The Cybergarden - Late Summer Edition

[madmouse]

Sorry been unfaithful, lots going on. But making myself useful - here's your new thread x

cross posted shodatin - I think I'll go out this afternoon because of my boiler, and group usees 1-2 hours of time.

No shodatin , I'm the one who could kick herself for not having looked in at early evening ( went asked dh to chauffeur me to late opening dept store looking for gift out of stock everywhere ) then fell asleep on sofa before able to look at PC .aginSorry not to have joined in but am still very sleepy from flareup & missed doing dinner ,and woke up on sofa late morning

If I can be so presumptious as to say so , I understand why it doesn't feel safe to say this to group staff who don't know you ... of course shodatin is right that it is safe to do so , staff being concerned for your wellbeing and safety but you may be worried health staff might over react & suggest about a short admission to see if possible blip can be overcome , particularly as crisis team or others who can support will be overstretched at Christmas time ,and you dearly want your family Christmas .

You sound on here as if you're seeing things clearly - perhaps this is a symptom to which you are prone when very tired ( I have occasionally felt as though bathroom was "haunted" when getting up in the night , and it's a physical type sensation - I know it isn't really ) ... and I know someone who when in great need of sleep struggles with a sense that they've somehow contaminated their food with washing -up liquid or disinfectant - will find link to study showing these symptoms are common , but of course you will be intending to address whether they are part of a blip

Hope you find the support group members not feeling too gloomy if you do go - perhaps workers will have ried to compensate for your group not having had a celebration like the others .

Sory for dull essay . Really enjoying hearing all our Chrstmas preparations , and so glad you're so prepared , shodatin - I know you were concerned you wouldn't be ready , and hope you won't need your insurance measures either .

I have same problems with chestnuts , Tianc ,so was pleased about upward getting good results .Thank you & shodatin for hints about this - had forgotten how soon you need to eat them , thank you shodatin

I did get the feeling you're working hard at trying to relax about Christmas tasks you haven't been able to do , Tianc - that deserves a particularly high grade medal in the BoTO .
Am finding being laid -back easier than usual as pleasantly zonked due to sleepiness ( few people find it pleasant , but I was a very jittery person before so I never tire of feeling relaxed ) , and am now more slowed down physically so feel - very differently to you - relieved to be having it noticed by wider world ( am fraud as have no pain or nauseating dizziness , for now anyway ) . I would be more than challenged by the physical ups and downs you have experienced and hope you get a more consistent picture of things in the coming year .

Hope mist lifts , shodatin , and chores not too tedious . Have you seen the programmes on BBC4 about Jerusalem etc - and if you have i player , there was a soothing one about the history of bells
< sends us all to sleep >
< realises forgot to slit chestnuts as explosion wake us >

Oh dear 8upward , sorry just seen about boiler . Hopefully t's in enough time for it to be mended ? Apologies if not possible . .. can't see how you can be in cold for 3 days .. will it make physical & sleep issues worse ?

Perhaps you could sit in library etc , but not really practical for a tired person needing to relax , and I don't want anyone's flu germs over you

Your right hob, I don't want any overreactions (or crisis team, never mind any other intervention). Tired can be a good reason for lost of thhings. Thanks, you've just remoinded me I'm in teh middle of cutting crosses into some more chestnuts.

... hope you have a nice outing after the group

Hopefully they'll come out tomorrow to sort the pipe. I don't mind cold nights as long as I've got lots of warm stuff.

library is a good idea, but I don't want to go on the bus when I don't have to at the mo - centre of town is apparently awful. Take it as it comes. :)

Aah , glad plumber may well come tomorrow, and that you have plenty of warm bedwear .

Shame library is a bus ride away , so I hope you're OK this afternoon . Take it as it comes sounds excellent plan - just don't fall into a chilly snooze laterand wake up absolutely frozen at nightfall ! Happy Winter Solstice to all < no idea if our ancestors would greet each other thus)

Glad to see you again hob, and so sorry to learn you've been in dormouse mode - hope your DH managed to arrange food etc. and is not over-tired himself, also really hope today is easier for you.

Must have missed info about dodgy boiler upward, now that is really a nuisance, and hope your people realise you're disabled, therefore top of queue and urgent. Hope you have good trip to and from group meeting, and also get some pleasure from being there today. Shame other people are generally too busy to sit around at home and provide tea just now, otherwise going to a friend's home might be easier than library. Really hope boiler's fixed soon, easier to nap when warm too.

Happy Winter Solstice to you too! The man that came out today was triaging really - and I think getting a bucket from his van to put under it was unusual - I have got buckets/bowls.

I hope everyone has restful times, sounds like the build up to Christmas is well and truly here.

Thanks for TV suggestions hob, I did indeed find the ones you mention, then could,t stay awake to watch, which happens much too often, along with simply forgetting to switch on, of course, but like you, am resigned to being a bit behind and prefer it to previous over-worked stress (plans pleasant craft pottering p.m., after making one difficult phone call)

I'm actually quite glad that we haven't had a manufactured 'Christmas' in the group - seems institutionalised and not the right thing as so many people aren't looking forward to it.

Thank you for return greetings , upward ! Yes , thinking about it < belatadly , a "forced" Christmas spirit would be dismal .I didn't occur to me to suggest phoning a friend for company , shodatin , but good idea .

fraudulent dormouse mode , shodatin , as have even been able to go out when dh drives me , albeit not necessarily with euch prepared as planned . Dh in semi - dormouse mode too , thank you for asking fgrin but will get extra supply of easy to assemble food

Typical of you to try to find the best in ypor changed pace of life , but I'm glad you find pleasure in developing these creative skills you haven't previously had chance to use . Overworked pace of life is destructive , long term .
Glad you found those programmes , very slow paced weren't they < aaargh at the forgetting altogether to watch > s all round

Good news that boilerman was helpful, upward, so will no doubt do absolute best for you soonest, so I hope it's easily fixable. Agree with you about enforced jollity at this season, I'm Christian and can't keep it up too long, and have noticed large number of people who can't cope with it if sober, let along if mentally fatigued to begin with., or without peacable families. I used to dread it as a child, and congratulate DSis on making it a completely different experience for her own children.

You don't need to - I should have found some tact and better phrasing! There were only 4 people (+2 staff) at the group, but one gentleman used 45-50 mins of the time (I think it can be difficult for less experienced staff to control that).

I'm not sure how it went - I did try and voice how I felt/what's happening...but I would rather leave any HCP contact until after Christmas, he asked if I was around tomorrow/Friday, and it would be yet a different dr to talk to (and I'm dubious of going near the hospital when people are suggesting I'm not 100% - I buknow that's dodgy).

Gah! I guess I'll play it by ear tomorrow/Friday

Partly it's confusing because another patient said about having some of the same feelings I was describing, but he got told nothing to worry about and I was kept behind

Sorry if session didn't go well. Maybe the staff could see you wanted to talk but couldn't get a word in edgeways... Understand entirely why you're nervous, tho with my few remaining brain cells I (in theory) think it's better to manage this stuff maybe with meds than push to the edge and then really plummet.

Sorry, getting ill here too. Thought I was managing to keep within limits, but am surprised how fast I've deteriorated tho not so surprised because Useless Carer came today and it's exhausting managing her. Really struggling to read and write at the mo, never mind speak, so please excuse sparse posting.

Anyway, have a and with my last remaining fragments of sentience...

Oh hugs, tianc I hope you get some respite/rejuvenation before Christmas. I was finding it difficult to talk about, don't know why but the same happened last time.

Sensible friends say what you've said about meds, I just need to believe that myself.

Take good care of you

Thanks, same to you.

So pleased you managed to post tianc, been just a bit worried that you were not well enough through doing too much. Such a shame one of the carers is so difficult - I fully understand the exhaustion when you're just waiting for them to go home because it's so tiring to talk, and am so glad it';s over for now. Like upward, am hoping you can have some respite/rejuvenation before Christmas (just doubled good wishes).

I think you did the right thing to go to the meeting upward, but what a shame that one person was allowed to monopolise the available time. You're right about the less experienced people allowing this to happen, as not even the talker would benefit from this (notices people tend to repeat themselves given an unlimited time).
Can understand you being nervous around hospitals at present, but I don't think you need worry about it this time. Someone might possibly suggest extra meds, I suppose, but I really don't think you're in need of hospitalisation. (Not an expert of course, but am able to compare the way you were when really ill last time, and there's a huge difference). Dr. S recommends some time away from carers, domestic problems and delayed transport etc., and prescribes Christmas holiday with
family and friends to provide relaxation and a bit of a tonic.
(And suggests to self it's time to shut up and stop giving boring advice, sorry about all the waffling)

Nah, reassuring advice is good :)

Before I was quite so unwell, I ran similar groups with similar clients, so I know how hard it can be to do...

Time away from carers sounds a very good plan!

PS I think one of the big things is that a very small part of me resents having been 'tricked' into attending the hospital when I was sectioned (not that anyone did trick me, but... )

Not surprised you feel horrible about having been cajoled - can't find the right word here - but you certainly did do the right thing in going today , and such a pity staff misjudged somewhat - hopefully they'll realise you're pretty OK if they do contact you at all .. It would be such a shame to be persuaded to have services breathing down your neck in well- meaning manner instead off having a bit of well-eaned Christmas fun .
Am fascinated you've run such groups , and can imagine you doing this kind of work with subtlety and understanding < ahem , sorry ... goes back to chores >. Hope you sleep OK tonight

Sorry you're becoming ill agin Tianc , and hope sleep helps both you & upward . Difficult carer sounds such a pain .

Lovely post , Dr S and brilliant thoughts from you and Tianc for upward

Hitched a lift with DH to meet DM so had lovely but exhausting time . DH's pressie arrived in post and is far better than I'd dared hope !

Hope you're not too cold , upward , but fear you must be . ( & you are the very queen of tact and careful phrasing )

Hot choc all rounds

Thanks for the hot choc hob, I'm probably the only one not to provide something today, but brain doesn't run that way so hope I can be excused. So glad your present for DH was a good surprise - you can be really sure he'll appreciate it, and it's lovely that you were able to visit DM.
Apologies to upward for views on managing groups, (thinking of grannies and eggs), and am not at all surprised that you've organised something similar in the past. It's something I had to learn too, long time ago, and was surprised that two HCP's allowed it to happen.

Today's been a bit tiring here too, along with difficult phone call, so will wish everyone a goodnight, and hope upward's boiler-man arrives first thing in morning.
Also hope we're all refreshed and energised after a good sleep - night.

I think I'm going back to treating this as a blip...I think cajoling was definitely what happened yesterday, else I wouldn't have said yes to seeing someone.

I'm glad you, DH and DM had a good time, hob - pleasing to hear :)

Hope you got good rest, shodatin,, and everyone else.

Morning all, good to hear from you and being so positive, upward, so I guess you had reasonable rest despite cold home. I didn't realise you'd arranged to see someone while the meeting, and hope this goes well
(more time passing quickly while occupied outside home), as only two days to go before your family holiday starts.
Am feeling rested thanks, hope everyone else is too, and it's good to see sunshine. Remembers s and s just in time, checks largest, softest cushion rearranged nicely in case HF drops in today.

Short message from my phone, outpatient's appointment this am