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Paranoid delusions

302 replies

Bhj · 19/02/2018 16:57

Hi. I’ve posted a few times about my psychosis. I’ve been on my fourth anti psychotic, amisulpride 400g for about a month now, no improvement in thoughts. Can anyone tell me an anti psychotic that worked for them where others have failed. Thanks.

OP posts:
Bhj · 13/03/2018 19:33

Thanks for letting me know random. I really don’t intend to drink again but if I feel the urge I will definitely let the team know. I’m also on mirtazapine the ghost, which other anti psychotic are you on and why are you so keen to come off it? Sorry you’re having such a tough time at work ebony. Is it the workload or the people you’re working with that’s stressing you out? Is there any chance you can go on sick leave for a while if it’s making you Ill and the paranoia’s returning?

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EbonyJade · 14/03/2018 07:39

Just the whole job is stressful at the moment. Maybe I will ask the dr to sign me off for now.

EbonyJade · 14/03/2018 09:47

Have now spoken to the duty worker at the cmht & she will speak to my psychiatrist about what I saw

Bhj · 14/03/2018 10:45

Well done for telling someone, at least they’re aware and may help towards you being signed off if you decide that’s what you need. I’ve just taken my first dose of clozapine so fingers crossed all goes well. They’ll be out 3 more times today to check my blood pressure, pulse and temperature then twice daily as of tomorrow for 3 weeks.

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EbonyJade · 14/03/2018 17:25

Good luck with the clozapine hope your obs have been ok.

I've been signed off for a week by my gp but got a meeting with my managers before I go back which I'm dreading really.

user1490806299 · 14/03/2018 17:40

I am following this thread with interest. In my case antipsychotics work but unfortunately I get so bad side effects that I can’t take most of them. I am on lurasidone and luckily there isn’t any major side effects. I have bizarre and non-bizarre delusions.

Clozapine sounds hard core but I have seen cases where it works perfectly and they haven’t got any major side effects and haven’t gained weight. Good luck!

Bhj · 14/03/2018 19:15

That’s good ebony that you have a week off, will give you a chance to relax for a while and think about what you need to say at the meeting that might help make the job less stressful. Are you allowed to take someone with you such as your cpn if you have one. Are work aware of your mental health problems? Thanks user. It’s a shame you’ve experienced such bad side effects on antipsychotics. I’ve luckily had no side effects as of yet with any of them apart from weight gain, just none have worked for me including lurasidone, I hope you’re doing well on it. I survived the first day of clozapine with no side effects and observations were all good. Tomorrow it goes up to 25 mg. I just have non bizarre delusions so I’m told. Been going on 4 years now so I’m really hoping everyone’s right and people aren’t out to get me. Just have to keep trying what the team suggests and hope for the best.

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Bhj · 17/03/2018 11:55

My dose of clozapine increased from 12.5 to 25mg last night and I could not get out of bed this morning. Usually I’m awake and up by 7.30 with ds but I felt so tired and groggy dp had to get up with him. I finally forced myself to get up at 10.30 but that was only because I had a banging headache and needed to take some paracetamol or I think I’d have slept for longer. This is not going to be good on a school morning if I feel like this every time it increases but I’m sure after a few weeks I’ll adjust to it.

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TheGhostOfBarryFairbrother · 24/03/2018 11:59

How are you doing?

Bhj · 24/03/2018 19:53

So far so good thanks for asking. I’m up to 125 mg a day now. No side effects apart from struggling to get up on a morning but drowsiness wears off once I’m up and ready. Dreading the next 2 weeks as I have to stay home a lot more as kids off for Easter and usually I stay out all day till I have to collect them from school because I’m afraid to stay home alone. How are you doing?

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Sparklesdontshine · 25/03/2018 08:38

With the sedation once you are on the full dose you can try adjusting the times you take it in the evening so that hopefully you aren’t as tired in the morning Flowers

Bhj · 25/03/2018 12:25

That’s true. At the moment I take them just before I go to bed so maybe if I took them around 2 hours before I go to bed then I might not feel too drowsy in the morning. I spoke too soon about having no side effects. I woke up this morning with one side of my pillow and face wet where I must have been dribbling in my sleep. I know it’s one of the common side effects.

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TheGhostOfBarryFairbrother · 25/03/2018 15:42

I soak my bedding all the bloody time! It's an annoying side effect but liveable with. I also find that my salivary glands swell.

Do you have any friends who can help over the holiday?

TheGhostOfBarryFairbrother · 25/03/2018 15:44

I'm doing okay, thank you for asking. Have had a nasty virus which has knocked me for six. Also have a new voice - a woman laughing nastily at me. I feel v vulnerable.

Bhj · 25/03/2018 17:40

Sorry you haven’t been feeling well and are feeling vulnerable. Sounds pretty scary hearing someone laughing at you nastily. Do you ever feel afraid of the voices?

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Bhj · 25/03/2018 17:42

I plan to meet up with people every day during the holidays but my eldest is a teenager and will just want some downtime on some days.

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TheGhostOfBarryFairbrother · 28/03/2018 11:50

I'm very scared of the voices. Emergency psych appointment today.

Do you find it easier to stay in when there are other people around?

TheGhostOfBarryFairbrother · 28/03/2018 15:57

Psych increased the second antipsychotic but also is of the opinion that my lithium is too low which is making me vulnerable. He really listened to me which made me realize how little my psych does.

Bhj · 28/03/2018 21:47

Sorry to hear the voices scare you. It’s good you had an appointment today and you felt listened to. Just a shame not all the psychs are as good as the next. Hopefully now they’ve adjusted the meds you’ll notice a difference. Yes I feel much better when people are around. I’ve nearly made it through the first week of the holidays unscathed until a man knocked on my door. I looked through the
Peephole and didn’t recognize him so never opened the door, just sat down terrified he was going to harm me but when I checked five minutes later he was gone and he’d posted a leaflet through, turns out he was a Jehovah’s Witness.

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Lyra2018 · 29/03/2018 06:52

I'm pregnant, first psychotic episode I was on olanzapine, hated it. Now I'm on quetalapaine, works well for me, my paranoia is very mild and caused by lack of sleep mostly so I'm on the lowest dose. It's not suitable for children or the elderly and can make you nauseous that swapping pills is difficult. However, that my also be morning sickness, who the hell knows.

Bhj · 29/03/2018 16:41

It must be really hard
to be pregnant and deal with psychosis. Do you have a good support network for now and when baby arrives? I’ve been given some tablets to help with the dribbling at night and also laxatives as constipation is another common side effect when on
Clozapine and I haven’t been as regular since starting
It.

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Lyra2018 · 30/03/2018 05:25

Thank you. I do have an amazing support network which actually feeds my depression and feelings of guilt. I am dyslexic with a very high iq (white privileged Cambridge family) some of my paranoia is actually real potential threat to humity (Ai actually exsisits in the form of the Internet.). Steven hawkings death had a real negative impact on me. Also I found out I'm having a girl and anything pink and girly makes me feel sick and I hate how girls are conditioned to think that we are stupid and can't do technology, maths and science. My grandmas twin just died and they were both very mathematical and my grandma worked with early computers (was mostly women as they worked as coders during the war.)and has been taken into hospital after having similar symptoms to me. I knew she'd be suffering due to our spiritual biological connection. The night she took ill I had my medication changed. Can't believe in coincidence all the time. I hate being patronised, I understand what you are saying but I can't express myself. Anyway. I shouldn't have my phone in bed. I'm so glad it's the easter weekend again.

Lyra2018 · 30/03/2018 05:31

At last not again. Lots of aspergers in my family but I'm not keen on the medical model, labels and putting people into boxes. I just hope I'm well enough to visit my grandma on Easter Monday. My grandad was a Victor and died of dementia so she just wants to be discharged. I hope they let her be taken to church on Sunday. She's not physically deteriorated, she needs more support at home but is very independent and won't accept it.

Lyra2018 · 30/03/2018 07:06

From a Steven hawking tribute video on a light question on celebrities 'finally, an important question. What I would say to all heartbroken girls is to pay close attention to theoretical physics.' I feel better now it's light. I don't think the medical model of psychology is good and I'm a radiographer, with an interest in neuroscience so jump to medical conclusions, I prefer alternative treatments and the natural route but I do need anti-psychotics so I can eat and sleep well. I'm a hypochondriac, I get a leg cramp and panic that it's a blood clot and I'm going to have a stroke or heart attack...I'm scared of post natal psychosis and my baby being taken from me (like in an episode of call the midwife where a psychotic lady stole a baby) My husband snatched my fidget toy off me the other night and it gave me a panic attack. He has bought me a soft toy which we are using to train the dog against jealousy. The dog is the best. I terrified him last night with a panic attack so he stayed away and slept in another room with my husband then this morning he came to me all submissive, gave me a little lick then went back to bed. He's a rescue who was brought up round children and he is my first baby. Music I find helpful, especially lilly allan and pink Floyd comfortablly numb.

backsackcraic · 30/03/2018 07:34

My son used to have a four weekly injection of palperidone which helped him.