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Elderly parents

Cockroach cafe - Spring to Summer 2026

934 replies

FiniteSagacity · 14/03/2026 23:18

New thread for us all to gather and have tea, cake and something from the stronger shelf as needed.

Keeping the cockroach name in honour of those who have graduated the thread in spite of the suggested thread names!

OP posts:
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9
TrayofRoses · 30/03/2026 16:51

Has anyone put a camera into their parents home to monitor a parent?

I have seen things for years thats not right.l with my mother who is now 73. It's not so much memory loss. It's other disfunctions.

A few years ago during one of her OCD trance like spells she stood staring at the oil boiler holding a wire clothes hanger in her hand. I kinda suspected she was considering to dust the appliance using the wire clothes hanger. I was able to redirect her before she did that.

Anyways, the oil boiler was broken down over winter and got it fixed in January. I have reason to suspect that she has a new focus and obsession on the boiler. I think she might have tampered with the boiler.

The boiler broke down two weeks ago approx. We had a repair person arrive this morning. I was telling the repair person what was wrong with it and my mother told him that a screw fell off but she didn't want to touch it so she left it. How did she know a screw fell off? Only that she opened up the oil boiler. Did she see the screw fell off? Did she push it off during an ice cleaning spell?

I wasn't too happy with the boiler service. He was only doing his work. It was his choice of words telling her that it's getting clogged up. I think there is a potential for her to keep dusting the appliance.

I don't have a diagnosis for my mother. There is no other family to help me. I still need to go to work and earn a wage and try and make living for myself. She's at home a lot on her own.

I am concerned. She's able to do a lot of her own daily living tasks. It's behavioural issues and bad executive functioning and it's getting so worse.

So the boiler got fixed and she had the heating on with the windows open. There's no talking or reasoning with her.

I really think that that she's having difficulty understanding some situations or instructions, either that or there's memory loss that's much worse than what I realise. The service repair person mentioned that we were doing things wrong with the boiler and we had the wrong switch or setting. A few minutes after he left, I checked the radiators and mentioned it to my mother and it just resulted in aggro and anger. I really think she's not able to understand things or she's forgetting and it's resulting in anger explosions.

Also her behaviour this morning. I got a call from the service repair to say he will be with me soon before 11am. My mother's reaction wasn't normal. Her reaction was to become extremely OCD and start emptying the kitchen of everything. The boiler is in our kitchen. She was becoming angry at me. I wasn't trying to reason with her or argue with her and I was helping her. She was angered at me because I was wearing my dressing gown. As if the man would care what I am wearing. The house was freezing because all the windows was open so I was wearing my dressing gown. Her reaction and anger - it's not normal.

There's no doubt in my mind that there's something happening with her. It's just not diagnosised. It's so hard because everyone (my siblings who live abroad and her GP) wants to see memory loss when that's just too simple.

I am concerned for other behaviours too.

Anyways I am considering a camera at home in the kitchen. It feels wrong. If I get a camera it would have to be small and discreet and battery powered. It just feels wrong to put in an hidden camera.

I know a family with an older parent who is 80 and they have a tapo camera but there's transparency and it's to monitor falls. Their person who has dementia, does comprehend the cameras. They are not hidden.

I know my mother she wouldn't tolerate a camera in the kitchen and I would have to go down the route of something discreet.

Does anyone here have a discreet camera to monitor a parent?

She really isn't right.

rookiemere · 30/03/2026 19:53

@TrayofRoses it sounds like you’re under a lot of stress, but secretly filming your DM isn’t something anyone here can or should advise on.

You’ve had some helpful suggestions already and at this point it may be worth focusing on what you can change- ideally moving to a bedsit elsewhere- rather than continuing to focus on your DM.

I hope that doesn’t sound harsh, genuinely it sounds tough for you but even if you can prove your DMs behaviour to others, it’s unlikely to change much for you.

AlohaRose · 30/03/2026 20:11

@TrayofRoses for whose benefit would you be installing the camera? You are already convinced that there is something more than memory loss going on with your mother and if you say that your siblings and your GP are ignoring that possibility and not listening to your concerns, then what are you hoping a camera is going to prove?

I am Irish so understand about the accommodation difficulties and also the cultural differences which mean that your siblings can ignore you - and the pressure that you feel to be the dutiful daughter and to look after your mother. However, you are going to be of no use to anyone if you fall over with the burdens of caring.

It is difficult but cannot be impossible to find somewhere to live surely? It may not be what you ideally want and may take plenty of time and networking (which we Irish are great at!) to find but you have flexibility in a moving date and are therefore in a much stronger position than many people. You have mentioned a partner - do you have long-term plans with him, have you ever discussed living together? Does he know your mother and have any thoughts on the situation?

Seeingadistance · 30/03/2026 20:16

GnomeDePlume · 30/03/2026 03:36

I think there is a big fear of saying 'let them die'.

Is this because of Shipman, I'm not sure.

DM has shuffled a tiny bit further down the exit ramp. She has barely any strength left, has to be woken to eat, has to be fed, has to have her cup held to drink.

And yet when she developed a bit of a cough there was talk of getting the doctor in. FFS why?

DM is frequently distressed, tearful, for no particular reason, it just comes over her then goes.

I suggested to DB that he speak to the nurse tomorrow about whether some light sedation for mum might be helpful. There was only a temp nurse on at the weekend otherwise I would have done it myself.

But of course DB doesnt want this. He wants DM's life stretched out. Until what? What is finally going to end this misery?

DM's personality, intelligence, dignity are gone but we have to keep trudging on.

I'm sorry to say that my DF has been stuck at a similar point on the exit ramp for about 2 years now.

Hopefully your DM will continue to descend - quickly and as gracefully as possible.

GnomeDePlume · 31/03/2026 10:57

@Seeingadistance 💐hell's teeth, 2 years! It isnt a life is it? I'm not sure it is even an existence.

Scaredeycat · 31/03/2026 11:46

It’s so hard isn’t it. My very elderly DM has had every test and scan going and there is no diagnosable pathology there, but she is terribly frail, feels tired all the time and very poor appetite. She constantly complains of feeling tired and unhappy with life, and wants a doctor to prescribe a magic pill to make her feel better. The reality is, I think, just that very old age has this effect and there isn’t a solution. She isn’t enjoying life at all and there’s nothing we can do about it. It all just feels never ending and exhausting as we lurch from one potential crisis to the next.

Choux · 31/03/2026 12:00

My DGM died at 89 and her death certificate says ‘old age’ as cause of death. At the time I thought that was odd as she must have died of something other than her age. Now 25 years later DM is 93, 5st 10lbs, exhausted, advanced dementia, needing frequent antibiotics and steroids for all her uncomfortable skin complaints that have only started in the last 10 years. If she dies like this there will be no diagnosed medical condition to put on her death certificate . Old age is fatal but it can be a long, slow death.

GnomeDePlume · 31/03/2026 18:27

I do find myself wondering if DB is lying to himself as much as he lies to me about DM's cognition.

'DM enjoyed XYZ', 'DM was cheerful and engaged in a conversation'.

He so desperately wants DM to be alive. Perhaps for him DM saying 'yes', echoing a word he has said, sometimes smiling is enough. Even if the rest of the time she is asleep or in distress.

I also know that the carers give different feedback on how DM has been in the morning of a visit to DB and to me. The feedback DB gets always seems to be more positive.

Alternatively he could just be choosing not to hear the negative.

BestIsWest · 31/03/2026 19:20

I posted this on another thread but DM has developed cellulitis in her leg (after I knocked her trolley into her leg, feel massively guilty). However I am so impressed with the amazing service from the NHs and Social Services. A call to 111 resulted in a visit to the OOH GP within 90 minutes and follow up visit from the district nurses who were fab. Social services and the care agency also came up trumps, putting in place extra visits to administer antibiotics. I can’t fault any of them.

rookiemere · 31/03/2026 19:43

@BestIsWest the NHS treatment DPs received when they were at home was actually pretty amazing, so I think sometimes they are very good.

@GnomeDePlume possibly not in your DMs case but I do wonder if the elderly person presents differently based on who is there. DH has said on his last visits to the care home, DM was bedridden, unable to communicate and he felt she was on her way out. But when I visited on Sunday and today she seemed much the same as always and managed to communicate her long list of demands via writing and speech. I suspect when she sees DH she decides that he won’t be doing things for her so no point in perking up as she’s pretty transactional these days.

Apropos I wonder if anyone has any advice on this. They have been in the care home for just about 3 weeks now. DF miraculously is enjoying it and is actually a pleasure to take out for his wee walk and glass of wine, DM just keeps presenting me with a list of things she needs, majority of which could be sorted out by the care home. I suspect there are a few things going on - she is difficult to understand and her writing is hard to read so it take a bit of time for her to communicate and possibly she doesn’t feel comfortable doing that with the care home staff and/or they haven’t the patience to try to understand. Or and unfortunately I think this is at the core of it, she’s used to me doing things for her and sees that as my role now. I have passed most of the requests on to the staff and bought the stuff she needs, but is this just it and how things are ?She has dementia is pretty abrupt and demanding when she was never like that before. I mean it’s still a million times better than when they were at home, but it kind of sticks in the craw that they’re paying thousands each week and my role still seems to be chief gopher rather than DD.

GnomeDePlume · 31/03/2026 20:47

@rookiemere I think it can go either way. Either the resident just accepts the situation and is happy with it or they think their every demand should be met.

DM herself wasnt particularly demanding but DB as her 'spokesperson' was incredibly demanding (and to an extent still is).

It is sad but I do think our parents forget who we are. Even before she stopped really speaking much DM had regressed back to a time before I was even born. So to her I'm not her DD, I'm just a friendly random. Maybe vaguely familiar.

You are right about behaving differently for different people. For DB, DM would complain, be miserable, hard done by. But I'm not sure how much this was simply for DB's benefit, he is a very negative person. And of course every minor gripe of communal living would be amplified by DM then amplified again by DB

Yet when I visited DM would be reasonably cheerful, there would be minor gripes but I didnt encourage her to dwell on these.

TrayofRoses · 01/04/2026 20:46

My mother doesn't know how to use the internet. A few months ago we found out that my father's son born to his mistress nearly 30 years ago built a garage on another brothers land.

My mother butted in to put herself right into the middle of this because it involves one of her sons. All of this can be sorted civilly between the two people involved.

My mother's anger about my father's son (my half brother) it's unreal. She is consumed with hate and poison about him.

My mother doesn't know how to use the internet and she has me stalking the man online for her. Several times a week. He placed his illegal garage for sale online in February and it's still not sold.

This is several times a week. There's no reasoning with her. There's no need to check that often. What does it do? How does it help her exactly? Who does it serve? I have to lie to her about dead phones and no internet working. I don't mind checking maybe once a month.

This is several times a week. She is obsessed.

She won't even require about me but will dish out requests to me.

I was trying to have breakfast this morning and she she nearly wanted me to choke on it to check on my half brother and his selling ad. It's just so so so pointless.

I had to turn around and go to work and put a smile on my face and pretend everything is ok when my mother is utterly senile. It's just not presenting with memory loss.

I work in disability care and often it can be so intense. A lot of the times it's like jumping from the frying pan to the fire.

It's like being hammered in my head without being touched.

A lady I know I home from abroad with her family and they would like me to visit and it is a nice idea and it's lovely but work is being very intense on me this week. A lot with all the issues and stuff at home. It's really like being hammered into my head with 5 million hammers.

I am booked for over time for the weekend and I just just want to spend a rare piece of time off visiting people and their young children.

I am someone who needs a box of fags, a bottle of straight vodka and a box of solpadine to try and take the edge off things.

Wonder if it's ok to decline visiting.

TheBroonOneAndTheWhiteOne · 01/04/2026 22:20

I am someone who needs a box of fags, a bottle of straight vodka and a box of solpadine to try and take the edge off things.

This is extremely worrying @TrayofRoses

You must find a way to get yourself out of this situation. It's unbelievably bad for your health.

Wonder if it's ok to decline visiting.

Yes. It's always okay to choose to do something for yourself when you're worn out.

Every time you post I'm aghast. This last post of yours is worrying.
If your mother can't use the internet, what happens if you simply refuse to do her bidding, and if you positively decline to stalk your half-brother?

Does she become violent? Are you afraid of her?

ElderlyDilemmas · 02/04/2026 11:29

Does anyone else here have married parents with one parent in a home and one still living independently? My DF is in a home for physical health reasons, no dementia. He was admitted after several months in hospital from July last year. In all that time DM has been spending several hours a day with him usually 6 days a week and it’s not healthy for either of them, Dad is largely bedbound so a lot of the time she is just sitting in his room with him, but she has anxiety and is very emotionally dependent on him and is driving him nuts, she just dumps all her woes on him and expects him to still be taking a full role in making decisions about finances, house repairs etc. But he has handed all that over now, it is no longer his problem, he has done their finances and house repairs all his life and now he’s done with it. I hoped she would adjust to greater separation (they were always a couple that did a lot separately) but it isn’t happening. She needs to be needed and sees it as her duty to be with him whenever he doesn’t have another visit (she cannot imagine how anyone can be happy in heir own company).

countrygirl99 · 02/04/2026 11:36

After MIL had her severe stroke she was in a care home for nearly 2 years and FIL spent all day every day there. Unfortunately he was very aggressive with the staff if they didn't act the minute he clicked his fingers and kept wanting to swap her room to one he thought was nicer for random reasons (basically every room was better than whichever one she was in at the time). After one particularly nasty episode he was told if he didn't behave his visits would be restricted to an hour a day and he decided to take her home. Which gave rise to all the foreseeable problems when MIL was severely disabled and he had an A4 long list of medical issues.

BestIsWest · 02/04/2026 12:32

Fucking hell, you think all’s going well then…I’ve just had to stop the carer giving DM the wrong medication because she thought today was the third. And this mornings carer doesn’t seem to have given the antibiotic as the MAR chart hasn’t been signed.
If I hadn’t been there and spotted that the medication she handed DM wasn’t right then she’d have had a double dose of this mornings meds and no anti Bs. Have a call in to the care agency.

countrygirl99 · 02/04/2026 12:37

I'm building up a stockpile of mum's meds because I keep finding to he pivotells half full of meds the carers are meant to check she has taken. They always say the pivotell isn't working and moving on a slot. Not that they ever flag it as an issue until I say mhasonly taken her meds 3 days out of the last 14 and ask them to remind the carers to check. But funnily enough when I swap it out and take the old one home it's working just fine.

FiniteSagacity · 02/04/2026 12:43

Is it the upcoming bank holiday weekend that makes things all go wrong at once?

OP posts:
BestIsWest · 02/04/2026 12:49

Strange how these things happen @countrygirl99!

Social Services insisted on taking over DMs medication after she made one too many mix ups and it was the main reason they decided she needed to continue having the carers after the six weeks allocated when she came out of hospital. And on the whole it’s been excellent because they do it all including ordering and collecting the repeat prescriptions. One less thing to worry about.

BIt DBs head off last night when he phoned to say DMs foot was looking red! What did he expect me to do about it? I’ve only taken her to hospital, organised district nurses, medication, extra carers etc. I told him to ring 111 if he was concerned. He hung up. Been up today and it is no worse that it was yesterday morning.

countrygirl99 · 02/04/2026 13:08

@BestIsWest god forbid he was expected to take the initiative.

countrygirl99 · 02/04/2026 13:16

FiniteSagacity · 02/04/2026 12:43

Is it the upcoming bank holiday weekend that makes things all go wrong at once?

I'm fully expecting an emergency this weekend. Horse is still in strict isolation so I can't ask any of the other liveries to cover. In addition he now has a swollen sheath due to being stables 24/7 so I need to apply KY jelly to his intimate areas do he doesn't have trouble weeing. Plus the bank holiday. Bound to get that emergency call. Missed a call from mum's phone Tuesday night. It's so rare for her to call I immediately panicked. Did she pick up when I called back...not a chance. Thankfully it was shortly before the evening carer was due so I tried a few times with no joy. I decided if there was a crisis I'd get a call. If I'd driven up the carer would have been and gone and no doubt mum would have forgotten she'd called let alone why. I suspect she momentarily remembered my birthday which was a couple of weeks ago.

rookiemere · 02/04/2026 13:28

@BestIsWest and @countrygirl99thats what makes everything so hard, the relentless drip of things not done entirely right by people not really paid enough to care. It really is whackamole and when it was happening I never quite knew what was going to find my last nerve- usually something seemingly small like the hairdresser ringing up to say she needed to change date or was running late. It often felt like I was the only adult allocated to the building.

BestIsWest · 02/04/2026 14:00

@rookiemere that is it exactly. So many little things that DB doesn’t think of. This is my list for Monday and Tuesday this week of things I’ve had to do for DM. And when one tiny thing goes wrong then it generates half a dozen jobs.

I fully believe that we should be paying carers a much better wage. They are so undervalued.

Cockroach cafe - Spring to Summer 2026
BestIsWest · 02/04/2026 14:00

@countrygirl99 oh your poor horse. And poor you!

countrygirl99 · 02/04/2026 14:37

Just absolutely lost it with DH and it's entirely his own fault. We were supposed to be putting the house on the market in time for Easter but I'm having to nag him to do the jobs he's agreed to do. Yesterday he was supposed to be doing the gloss in the porch. We only used it as a store room and everything's a bit scuffed. I'd done all the prep and painted the walls he was meant to do the gloss yesterday afternoon while I was with the vet. Proudly told me it was all done but I didn't look until this morning. He's just done the window and totally ignored 2 doors! So now he's finishing that off instead of sorting out all his camera stuff that he leaves lying all over the house that's meant to be this afternoon's job. He got the full blast of "as if I didn't have enough in my plate without you acting like a 10 year old" and "you'd be the sort of old person we complain about in the cockroach café because you wouldn't organise yourself until it's too late".