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I don’t think I can do this anymore

33 replies

User078 · 03/08/2023 20:26

My DD (17) has very complex health issues and this all started 13 years ago. I gave up my career to become her carer and I love her more than words could ever express. She was admitted to hospital 2 weeks ago and we spent nearly a week in hospital, it was so hard. Although she’s 17 she is still under a paediatrician and will be for sometime, she found it so difficult to adapt to the change and the nurses tried so hard with timetables and visuals but nothing helped. Along with her long lists of other diagnoses we have now been told that she has diabetes, she is on insulin so I have to weigh and carb count all her food, inject her with insulin and then she can eat. I’m finding everything so hard to deal with, we’re in the process of buying a house and we’re struggling with the freeholder. Although I gave up my career I work part time with DH and I haven’t been able to go into work because I’m trying to constantly keep on top of medications and weighing food. I’m trying to work from home but everything is getting on top of me. I miss going to work as it was my escape but I also don’t want to go in because I’m finding it overwhelming just getting out of bed. I’m finding my house disorganised and it feels like we’re all on top of each other at the moment, it feels smaller than it ever has before. I don’t feel I’m explaining myself and to what extent I’m finding it difficult to cope but yesterday, I just wanted to end it all. I wouldn’t have done it but I really felt that I just can’t do this anymore. I love my DD and I have never felt this overwhelmed even with the diagnosis she has been given time and time again but this time I feel angry at life for constantly throwing curveballs at me, I just need a break from life. I’m not expecting anyone to be able to make this better, I guess I just want a rant.

OP posts:
User078 · 14/08/2023 18:35

@Pleasegivemeyourwisdom Hi, things were getting better, I felt I had the weekend to get to grips with things, spent some time with DH and DD just chilling out but then today things went south pretty fast. DD has a support worker who gives me a break from caring duties for 3 hours a week and she is due to have DD tomorrow afternoon, DD has just had a meltdown because she doesn’t want to do anything and doesn’t want to leave me. DD has become extremely clingy recently and she’s currently crying whilst I’ve been trying to make dinner, I’ve just come upstairs using the excuse to use the bathroom. I need a few hours away from DD as horrible as that sounds but how do I explain this to her without her thinking I don’t want her around?

OP posts:
Pleasegivemeyourwisdom · 14/08/2023 19:17

you Are doing so well navigating this

not easy

no answers I’m afraid!

User078 · 14/08/2023 22:39

@Pleasegivemeyourwisdom thank you for your encouragement and you may not have any answers but you made me feel better and you’re the first person to ask in a long time how is it going and allowing me to vent. Thank you so much and I’m staying positive that tomorrow will bring with it a fresh start and some calm. Stay blessed 💞

OP posts:
Pleasegivemeyourwisdom · 15/08/2023 16:44

❤️❤️❤️❤️❤️ how are things today my friend

User078 · 15/08/2023 19:44

Hello @Pleasegivemeyourwisdom , today has been a good day 😊. DD didn’t want to do anything with support worker (SW) or have her around at first but SW said she didn’t mind staying with DD at my work place (DD comes to work with me during the holidays) and be in the room next door so I could get some work done. At first DD was reluctant to have her there but by the end she was actually ok. We came home early and she helped cutting veggies for dinner and she’s been doing really well. Sugar levels have been quite high over the past couple of days so she’s definitely agitated because she’s feeling itchy (we’re calling it the itchy dance lol) but overall a really good day which has in turn made me feel positive. I realised today that DDs mood really affects me, DH said that I’m over empathetic and stress myself out when DD is going through something. I understand what he’s saying but I feel I want everything else to be “ok” for her in her everyday life because of all the other issues she has. I hope you’ve had a good day 💕

OP posts:
Pleasegivemeyourwisdom · 16/08/2023 23:01

You’re doing so well in the face of adversity!

I’ve had the most awful week but clawing it back now xx

User078 · 17/08/2023 20:33

@Pleasegivemeyourwisdom aww I’m so sorry to hear that, it’s nearly the weekend and hopefully time to recuperate from this week. Sending hugs, if nothing else, know that you have made one person smile everyday this week. I am a great believer in you get what you give and i believe you will definitely be receiving some positivity soon 💕 keep being you xxx

OP posts:
Pleasegivemeyourwisdom · 18/08/2023 16:58

❤️❤️❤️❤️❤️

big squishy hugs xx thank you

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