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Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc part 4

958 replies

Ben10NeverAgain · 06/04/2012 19:43

This is thread 3 of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

Here are the previous threads:
Thread 1
Thread 2

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
Piplysmelie · 23/06/2012 22:43

Anyone seen this useful info in it info

3isthemagicnumber · 23/06/2012 22:52

Thanks for link Pip.useful reading.

fengirl1 · 23/06/2012 23:05

3 and Prancing - keep going (gently), you will get there!
Troubled - have you ever asked WHY you can't have the two ops together? Perhaps insisting on a straight answer might help them to focus a little bit and remember that the aim is to get you well AND feeling happy about yourself again. Either op on its own is a big thing though and that may be why they are not willing to tackle the two together. I don't know the answer but you deserve to be told either way. Usually the consultants' secretaries should be able to pass in questions an get answers for you as a minimum or arrange more appointments if necessary. See if you can elicit the help of your gp. You don't need to be lonely although I totally understand that feeling. There are plenty of us

fengirl1 · 23/06/2012 23:05

..... On here to talk to. Smile

Piplysmelie · 24/06/2012 10:39

Troubled could PALS (patient liaison service) help. I think they are in every hospital if you give them a call they might be able to get the two consultants to talk or at least explain why you can not have them done together.

They helped me greatly when my mum was ill so might be worth a call.

If you are not happy though you could go back to your GP explain the situation and ask for to be referred for a second opinion I believe you are untitled to ask for this, might be worth requesting a referral to a different hospital.

Hope you get it sorted out.

Fen are you doing ok after the stitch came out?

3 and Prancing remember to be kind to yourselves and rest enough

Hi to everyone hope you are all doing well

Found this as well I know a few people have meantion michelle kenway but this is the first u tube video i have found pelvic exercises after prolapse

Also her web page for avoiding repeat prolapse after surgery

LackaDAISYcal · 24/06/2012 13:46

Hi everyone :)

sounds like a few operations have been done and there are some not great issues for some of you. I hope things settle down soon. Sorry for not namechecking everyone, I'm only flying in and out today.

fengirl, it finally sounds like things are improving for you at last!

I saw my GP on Thursday. She examined me really well, said my pelvic floor strength is better than most, but that there is an issue with my anterior wall and she can feel what she thought was a large bulge. She also noted a large skin tag at my perineum and also anus and said that there could be a rectocele as well. She said that the fact I had to wear pads daily and that I was leaking when having sex was not acceptable and that it needs to be sorted and is doing a referral straight to uro-gynaecology as I have had previous physio, lost over 2 stone and have good pelvic floor strength yet things are still getting worse.

So, things are moving forward for me, but how long can I expect for the referral to come through? She said that it's non urgent surgery so could be some time, but didn't quantify how long that would be. I have private health care through DH's work but thought I would see what they say first before deciding whether or not to use it.

roseanna1 · 24/06/2012 16:42

Just called the hospital after large blood loss (couple of pads in half an hour). Got a bit of a scare as I've had no bleeding since leaving hospital the day after surgery (now day 5). Hospital called the consultant and he thinks its a haematoma and have to go to his clinic tomorrow night to get it checked out. Anyone else had this happen? Sorry - am such a wuss with stuff like this!

fengirl1 · 24/06/2012 16:46

Roseanna - I'm fairly sure Ben10 did. Take to your bed/ the sofa and try not to worry, but if it worsens I would go to ooh / a&e for reassurance.

roseanna1 · 24/06/2012 16:47

Thanks fen...will do x

ThoughtBen10WasBadPokemonOMG · 24/06/2012 16:52

Hi Roseanna

I had massive blood loss in the 2nd week after surgery. I had huge clots the size of my hand as well as soaking the pads. It was found that I had an infection as well as the haemotoma. It's good that he is taking it seriously. Ask him whether it is possible that you have an infection as well as the haemotoma.

Take it easy although I know it is scarey. I got prescribed tranexamic acid to stop the blood loss as well as anti-bs.

I'm guessing you might be private if you are seeing the consultant tomorrow night. If so then the Resident Medical Officer should be able to see you and sort you out if you need seeing tonight (in my case they did this and called the consultant for confirmation).

x

roseanna1 · 24/06/2012 17:41

Thanks ben10,

Yes I do have private health insurance so had the op done at a local private hospital, so good to know I can get sorted out sooner if need be. I've been lying down and not had a huge amount more in the way of blood loss and just a few small clots. Hopefully that's the worst of it over.I just feel kind of a pressure in my lower back and lower abdominal area which I'm hoping isn't more bleeding building up!

Will try and keep still for a bit (and stop panicking lol) and keep my fingers crossed. Thanks so much for the advice xx

wouldratherbeskiing · 24/06/2012 18:37

LackaDaisycal - in my case it would take 2 weeks to see my consultant privately or around 3 months for an NHS consultation so may well be worth using your insurance - especially as you have been doing all you can with PFE's.

Trouble - so sorry to read your post. As already advised it would be good to push for a clearer idea of why they can't do all the repairs at the same time. Some women on here have had all sorts of combinations. Couldn't the uro-gynae do both? These problems are hideous whatever age we are but being younger with young children and a DH is difficult and I feel for you. 3 was right when she posted DH won't care and will just be worried about you. I hope you can get this sorted soon. Keep posting your concerns as there are lots of lovely people on here who offer support - I have found them invaluable.

wouldratherbeskiing · 24/06/2012 18:38

Oh and thanks Pip for the earlier links - haven't seen those particular weights :0

LackaDAISYcal · 24/06/2012 21:03

trouble, are they perhaps concerned that if you have the ops it may affect your ability to deliver any more children?

Welcome to the thread, I'm relatively new, but there is loads and loads of support and info here :)

roseanna, take it easy for a few days. I hope you've passed the worst of it though, and that you can get sorted out quickly. It must be rather alarming though :(

StiffyByng · 25/06/2012 09:21

Sorry not to namecheck but you're all so new to me it all seems to be lots of people having ops! I do send best wishes to all of you recovering though.

Trouble, I'm seeing a urogynae and only that, and have been told I need a perineal repair as well as the prolapse op. So some hospitals are happy to do it together obviously. I don't know where you are but I'm at King's College, London, and I noticed the clinic information said they got referrals from round the country. Also I'm 35 and they are waiting to operate because I've only had one child so far and need to get a bit of a move on. They said if I were younger they would operate now as I'd have more time to recover before having more children. Although they asked if I was happy with this approach and said I could ask for the op sooner if I felt my quality of life was suffering.

Anyway, I'm off to see the GP today for reassurance about my hormone levels.

surewoman · 25/06/2012 18:36

Hello to everyone - I'm back in the land of the living (more or less, as somewhat spaced out!). Op went well - TVT, anterior and posterior and perineal repair too. The consultant was so brilliant and came in twice a day, even Sat evening and 7.30 Sunday morning... He promised he would not put any stitches in that take 6 months to disappear this time, said that things will seem 'very tight' afterwards but he prefers it that way as it will all eventually stretch again once healed and...... at last it looks how it is supposed to, apart from the black and blue bruising as if I've been kicked by a horse, Lol!!! The nurses were really lovely and helpful, and I have been given such good information - what a difference from last time, when I was told nothing and saw no-one from start to finish. I was tested for any infections before they would let me home, had to do 3 wees, and had to have a BM (ouch!!!)

The advice I was given - do not do anything at all for 2 weeks as this is when healing gets going. Absolutely no lifting if you need two hands to do it; therefore NO hoovering, NO lifting heavy saucepans, NO shopping bags NO ironing, NO laundry etc. etc. and do not be tempted to drive as this can do unseen damage on scar tissue, for about 4 weeks. Also, don't stand still at all for 2-4 weeks, so if cooking, chopping, do it sitting down. Little walks are good but above all listen to your body! (even if it is only whispering!). It might be becaue of the TVT but I must not do any PFE for 6 weeks!

Trouble - they probably don't like doing both repairs together as unless they have lots of experience it can be too tight and muck up your sex life which is not good if you are young and in the prime of life, LOL Grin (even with a prolapse!!!).

Sorry this is so long - really pleased to be out the other side and am really grateful to all your support and understanding. Good luck to all those still with ops ahead.

Fen - hope the stitch problems are sorted x

Roseanna - hope the bleeding has settled? x

Love to all XX

roseanna1 · 25/06/2012 19:10

Nice to have you back Sure - sounds like things went well for you... was thinking of you a lot and am so pleased you got such a great consultant. You really deserve it after all you've been through. Now rest up and do as you're told LOL

Bleeding has thankfully settled down for me after my panicking last night! Just back from consultant visit and he said he's confident the haematoma has now resolved itself and took a look (ouch) and said my stitches looked 'delightful' (still blushing at that one lmao) so all good and just resting now.

Take it easy,
R xxx

wouldratherbeskiing · 25/06/2012 19:29

Sure + roseanna - at last some good news. Onwards and upwards ..... xx

fengirl1 · 25/06/2012 20:04

Pleased to hear good news! Smile

Things are finally settling here although still getting aches and pains which I think are due to the healing I haven't done so far. Hosp for dd1 went well today - worries about her eyes are ended for now. Back tomorrow for two iv treatments which hopefully won't see us coming home at 11pm!

Piplysmelie · 25/06/2012 20:33

Seems like good news all round :)

Sure you got great info this time, well done and thanks for sharing. Interesting about the driving just had my first drive today in my fourth week P.O. I will try to limit the driving till next week after reading your post.

Anyone else perineum achy after op, maybe I am done too much today. First day on my own today, MI went home at the weekend :( so I did school run, swimming after school, tea, etc. now flat out on sofa

Glad to read things seem to picking up for people.

Tr0ubled · 25/06/2012 20:37

Hello, sorry not to have come back sooner.
Thankyou to those that have responded. Surewoman I think you've hit the nail on the head as the colorectal surgeon said he wasn't happy to surgically repair the rectocele with me being young and sexually active (ha ha!), he was concerned I'd be too tight. However the urogynae team's attitude was that age is irrelevant as we are still just as entitled to a healthy sex life at 80! I guess I'm just concerned that the perennial repair will just break down if I still have a rectocele putting pressure on the vaginal wall?
I hope that you are not feeling too sore after your surgery. Can I ask where you had it done?
Best wishes to everyone else and speedy recoveries. X

roseanna1 · 25/06/2012 20:51

Yes, good news and positive healing vibes all round I think :)

fengirl1 · 25/06/2012 21:40

Pip - my perineum is part of the aches and pains I mentioned earlier and I'm over 7 weeks post-op. I don't think that's normal tho for everyone, just part of my healing as I mentioned and all the more strange as its at the back and I didn't have a rectocele repair in the end. I do know that when stitches are coming away it is common to feel more achy so that may be what it is for you. Try and take it as easy as you can, and if some things have to be let go for a week or two so be it as far as you can do it with children! Smile

surewoman · 25/06/2012 22:59

Troubled - my thoughts are I'd rather be too tight and do some stretching if needed, than carry on with everything falling out, getting worse month by month. I wanted to feel like a woman again instead of a freak show iykwim, Blush! At least now I might have the guts (or lack of them in my fanjo) to look for a new partner!!Lol!

My surgery was at the gynae ward in Queen Mary's - BUT... the poor nurses were told today (just before I left) that the trust have decided to close their ward this Friday due to NHS cutbacks, so they will all be out of jobs or shunted sideways as of next week. It was really sad as they are such a good close team. From now on any gynae patients will be shoved into any spare beds in any old ward i.e. there won't be many gynae ops in future as they are not life threatening, and other procedures will take precedence for bed use. So... anyone reading this who is thinking of going for surgery to get fixed Get In Quick under NHS or you will never get done. (although it might just be the South London Trust cutting back, I don't know!).

Also, I think I got the 'glove' treatment due to the mess up over the last surgery as the consultant I had this time is the 'main man' and had said he was looking into things for me. Mind you, he was the only consultant that came in every day, sometimes twice, whereas some of the other women didn't see their consultant at all, even before they went home. So I suppose the good ones are good because they do genuinely care about their patients. What a difference that makes.

LackaDAISYcal · 25/06/2012 23:30

Good news Surewoman. I hope you're recovery is speedy and as painless as possible! You must be relieved.

I've got my appointment through already! 9th August, so not long at all. I'm wondering what my GP wrote though, as the letter said to allow 1.5 to 2 hours for the appointment, with a further 1.5 to 2 hours for pre-op assessment should I need surgery. Yikes! I was expecting a quick check up with follow up appointments as required! Is this standard procedure?