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Original poster

hi does anyone get vertigo?

409 replies

sweetness86 · 27/05/2011 09:03

hi i suffer vertigo i feel dizzy most of the day and its been like this 20months. Ive had numerous tests and im about to see a neuro again soon. I get dizzy rolling over looking down up etc and generally giddy all day some days better than others. One doctor thought i had migraine disorder one thought menieres disease but i have no hearing loss.
I dont take anything for it at all just put up with it but my life is shitty with this i havent had a drink in 18 months and have 2 young sons.
I honestly dont know how i go to work i do it for the money but somedays just want go home and cry and not wake up each morning .

Does anyone get this? what meds are you on im at my witts end Sad

OP posts:
Grockle · 12/10/2011 21:27

Oh largeglass, what a tough time you are having. I think you are right, Aristocat - an MRI is a good thing, mine was just not what I anticipated and gave me earache. I am glad I had it done, even if I still don't know why I am so sick and dizzy. I guess I need to go back to my GP so feel like I did 18 months ago when this all started.

Essex, well done for managing the tube.

LargeGlassofRed · 13/10/2011 05:58

Grockle, I really would just keep going back to Gp, I am so glad I kept going back, pushed by my mum, if you don't keep telling them there is a problem, I think they wrongly assume alls well.

essexgirl31 · 13/10/2011 07:18

Morning,

One of my exercises was moving my eyes to the left and right. I have progressed onto to moving my head left and right while standing. My physio says the same. I want to cling onto walls sometimes.

I had to keep going back to the GP - I eventually got the right referral.

In the office today so no tube. Thank goodness!

Have good Thursdays. I have been up since 5.30 with the DSs. It is going to be a long day. Tiredness doesn't help my dizziness. And nor does 2 energetic boys Wink

Grockle · 13/10/2011 14:33

The eye exercises sound interesting.

I will go back to the GP. I just feel like a bif of a hypochidriac since there is nothing visibly wrong. At least with my dermatitis, people can SEE something is not right. I feel like a bit of a fraud with the dizziness.

Thursdays are usually better as I don't work so cn do things in my own time. I braved Ikea this morning but it was empty and I was quick so it was fine.

I am beginning to think I am verging on the edge of depression but I can't quite decide. I've had it seriously twice and not so seriously several times so I really should know the signs but it's so hard for me to tell the difference between not feeling well from the vertigo (exhausted, short-tempered & grumpy, miserable, can't sleep & slightly unsettling thoughts) and what is the start of being mentally unstable. I'm just waiting to see if it gets better or not. That's the first time I've admitted to anyone other than myself that I'm worried about my mental health again.

LargeGlassofRed · 13/10/2011 21:20

Grockle you really need to go back to the Gp, insist on getting referred, you can't live your life with vertigo it's so depressing and I've only had it a few weeks.

pinkyp · 15/10/2011 01:09

Oh no everyone's not well Sad dam u vertigo! Mine is stable at the mo, stil there but it feels like part of me now - I know if I move a certain way it'll trigger a attack etc. Dh wanted a cuddle in bed and I rolled over and had an attack - dh found it funny and joked that he 'rocked my world' Wink

pinkyp · 15/10/2011 01:10

Grockle - see ur gp, ur vertigo is affecting you if it's causing you to feel down, hope u feel better ASAP Smile

essexgirl31 · 15/10/2011 07:34

Hi all,

I don't have a history of depression but I get very similar feelings to you (although I can sleep) - I do sometimes feel I should see the GP about it. I do really think it is to do with being 'unwell' for over 2 years. You really should talk to the GP about both. I know how hard it is.

Hope you all have good weekends. I have a quiet one planned which I am very happy about. Life has been too busy lately. DH is out this eve so I can enjoy Strictly and x factor in peace.

Grockle · 15/10/2011 18:12

I will go back, I will! After half term. My insomnia is now ridiculous and that doesn't help anything. Hope everyone is feeling steady and balanced not spinny and sick.

Grockle · 18/10/2011 19:39

How are you all?

After many nights of 4 hrs broken sleep, I gave in and saw the dr. I am now on Serc and have sleeping tablets for now. So hopefully that will help me feel better. It's half-term next week and I'm going away so that will help - a week with my mother in the sun.

pinkyp · 19/10/2011 22:06

OOO have a great break :) hope it helps you, glad you went back to the gps. Are the tablets helping?

essexgirl31 · 20/10/2011 07:25

Hi All,

Are the tablets working? I hope so.

Pretty average here - not great but have been worse

Grockle · 20/10/2011 12:23

Me too, Essex, pretty average. But that's so much better than when I feel awful that I'm quite glad. Sleeping meds not helping - I was up at 4 again but I feel like I've slept better thank I usually do even if not longer, so I suppose it's an improvement.

DS has a friend round for tea later so I am enjoying the quiet before the storm.

RichTeaAreCrap · 20/10/2011 18:46

Hi ladies

Sorry to read so many of you are still having a bad time, its awful - I just wish that we could all find a way to get rid of this awful dizziness.

Well I am just back from my holiday. It was ok. Actually it was lovely and I really enjoyed being away, but I did have some bad days when i was there. Flying was bad when we landed as the plane circled in the air for a while and I felt it them. A couple of times we had to abandon meals because I was so dizzy halfway through. But overall it wasn't as bad as I imagined it was going to be and I managed to enjoy it.

I am sure the beta blockers are not helping the dizziness. I also have my period due which also makes it worse. I have fouind that lack of sleep is a trigger too.

Pink - funny you should say that you are having other problems (acid/ibs) - my dizziness started at the same time as stomach problems and I am currently under a gastro specialist for them. I went today for a hida scan on gallbladder to see if it is functioning correctly. I wonder if there is any link between the two?

BurningBridges · 21/10/2011 15:02

Now this is not about me for once, my husband had sudden onset vertigo - he leapt out of bed one night was violently sick and said I can't balance! That was 3+ weeks ago and since then he's been stumbling, dizzy and had slurred speech. GP finally referred him to ENT reckons its inner ear, but my question to all you fellow sufferers is - is your dizziness etc on a timer of some sort? He gets really bad about 3-9pm. (mine tends to start about 7pm so we overlap - delightful!) - any ideas?

Grockle · 21/10/2011 19:49

Am so glad you had a lovely holiday, RichTea.

Tiredness really makes it worse, doesn't it? I had 2 hours sleep last night and, for the first time, a horrible but brief spell of vertigo in the middle of the night.

Burning - I have no idea, I'm afraid. Mine is sporadic and unpredicatable. How awful that you both have a similar problem.

How's everyone else?

AngryFeet · 21/10/2011 20:38

Hi ladies,

Can I join you? I first got a dizzy episode 2 years ago when I was having my legs waxed so was lying on my back (head flat on table). The whole room span until I sat up and breathed deeply for a minute or so. Anyway since then I have had dizziness whenever I lie back with no pillows and also in cinemas or places with bad light.

Recently it has gotten worse - maybe I am anxious - and every time I go to bed the room is swaying and moving. It is causing insomnia which compounds the problem I think. Last night I fell asleep ok but woke up at 5am and the room was swaying and my heart racing. Took about 90 mins to settle down - food and drink helped. Saw the GP who said it is probably my anxiety and gave me prochloroprezine which I am loathe to take as it is such a strong drug and there are sudden deaths attributed to it which makes me more anxious!

I would rather find out what the problem is rather than mask the symptoms but the GP is convinced it is anxiety. Yes I do suffer from that but I see a counsellor and it is under control. I think this is something else but noone believes me :(

Grockle · 21/10/2011 20:44

The prochloroprezine might help with the dizziness/ sickness - I was told it is difficult to treat vertigo other than to manage the symptoms. Which is miserable. I am sure mine is NOT anxiety but that certainly makes it worse. Can you see how it goes for a couple of weeks and go back to the GP. I think you have to be quite persistent sometimes.

RichTeaAreCrap · 21/10/2011 21:32

Burning, how bloody horrible that your DP is suffering too. That is hard if the 2 of you have it, it's bad enough with just one having it. Mine doesn't seem to be on a timer, although for a while it always got worse around early evening. It now happens anytime at all.

Grockle, sorry you had a bad attack too, it really does make it harder if you are tired - I hope you get some sleep tonight.

AngryFeet - welcome but sorry you have had to join the thread (in the nicest way of course). I hate the doctors constantly saying it is anxiety - I have heard this lots of times from my own gp and I know that mine isn't the cause. It does cause me to be anxious, but I am only anxious because I am dizzy. I feel like he doesn't believe me half the time as his almost dismisses it when I tell him how badly it is impacting my life.

Grockle · 22/10/2011 08:05

When I saw my GP this week, i was in tears & said I felt like it was all in my head and he was lovely, saying 'no, it's not. It's definitely not' which was really reassuring.

For the 1st 12 months of this, I wasn't anxious but I really am now. If I knew I'd be ill every Tuesday, I vould plan around it but the not knowing when it'll happen and how bad it will be is very difficult to cope with on top of life's other stresses.

I read something the other day about Chris Packham having Menieres. Don't know why I'm telling you that. I think it made me feel like less of a freak knowing that someone who appears relatively normal also has this.

jjgirl · 22/10/2011 13:28

if you can at all manage it THE person to see in the UK is Dr Peter Savundra at the Portland Hospital. I think he does NHS somewhere but its a long wait to see him.

HE sorted my problems out fairly quickly after the really bad anxiety and depression set in. He did a lot of testing which costsloads but he will write to your GP and suggest testing as well. mine turned out to be none of the usual problems but vestibular migraine caused by a traumatic brain injury. I am on the slooooooow road to recovery but am way better than when it was at its worst.

essexgirl31 · 24/10/2011 07:02

Hi all,

Hope you are all ok. Just checking in quickly before my mad day starts. Will read posts I have missed this eve.

Have good Mondays

Grockle · 25/10/2011 18:55

Hello all. I'm on holiday - been ok til today which was bad. Felt really yuck and drunk all day but not enough to stay home and sleep. It's exhausting! Am away with my mother so trying to continue as 'normal'

Interesting re The Portland. I wonder how much it is to go privately...

RichTeaAreCrap · 25/10/2011 20:20

Hi Grockle, hope you are having a nice holiday and hope that you feel a lot better tomorrow than you did today. Glad your gp was sympathetic when you said you thought it was all in your head - I understand why you are thinking that, I do sometimes too and wonder why they can't just fix it. Because they can't you start wondering if you are imagining it. Oh I wish I was Smile

Interesting jjgirl - what treatment did you have for your vestibular migraine? So glad you are on the road to receovery now. The consultant sounds like he knows his stuff.

aristocat · 27/10/2011 20:57

hi ladies, i too have been on holiday and the dizziness is still with me Sad i only get it when getting in/out of bed or lying on the sunbed, so i sat up (on sunbed) instead .... grrrr ..... i am waiting for an MRI app, it has been 3 weeks and no letter yet. hope it will arrive soon.

sorry lots of us are still so poorly and hope everyone is having a better day today Smile

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