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**tamoxifen** number 15 ****

987 replies

MaryAnnSingleton · 25/10/2011 09:48

can you believe it ??!!

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DeeScent · 07/11/2011 11:49

I'm not an expert but I assume it ES for estrogen and PR for progesterone.

My cancer was receptive to both so I've been offered tamoxifen.

If I can adjust my diet so I'm not going to "feed" the cancer (WHICH I NO LONGER HAVE ) quite as much, it might be worth doing.

Of course you can still have the odd moderate treat. I think it's just having your diet low GI overall.

Interesting that other oncs haven't recommended this so maybe not everyone is convinced it's highly significant.

SparkleRainbow · 07/11/2011 11:53

Guess the biscuit I just had woud be a high GI thing then....damn I need something at the moment. Wink

cakesandale · 07/11/2011 11:54

EEk for collapsed ceilings! Shock

Just lit a candle for Drift and anyone else who is in need of it today (this would include the Sparkles family, what a tough time you are having Sad )

I have just read Dee's post about low GI diets while virtuously eating a salad SO THERE!!! All this talk of Tunnocks caramel wafers and buttered crumpets didn't deflect me, Oh no

I could seriously wail about jacket potatoes with butter, though....

SparkleRainbow · 07/11/2011 11:56

Thank you for the candle, I have already lit one for dh, just having to go back in there today and face everyone, I thought he might need some positive vibes.

SparkleRainbow · 07/11/2011 12:01

Ooo jacket potatoes, roasted in our wood burning range, nothing better,. which isa good job, as dh and I are going to have to live on them for the foreseeable future.

topsyturner · 07/11/2011 12:13

So , ignorant of my own cancer here , I think I am hormone negative .
Would that be right if I am Herceptin positive ?

smee · 07/11/2011 12:21

Thanks Dee, top research and very interesting. I think it's worth following if you can, but you're right as they don't seem to know very much and we're all so different. Reading through, I had what they'd term a low GI diet before diagnosis and apart from the occasional buttered crumpet still do, so no white bread, loads of pulses and am literally stuffed full of fresh fruit and veg, though not out of virtue, but merely because I love it. Did drink more than I do now, but still not daftly. Also exercised and wasn't overweight. In other words, all the things they say try not to do, I didn't. Being a control freak I nailed my Onc to the wall to find out 'why me?!' Her view was that it was because I had my son post 35 (I was 37 when I got pregnant). Tumour was top end of the hormone scale, so that was a clue for her. Apparently later motherhood, plus Breast feeding now increases your risk. I've also done the whole genetic testing thing, as my mother has had treatment too. Will find out tomorrow if we're positive or not, so that could explain it too. All v.interesting, though also v.annoying.

Apologies for self centred ramble..! Though having said that, Tunnocks are surely low GI? Grin

DeeScent · 07/11/2011 12:33

Interesting... I had dd at 34 and breast-fed for a long time. I always thought BFing lowered the risk, but you're saying it's higher if you're an older mum Confused We can't win!!!

I'm happy to do a GI diet as it's not too restictive, is a healthy "Mediterranean" style diet and I might lose some weight too (which might be beneficial given possible weight gain with Tamoxifen.)

Thing to do is not to get too screwed up about these things. Try to be sensible but ENJOY life!

MaryAnnSingleton · 07/11/2011 12:38

really ? the breast feeding thing ? I had ds at 38 and was hugely unsuccessful at breast feeding.

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smee · 07/11/2011 12:51

I know, I was shocked too as I'd thought having a child and bf reduced your risk, but apparently not any more. It's v.new research according to my team. I mentioned it to my GP and he didn't know about it. Wish they'd get the word out there though, as I'd have been much more into checking if I'd known.

MAS, how are your hands? Is the gel helping?

SparkleRainbow · 07/11/2011 13:02

I had ds at 31, dd2 and 33 and dd2 at 36, nearly 37, and I breast fed all of them...so I have really stacked the odds in my favour! Hmm

MaryAnnSingleton · 07/11/2011 13:07

smee- thanks for asking- hands ok,haven't used the gel as they aren't aching, just aware of the finger bumps !

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SparkleRainbow · 07/11/2011 13:10

Sorry Mas I have missed so much did you get a dx?

cakesandale · 07/11/2011 13:13

I had dd at 40 and also failed at BF-ing. I was still being told it was preventative of BC, though Hmm

I don't think they really have a clue. A healthy diet, exercise and a relaxed approach to life seem to be the best we can really do....

smee · 07/11/2011 13:16

Don't stress Sparkle - I think it's only if you were an older first time mum that they reckon it increases your risk. Will try and find out though and let you all know.

MAS, are you keeping warm? Fingerless gloves might help circulation? I've heard that's key in terms of keeping arthritis at bay.

Am sitting here with two hot water bottles and a huge jumper on. Too mean to switch the heating on..

SparkleRainbow · 07/11/2011 13:17

I have lit the wood burning fires..too mean to turn the heating on! Watching every penny now!

SparkleRainbow · 07/11/2011 13:18

Dd2 is keeeping warm by showing Chris and Poi her groovy moves....Cbeebies you have to be there I guess Grin

MaryAnnSingleton · 07/11/2011 13:35

sparkle - the doc said it was most probably arthritis... smee- I have rotten circulation in my fingers- they go white if I pass the fridges in sainsbury's - maybe that hasn't helped. I have fingerless gloves and was admiring some very lovely ones on Etsy..

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SparkleRainbow · 07/11/2011 13:44

Osteo I guess, have you got red hot swelling then....sorry I know you have told us on here but forgive my stupid brain at the mo.

SparkleRainbow · 07/11/2011 13:46

My mum swears by crotcheting to keep her fingers moving, and it really did seem to help when she was younger and got it in some finger joints. Mine you you will be keeping your fingers moving anyway drawing etc. Big hugs, sorry to hear you are suffering with it.

KurriKurri · 07/11/2011 13:46

hello all, just braved a morning in town doing some Christmas shopping (well looking at things and thinking 'that's very expensive' and doing catsbum mouth)

I hope little Sparkle is OK and manages at school today with no mishaps, lots of love to him. And also hope Mr Sparkle doesn't get too down, fingers crossed for him being employed in another dept.

Candle lit for Drift, and good thoughts winging her way.

MAS - so sorry to hear about Behindlock's father, have realised myself recently that these things don't become easier to handle just because your parents are old or infirm Sad I hope things go as smoothly and peacefully as possible for her and her family.

topsy good luck with rads planning, IME - radiographers are great, mine were so kind and friendly, - you really get to know them when you are visiting every day. And of course, you get your snazzy little tats Grin
Hope DS copes with his swimming lesson (if its any comfort, I hated swimming lessons at school, - I think it was the shouty teacher barking at us all the time, and the fact that the pool was outdoors and freezing! - But as an adult I started swimming for my own enjoyment, and would class myself as a good swimmer now, so he may well come to it in his own time Smile)

hello to everyone else

I notice Stars has a thread further down - for the attention of tamoxifen people (or similar title) - but its slipped down, so there are no replies. I think she is finding it hard to keep up with this thread, and was wondering about a cancer section on the board, where people could ask more specific medical questions.

I haven't replied yet, but I thought I'd draw people's attention to it, before it disappears off the page Smile

smee · 07/11/2011 13:46

Surely the Etsy mits are medically essential, MAS? Grin

MaryAnnSingleton · 07/11/2011 13:48

no red swellings, just bony lumps on top joints of index fingers - left hand is always drawing or writing though...dh has just brought me his fingerless gloves to wear !

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KurriKurri · 07/11/2011 13:48

that reminds me - I have bought some wool so I can knit dad some fingerless mits for his birthday in a couple of weeks. - Trying to think of things to keep him warm in hosp.

cakesandale · 07/11/2011 13:48

Too mean to turn the heating on here, too. Boy, it's cold. That's def. not helpful for arthritic fingers, though.

At the weekend the rabbit hutch started to leak massively, so we needed a new roof and a cover for it but the purpose built ones are £70 Shock

We bought a big offcut of marine ply board for £5 and one of those big waterproof Hippo sack-skip things from B&Q for £11. We have inverted it over the hutch and it works a treat