Meet the Other Phone. Protection built in.

Meet the Other Phone.
Protection built in.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

**tamoxifen** number 15 ****

987 replies

MaryAnnSingleton · 25/10/2011 09:48

can you believe it ??!!

OP posts:
pinkstarlight · 27/10/2011 17:00

14k...thats fantastic news that really brought a smile to my face.tell your hubby he needs to take you out to celebrate.

topsy...great news about your dla but will that be enough to cover your shoe bill lol.

smee..dd is not back yet but im sure shes had a great day especially as she nabbed £20 off me this morning as i had no smaller notes,i told her i expect change but very much doubt knowing her i will get much lol.

elbow is a bit better but still red comparing to the other side thats not looking right either im starting to have this horrible feeling im going to start peeling again my nails are growing back but keep flaking off im hoping once the bumps and ridges grow out they will get back to normal.

ledkr...sorry i cant help you but heres hoping someone will turn up who can.

topsyturner · 27/10/2011 17:25

pink don't think dla WILL cover my shoe bill . Thanks to the ladies on style and beauty I found a code for Kurt Geiger , so I had to buy the dolly shoes in black and red ! I am a true shoe junkie Grin

smee · 27/10/2011 17:50

Wah, Double Decker - why d'you have to say that Topsy?? I'm going out with an old friend tonight for a meal, and am starving, but determined not to spoil my appetite (for once Blush).

ledkr, really nice to see you here and mighty cheering to hear you've been clear for so long. Smile I've been thinking about ovary removal too, but am waiting for the genetic testing results. If positive, I'll definitely go ahead. On HRT, I know my Onc said it wasn't an option for me, as my tumour was hormone positive and the HRT would restock those hormones, so could fuel any cancer. I'm on Tamoxifen, so not too worried about bone density, as Tamoxifen is a protectorate. Chemo put paid to my periods (June-Sept last year) and they've never returned, so I'm pretty sure I'm in menopause at 45. I've tried to see it as something that was going to happen anyway in a few years and if you take it like that, it's not so bad. I even got chatted up by a cute 30 something last week - probably needed his eyes tested, but it cheered me up no end. Grin

Driftwood999 · 27/10/2011 17:52

ledkr I am newly diagnosed with bc, surgery on 7/11. My bc is estrogen receptive so I have to stop hrt and am weaning myself off, which I have been taking only a short time. I was told not to stop it suddenly. I'm told I will have Tamoxifen. I have read that hrt is considered for some after bc, talk to your gp and weigh up the pros and cons.

smee · 27/10/2011 17:52

Pink, my nails are good now. No ridges and you'd never know. Have been like that for a good few months, so it won't be long 'til yours are back. Smile

smee · 27/10/2011 17:53

Drift's just reminded me that a friend who is triple negative has been given HRT.

ledkr · 27/10/2011 18:06

Sorry what is triple negative??
Thanks for your help girls. I do remember that my tumour was o negative. You are all so lucky to be treated these days.Back in the olden days nobody told me anything apart from that i had ca at 27 with 3 babies at 9.30 at night Shock They just said lumpectomy,and ovaries out.It was only that i was a nurse that i looked into it and got transfered to the Marsden. That was when he tested the tumour as o neg and i have gone on to have 2 more children since.
I had zoladex to disable my ovaries so had the menopause for a bit.
Icant be too far off it tbh,but its more of a vanity thing for me. I dont have the greatest body image as it is but cant imagine no boobs,no ovaries s well as thinning or facial hair and wrinkles-well more wrinkles then. I know it sounds silly.

smee · 27/10/2011 18:27

Not silly at all. Or if you are, well so am I. Grin Triple negative are cancers that don't have receptors for oestrogen, progesterone or Her2, so hormone therapy (Tamoxifen/ Herceptin, etc) won't work. I'd guess your 'O' neg is for Oestrogen, but am only guessing. You really went through it didn't you? Must have been terrifying to have it so young. Sad

Driftwood999 · 27/10/2011 18:37

ledkr - No it does not sound silly at all. We are all individual and what is acceptable for one is not for another. As well as dx of bc, imagine how thrilled I was to be told to give up hrt, have Tamoxifen and go into the menopause. Body image meltdown. So much to take in. I've made a huge adjustment in the last week, (with help here) I have railed and stormed and now just accept it, as that is going to give me the best chance. My sister is 10 years older than me, has been through the menopause and looks amazing and sexy. I'm taking myself off tomorrow to have a botox fix because that is going to help my morale but I know it's not everyone's cup of tea and hope they would not judge me. I'm exercising and am determined to keep in reasonable shape. All your feelings are competely normal, whatever is on your mind is fine.

Driftwood999 · 27/10/2011 18:38

fine to express I mean.

smee · 27/10/2011 18:50

Good for you, Drift. I am way too cowardly to do botox, but would never judge against anything life affirming. Smile

pranma · 27/10/2011 19:58

Wow this thread moves!!
What news is that Drift?
My Her2 result took absolutely ages about 10 weeks to come through.I finally asked about it while I was having chemo[recommended for triple negative] and was told it was negative.Do keep chasing the result though-you need to know.

pranma · 27/10/2011 20:00

If there are any triple negatives on here I'll help if I can-there is so much gloom and doom surrounding a tn dx but the third generation chemos are really making a difference to survival stats.

pranma · 27/10/2011 20:01

I too had an email from the elves and think it must have come from here-honestly I was moved to tears-thank you whoever it was :)

Driftwood999 · 27/10/2011 20:03

I love the irony in that Smee!!

ledkr · 27/10/2011 20:41

Blimey ive never heard of that. To be honest ive had my head in the sand for years now.I just hate to think about it even all this time later and still wonder if "it will get me" i just had a recall for my smear and felt sick.
I had 3 boys when i was diagnosed,i now have 2 dd's so should re think the tests i guess.
I used to do buddying for the Lavender Trust and visit young women in hospital but eventually felt it wasnt helping me to move on in my life so talking to you is the first time ive thought about it for ages.
I agree about keeping your best too,ive out on lots of weight with the baby and really need to get it off.

Thanks for the welcome.

janechocchip · 27/10/2011 20:59

Hi Ledkr Good to hear from you so far down the road. I'm just starting the journey.

Topsy! I NEED lessons in buying shoes. I had to wear my good trainers today as it was raining and sandals just didn't cut it. Must go shoe buying as part of my rads retail therapy.

Did 30 lengths at lunchtime but the rads people are not happy with the clorine... :( Aaaaarrrgh. I am so dischuffed at this. How am I going to get through the next 4 weeks? I need my destress. Cycling is also my thing but the weather is pretty foul. Guess I'll either have to swim in the river (lol too cold and scarey) or go to the gym...

The rads itself was really fast. and the bus from Leeds Station to the hospital is easy. Don't think will drive very often, even if the parking is free :)

cat64 · 27/10/2011 21:10

This reply has been deleted

Message withdrawn

pinkstarlight · 27/10/2011 21:13

topsy...your like my dd2 she also has a shoe fetish only shes in to converse and vans which are not cheap,she tried to show me some £80 white doc martin boots the other day i told her she was having a laugh.its a standard joke in my house thats shes very good at conning me in to new shoes but £80 was a push to far funny thing she lost interest when i mentioned birtdays or christmas now shes talking yellow converse again.aaahhhh

smee...same thing happened to my periods they stopped just like that on diagnosis,its horrible not knowing if they will return or not or if my hot flushes are down to chemo or menopause keep being told chemo but im not so sure.

i was told that my bc was not hormone driven so now rads have finished there are no pills for me to take,does that mean im tripple negitive?

dd had a nice time on her trip but i think the school picked a bad week because of londons half term and spent a long time in traffic and had to wait for over an hour to get in.but all in all she enjoyed it and the tour of london.

janechocchip · 27/10/2011 21:16

Hi Cat
I've been loitering around at home for a few weeks since my wle and snb on 1st Sept. It's been ok. On tamoxifex and started rads today. Lso looking for peace and quiet next week!

janechocchip · 27/10/2011 21:23

pink my dd1has lime green converse and wore them to Prom! Has new green DMs which cost me a fortune but were last years christmaa pressie, juat a bit late...

ledkr · 27/10/2011 21:45

I wasnt allowed to get wet i dont think when having radio,or was it just couldnt use soap or deoderant?I cant remember.I didnt have much by way of side effects from it but when i got married during treatment i had to rush out and buy a stole cos i had a big brown patch on my back where it had gone thru. I was also told off for sun bathing.

janechocchip · 27/10/2011 21:51

can get a bit wet but no long hot soaks, no clorinated water no perfumed soap or deodorant on the treated side... Heyho.

topsyturner · 27/10/2011 21:51

Hi cat welcome to the board . Sorry you are joining us , but it's very nice to make a new friend .

< whispers , I actually bought 2 pairs of shoes from Kurt Geiger today . Well I was saving money with the discount code KGWELCOME10 if anyone is interested ... >

I have a real problem where shoes are concerned . I thought I had kicked the habit , but now I am at home without kiddies distracting me all the time I have so much more time to browse the internet drooling over show porn Grin

Am starving , just realised I forgot to have any dinner . DS had a school mass this evening and DD had her school Halloween disco . So have been in and out all evening .
Might have cheesey beans on toast !

topsyturner · 27/10/2011 21:53

Giggle - that should read "shoe porn" Grin

Swipe left for the next trending thread