the 16th ***TAMOXIFEN***thread

[MaryAnnSingleton]

...here we go again

Hi Summat - occupying mind and thai food - that's the way to go :) We used to have a lovely thai restaurant, but it is an indian one now. I can still remember the thai prawns, yum. Are you near Sheffield? I go past Meadowhall when heading south to see my Mum.

Live near York jc, so not far at all. The Thai place has just opened in Meadowhall and was brilliant, ChaoBaby, it is definitely worth a stop off next time you are passing.

mas...hope your dads ok.

dee...its horrible when the dark thoughts hit you,i hope thats lifted today.

had my first physio theraphy which went ok was very surprised my theraphist is a man and omg hes soooo hot lol.he was lovely explained everything and was very honest in saying its going to take months to sort out but we will get there in the end.i was to see him to sort out my cording in my arm which is restricting my movements but now hes seen my lymphedema in my hand hes going to help me sort that out to.been told every chance i get to sit down pile the cushions up so my hand is above my heart,thats going to go down really well when i start pinching the kids cushions every evening ha ha.been told to drop the post op mx exercises and for now just simple exercises to strengthen my shoulder before we move on so cant go swiimming etc.

ds is back at school today have had 2 days of nosebleeds so hope hes ok,have emailed his formteacher to let her know shes very good and at some point will email me back to let me know how hes getting on.

dd15 is still off school nipped shop came back she had put the heating and fire on full blast and lay on the settee with 2 duvets,shes not happy when i explained that wasnt going to do her any good and will only raise her temperture and make her feel worse.so now im the wicked mum and shes sloped off back to bed.

summa..i hope the weekend goes fast and you can find ways of keeping yourself busy.just in case you dont pop on again over the weekend good luck for monday.

nooooo just noticed my thumb is bubbling up and starting to peel again,omg surely after finishing chemo at the end of may this shouldnt be happening again.

Oh Pink, Yay for the hot (male) physio but boo for the thumb.

Forgot to say, my Mum is being discharged home on Monday. Hope the care package is in place before she gets there!

Summat, I love York, not been there for a while, unless you count passing through on the way to Flamingoland.

topsy ooh you're stern !
hooray for hot physio pink but grr about thumb
summat will be thinking of you- not long to wait now-things will seem better when treatment is underway.
jane hope all is sorted in time for your mum's coming home.
OK -am off to work...

jchoccchip - Oh yes the sloes, lurking in the back of the freezer, picked at an inconvenient time in Sept with the intention of putting off the sloe gin factory for a week, what ever happened?!!! I resolve to process them this weekend (we bought the gin at the time) In such a life affirming way and in honour to my now gone darling dad, dh and I started the chesnut stuffing this morning. As Mrs Beeton would have said, first catch your chesnuts Hare. Long story, hope it has a happy ending. I totally identify with your comment DeeScent about this following "one" around for the rest of one's life, you put it most succintly and I feel I have quite an emotional/ philosophical journey ahead of me and on a good day I believe it will make me stronger and possibly a better person. Figgyroll, hope to hear good news about bras and that you also had a thoroughly good day out. How are you doing Summat? and of course everyone else. That's enough from me, I've got a seroma brewing and have had enough of painkillers.

Drift I hope that seroma settles down as simply as mine did. They often do. I'm down to one painkiller a day now (although it is a prescription one.) Hope to reduce very soon that too.

Hopefully we all use this bc experience to focus on the priorities of life and so perhaps get more out of it? Life (on earth at least) is very finite anyway so if this is a kick up the bum to maximise it, then good !

Off for the ct scan now - preparing to shiver in air-conditioned room!

good point dee - I have embraced my work with renewed vigour since dx- not sure how/why- but much more confident than before. Weird.

waves to dee on her way to scan.

I thought four weeks of radiotherapy was taking forever but now I have the weekend off and only 3 days left.

Have had three! hours asleep with the cat - must get up now and start on that baking :)

Hooray for only 3 days left, Jane

Pink - woo hoo! for the hot physio. Sorry about the bubbling thumb, though

Summat - thinking of you especially this weekend, but of everyone else too, of course.

Dee - I also think you are right about it being a bit of a kick up the bum to get on with life and not waste it. I have renewed vigour for work and all sorts of things, and i no longer 'sweat the small stuff' which is a blessing for everyone I know, I think.

And on that front, I have just taken on yet more work. God knows where it is all coming from all of a sudden - it is well paying stuff too so I am very pleased, but also getting a bit scared, if I'm honest. I have NO idea how i am going to get through it all. It's the curse of the self employed i suppose - you never feel you want to turn anything down but also in roughly equal measure.

:) at cat's romantic date.

Some days I'm fine, think everything has been dealt with, end of story. You know 'shiit happens, life goes on'

Other days I'm emotional and worry about it coming back or having another missed lump in the other side, think I'm getting menopausal and don't cope with anything very well...

Sounds familiar

3 days is good, Jane. Shame it wasn't today, but we shall virtually celebrate with you next week.

Pink, what's with the thumb then? Sounds grim.

I read somewhere (think it was Jo Shapcott), that cancer gives you intense periods of energy and joie de vivre, which I do totally recognise, though I also slump horribly still sometimes. Have decided the key is to accept those moments and see them somehow as healthy. Or is that just doublethink.

Summat, keep busy is my tip. Ask us questions you might have before appt. Will drop in from time to time just in case.

Off on my bike to try and do lots before pick up time. Park after school probably, so need to hunt out hat and gloves. Not for DS, as he's like toast even if it's freezing

I'm off out for a walk when ds gets home...some air,time away from pictures...
Am a little disconcerted that my nephew-in-law has used the word 'mong' on his facebook page -I have politely asked him about it.

I'm coming off the painkillers, as i really don't feel they are doing much, and the SE of feeling cemented constipated is getting me down. Thanks for the stick last week Topsy, i need them on prescription atm! I am trying sooo hard not to worry about the numbness/pain patches on the back of my arm along with the sermona in the armpit 3xnodes. I want to just be told that my body will absorb it and my sane reasoning is that it is small stuff compared to what others here are adjusting to. From others' experience, does it help to apply pressure to it? I want to sit it out and give it a chance to do it's own thing. If I want to get it treated I have to journey to the county hospital which is no small journey.

Why would cancer do that? I totally recognise it, too. But is it a psychological response to the shock and trauma, or what?

I think it's the psychological bit that does it,rather than the actual cancer.

Hello all, - sorry I've got rather behind hand with all the posts, so just sending love to everyone.
Just read what Cakes said on not sweating the small stuff and getting on with life, - and I very much agree, - I think I'm much more chilled out and easy going in may ways now. I definitely relate to the having it for life feelings, but I would say that as you get further from DX and treatment, it spends more time in the back of your mind than being constantly in the front. It also gets easier to talk about in a matter of fact way (by which I mean not feeling overwhemled by emotion if someone ask about it)

Pink - sorry about your thumb - what a pain.

Hope your dad is OK MAS, - did you say he's having another lesion removed soon? - hope everything goes well for him, I'm sure it will

lots of good thoughts for people waiting for results/appointments/treatment etc.
Keep busy, and lots of treats says Dr Kurri (as she sits in her surgery with a drugs cupboard full of cake )

I've got my RadioIodine treatment next week - so won't be going anywhere for ten days or so after that.

Going over to meet DS and his DP for coffee tomorrow. In the afternoon they are going to look at a bigger house - with a view to renting or one of those rent to buy schemes. It sounds nice, - needs a bit of work, but his DP has lots of relatives in very useful trades who are all willing to help them out if they get it. Feel quite excited for them - their house is so small atm.

Ooh a new house sounds fab. Are their work worries over for a bit, then?

Which day is your radio Iodine, KK? An enforced 10 day rest sounds a bit nice, actually. I know someone who had it and had a sore-ish throat at the start, but that soon went and then she just got on with decorating her house (but that is optional )

I think the work worries are over for the time being, his DP has been told she will very likely be employed by the new company (The education arrangements are sort of sub contracted out) and DS has a good chance of keeping his job, - and he's just been given a new course to run, so more hours.

Its on Wednesday afternoon Cakes. I'm trying to plan useful things to do while I'm stuck in the house (or garden - always plenty to do there) I might try to do my Christmas shopping online, so I don't have to brave the shops in December!

kk yes,another lesion next week - am sure he is just fine.
Will think of you next Wednesday and hope it's all very straightforward. I do recommend online Christmas shopping - have done virtually all mine online and very efficiently- I panic in shops,but am very decisive online.
If you want nice handmade stuff then do look on folksy or etsy -have bought most stuff on there. And for difficult to buy for me who like beer,can recommend the Bath Ales website or St Peter's Brewery.

Oh kk 10 days isolation needs planning for. Get in those fbs in advance! At least these days there is on line shopping and takeaways that deliver...