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Can we have a roll call - thyroid problems - sign in here

364 replies

ivykaty44 · 29/01/2011 11:57

Can we please have a roll call on thyroid problems of either type?

pretty please casue I know there will be a few of us on here Grin

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ivykaty44 · 17/03/2011 08:05

Marydancesthetango - yes there is an alternative, find a walk in center.

I live quite a distance from a large city but early last year wanted some treatment without going to my own gp. I went to the walk in center and I filled out forms with my details and then saw a gp. It meant I had to drive 30 miles round trip but I didn't want to go to my own practice.

I would get on the internet and see if in a larger city near to you there is a walk in centre here to search

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ivykaty44 · 17/03/2011 08:09

the default on the search is for gp surgeries - you need to tick the A&E tab and then the walk in center tab and put in your post code - it will then give you a list of the centers nearest to you.

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MaryDancesTheTango · 17/03/2011 08:09

Thanks ivykaty.

There are none in Scotland.

Swarski · 17/03/2011 08:41

Mine was diagnosed as underactive in some routine hormone tests a year after my second child was born - a vague theory from the doctors that it was due to my DS being v large (9lb 8oz at 38 weeks delivery) and that it would probably 'sort itself out'. 6 years on it has still not settled and I am on anything between 50 and 150mg depending on 3 monthly blood test results.

Has anyone tried a natural remedy to hypothyroidism??

starfleet · 17/03/2011 11:44

eastereggthief - the steroid injections have been a godsend! The consultant she has specialises in thyroid eye disease and suggested these as an alternative to surgery in the hope that the eye disease would settle down. The injections worked really well but she did end up having surgery as her eyes where protruding quite a bit more than he was happy with.

The surgery also worked well but she had a bout of eye disease that flared up a few weeks after her last decompression (about 3 months ago) and he wanted to keep on with the injections to stop any inflamation. Unfortunately my DM has been really unlucky with the graves disease but i believe from what the consultant was saying that many people only need a few shots of steroids for the eye disease to settle down and disappear. I hope that you don't have to go through any of this and they can help at your next appointment.

Another alternative for those who can't take injections or if the inflamation is very bad is a dose of steroids through a drip - DM had to go this procedure once - took about 5/6 hours as a day patient, it worked a little slower than injections straight into the eye area but was effective.

IwishIwasmoreorganised · 17/03/2011 13:33

Well the results are in and my TSH is still elevated so I have to increase my dose to 100mcg Levothyroxine and repeat the blood test in about 6 weeks.

The other good thing is that my bone profile was normal Smile

ivykaty44 · 21/03/2011 21:24

IwishIwasmoreorganised - so that was the result with you taking the dose before the blood test?

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IwishIwasmoreorganised · 21/03/2011 21:45

Yes. What does that mean do you think? I've not got the exact TSH result, will ask when I next see the consultant.

ivykaty44 · 21/03/2011 21:51

I don't know.. your opposite of me mine is very low and needs to come up from 0.03 to 1, though my T3and T4 are all looking good Smile but not what they call euthyroid yet.

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eastereggthief · 21/03/2011 21:59

aghh I am going hyper again, thought i was sorted. carb dose up to 15mg. (formerly was eddiemccready btw)

eastereggthief · 21/03/2011 22:01

starfleet thanks for your reply. you have really made me feel a whole lot better! i thought my only option was surgery, but that is so good to hear that the steroids worked, really thank you Grin Smile

IwishIwasmoreorganised · 21/03/2011 22:04

My T4 was back in normal range at 75mcgs Levothyroxine but the TSH was still raised (13 I think, down from 77) so I presume it's the TSH that's still a bit elevated and that's why my dose has been increased.

Does anyone know how they work out what is normal for each individual rather that just accepting figures that are within the normal range? Is it just how we as individuals feel?

The difficulty with me was that I wasn't really displaying many symptoms of being hypothyroid, it was discovered by mistake - now that I have the diagnosis I can attribute a lot of how I was feeling to the lack of thyroxine, but it was never enough for me to see a Dr about.

FudgeGirl · 22/03/2011 21:06

Can anyone tell me:

My mum's TSH was 1 and her TS4 is 18.

Looking on the internet, that's a sign of potential hyperthyroid?

Should I tell my dr this when I go back for T3 and T4 bloods next week, will her having a very low TSH mean that I potentially should as well, hence my 4.3 result possibly being very high for me?

Hope that makes sense - basically, as my mum has very low TSH and I feel so crap, that possibly my TSH should usually be very low too?

eastereggthief · 24/03/2011 08:04

Bump

JessieOg · 24/03/2011 11:23

eastereggthief very kindly invited me to join this thread having noticed that I'd posted a message about having just been diagnosed with Hashimoto's Disease. Have been ttc since last August. Pretty relaxed about the fact that nothing was happening as have been on the pill for blimmin years, but at a routine appointment with my GP last month he noticed I had a goiter (I hadn't noticed!) and have now had blood tests which show I have Hashimoto's. Turns out my Dad also had it. Am now thinking this is probably what has led to no joy on the ttc front - although am glad it has been picked up as never realised how important your thyroid is for making health babies! Anyone else get experience of ttc and pregnancy with Hashimoto's?

eastereggthief · 25/03/2011 12:00

bumping for you

ivykaty44 · 26/03/2011 13:02

Jessie, I have heard there is a strong connection between thyroid problems and ttc, but it is possible. I am past having babies or wanting ttc so sorry can't offer much advise - soemone may know or have ttc with thyroid problems.

What has your gp said about ttc and what medication have you started?

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IwishIwasmoreorganised · 27/03/2011 21:05

Hi all.

I increased my Levothyroxine to 100mcs just over a week ago and for the past 3 days I've had increasing amount of joint and muscle pains. Could this be because of the medication? i thought it was meant to ease these kind of symptoms Confused

JessieOg · 27/03/2011 21:43

Thanks Ivy. Just 2 weeks ago started on 50mcg of levothyroxine so not noticed much difference yet and have stalled ttc for 2 to 3 months on advice of GP. Not had any further advice from him yet - just that my Hashimoto's certainly would have made it more difficult to conceive. TBH I feel I have had a lucky escape because apparently thyroxine is absolutely crucial for making a healthy baby in the first 12 weeks of pregnancy and a dodgy thyroid if not treated can cause all sorts of problems. So I'm rather hopeful that once I get my medication right it will all be ticketyboo - but I'd love to hear from anyone with first hand experience!

BirdyBedtime · 28/03/2011 09:56

Just came across this thread - can I join? I was diagnosed with chronic Graves after birth of DD1 (but suspect that I'd had it on and off for some time looking back). I went down to more than 2 stone below my 'normal' weight and was a complete mess (not sleeping, a total bitch, eating an unbelievable amount). We have lots of thyroid disease in our family (my sis is under, various aunts and grandmother were over/under). After diagnosis I was on carbimazole continually for 3 years eventually on 'block and replace'. Became pregnant with DS and gradually came off carbimazole during the pregnancy. Unfortunately for DS he got lots of antibodies from me and was hyper when born (although this wasn't checked postnatally, so he ended up losing over 15% of birth weight despite feeding constantly and being readmitted). The Graves flared up again in me very soon after his birth but now, 2 years on, I'm off the meds since October (at least for a while). I also had lots of eye problems and actually have my first appointment with the opthalmologist tomorrow about possible surgery. I'm a bit scared as I don't know what to expect (and also DH thinks I don't need to go, but the endocrinologist recommended a referral, rather than me asking for it, so she must think I do need it).

cass123 · 29/03/2011 03:42

Thyroid problems can be prevented by a right consumption of food rich in iodine, avoiding radiation and also by taking medicines or supplements like bovine thyroid . It can help cure and eliminate thyroid diseases.

blouseenthusiast · 31/03/2011 11:31

Hello all,
Just started on thyroxine for Hashimoto's. Does anyone else find it makes them feel really hyper? Or could that be a dose problem?

ivykaty44 · 31/03/2011 14:47

Hi, sorry to hear you have Hashimotos, and the dose is making you feel very hypo..could it be that you have been feeling very hypo for a while that now it feels wierd being wired in a bit with the thyroxine?

I am hyper! as have graves and feels really weird at times to slow down Grin

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blouseenthusiast · 31/03/2011 16:12

Thanks IvyKaty, maybe that's it! I do feel rather wired, so maybe this is what hyper feels like. Maybe i have just forgotten what normal feels like...

ivykaty44 · 31/03/2011 21:13

I have no idea what normal is Grin I really can emphathis on the feeling wierd state, we are just on starting from different angles blouse..

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