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Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc part 5

999 replies

Piplysmelie · 10/07/2012 09:23

This is thread 3 of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

Here are the previous threads:
Thread 1
Thread 2
Thread 3
Thread 5

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
WhoKnowsWhereTheTimeGoes · 14/07/2012 12:28

Fen - I agree about the underwear, I was having a declutter of my clothes drawers yesterday and decided to bin all thongs, just the thought makes me shudder now.

Misery - exactly the same here WRT the evening whiff, it isn't every day but quite a lot, but I very rarely notice any leakage actually happening (only if I have sneezed with a full bladder for example). I am pre-op at the moment. I have a large rectocele, small cystocele, am waiting for op on rectocele but planning to ask for a more thorough examination and evaluation of the need for the cystocele to be done too.

surewoman · 14/07/2012 19:00

Keep positive ladies - and don't bin the thongs just yet ... hoping to wear mine again this summer (!), well on holiday!!! So, light at the end of the tunnel Grin x

surewoman · 14/07/2012 19:06

Love the name, MiseryArse!! Lol!

Serious note, if you have stress incontinence you do know about it e.g walking along, you suddenly feel wee coming out, going down stairs too fast - same thing, big step off bus etc. etc. and there is nothing you can do to stop it, even serious clenching of pf muscles.

With a cystocele, you can often leak a bit after going to the loo and having wiped, just standing up to pull up said thongs (!), in which case you may not notice it, hence smell of wee x

WhoKnowsWhereTheTimeGoes · 14/07/2012 19:27

That's interesting Sure, I think it might well be what is happening to me, my urodynamic tests showed that I only partially empty and I know if I wait a minute or so more can come out sometimes.

As for the thongs, well, they had seen better days TBH. As have my big knickers. I will treat myself to some new undies once this is all over.

Footle · 14/07/2012 22:15

This reply has been deleted

Message withdrawn at poster's request.

hairytale · 14/07/2012 22:48

Thanks for the useful info. I'm really confused as I've been told different things at different times. Seeing the pelvic floor clinic consultant in early August.

surewoman · 14/07/2012 23:37

Footle - too true - with these problems happening to our bodies I bet we are all becoming secret sniffers!!! Smile How are you? Long time no post x

Footle · 15/07/2012 17:56

This reply has been deleted

Message withdrawn at poster's request.

fengirl1 · 15/07/2012 21:40

I didn't have a problem with continence before my cystocele repair (more problems with emptying my bladder really) but now think I'm occasionally having a bit of a dribble. (with no warming) Anyone else have this?
P.S. Am not going to mention thongs again on here after the many and varied comments! Felt a bit depressed that like all my pretty shoes I can't wear because of the lumps on my feet I can't wear, I shall keep my undies and look at them wistfully... Smile
P.S. Nice to see you back Footle!

fengirl1 · 15/07/2012 22:00

Too many 'I can't wear' s there but you know what i mean! Feeling like my fanjo is now as 'knackered' as my feet.....

OhNoMyFanjo · 15/07/2012 22:26

more problems with emptying my bladder really

I've noticed recently that if I stay on the toilet after having a wee I do need to go again, my bladder isn't emptying fully is it?

surewoman · 16/07/2012 10:44

Tink - how did your appointment go?? x

PostBellumBugsy · 16/07/2012 11:40

Hello everyone.

Glad to hear recoveries seem to be going ok.

Getting very nervous about my rectocele repair booked in for 31st July. Silly question, but I never, ever use STs (loathe them), but I'm presuming that tampons are forbidden post-op. Should I buy STs for any post op bleeding and for my first period after the op? No idea what to buy - should I go for winged things? Am I likely to bleed heavily? Help!!!!

Piplysmelie · 16/07/2012 12:51

Post yes you will need ST for post op bleed and your first period or more. I was told not to use tampons until I had seen consultant. I would suggest ST with a cotton top like Natracare, I know you can buy them in not sure about Boots. The ST's like Always have a horrid plastic type cover I think. Kotex another good brand.

I did have a fair amount of bleeding which reduced over time. I think it was about 2 weeks before it became spotting and I just used panty liners from that point as I had a fair amount of discharge from stitches dissolving.

Hope that helps

OP posts:
Piplysmelie · 16/07/2012 12:52

Meant you can buy them in Waitrose - bloody spell checker!

OP posts:
tinkxx65 · 16/07/2012 13:40

Hi all

Sure thanks for remembering I had an appointment. Have been and have more hoops to jump through. Now have to go for urodynamics (sp?) as my bladder is saggy (consultants word) and then will hopefully later this year have both front and back walls done. Slight worry though is the weakness in my bum muscles, the other consultant had written to her saying that I had a very strong posibility of becoming fecal incontinent after the operation, but when I asked her to put a figure on it she said she didn't know, but that she would still recommend having the rectocele done. She has also told me to give up drinking all forms of caffeine, anyone else been told that? Anyway not sure how I feel, just seems to be dragging on and on, it was feb when I went to the doctor and I had been suffering for a least 3 years before that :(. Guess I am moving in the right direction though.

Hope everyone is ok xxx

Gailjen5 · 16/07/2012 15:07

PostBellumBugsy I had a rectocyle repair 8 weeks ago, I hardly bled at all, I took quiet big ST which I used till I got home, however I could have got away with regular period ones my daughter uses..there was very little blood, like the last day of a period...

tinkxx65 I know how you feel, I was sent for numerous wee tests, actually one of them I did twice, think sometimes this allows them to stretch the time before the Operation....you could ask them to book you in for the Operation & do the tests in between.

PostBellumBugsy · 16/07/2012 15:48

Thank you for the ST advice Piply & Gailjen. I'm so glad to have this thread as I couldn't bring myself to ask the consultant!!!!

fengirl1 · 16/07/2012 17:52

Good news that you've at least started along the path Tink. If I had my time again I would ask why each test is being done and would any others be needed and could we get on with them? I do think some of what happens is time-wasting or trying to put us off (maybe I'm just being cynical).
I have got an appt with head of gynae on Thursday (!) to discuss what's happened and ways forward. Just wish I had someone nearby to take with me (if only as a witness). I'm going to ask them to send a summary of the appt to my gp AND me.

surewoman · 16/07/2012 18:24

Post - if you want to go el cheapo with the ST's, Tescos own brand big fat very cheap 42p (??) are fab (the bigger the better to start with) - nice and padded so makes for easier sitting and as they are so cheap you can change them often. Then move on to the super cheap panty liners. No frills, no plastic, just big fat cotton-feel ST's!!! Lovely!! Grin

Tinc - eurodynamics is to see if you will have urine incontinence issues after op ('cos if so, you might need tvt or similar which they would do at the same time). With regard to loose anal muscles, it's possible to buy an anal probe to go with kegel8 pf machine or the i-touch sure pf gadget which is supposed to work on those muscles. Haven't tried it myself, but the vagina probe certainly does a good pf workout Wink so might be worth looking in to before op. What tests have you had for poo problems?? There are all sorts that you can have (I think a defectogram (?sp) is the most common) xxx

surewoman · 16/07/2012 18:26

Tinc - forgot to mention the caffeine - it is a big irritation for the bladder and can make you have 'the urge' (to wee that is!!) quite frequently, so that might be why they told you to give it up (alcohol is v bad too!!)

WhoKnowsWhereTheTimeGoes · 16/07/2012 18:59

Interesting about the caffeine, when the nurses looked at my wee charts and found I was only partly emptying they said I was probably getting away without infections because the amount of tea I drink was keeping everything flushed through.

Gailjen5 · 16/07/2012 19:26

I've just been to see the private specialist, he says the cystocele in his opinion isn't big enough to operate on yet, as I'm quite young lol! 46 which is why it wasn't done along with my rectocyle. he did a bladder scan & I left 130ml so not emptying bladder properly, need to stay on loo longer, he also thinks the reason it looks worse/different down there is because it has been pulled/moved a differenr way with the rectocyle, making the cystocele appear bigger.
He has arranged a scan for next week when I go for my NHS appointment just to check my ovaries are ok as left them in after my Hysto.

I'll try the decaf coffee too, as I'm drinking a lot of coffee since I've been off, thanks Surewoman

fengirl1 · 16/07/2012 19:48

If anyone's thinking of buying a machine, the sure touch are the same as kegel 8 but cheaper. Smile

happy2beme · 16/07/2012 20:04

Hi all I am back from my hols, great to see all the new ladies taking me a while to read posts and do a bit of catching up x
Well update on Tvto and everything else. Still all in working order. Fanjo has been tested to the max lolol and not with my 50 shades hehe, had saloon doors on our bedroom so was frightened to read my books incase it gave me ideas and regenerated some of those nerves I thought I lost lol. Not good when u have 10,14 yr old in next room BlushBlush
Anyway swimming pool no problem , sea no problem, walking miles no problem. Infact think all the swimming and languishing in the jaccuzi pool has actually helped with the discomfort from my TVTO and also helped with discomfort down below so may well visit my local pool regularly now. I will keep reading and post again soon but hang on in their ladies now 8 and 3 months post ops and doing well thing generally do get better, even after initail hiccups of infections and mesh errosion repairs xx

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