**24TH** TAMOXIFEN thread !

[MaryAnnSingleton]

here we go...

apologies for the many typos.

perhaps better to let MIL have what she wants for the time being and encourage her to a better diet once treatment's underway (says the person who has just necked some M&S chocolate caramels)

Hooray, Sometimes is safely back. Sounds like you were right to go ahead then. How much pain are you in?? Hope not much. Have they given you any idea of how quickly you'll recover?

Topsy, recline and rest. Can't believe you've had such bad luck.

at that clip. Kurri, sorry your neck's still achey though. do you swim?? That always sorts mine out. Gentle stretching back stroke, or breast stroke rather than full on racing (obviously!).

Hope Ned's okay today on Tax 2.

Snoopy, you too and Gig. So many appointments and stresses for lots, though it's great to see Grey Lady a bit more chipper. And to hear Columbia's not too bad.

Waving to all others. Hope you're all okay today.

Here, am just working like crazy, as my parents are coming today ahead of DS's birthday and they have never grasped the concept of me working at home. Have currently lost them, as they were supposed to be here for school pick up. Sigh...

www.news-medical.net/news/20120521/Panobinostat-able-to-target-and-destroy-triple-negative-breast-cancer.aspx might be nifty for those who are triple negative. Looks like they have an answer to it.

Hi everyone. Will catch up soon but brain well fried by hectic return from holiday to office today.

www.news-medical.net/news/20120521/Panobinostat-able-to-target-and-destroy-triple-negative-breast-cancer.aspx

ps: Figgy, are you out there somewhere?? Seems odd you haven't been here for a little while. Hope you're okay xx

hope your olds turn up soon smee - when is ds's bday ?

Excellent link, Amber. Nice to see you back. Did you have a good time?

Olds still missing... They're very addled atm. DS birthday isn't until the weekend, but they got it wrong, so are busy then, hence arriving now. All not very helpful and a bit . I bought him a present from them, hedged it as saying it would save them carrying it, but really it was because I wasn't 100% sure they'd remember..!

oh smee

Smee, I hope they turn up soon.

Gig - hope the hospital can give you something soothing, what a pain for you.

amber - interesting link. Hope you enjoyed your holiday.

gracie - I'll have a look for that rub, I'm fairly sure it is a muscular thing or possibly a trapped nerve. I've been doing the archer yoga pose today, which is supposed to be good for shoulders.

You may be wise to avoid Tom Jones in action if you are recovering from sickness (although it will make you laugh )

Hi all

appointment went ok. Nurse very nice. I am triple neg and it's ductal. she is going to try to get more info for me.
greylady Well I'm joining your club. I am really bit scared to know much more but from what I can gather it's more aggressive but less reoccurance -is that right? The onc didn't suggest the more aggressive bit it's jsut what I've read. I hope you feel better soon.

1st Thanks for the advice, just a little bit of info at time I think as he's quite sensitive. As in on need to know basis. Feel like I'm shattering his little world but I'm sure he'll get used to it. It's just at moment I look and feel normal.

kurri I've got 3 anti sickness drugs + Lorazapam. Hopefull that'll do it!

Sometime/Topsy Wishing you all the best for a speedy recovery. x

*Amber thanks for the link.

Picc line and marker coil back at Oxford again tommorow. Fed up with being out every bloody day! That'll change soon enough though.

Waves to everyone. Hope your enjoying sunshine x

glad it was ok snoopy
Hope parents turn up safely and soon smee

Yup, holiday great. Return to work is hell.
Putting a brave face on it in some other places as there's lots of people watching but feel like going back on ruddy holiday again. So much stress after almost 18 months of stress with BC is not how I wanted to spend my time. Ho hum.
And I know I need to see my GP about joint problems since the herceptin but keep putting it off as I've SO had enough of seeing medical people...but I'm being silly as I know that I'm in a lot of pain and need an answer.
Plus portacath removal on Thursday.

Snoopy, yup - it's immune to the standard tamoxifen/herceptin stuff, but is more likely to die from chemotherapy and more likely to sod off and never come back. So it's a mixed blessing. And now they have the new drugs to target it, I think the odds will be much better than they used to be (and they weren't disastrous before - just not as good as the other types).

Feels like you're living in a hospital, doesn't it

I know I've missed a ton of stuff. If anyone wants handy statistics that are always cheerful ones, do let me know.

hugs for dear amber xx

feeling really down again, not sure why- I have work to do,stuff to look forward to - just a bit cast adrift. The tap thing hangs over me-I know it must seem a totally foolish thing, but I worry about people doing work in the house in case it goes wrong.

Sounds like lots of hugs needed tis evening.

Chemo OK- feel alright, not sick at all, which is nice, just a bit tired. They didn't reduce my dose of the Tax - apparently you have to be REALLY sick for them to do that. . . and apparently there is no point in starting the bone marrow jabs any earlier than day 4, as the neutrophils don't start to dip until then. So got fingers crossed this one won't be quite as dramatic!

sometimes !! Welcome back, my lovely. We missed you! Lots of rest needed. Hope you're not too uncomfy.

topsy poor you. Lots of rest needed, then they'll let you go home. Take it easy, OK?

gig ouch to sore bits. Hope you can get something to give you some relief.

smee about your folks. Hope they have arrived safely?

amber DEFINTELY in order. Sorry you are having a hard time. Sending you big comforting hugs x x

snoopy well done for getting more info. Hope you feel a bit more like you know what you're facing now. Knowledge is power, and you can maybe feel a bit more in control of what's happening to you. When is your first chemo?

Waves to kurri, MAS, gracie columbia and anyone else around this evening. Hope others have sunshine - very therapeutic!

X post MAS sorry to hear youre feeling down. When are the plumbers coming to sort out the tap for you? Must be hard waiting for it to get sorted out. Sending you big hugs from DS - he asked me who I was writing to and I said one of my friends was sad, and he said maybe she needed a hug. So, sending you a big J hug (((((((((((MAS)))))))))))

well done ned x

oh bless him and you ned - no word from plumbers yet..waiting for tap to arrive..I wonder whether the being signed off thing is behind this- partly anyway, I know I still have BCN contact, I just feel a bit fragile,so silly. Hugs much appreciated.

((((hugs))))
Not at all silly. I panic myself senseless over tradespeople turning up and doing things in the house. Invasion of space, noise, chaos, smells, sudden unexpected questions, a few who have ripped me off, clearing up the mess after them - it is traumatic stuff for a small Amber.

Ned, hurrah re not feeling if you get the meaning of the colour...

amber it really gets to me,I thought that I was better at this kind of thing

we had the plumber here today, problem with upstairs electric shower. He just said you need a whole new one, didn't want to look at what could be wrong. Has low water pressure light on though pressure is fine. Been googling, some components are cheap, but may be easier just to swap it. aargh.

Hugs to those in need.

Early night for me tonight, once dd comes back from guides.

MAS, well, it makes sense to me. Have a

Jchoc, heck re shower!!

mas here's one from me too (((huggs))). I know you are at a different stage to me but I already, although reasonably calm, feel anxious at certain times and if son starts acting up or not doing as told start getting much more stressy than usual. Also suddenly I can't be rushed with anything as feel panicky. I feel myself eyeing up the Lorazapam but know it's addictive! So spose just take it when I really need it.

Ned that was round 2 wasn't it? Glad it's gone better. Cycle 1 on Wed for me. Had pre chemo meet today and sorted all drugs into pill organiser. DH overwhelmed and teary tonight. it's tough on family all this.

yes lovely day and next two even better -except I'll be stuck in hospitals for next two days!

Morning all. Fraid I've got to set off for work soon and won't be around today. Will make a but must run for the train soon ! Flexitime is good but also means it is tempting to stay in bed until 9 which I can't do as dd1 needs to go shopping this pm as her prom is on Friday and she hasn't found anything she likes She was so busy with her A levels the last few weeks though, left little time for shopping. Hope all appointments run to time today and Topsy manages to get some rest.