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21st TAMOXIFEN !!

994 replies

MaryAnnSingleton · 15/03/2012 17:41

here we are- how did that happen ?

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topsyturner · 24/03/2012 10:16

Morning All

Beautiful day here . It's so nice to have a lie in and then wake up to glorious sunshine . And I did all the housework yesterday , so no work to do today .

Jane hope DDs party goes smoothly and all frogs have been eradicated Grin

Gig paranoia is a total bitch , I am volunteering for my turn on the box for you .

Boggling at the mentality of the lawngate neighbours . You should sneak out in the dead of night and fabricate some mole hills Grin

Right , breakfast time . Then showers all round and off for a much overdue Tesco shop .

Later Ladies , have a fab Saturday Smile

Sometimesiwonder · 24/03/2012 13:36

Hi all. Am waving madly in an inclusive sort of way to you all.

I have been a bit busy and have missed so much, I see. Love and hugs to all who need it, just because I haven't read about it doesn't mean I don't care. I really, really do, both good and bad.

It's a lovely day so I hope that is giving you all a boost, it has certainly lifted my spirits. Me, I'm working and fighting the urge to go to the garage and inspect a car I have fallen in love with (mine is 7 years old and needs changing). The plan is to finish work and get out into the garden, ignoring the siren call of the beautiful shiny car. Yippee!

MaryAnnSingleton · 24/03/2012 13:52

ooh new car sometimes !!

Grin too at kk's concern for lost compost - friend's car is a v nice Saab, I'm sure she is equally annoyed about it being all composted !
Sun lounger sounds brilliant- how kind your parents are ned
Am off to wander around a nice NT garden in the sun with dh and ds - we had our lunch outside today too !
Waves to LJ and topsy and everyone that I have missed -dh nagging me to get ready to go...

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smee · 24/03/2012 14:21

Am echoing Sometimes, as am daftly busy, but have read through and am thinking about you all.

Just quickly then,

Ned, your new lounger sounds fab. Great to hear you're feeling a bit more in the swing of it. You're doing amazingly you know.

Gig, I'll take a stint on the Paranoia box for you too, though am sure they'd have said if they were worried. Enjoy the sun. It's medicinal.

Jane, hope DD's party goes exactly as she wants it. Am a bit impressed by you tidying up for it. Shock

Kurri, go with what Topsy says - fake mole hills at 2am. Though then again, imagine if they caught you at it?! Grin

DH has taken DS and a friend of his to see theatre show of Horrible Histories so I can work, so had better get on. Going to a friend's 50th birthday meal later, so that's something to look forward to.

We haven't heard from Pennies since her op have we?? Pennies, if you're reading am still thinking of you.

Sorry not to post to all. Have a lovely day all. Smile

Gigondas · 24/03/2012 15:31

Thank you all for sitting on box. I am a little less paranoid about it coming back and a lot more about it not healing up fast and putting rads back. And yes a week of not eating properly and sleeping so well has paid its toll on my state of mind.

Have cracked and phoned hospital ward I was in to ask their advice. The surgeon on Hol and did say after op that he wanted to check wound given size.

I really hope it is "just " an infection and side effects but I tell you it's taking a toll on me.

Sorry for Selfish post. Hope all enjoying The sun

graciesmall09 · 24/03/2012 17:12

Hi, Can I join in? I haven't read all the pages of posts yet will work my way through.

Really can't believe I am posting here. This has been such an awful year so far - really hoping it is onwards and upwards from here. My dad was diagnosed in January with cancer and given 6 months, 5 weeks later he was dead and 5 weeks to the day after that I was diagnosed with breast cancer. It has torn me apart. I watched my dad go downhill really quickly and can't help but think the same is in store for me.

I had a WLE and sentinel node removal on Monday and going to the surgeon for my results/grading on Wednesday and then seeing the oncologist on Friday. I have changed from a 'I'm alright I don't need to go to the doctors' to a raving hypochondriac overnight. Every ache and pain is secondaries according to me. I am fine one minute, in floods of tears the next. Not helped by the fact I had that awful coughing bug which has been doing the rounds and it is lingering and lingering with me. Would they have picked up something on chest x-ray? They told me it was clear but would they have been checking for spread?

Really sorry to be such a wet blanket.

MaryAnnSingleton · 24/03/2012 17:25

hi gracie welcome- so sorry you are having an awful time - and really very sorry to hear about your dad- that must have been a dreadful shock,and this on top of it too.
As far as I know the chest xray is a standard thing before an op- I could be wrong of course - but anything suspicious would have been picked up,so you shouldn't be fretting about that. It's the waiting for results plus having been through such a lot in a relatively short space of time that is doing your head in.
Stick with us and we'll see you through it Smile

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Gigondas · 24/03/2012 17:27

Oh Gracie - I am so sorry you are here to but glad you found us. Am also recently diagnosed (soft tissue sarcoma) but I know Ned is just going thru chemo following a jan dx and there are lots of others on here with beast cancer experience.

Yes they will pick up things on your X-ray jncl collateral damage from bugs (allegedly that kind of damage more obvious and frequent than cAmcerous types).

And I am so sorry about your father- this must seem even worse.

And yes I am now a Gp pest too!

graciesmall09 · 24/03/2012 18:18

Thanks for the welcome Gigondas and Maryannsingleton. Looking forward to joining in.

I'm back to work on Monday after being off for a week and already dreading it. I have a colleague who is EXTREMELY nosey and she has plagued me with texts, phone calls, etc since I have been off so just know she will be perched on my desk on Monday with 20 questions. This is the same girl who opened my Christmas present from my boss a few years ago as she had been asked to leave it with me as I was on maternity leave. She opened it and phoned me to tell me what it was. She also opened personal emails addressed to me and then phoned me to ask what they were about. Anyway I have been bombarded with texts asking why I hadn't told her and how much the surgeon took away. So pray that I don't punch her and end up suspended :)

topsyturner · 24/03/2012 18:35

Hi gracie welcome , but sorry !
We have a special paranoia box that we all take turns sitting on so the bastard doesn't get a chance to slip out

You have had a shitty old year haven't you ? Stick around , we will hold your hand whilst you wait for results .

graciesmall09 · 24/03/2012 18:54

Topsyturner that made me laugh. DH thinks I am going slightly mad chuckling away to myself - better than crying into my wine I suppose.

MaryAnnSingleton · 24/03/2012 19:04

Shock @ your colleague gracie -she sounds unhinged ! and insensitive actually. Unbelievable !

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Gigondas · 24/03/2012 19:18

If you need a laugh check out the voice. Mindless Saturday tv.

Gracie the waiting is horrendous - assume someone is going with you to oncologist etc.

NedSchneebly · 24/03/2012 19:34

Oh gracie you poor love. What a shitty start to the year for you and your family. Sad I was diagnosed in early January, and am currently in the throes of my second cycle of chemotherapy, after a WLE and sentinel node biopsy in mid January. The waiting is dreadful, and this is the best place to hang out and share how you're feeling.

Don't ever worry about being miserable or scared or angry or confused here - all states of mind welcome. You'll figure that out once you get to know us. . .

We are all at different stages of the journey, but can hold your hand as we all travel the road together. I would not have coped at all without the amazing ladies on here, that is for definite.

Please ask questions and let us help you through this first bit. I think it's the worst- until you know what's what and what the rest of the treatment is going to be, it's hard to prepare yourself. I felt much better once I had plan and a timescale, even though the plan had some quite scary stuff in it, iyswim.

Stick with us, yes? Big hugs winging their way to you x x

KurriKurri · 24/03/2012 20:55

hello Gracie and welcome, but of course sorry that you find yourself on this thread.

I hope we can all help you along the way, - we do hand holding, and take turns to plonk our (in my case ample) bums on the paranoia box.
I'm nearly four years past DX - so a bit of an old timer, but - I hope it's reassuring to hear from someone who's been where you are now, and is a bit further along the road Smile

And of course there are loads of great women on here who are at a similar stage of their journey to you, and can truly understand what you are going through.

I too went from being a person who rarely bothered the doctor, to raving hypochondriac Grin - but I don't think the docs. mind.
Breast care nurses are often very good people if you need to talk thing over and say stuff you can't always say to family and friends.

I am so sorry you have also had to deal with the loss of your Dad. I lost my own darling dad just before Christmas, and it is such a hard thing to cope with, then for you to have your DX on top of that, must be so difficult. Loads of coming your way.

Your colleague sounds mad as a bag of badgers Shock

Anyway stick with us, waiting for results is shitty, but someone will always be around for a chat if you need a shoulder Smile

waving to everyone else, Grin at MAS and LJ laughing at my compost comment - rather revealing about my priorities in life Grin

Hope you're feeling a bit calmer this evening Gig. - meant to ask earlier, have you got decent pain relief for your infection? - because if it's hurting a lot, that will make you feel down.

KurriKurri · 24/03/2012 20:56

Gig - the Voice was a hoot Grin

Figgyroll · 24/03/2012 21:06

Hello everyone and a gentle hug for Gracie. What an awful, horrendous start to the year. I'm so sorry to hear about your dad. I was diagnosed last January (2011), 3 days after losing my dear mum suddenly and unexpectedly so the first few months were a blur. I've had chemo, a mastectomy followed by radiotherapy and am now on hormone treatment, Letrozole. We'll hold your hand for you whenever you need our support, Gracie. The ladies on here have been a Godsend to me in my times of need - with sound advice, support, laughter and lots of FBS (we have our own FBS trolley so help yourself).

I am offering my services for "paranoia box sitting" tonight. Shift yer bums ladies. Grin

Gigondas · 24/03/2012 21:22

It was good as was bgt. kurri it's not painful but it is more swollen and now leaking fluid. I am desperately worried it will push back rads but then again it's come up quick as dr wasn't worried yesterday and it is 6 weeks post op.

Also bad person as googled which never helps your peace of mind .

So need FBs and more firm sitting on naughty paranoia box.

LimeJellyforBrains · 24/03/2012 21:26

Goodness Gracie what a horrible start to the year. Big hugs coming your way. I was diagnosed Dec 10, had WLE and node clearance, chemo and rads. Now on Tamoxifen for five years. Well done on getting through the first op, we'll hold your hand as you wait for you results on Wednesday x

Agree your colleague sounds and awful, creepy fruitcake!

KurriKurri · 24/03/2012 22:23

Step away from the google, Gig.

BGT - I loved the ballroom dancing guys. And the man in the eagle costume Grin

topsyturner · 24/03/2012 22:39

Had a bottle of wine so far , and have just discovered the bottle if Baileys that was in the top of the fridge .
This lent thing is going really well Grin

topsyturner · 24/03/2012 22:49

Aw feck .
Forgot bgt was on tonight .
Watched first half of the voice , quite like the idea , dunno how it will work though .
Do luff Sir Tom Jones though ...

mas did you ever find out how the boys music exam went ?

We had our first almost 13 year old boy meltdown today .
He is still not talking to dad , I am in his good books though .

Time for another Baileys . Anyone want one ?

MaryAnnSingleton · 24/03/2012 22:59

think it went well (the exam) from what ds has said, he seemed happier than last time- honestly getting info out of him is sooo hard. Results probably after Easter hols. He has won an award for excellent attendance at the Celebration of success this coming week !
Nice walk through the gardens at Hinton Ampner - saw a little girl fall rather spectacularly head first into the fish pond -she'd been running around the edge with her dad following her with his camera- you kind of knew what would happen...
gracie forgot to say,like kk I'm much further on -3 years in May since my WLE and SNB - I was fortunate in that my nodes were clear,so it was rads and tamoxifen for me.

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holstenlips · 24/03/2012 23:03

Mmm Baileys, yes please Topsy. It would serve as hair of the dog, had school reunion last night and I have been comatose all day.
Hello to Gracie, sorry you have cause to be here but also glad you are here to get some support.
Sorry to hear your worries and poorlyness Gig. I hope u r ok.

jchocchip · 24/03/2012 23:08

Baileys! Yes please Topsy :) Survived cinema trip "The Hunger Games" bit of the opening festival for Bradford City Park and a curry then home on the train.
Hi Gracie What a shock so soon after losing your Dad. I am 6 months post op, had wle and snb radiotherapy and now on tamoxifen. Feeling fit now, apart from a touch of paranoia. Been back at work for a few weeks now.
Uhoh minitopsy meltdown. Hope he doesn't go grunty on you. Now 8, thirteen and fourteen year old girls chatter, chatter all the way...