14th - not tues) days all muddled

Laetissimus · 17/08/2012 09:20

Actually it was tues 14th....then would of only been a week until consultant - now 2 weeks to wait - sorry - so many dates and times I am getting confused!

thenightisyoung · 17/08/2012 09:40

Just popped in to say hi to everyone. I have a read of this thread every so often to see how you lovely ladies are getting on. I am back working full time and just trying to get on with life in between various appointments and checkups (for those who don't remember or weren't on this thread when I was, I had uterine cancer and unrelated bowel cancer diagnosed in the space of six months so I have rather a lot of follow-ups!).

I very much feel for you Gracie. I won't go into the rather horrible things that happen as a result of having a large chunk of bowel removed but I agree that your dignity does rather take a nosedive. I have to agree with Kurri though that it can really bring out the best in your nearest and dearest - my poor DP has sat through endless anxious detailed descriptions about what has come out my back-end with aboslutely no sign of disgust or dismay and despite rather nasty scars right down my torso he still says he finds me extremely attractive though I don't feel it much myself. I love him dearly for this.

Best wishes to all of you x

Sometimesiwonder · 17/08/2012 10:09

Hi Lumpynork - welcome from me too. Don't apologise or feel a fraud, that's what the thread is for. And don't try to read it all either, it'll get confusing and you don't need that. Most of it is idle chat anyway Smile

I agree with others who say the changing nature of your lumps sounds positive, and that stats are on your side generally. But of course you are worried, so stick around.

MAS - glad the blood test went OK and that you had a nice afternoon to follow.

KK - dh is truly a star, I think you can overlook the casual approach to the wedding anniversary Wink

Gracie - massive sympathies. Stay strong - soon you'll be glad we didn't shoot you, I promise.

SR - woop, woop-a-doop for your ds Smile

MaryAnnSingleton · 17/08/2012 10:23

waves to thenight and sympathies to laetissimus for awful waiting Sad
Dad has rung to say that mum is not at all well, has sent for doctor- will go and see her v shortly.

Sometimesiwonder · 17/08/2012 10:41

Oh dear MAS, I hope the doctor can sort her out....

KurriKurri · 17/08/2012 10:51

laetissimus, - so sorry yo are having to wait so long, - I am Shock that the hospital hasn't appointed you a breast care nurse, so that you have someone to talk things over with. Might be worth ringing the hospital (or the dept. where you had your consultation/mammo) and asking for the number, if you think it would help you. Loads of , I hope you can manage to enjoy the wedding despite everything. xxx

thenight - lovely to see you Smile your Dp sounds like a treasure too, - well done for getting back to work and getting on with things, I think you are right appointments and check ups just have to become part of your life, and you have to slot them in, but not let them take over.

MAS - Sad about your mum, - I hope the GP can sort things out quickly for her, she has had such a rough time. It's good that you live so close and can be there for you parents.

love to Sometimes - what day are you off to Cyprus? Hope you have a great time and make sure you totally relax and don't think about work at all.
(My very elderly uncle lives on Cyprus with a woman he refers to as his 'chum' - we don't know her name Grin ) not that you're likely to encounter him - just throwing in one of my irrelevant bits of info Grin

MaryAnnSingleton · 17/08/2012 11:09

no doctor yet...but I have scan appointment,though not until 29th Sad-
Am having thoughts about not going to MILs this w/end -partly to be around for dad,also had psyched myself up for poss. scan next weel....as you know going away if v stressful for me,so am feeling a bit Confused

overthemill · 17/08/2012 11:11

OMG! What an active day you all had yesterday! I had a brilliant day - NO NAUSEA!!!! - and did housework, baked cake and made yummy dinner (toad in the hole) for dh's best mate who came to diner. It was lovely, I pretended all was normal just for one day. Grin

laetissmus - hugs
thenight - good luck
MAS - more woes, so sorry
sometimes - JEALOUS!

question for all you regulars - you seem to be holidaying and having fun some even going abroad. How come? My consultant won't let me and we had to cancel our holiday to France (which should have started today, sob). Pleased you guys can do it but how come???

MaryAnnSingleton · 17/08/2012 11:13

well done overthemill ! boo about having to cancel French holiday though Sad I rather think it depends on where you are in your treatments as to whether a holiday is a good idea.

Sometimesiwonder · 17/08/2012 12:02

That's right overthemill. I think when you are going through very active treatment they like you to stay about - so you can get in quick if you start to feel unwell, and so you stay away from sources of infection like hot swimming pools, and planes. If you feel OK you may well be able to do some short trips - during my summer of chemo we lived on long weekends away in the UK, timed to fit with the more 'up' parts of the treatment cycle. Kept me sane - we both work from home so we feel a need to get away from the four walls a bit.

But I am nearly three years past active treatment now, and thankfully, life keeps trucking on. Holiday insurance can be a bit of a challenge to obtain, but I say sod 'em! Go anyway! (But maybe try hard not to be involved in a diving accident Wink )

MAS - hope GP comes soon. Bit of a bugger about the late scan date - in the meantime, do whatever is the least stressful thing. I know it is going to be OK, by the way. x

Am just listening to Plan B 'Ill Manors' - it's good, but boy the lyrics are terrifying Sad

We are off on Sunday, KK. And I am getting quite excited.

Smee - -i think you are off tomorrow, aren't you? V excited for you, too. Have a ball! And on the subject of our respective limpet children - mine has detached herself. Over the last few weeks I honestly think she would have stayed with anyone, as long as it wasn't me. Must be my excellent parenting style Wink

She went for a sleepover at her mate's house last night and so far she is refusing to come home Shock Grin Two days is her limit though. After that she collapses a bit and needs her Mum Grin

KurriKurri · 17/08/2012 12:45

overthemill - I am 2 years past active treatment - (not that I am going anywhere very exotic) but as Sometimes says - when I was having chemo I didn't go anywhere - just days out when I felt up to it, and you would be fine having a weekend break if you wanted to. So glad your nausea has abated, - and it sounds to me as if you are doing brilliantly - am sure I couldn't have baked or made toad in the hole so soon after first chemo dose. Smile - Don't worry about what anyone else is doing or has done - you go with what your body tells you, if your feel good do something you enjoy, if you feel rough take it easy for a couple of days, - chemo is a variable beast!

Smee- I didn't realise you were off so soon, - how exciting, have a wonderful time - take lots of photos so you can make us all Envy when you come back. is there room for a small Kurri in your suitcase (I promise I won't take you over the luggage allowanceGrin).

I hope topsy is enjoying her holiday, I think she will have had good weather, and Ireland is so beautiful.

Sometimes - your DD is an independent little soul, good for her for wanting to try new experiences, and for knowing her limit, - that shows maturity.

MAS - Sad about the w/e, it is a bit of a dilemma, and I know going away is anxious making for you. I just want to give you a big proper hug, you have an awful lot on your plate at the moment. xx

I am feeling a bit odd today - can't seem to focus my eyes properly and a bit of a headache - I wondered about migraine, but I've never suffered form those and the headache isn't really bad, just annoying. Maybe it is thyroid eyes playing up.

Anyway I plan a day of artwork (regardless of eyes) and a nice long walk. I'm determined to walk everyday - I have to get shifting this weight, I realised yesterday how much I want my reconstruction (when I had to keep hoiking my dress up and my fake boob kept falling forward revealing all)

Sometimesiwonder · 17/08/2012 12:55

Sad about the head thing KK.

On the weight loss front - someone said something to me that may be really obvious to everyone else, but wasn't to me and it may help.

She said - limit yourself to one drink with calories in it a day. And when I thought about it, i was drinking quite a bit of stuff that must have been taking my intake up quite a lot. just a thought. make water your friend Sad Boring but maybe worth it to get better behaving boobs

KurriKurri · 17/08/2012 13:08

That is good advice Sometimes - when I think about it I do drink a lot of tea and coffee with milk and I sometimes have lattes and capocchinos if I'm out, and I drink fruit juice - I never count these things because they are drinks (daft but true).

MaryAnnSingleton · 17/08/2012 13:12

ooh,exciting for smee and sometimes off on their adventures !! take care and have lots of fun, will miss you both Smile xxxx

Sometimesiwonder · 17/08/2012 13:22

xxx

Laetissimus · 17/08/2012 15:28

Just off to wedding- magic pants holding everything in place and topped up with wine to calm the nervesSmile
Have a good evening everyone x
Much love to all x

KurriKurri · 17/08/2012 15:49

have a good time Laitissimus - magic pants are the dog's bollocks ( I have several pairs) Grin

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