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Support thread for those awaiting medical appts,tests and surgery

999 replies

ohyouBadBadkitten · 16/03/2012 18:13

It seems that there is probably rather a lot of us who are impatiently waiting to see consultants, have tests or waiting for surgery. So a thread for you to vent in or post your 'hooray's'

me. Am waiting to see my cardiologist. been a bit of a catalogue of delays and getting lost in the system. I have a wonderfully supportive gp who has just calmed me down after me losing the plot a bit when I found I wasnt on the appt system.

How about you?

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BreastmilkDoesAFabLatte · 27/05/2012 20:10

mad That's fab... respect :)

I'm back in the I-can't-cope territory. I haven't left the house or had a bath since Thursday's appointment. I've neither booked the kids in with the CM nor found any help here for tomorrow, so I don't know quite how I'm going to manage whilst DH is at work...

Ohyoubadbadkitten · 27/05/2012 20:57

Why do you think it has got bad for you again BM?

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BreastmilkDoesAFabLatte · 27/05/2012 21:30

I'm trying to ponder that one out...

gingerwine · 27/05/2012 21:51

BM - I think you should pour yourself a nice deep bubbly bath and try and focus again on the good things, on how you have coped so far and how you will be able to cope again. It is probably a bit late to sort CM now but is there a friend you can ask for even an hour or so of help?
Is there anything in particular that has set this off. Wrong time of month or something someone has said? I think it is still very soon after the cardiologist gave you the good news that things were ok in that department. Whilst that is obviously a good thing you are still not feeling well and in waiting for the fatigue drs views maybe you feel that you are back in that "lack of diagnosis limbo land".
I've only been on this thread a little while but you give great supportive advice to me and others. Time to focus that on yourself. I know you can get through this.
A lady I knew used to repeat the phrase "all will be well, all will be well and all manner of things will be well." If you say it enough you may begin to believe it.
Passing you some virtual chocolate in the hope that this will help a little.

Mad - fantastic. Well done for crossing that hurdle. If you are ever self conscious though, it sounds like a good excuse to buy jewellery or scarves!

Quiet day here. Still very tired but doing ok.

Hi everyone else!

BreastmilkDoesAFabLatte · 27/05/2012 22:07

Yes, I know the lady you mean Wink

Thanks for the encouragement. Realistically, I am too late to sort out anything for tomorrow... so I'm going to going to going to just do it and somehow I don't know how to look after them on my own. Either I will manage and feel much better for having done so... or else will end up so exhausted/in pain that I won't manage and then, well, it will confirm to me the need for immediate action.

Ohyoubadbadkitten · 28/05/2012 13:36

How's it going BM?

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Madsometimes · 28/05/2012 14:52

Hope today is fine BM. When I was tired with young children, cbeebies was my friend. Also a romp in the garden on days like today worked, maybe with a washing bowl of warm water for them to play with.

Have to admit that I was exhausted today, so went to bed for an hour this afternoon.

gingerwine · 28/05/2012 15:25

Hope you're doing ok BM. Yes Cbeebies is a life saver when you're feeling rubbish.

I am also completely exhausted and not liking this heat. Don't know whether it's the weather, post stroke fatigue or post op exhaustion or all three, but am going to lie down for an hour.

gingerwine · 28/05/2012 15:25

Hope you're doing ok BM. Yes Cbeebies is a life saver when you're feeling rubbish.

I am also completely exhausted and not liking this heat. Don't know whether it's the weather, post stroke fatigue or post op exhaustion or all three, but am going to lie down for an hour.

gingerwine · 28/05/2012 15:26

Oops! Sorry.

Ohyoubadbadkitten · 28/05/2012 15:38

gingerwine - that is quite a combination of things to make you tired!!

Exhausted too. Perhaps I should copy your examples. Hope everyone feels a bit better after a rest.

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BreastmilkDoesAFabLatte · 28/05/2012 17:00

Like everyone here, I'm currently flaked out. But I do love the heat. I grew up in hot countries, though, so I can appreciate it all becoming a bit much for those not used to it.

Inspired by mad, I let one of my scars show. Not the one from the recent surgery (which still feels far too terrifying) but an older one, which I've never done before. And I made it to the park with the DCs... I still can't believe I managed it.

Thank you to everyone who was so kind last night. I logged off when I did because the local Brethren knocked on my door. Whenever anyone anywhere prays, they always seem to turn up...

Ohyoubadbadkitten · 28/05/2012 17:10

brilliant BM - well done for today :)

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BreastmilkDoesAFabLatte · 28/05/2012 17:35

Thanks. Yummy. How are you doing?

I will reply to your last few posts more fully (or perhaps privately) when I can get my head in gear a bit... I can really relate to so much of what you've said about your recent appointment, and have yet fully to work out how to respond...

Ohyoubadbadkitten · 28/05/2012 18:05

Not great - I am this close --> l l to bursting into tears and I'm not even quite sure why. Well, I guess I know why, but it just seems too much to put into words and some is too private to put out here. however BM, I think you are really struggling too at the moment, and its important to look after yourself. - oxygen mask on self first and all that.

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LargeGlassofRed · 28/05/2012 20:24

Waves, sorry for being crap at keeping up with the thread, I am lurking
still.

LargeGlassofRed · 28/05/2012 20:25

Sounds like everyone had a lot on their plate at the moment, such mountains we're climbing. Stay strong tomorrows a new day.

Ohyoubadbadkitten · 29/05/2012 13:19

How is everyone today?
Still plodding on here.

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Madsometimes · 29/05/2012 13:58

Hi LGR, lovely to hear from you again. I hope that you are well. Last I remember was that you were in hospital for the second time in the space of a month with one of your dt's. I hope he has made a good recovery, and that you didn't catch the same bug again.

OYBBK, I'm so sorry that you are fragile at the moment. It is so hard when you first discover that there is something new wrong, and when it's your heart then even more so. As Ginger said up thread, our hearts are always on the go, we really do need them, and with that and all the other things that life in general throws at us, it's tough. When I found that I needed surgery I cried a lot, and tried to keep it from the children, but didn't always succeed. I had dd1 with me at the doctor's check up when I was told. She was sent out of the room so that must have made her suspicious. As we knew that we would have months to wait, we didn't tell her, so she kept asking dh why I was so sad on the way home.

I suppose, what I'm trying to say is that at the beginning of this enormous thread, you said to me that my problems were a massive thing to come to terms with, and that I would need time. It is exactly the same for you now, so feeling tearful is completely normal. Then, when you couple that with the fact that RL is throwing up difficulties, I'm in awe of your coping skills.

For me, today's a good day. I'm much less tired than yesterday. The fact that it's cooled down and is fresher is a great help.

Madsometimes · 29/05/2012 14:01

Oops, x-posted a bit there. Now I'm thinking that a teeny lie down might be nice. I've just batch cooked and am sweltering.

Madsometimes · 29/05/2012 14:02

So much for feeling cooler Confused.

gingerwine · 29/05/2012 15:15

Yes I was thinking how nice and cool it was earlier and now it's hot again!!

Been out this morning for coffee/tea with friends which was nice and normal.

Bit tired now so going to have a can of coke as was recommended to me for post stroke fatigue. Bit obvious really but as I had been avoiding coke for months when I thought this was all migraine I hadn't even considered it. I think my heart rate has calmed down enough to cope with the caffeine - at least I hope so Hmm!

Ohyoubadbadkitten · 29/05/2012 16:02

:) at the being cooler. Outside here it is, inside its still 26C despite the backdoor being open.

Thank you so so much for your very kind words Mad. It means a lot - a reminder that we are all finding it difficult, but managing in the best ways we can. I'm going to have to re-read the thread again I think. Its reassuring to know that these feelings and reaction are normal Its quite a journey everyone here is on. I'd come to terms with the idea of an ablation. Thought that I'd have a bit of a horrid time, then it would be ok again. I just have to do one step at a time until I know where the path goes again.

Gingerwine - before you know it you'll be on the red bull Wink I'm glad you got out for a bit. Its strange to get back into the normal world when youve been out of it for a bit.

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BreastmilkDoesAFabLatte · 29/05/2012 20:56

Mad has put into words a lot of what I've been struggling to find the words for... thanks.

Health issues involving the heart, and tests and uncertainty regarding the heart is hard... places you in a very vulnerable place. And having doctors staring through you with a probe and then suddenly feeling the un-disconnect of 'eeek this is my body' when it's a job and an interest for them rather than something they have to walk home on and live inside... that's tough too. So yes, kitten... be gentle, gentle, gentle on yourself. You've been on such a long, slow road, and have been so patient... really hoping tests and diagnoses and solutions now come at a more manageable pace.

Ohyoubadbadkitten · 29/05/2012 21:08

I'm struggling to know how to reply. You are all being so kind. Thank you BM.

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