Can we have a roll call - thyroid problems - sign in here

[ivykaty44]

Can we please have a roll call on thyroid problems of either type?

pretty please casue I know there will be a few of us on here

Me - underactive. Diagnosed 3 years ago (would have been written off as pnd if I hadn't mentioned that I had been borderline about 10 yrs previosly) now on 2000mcg.

Underactive here - took about 2/3 years for a diagnosis - diagnosed at start of my 2nd pregnancy about 7 years ago. Currently taking 125mcg a day - just about to be checked for the register.

I am underactive and have been for 14 years. I take 125mg per day and still feel rubbish.
Was overactive and had a partial thyroidectomy.
I feel better without the thyroxine but noone believes me.

oh kormachsmeleon can your thyroxine be increased? Or am I asking a silly question? sorry if I am.

Can I ask who the private doctor is - please excuse me if you don't want to though.

I have heard a lot of good remarks about armour as it contains both T3 and T4 rather than just T4. I didn't know that it was still available though

Oh blinks, I don't envy you having to make that choice. It's very hard to turn down preventative measures, even if you think they're unnecessary.

Hope your DH feels better soon :)

Me. Autoimune thyroid disease, underactive, since having dd1 (anyone who thinks pregnancy doesn't fuck your body up should try living in mine). Am on 75mg though haven't been tested since dd2 was born so due a test soon.

My DH has had Hashimotos for ages.

Sneakapeak, the halflife of thyroxine is 9-10 days so it takes time for the effect of an increased dose to build up. Your doctor shouldn't have increased it 2 weeks ago and then again just a week later. Even though that was your idea, he's the doctor so should have resisted for another week or so.

Underactive for the last 10 years. Was on 175mg, but due to not currently having a GP (my fault) I've been off the thyroxine for a while. Skin is crap, metabolism is crap and and am back to horrible cyclical hormone induced depression and lethargy but as I said, is my own fault for not getting off my backside and getting a new GP.

my son has congenital hypothyroidism (now 10) and oddly enough my dh has just had a bout of acute thyroiditis (dequerveines) so is having to be monitored as he was hyper and is now likely to go hypo...

I'm ok but get checked after every kid and every couple of years

korma 300 mcg? crikey. best of luck with getting it sorted.
my ds is on 100 3x week and 75 4x week. We get eltroxin and not generic thyroxine as he had some counterfeit generic tablets (from boots! who didn't want to know!) and went a bit nuts for a month. Who knows what was in them. Thyroxine is one of the most heavily counterfeited drugs in europe - I don't understand why as it is so cheap. I'm sure they counterfeit eltroxin too but we've been ok with it for the last 3 years.

Me too. Initially hyperactive (Graves' disease). For which I had a total thyroidectomy operation. Since which time I have been on thyroixine. Pretty much stable dosage for years, despite pregnancy. The operation was brilliant for me, and no problems with the thyroxine.

Does anyone know which type is associated with hereditary premature greyness? I saw somethinng on the internet about this but gp doesn't know anything about it.

I'm Hypothyroid diagnosed 2 years ago about 6 mths after the birth of dd.

On 125 mcg.

Don't know what type, and am embarrassingly uninformed. I feel fine on the meds though.

Me, under active and on 175g a day (normally 125g but pregnant so it's been upped). Having bloods tomorrow to check it but feel ok so it should be stable.

Diagnosed 2yrs after having ds, put symptoms down to being new mum etc but saw great doc who recognised it straight away.

My friends dd was diagnosed at birth (from the heel prick) and has no discernible thyroid action alone. She's on 125mcg at mo and is freakishly strong! SHe was that little dainty girl would would push a chair with a large adult on it out of the way to get behind it. Or pick up her 2yrs older sister on her hip like she was a baby... seriously, amazingingly freakishly strong girl!

There are a few of us I have Graves, was blissfully unaware until last Dec when rushed to hospital with racing heart rate and chest pains. Now I know the symptoms I know this has been going on for two years or more, just didn't feel unwell until the weekend I was taking into hospital. I was cycling in India a month previous to being admitted which meant they checked me for just about everything just in case I had picked something up on my trip, it came back with thyroid.

Hi, was over, had radioactive iodine treatment, told it would be years before it would be under-active, if ever, but the very next test, showed I was underactive. Great consultant

Am also showing signs for mild arthritis, although bloods are negative. Having read more my symptoms are more in tune with fibromyalgia, but have read many GPs are dispute the condition with the absence of objective testing.

Me too. Diagnosed aged 11, and as far as I can remember, it was like camdancer's experience - went through various diagnoses before the right one. Am now on 225 a day, very recently reduced down from 250.

I am now waiting for a scan appointment, as I can feel some kind of lump there

Korma - hope you get sorted soon

Under active here too. I'm on 100mcg thyroxine

I was diagnosed last summer after going to gp with AWOL periods. Had previously had a blood test showing my thyroid was under active after dd was born, nearly six years ago, but it seemed to right itself then and I was not pu on medication.

I think the effects of the under active thyroid have been there for a good few years though.

I have much more get up and go now but still waiting for the weight to drop off without any effort!

Interestingly, my hairdresser noticed that my hair has got thicker and she did not know abou the meds.

No idea about anti-bodies test. Can someone explain the significance of this test?

Queenoffairies, sorry cross posted.

Good luck with your scan.

Underactive, here too. Diagnosed a few months after birth of DD.

Still struggling to get the right dosage though - recently upped the dose to 125mcg after seeing a different GP within the surgery as last one was reluctant to raise my dose due to me being within the "normal" range. I asked what my figure was, and was told 4.5, before that I was completely ignorant of my levels, as had never asked before.

Fortunately the new GP seems to look more at the symptoms and actually told me that to feel normal I should be aiming to get as close to 1 as possible.

No idea about anti-bodies test. Can someone explain the significance of this test?

graves is an auto immune disease - therefore the antibody test will show if having an overactive thyroid is due to an autoimmune disease. The same would be true for Hashimoto's as it is also an auto immune disease and the antibody test will show if this is the casue of the hypothyroidism, antibodies being present as your own body is attacking itself in both cases. The hypothyroidism and hyperthyroidism are the effect on the thyroid due to these diseases. There are other reasons for hypo and hyper

Me - Underactive for nearly 5 years - started as 'post-partum thyroiditis' - thyroid went stupidly hyper a few weeks after birth of son (which was hell) then it apparently 'burnt itself out' leaving me with hypothyroidism. During 2nd pregnancy I upped my meds as recommended but now I'm on less thyroxine than before. I don't understand it at all! Some days I feel hyper, some days hypo... it's rubbish! Anyone else find that they don't feel on an even keel even with correct amount of thyroxine?