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21st TAMOXIFEN !!

994 replies

MaryAnnSingleton · 15/03/2012 17:41

here we are- how did that happen ?

OP posts:
SparkleRainbow · 05/04/2012 15:38

No surely not beautiful celeste...perhaps fewer snacks in between meals Blush

I know it is such a shock, so young, lovely man, was engaged I think. Saw his gp on monday with suspected food poisoning, so I guess it was an intestinal tear that caused blood poisoning....SadShock

My dd2 is 3 and gorgeous, all blonde hair and big smiles, great giggle too, although at the moment we are just having great tantrums, not like her at all. My niece aged 12 has arrived now, and snow we have complete mayhem as shes sooo competitive and trying to out do ds's friend in a rather irritatingly arrogant way...may have to intervene soon. Hmm

Gigondas · 05/04/2012 16:04

Sad that is so sad sparkle.

I feel your pain as big gig same age- we can go from charming to possessed in a wink of an eye.

Would Wine help with the competitive play?

KurriKurri · 05/04/2012 18:00

hello all - just checking in quickly and reading through all the posts, I was at yoga this morning and art club this afternoon, and lunch out with a friend , - so nice day.

Gig - hooray for drain out and rads going ahead, - brilliant Smile

topsy, - poor DC, - is this a new bug, or has DD got whatever it was DS had? - I think I'd want to run away too, - such hard work when all the family are sick. Sad

Sparkle - so sorry about your DH's friend, what a dreadful shock for you both Sad

Ned and 1in8, - hope you both get a better night's sleep tonight, - it's the steroids I should think - makes your brain go into overdrive.

MAS - Celeste always looks very sleek in photos - not at all over weight. (wish I could say the same about myself Grin) - sorry she has a sore paw though, I hope it clears up soon.

Waving to jane Smile

love to all xx

topsyturner · 05/04/2012 18:11

Sorry to hear about DHs friend sparkle , very sad news .

DD slept for an hour post puking , has now come downstairs and declared that she is starving and is eating pitta bread !
Please dont let it come back up again !

DS coughing every 30 seconds and looking pathetic .

Mum heading for a nice quiet rubber room ...

Gigondas · 05/04/2012 18:22

Does the room have gin in it?

Would have thought wanting pitta a good sign as you usually start to feel hungry once you are over worst.

Any tips for baby with conjunctivitis? Saline solution? Chemist doesn't have anything and not sure I fancy an a and e trip.

topsyturner · 05/04/2012 19:20

You should be able to buy chlorophenical (sp?) over the counter from chemists .
Apart from that , good old boiled (then cooled) water and cotton wool .

Mummy is waiting for daddy to get home then she is opening the wine !

topsyturner · 05/04/2012 19:49

Am now bathed and in fresh pjs .
Going back upstairs to scrub my bedroom carpet again .
By which point I am hoping DH will be home , because here or not I am opening the wine !

Tomorrow as they say , is another day !

graciesmall09 · 05/04/2012 19:59

oh Topsy sick children is the pits. DD is feeling poorly today - sore throat, head and feeling hot. Wine sounds like a good plan.

Sparkle that is very sad, such a shock for everyone.

I haven't been on much over the last few days, finishing everything off at work so was working flat out and I just seem to be feeling better and I get hit with another curve ball. Consultant phoned today to say my hormone receptor tests back - Triple Positive. Meaning chemo, radiotherapy, herceptin and tamoxafen (sp). According to Dr Google that is not good and my 5 year survival rate is not good. I just feel like forgetting all about the chemo. I have convinced myself that my CT scan and MRI are going to throw me another curve ball.

MaryAnnSingleton · 05/04/2012 20:06

gracie am going to disagree with Google (and you really shouldn't go there) -to be receptive to everything means that you'll get blasted with lots of cancer killing stuff and I'm pretty sure that will give you every chance of recovery. DSIL had all that treatment and five years on is very much still with us,jetting off on work assignments abroad and everything. Our own dear kk has had the same treatment and topsy - you're bound to feel it's all too much but don't despair.

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topsyturner · 05/04/2012 20:06

Gracie step away from google ! It's Satans Work !
Look at it from the point of view that you are lucky to have all these drugs to be thrown at this bastard cancer .
Someone will be along in a minute with some actual medical knowledge . But I think it's a whole lot better than being triple negative , where you aren't suitable for any of the mop up drugs .

This probably doesn't make you feel much better right now . I know what it's like having to wait in scans and results .
When you get the initial bad news of diagnosis you get to thinking everything will be bad news .

Here , have a lot some of my wine !

graciesmall09 · 05/04/2012 20:23

I know I should be grateful that I found the lump early, I just feel so very depressed which is just not me at all. I know I am just being dramatic but I honestly do feel like I will never get to the other side of this.

topsyturner · 05/04/2012 20:48

Yes I know , grateful they found it , grateful they can treat it , blah blah blah !
Doesn't stop you feeling mighty pissed off that it's there in the first place though !
I got depressed first of all , planned my funeral and wrote my will etc . Then I got angry , why me ? What next ? Everything will be bad now .
And then I got to the accepting stage . Still interspersed with fits of why me ? And shear bloody rage that I have cancer !

Whatever you are feeling Gracie is perfectly normal . It's a bloody awful thing for anyone to go through .
Keep posting on here and unload as much as you want , we have all done it many times !

Gigondas · 05/04/2012 21:21

Gracie - completely agree that leave google alone. And it's treatable - they give you drugs and if hits it. They know what it doesn't like so hit it with them.

Also the very way they talk about it in terms of survival rates is horrid. I am not taking away from seriousness of this but we all have that kind of risk to our health but we have to face it. I bet your prognosis is better over 5 years than my bil who goes against all medical advice with his diabetes. I a clumsily trying to say that stats are just that- they can't tell what is actually going to happen to you and everyone (cancer survivor or not) has some risk. We are just forced to face ours.

And I know what fear of spread is like as am sure others do but they are looking, they will see what is there and zap it .

Feel totally wiped out so god knows how I will tell what rads to do me. Have new diet regime tho from dietician - lots of protein and vitamin c.

LimeJellyforBrains · 05/04/2012 21:30

Hello everyone, sorry I haven't been on in a while, even missed Smee going. Last week was outside a lot enjoying the lovely weather. Tomorrow we're off for the weekend to north Devon.

Ned as the steroids had such a strong effect on me, and I didn't have too much nausea, I was allowed to cut my dose by half which helped no end with the wired-up feeling. Sorry you have had a sore mouth and tongue too, that was my worst s.e I think - have you any Difflam from your GP?

Sparkle so sorry to hear about your DH's colleague, what a terrible shock. Hope it doesn't bring DH down too much x

gracie as Topsy says, it is good that your cancer can be treated with the extra drugs, rather than not. Hugs to you too x

Mas hope Celeste's paw heals quickly, I too am surprised to hear she's not as sleek as she looks in your profile pic!

Night night all, off to bed now as will be up at 5am tomorrow, yuck. Expect I'll see you all on Tamoxifen 22 when I get back! Are you all going to hide behind the curtains and jump out to surprise Smee when she gets back? Grin

KurriKurri · 05/04/2012 21:54

gracie - - triple positive here too, and yes it is scary, the way I was told it was that given surgery only us triple pos girls would have a lower survival rate than someone with what amber would call a 'less badly behaved' cancer. BUT BUT BUT - fling everything at the bastard, - surgery, chemo, rads, herceptin and tamox. and it pulls us right up there into good figures, - and a very good percentage survival rate.

Each element of that five pronged attack increases our percentage chances just that bit more. So definitely worth getting the chemo. They are getting better at treating it all the time, - even since I was DX 4 years ago, I have had friends DX triple pos. who are getting a more refined and improved treatment, - they keep finding things that are that little bit better.

It is scary, my lovely - very scary and you are in such early days that you are still getting over the shock. I felt just as you did, I felt I couldn't look beyond the cancer and there was no point thinking about the future. But those feelings pass, they really do as you get further along the treatment road.

If you are feeling depressed do speak to your consultant, or GP or BCN about it, there are lots of things on offer to help you, - counselling, relaxation classes, anti depressants, or a combination. - It's worth finding out about because if you can manage the emotional side, it will help you through the physical. There is absolutely nothing wrong with feeling depressed or tearful, - I certainly did, and I had counselling and anti depressants, and they helped me get through.

Don't want to make this a huge long message, with a barrage of advice Smile but do come on and talk about it whenever you feel it's getting too much, - we've all been there, we've all thought we wouldn't get through the treatment, but somehow you do, bit by bit. And we're all here rooting for you. xx

LJ - lovely to see you - have a great holiday xx

MaryAnnSingleton · 05/04/2012 23:11

waves to LJ -have a lovely time in Devon.
My cat knowledgible friend says that Celeste being part Siamese will be a bit 'cobby' - she is small but solid around her tummy- she weights 4.14 kilos which seems to be medium cat sized according to the cat food packs.
gracie hope that you can find some comfort in the words everyone has put- BCN would def. be able to advise on counselling if you felt it might help you - I shall rather boringly recommend meditation too.

OP posts:
jchocchip · 05/04/2012 23:11

Hi everyone. Been asleep in a chair and woken up very stiff! Sorry to hear of mrsparkles friend. So sudden :(

Gracie, What Topsy said. It's normal to feel depressed and mighty pissed off. I think I need the paranoia box again. I'm very conscious of a lumpy breastbone, sure it was never there before...
Looking forward to chocolate on Sunday, and have laid in a supply of Lindt with seasalt as it was on offer. Also a bag of Thorntons misshapes, Cadburys mini eggs and Lindt truffle eggs. Will put some on the fbs trolley as chocolate is def recommended for shock and depression... Good job my weigh in day is Saturday :)

MaryAnnSingleton · 05/04/2012 23:14

a bc diagnosis,for whtever grade/stage etc does stir up lots of emotional stuff - I found this so -stuff from years ago-which hs been good for me in a funny way-a kind of cathartic thing. I swear by anti depressants !

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jchocchip · 05/04/2012 23:14

xpost mas. Celest doesn't look fat. Unlike my friends cat who is an indoor cat and is about as wide as she is long...

topsyturner · 06/04/2012 09:07

Morning All

Day 376 in the house of sick (ok not that long , just feels it)
DS still in bed , DD been up for hours with tummy still sore (thankfully no more puking) and high temp .
But DH us here and has taken over .
Yippee for DH !

Happy Easter Folks !
What are we all up too ?
Please tell me lots of exciting stuff as I think I shall be living vicariously through you all this weekend Grin

topsyturner · 06/04/2012 09:12

Did you have a better night Gracie ?
Hope you a feeling a little better today .
What mas said about anti depressants is very true . My GP put me on a low dose of them when I was diagnosed . He said that they wouldn't make me happy , but they would help even out the extreme highs and lows that we all get with a cancer diagnosis . And that I needed to be on an even keel to be in the right frame of mind to handle all the treatment .

They are not for everyone , but they certainly help me !

Gigondas · 06/04/2012 09:17

Grin yes I will be living vicariously too as plans to go to France on hold now as I don't fancy over doing it pre rads . But glad relief has arrived in the house of sick.

Waiting for Sainsburys man then will add hot cross buns to the trolley.

Gracie- how are you? Ned -how you dojng?

Lj- have a lovely holiday .

MaryAnnSingleton · 06/04/2012 09:52

I have no exciting plans really- just a bit of work perhaps, seeing my parents...having lunch all together on Sunday.
jane thanks for kind words about Celeste- I think she could lose a wee bit of tummy,but otherwise she is sleek !
Hope the house of sick recovers soon xxx

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Gigondas · 06/04/2012 09:53

Celeste sounds lovely- you want something to cuddle

NedSchneebly · 06/04/2012 10:02

Morning all - feeling a bit better today. Slept much better so a bit more refreshed. Still feeling a bit queasy, so taking metoclopramide on top of Emend.

I am clearly mad, but am allowing DH to take me to a concert (good quality folk bands Blush ) this evening at Salisbury arts centre. He is very keen to go, and I don't want to disappoint him, cos I don't think he would go without me. Do you think I am bonkers?

gracie poor you, you are going right through it. Listen to kurri - she speaketh the truth. I would second recommendations of anti depressants. I have been on one for the last few weeks, and it has certainly eased some of my anxiety and made me less weepy. The one I am on, Trazadone, has a sedative quality too, so I take it at bedtime and it has really helped with my sleeping, which was all over the place and, at times, non existent. Stick with us, my love, and we can get you through this in one piece. PLEASE stay away from Google. It is not healthy and will NOT help you.

Topsy how is the sick house this morning? Hope DH came home last night at a suitable time for you to crack into the Wine ?!

lime ! Good to see you! Have a lovely holiday. Have got difflam to use of ulcers appear again.

jchoc MAS happily to stock the trolley with chocolate for you on Sunday! Have brownies and caramel mini eggs on offer x x

gig will wait eagerly for hot cross buns. Hurry up mr sainsburys!