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***TAMOXIFEN number 19***

995 replies

MaryAnnSingleton · 31/01/2012 16:41

ta daa !

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MaryAnnSingleton · 21/02/2012 17:14

yes,do agree about the other bc sites -(though I did meet 2 people on there who have become friends-one in RL and one on facebook)
This thread is about us as people as well as the disease-so when I think of one of us I think of particular things about them-ie. smee's ds and his snot collection. (we found a big ball of fluff collected from the new rugs squirrelled away in ds's drawer)
Collected Charles and top-(kk kind of you to say that- am having major frets about clothes etc -hating everything on me)

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MaryAnnSingleton · 21/02/2012 17:15

oh and love your new elegant name pranma ! (in fact met pranma on the bc site too Grin )

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NedSchneebly · 21/02/2012 17:19

Well said greylady I agree that it's great to be able to post about other stuff completely unrelated to cancer of any sort, but we stil have that connection the binds us together in mutual love and support x x glad to hear your shoulder is better.

Am feeling a bit better in the sickness department this evening - fingers crossed! Very tired though, so an early night for me, I think.

Have made pancakes with DS this afternoon though - feeling like successful mummy!

Gigondas · 21/02/2012 17:41

Well done on pancakes Ned and for getting through today.

Dd doesn't like pancakes so not wasting my time making any .

NedSchneebly · 21/02/2012 17:44
MaryAnnSingleton · 21/02/2012 17:46

I have my maple syrup ready [slurps unbecomingly]

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Gigondas · 21/02/2012 17:48

Yum Ned- thanks Wink

thegreylady · 21/02/2012 18:01

pancakes-maple syrup on some and lemon and sugar on others yummy :)

SparkleRainbow · 21/02/2012 18:07

honestly you guys, I go away for a couple of hours and now you are making me cry, it is so true, thie thread is a wonderful place to be.

I have added virtual pancakes to the fbs trolley as they are calorie free, and think we should seriously consider a drinks trolley too!

Hi greylady - I like the name change.

MAS - yeah for Charles - good news after all that expense not so long ago. I love the new top description.

Smee - Grin at having to retrieve kitchen utensils from under ds' bed...now that sounds familiar.

Have made whole batch of pancakes which dd's have scoffed. Ds doesn't like them. Am making roast dinner even though I know they aren't going to eat it cos they are full of pancakes....but oh well. Have not made any roasties for me....will stare wistfully at dc and dh's plates. Wink

smee · 21/02/2012 18:31

I forgot Pancake Day! Might have to call tomorrow Shrove Wednesday... Blush

KurriKurri · 21/02/2012 18:57

lots of lovely posts - Holsten x-posted - wasn't ignoring you!

I didn't make pancakes - couldn't be bothered tonight because I'd already done a load of cooking for the meal, so we are having stewed plums I'll make a few tomorrow for DD and DH.

Am very impressed you made some Ned Smile

sandripples · 21/02/2012 20:24

Hi, can't keep up with everything (as usual) but just wanted to say that the simply great thing about pineapple for me when on chemo was just that it tatsed wonderful, when so many other things tatsed rather horrid! I used to chop up a pineapple every week and keep it in the fridge. I never had a major ulcer porblem but when I did get one or two I sued saline mouthwash which did the trickk for me.
(I also loved fried liver! In fact my taste went really quite weird for 7 months...)
xx

jchocchip · 21/02/2012 20:51

Hi Everyone. Can't keep up again today! I've read through but I'm not going to attempt a mammoth post to everyone individually

Not heard of canceritis before, but I totally relate to that.

Cooked the cat a sardine for tea - they were very cheap in the supermarket - and the cat certainly licked the bowl! He is usually very fussy, think tinned food is off the menu at the moment as he just licks the jelly off. He does like dry food so thats what he gets.

I did some more pancakes and went to dd2's option evening. Had a bit of a wobble as I realised my baby was choosing her gcses... We also had a treat from the chinesey as I couldn't be arsed bothered cooking and it had been a very long day.

Dh has gone to visit him Mum, which I am pleased about, she needs more support looking after her mother.

Last few Christmas biscuits to eat, I'll slip some onto the fbs trolley with some cherry tomatoes which are surprisingly scrummy and work for me!

Going to have a last pancake with chocolate sauce before the lenten chocolate fast begins...

topsyturner · 21/02/2012 21:16

Can't keep up with you guys today , speedy posting !

One of the highlights of my weekend away was that our hostess had bought a canister of helium and a pile of balloons . We blew them all up (never once inhaling any helium ourselves , honest guv !) and wrote messages on them . (a couple of the girls have had bad years too , mums dying etc)
Then we all went outside and released them up to the skies .
It was definitely a moist eye moment .

Went to see my GP yesterday about my sore knee . He has decided that he doesn't think it is Cancer Of The Knee as I had previously diagnosed Grin
He thinks it's possibly some kind of arthritis and has given me a 3 week course of anti inflams to try .

Just bloody typical isn't it ? It would help me if I could shift some of my excess weight off my poor old bones I think . So if you spot me near the fbs trolley , poke me with sharp sticks and tell me to bugger back off to the salad bar please !

I have got the greatest amount of comfort from this board and speak about you all to my family frequently .
I honestly don't know how I would have coped without having this place to come and sound off too .
MAS I thank you from the bottom of my heart for getting and keeping it all going . Thanks

The girls I went away with at the weekend are all ladies I met on another internet forum and we have stuck together for 9 years now . We meet up every year . So never under estimate the power of the internet !

LimeJellyforBrains · 21/02/2012 21:26

What an emotional couple of days. Would like to agree with everyone about the special value of this thread and all you lovely women x

Ned - I had the Emend tablets that 1in8 mentioned, they are very good. My GP prescribed Difflam for me (so, free).

I really ought to join the diet chums. What Wii game are you using to exercise with Sparkle? I started doing Just Dance for half an hour twice a week with a friend - a very pleasurable and fun way of getting breathless, recommend it! But she's hurt her foot so I've ordered one for myself. I really need to increase my fitness. I watched a DVD from BreastCancerCare on diet and exercise, advising 30 mins of getting out of breath 5 times a week. Have had foot pain since Taxol - think the numb toes made me walk funny which led to foot strain.

Smee Shock yuck yuck to cups of snot! On the rib pain - there are a few tender spots, not just on the side that got zapped. That said, almost the instant I am put down for a bone scan, some of the soreness seems to have eased Hmm

LimeJellyforBrains · 21/02/2012 22:12

Re-reading my post, confusing with too many painful feet! My friend hurt tendon in her foot, and separately I have painful foot/feet which has made it hard, at times impossible, to walk any distance or do any other kind of weight-bearing exercise. Tis a bummer, and contributing to me getting fatter and unfitter since treatment finished!

OlympicGoldPennies · 21/02/2012 22:13

Wow - lovely to see so many friendly faces still posting here. I feel so bad that I dip in and out.

I finished herceptin in July and had my port taken out two days later!

In september I started a new job working as a TA at the same school my kids go to which is an enormous privilege to see my girls every day when I work (altho I don't work with them - I just see them in the play ground and around the place - but that doesn't matter to me it's just nice that we're in the same building).

Got my recon in 3 weeks. A TUG flap (when they take tissue from the thighs coz I don't have enough on my stomach or back). It's going to be a ten hour op and I am utterly terrified. I am very worried that I'm not going to make it through the op and that that it is going to make me unable to do the things I've got back to (like exercising a lot).

I have been thinking about Wubbly all day. She had a very aggressive form of BC. I am so sad for her DS and her DH. Sad Thanks

thegreylady · 21/02/2012 22:14

LimeJelly-that sounds a bit like canceritis to me :) I hope so anyway.

LimeJellyforBrains · 21/02/2012 22:54

It does doesn't it? Smile

smee · 21/02/2012 23:10

Pennies, that op. does sound daunting. hth but a friend had reconstruction in early January. Not sure exactly which version she had (can ask if you want), but she's been amazed not to feel more debilitated by it all. She's really delighted with the results too. Your new job sounds good - TA's at my DS's school are all fab and have a great time with the kids. Figgy's a TA too I think.

Lime, what have they said about your toes? Do they think you'll get the sensation back again? Amber's having all sorts of problems that sound similar. On ribs, I'd vote for canceritis too. I really do get how worrying it all is, as I've had a CT for similar sounding pain and even though it came back totally clear, I still anxt about it. Confused I have a theory about mine that it's a combination of my implant/ scar tissue pressing down and also low level IBS which bloats my stomach, so pushes everything up into my ribs. Totally unscientific, but it seems to fit. My Onc told me nerve endings can jangle too from the surgery, so it could be that too.

Still on a rib ramble, but slight tangent, as I was wondering if anyone else has found they forgot how to breathe through all this nonsense? I've noticed as I try to get fitter that I can't take deep breaths at all. I've had to really work on yoga type exercises to release it all. Lots better now, but it's made me realise how incredibly wound up I've been. Nearly two years now since diagnosis too, so it's been a while..

Ramble over, honest. Night all. Smile

MaryAnnSingleton · 21/02/2012 23:33

interesting about the breathing smee -when I meditate and follow my breathing I sometimes panic a bit because am aware of the process of breathing and it's as if I forget how to breathe- that makes no sense,but it's mildly panic making.
I am doing the reading after all-Patience's ds says I could do it and have dad say his words later on- have recorded myself reading it,having marked bits that I need to beware of and played it to parents and dh -they all say it sounds fine which is a relief,and I don't sound quite as bad as I'd feared.
Chocolate is now off limits- had my last bits-dh offered me extra just now before the deadline !

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MaryAnnSingleton · 21/02/2012 23:40

new job sounds ace pennies ! loads of luck with the recon. -it sounds daunting though-will certainly be thinking of you -am sure it'll all be fine and dandy xxx

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Gigondas · 22/02/2012 07:20

Pennies- I can see how reconstruction is daunting . Is your surgeon nice? Mine super reassuring and easy to talk to and eased my fears a lot (any reconstruction for me a long way off and also given my scar on my bum I may not bother in the end if not essential).

On canceritis and pains, I was chatting to my mum as I was trying to work out what is happening (have mix of bruising , Muscular aches where other muscles compensating for lost muscle, numb bits etc). Her op was in her neck but thinks it was a few years before got something like normal sensation . Therefore it could well be that pains here are leftover from Surgery.

Any tips for windy babies here? Dd2 got lot of wind and whilst she isn't screaming with it , she is squirming and groaning in her sleep.

topsyturner · 22/02/2012 09:13

Morning All

Gig re the windy baby , have you tried putting a rolled up towel under the head end of the cot mattress ? It just props baby up enough to ease any windy-ness . Also feeding position can affect the windy-ness too . Is baba breast or bottle ? (not going to start a breast/bottle debate Grin just there are different bottles you can buy for windy babas)

Pennies good luck with your reconstruction . How long post surgery are you ? My surgeon won't let me have mine yet , she says I have to wait 2/3 years .

So , who is craving choccie now they have given it up for lent ?
DD has given up Ribena and fishfingers ! She loves both of these so it's a real challenge for her .
DS has yet to decide .
DH has given up his usual choc , cake , bun combo .
I have given up booze !
DD and DS will get their ashes at school today . Catholics get a cross of ashes on their foreheads at mass . And depending on how enthusiastic the priest gets , it can stick there all day ! And the "rules" are you are not allowed to remove them !
That reminds me , today is a day of obligation . Which means it's meat free . Must root around the freezer and see if I have any fish , that's not fish fingers , for dinner .

Scatters sliced apple and banana on the fbs trolley Grin

NedSchneebly · 22/02/2012 09:13

Morning all - hope everyone is OK this morning. Sorry to hear about canceritis aches and pains. Definitely a bugger for you all.

pennies that does sound a daunting prospect for you - hope you can get some reassurance from others on here. Great sounding new job though - I'd love to do that! I was teaching before my treatment - working in schools is such fun!

gig sorry dd2 is windy- could you prop up the top end of her mattress with a cushion or folded towel underneath the mattress, so she is a bit propped up? You might find she'll sleep better if she's not quite so flat. Sorry, might not be much use, but worth a try? Hope you are OK?

Hope all those who have given up the divine brown stuff for Lent are Ok this morning. Have put fresh bread and butter on the fbs trolley for you, if that would do? Think there is some homemade plum jam somewhere too. . . Smile

Still feeling a bit sick this morning - should i be completely nausea free, or even on the pills can i expect to feel a bit queasy?

However, had a brilliant nights sleep, first night all the way through in about 3 weeks, so feeling a little more human today!