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Elderly parents

Cockroach cafe Summer 2025

979 replies

BestIsWest · 23/06/2025 08:03

Welcome in to the Cockroach Café Bad Daughters’ Room, the rugs and cushions all fresh and clean for the new season.
Good daughters, find your way to the small room behind the stairs. Sorry it’s not as equipped as here, but it doesn’t get much use.
Come in when you want to share good news, or to rant, or just to hang out with others who understand what you're going through. The way MN works, hopefully this thread won’t appear in any featured lists, and the only people wandering in will be those who understand what it’s all about.
If you have a BIG question, it might be worth giving it its own thread, so as not to swamp this one.
For newbies: why cockroach? Previous long term resident of "Elderly Parents" Yolo's DM attended a 'small animal event' in a nursing home, and was presented with a "small animal with a hard back" the name of which species she couldn't remember. Her ever helpful DB suggested cockroach, and it has become a toast on here. My recent enquiries suggested more people wanted to keep the well known name than wanted to change it to something more savoury, so for the moment it stays.

OP posts:
MotherOfCatBoy · 07/10/2025 18:43

@Choconuttolata not sure.. agree it’s tricky. They get used to the old way and a big leap isn’t really manageable. My Mum couldn’t work the telly in the 90s, Dad always had to do it for her (learned helplessness and princess syndrome) so no wonder she couldn’t cope with the change. I also think TVs are over complicated.. too many funtions, over engineered. Just because you can add bells and whistles doesn’t mean you should.

Sympathise with the phone too @countrygirl99, have just got them onto fibre with Talk Talk, that took three visits over a week.

IoWfairy · 07/10/2025 19:48

Oh yes @MotherOfCatBoy, the helpful uncle. In our case it was my goldenchild DB who bought the super duper TV into the mix and got all the praise and credit for doing so. He is not expected or willing to provide IT support - that’s my job.
<shuffles off to Bad Daughters bench again >

CrowdedClouds · 08/10/2025 10:22

re. BT! Previous poster mentioning BT, brought back nightmares from 2023/2024. My elderly mother’s phone connection kept breaking down. This was due to the new technology that BT bought in. It just didn’t work properly! They were impossible to contact, nobody seem to be able to diagnose the problem, there were multiple visits, and only managed to resolve the problem with difficulty – on at least three or four occasions! My mother was in a constant state of panic. It was so stressful, at various times I thought I was going mad!

Luckily, all seems to be fine now and has been for some time 🛌 🙂

BestIsWest · 08/10/2025 10:49

I know DM’s phone system needs to be updated for the digital switchover. I’ve spoken to Virgin several times as she’s got an alarm and they say not to worry, they’ll be in touch. Why do I think it won’t be straightforward?

OP posts:
funnelfan · 08/10/2025 10:59

Oh TVs. I love a bit of technology and even I think new tellys are totally overcomplicated but the picture quality is getting worse unless it’s a flagship program like a new Attenborough documentary when they up the transmission resolution. Trying to watch a standard definition channel on a smart TV is like watching YouTube on non-fibre Internet.

Choconuttolata · 08/10/2025 11:20

We have Virgin @BestIsWest and due to medical conditions in our home they installed a phone that still works when the broadband goes down. It was very smooth and so much easier than dealing with BT for my Dad and Aunt during the switchover and when things went wrong. We swapped away from BT 10 years ago because dealing with customer services was just terrible. Virgin have been so much better to deal with so 🤞 for you and DM's update.

BestIsWest · 08/10/2025 11:21

Oh good to hear @Choconuttolata. I had read that they can provide an emergency line - DM can't use a mobile so that’s a necessity.

We had a nightmare with BT when we moved here so we’ve been with Virgin ourselves for years and they’ve been pretty good.

OP posts:
GnomeDePlume · 08/10/2025 12:11

I am finding DM's technology wants/needs have got a lot simpler now that her dementia has advanced. She enjoys watching things on a tablet which DB or I control but otherwise she has no interest in watching television.

Isitsticky · 08/10/2025 12:51

Same here, Gnome. Mum used to use a kindle, mobile phone (clamshell push button variety) and TV/radio. She gradually stopped using all of them as her dementia progressed, but I can imagine the nightmare of trying to swap elderly parents' equipment.

funnelfan · 08/10/2025 13:08

mums inability to use even the most basic of technology was a strong indicator of her advancing dementia. It started as “the tv/ microwave/ oven/ radio is broken”, the mid phase involved getting the neighbours to change her tv channel because she couldn’t do that any more, the end phase had her not answering the phone because she didn’t know how to and panicking because she couldn’t flush the toilet any more, and she used to get the carers to do it for her.

i do wonder though how much is disease and how much you have control of the speed of decline. Obviously everyone is different, but dad used to say “use it or lose it” and even the day before he died was doing the crossword (badly because he couldn’t write very well and got the wrong answers, but he was still having a go). Whereas mum never got the hang of mobile phones, even the simple Nokias, and refused to learn how to Skype even though dad showed her how to every time they called the grandchildren. This was 20+ years ago, and she wasn’t stupid and played bridge regularly so her brain was working fine.

The lesson I’ve learned from my genetic inheritance is to not give up and keep learning new things, in an attempt to stave off cognitive decline for as long as I can.

BestIsWest · 08/10/2025 13:45

My parents were the same @funnelfan. DF loved it, loved the fact he could email or message old friends and google the cricket results. He’d had to use a laptop in his volunteer role so had had to learn. DM never really attempted to learn. She did have a tablet briefly and liked Facebook and Pinterest but only really used it if we were looking at it together.She never really embraced it or bothered much with a mobile phone either. She did love her Kindle but hasn’t used that for a few years now.

Having said that, we had to do some legal stuff recently which involved uploading ID and a digital signature and I was shocked that my brother (60) is barely computer literate - hasn’t really got to grips even with email. I had to do most of it for him.

OP posts:
countrygirl99 · 08/10/2025 14:21

Mum was actually a fairly early adopter of online shopping and used her computer to search for bargain cruises. One of the earliest symptoms of her dementia was getting confused by the internet. I'm not sure she even changed TV channel now and for some reason her radio is now on Radio 1 which she insists is Classic FM. She never liked pop music, it was always classical 🤷

funnelfan · 08/10/2025 14:36

I suppose it’s difficult to know isn’t it - for example if someone like countrygirl’s DM would have declined faster if she hadn’t been an early adopter of technology rather than a “that looks scary” approach from my mum.

All I know is that the symptoms of brain fog and confusion I had during menopause scared me witless and I was mightily relieved that they improved hugely with HRT. I’m never taking my brain for granted again, and I’m going to exercise it as much as I can!

Choconuttolata · 08/10/2025 16:24

Same for my DAunt @funnelfan, she stopped being able to work the oven and microwave and eventually she couldn't answer the phone.

My Dad is definitely on that path, saying the TV is broken but it is just he doesn't know what to press. Although the Sky box has meant it is easier.

My Granny on the other hand kept learning new things and did a computer class and dance classes in her 80's. She still had her full mental faculties at 91 when she died of cancer.

I watched a really good talk with Davina and Dr Sabrina Brennan about things you can do to reduce your risk of dementia. Worth a watch.

- YouTube

Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.

https://youtu.be/1JhkYgA5Q_0?si=r8JgNzwYMznvSuAh

BlackAmericanoNoSugar · 09/10/2025 16:02

Has anyone been following the news about low doses of lithium being helpful in preventing cognitive decline and alzheimer's?

I'm not going to be dosing my Mum, not least because it's already hard enough to get her to take her prescription meds let alone supplements, but I might start taking it myself as a preventative measure. All the research references a very low dose, a fraction of the dose that is prescribed for depression.

Isitsticky · 09/10/2025 16:54

I haven't seen anything about Lithium. Must look it up. Both my parents have/had alzheimers.

MotherOfCatBoy · 09/10/2025 17:49

Interesting @BlackAmericanoNoSugar

Mind you, remember the bit in House where he starts dosing himself based on the mouse trials and then the mice start dropping dead? Wait for the human trials! Grin 🐭

BlackAmericanoNoSugar · 09/10/2025 20:09

I don't think I saw that episode of House, but that series is where I got most of my medical knowledge so it's worth considering. Grin Mum is 26 years older than me and only started to really show cognitive decline three or so years ago, so I have time to allow for more research.

countrygirl99 · 09/10/2025 20:37

Hugh Laurie is one of DHs customers. He always gets nice cake there.

MotherOfCatBoy · 10/10/2025 06:53

No way @countrygirl99 😲
What does DH do? (If it’s not outing)

countrygirl99 · 10/10/2025 07:14

MotherOfCatBoy · 10/10/2025 06:53

No way @countrygirl99 😲
What does DH do? (If it’s not outing)

He does annual maintenance on a piece of domestic equipment.

MysterOfwomanY · 10/10/2025 09:50

Was going down to see my elderly relative today, but she woke up being sick and has now retired back to bed, so it's off.
Where can I get a "no vomiting episodes since (date)" sign ?!
There is a note on the fridge reminding the carers to chuck out out of date food, but there's always something I have to throw away when I visit (fortnightly). Perhaps I should get her a "have you washed your hand?" badge! But that seems a bit confrontational - I've really not had anything to criticise about the carers I've seen, and her grumbles are usually trivia like timing (dreadful traffic) or burnt toast/forgotten sugar in tea.
As a lot of people are in their 80s, she's on a boatload of meds too, so it could be some side effect and not germs at all, too.

I guess the trip to the rollators shop is next week then...

GnomeDePlume · 10/10/2025 12:34

DM's rapid decline was triggered by a long stay in hospital. Prior to that she was living independently.

We have just past the 1 year anniversary of DM's fall which was the start of this.

DM now no longer reliably knows who people are or in some ways who she is. She is happy to be visited but all too often I arrive to find her looking round her care home searching for her parents.

When this happens I use distraction to get her into a happier mood. One of the things I do try to do is make her laugh. In my view if DM gets comfort from thinking her parents have just popped out then where is the harm?

DB reminds her that they died decades ago. She doesn't get especially upset. I think he is trying to make her remember but I don't think dementia works like that. DM as a person is disappearing.

HoraceGoesBonkers · 10/10/2025 13:33

I’ve been on and off this thread and board for years now and wanted to post an update.

A quick recap is that my DSis died from mental health related issues then DF had a bad fall a few months later and never properly recovered, dying several years later. My “D”M caused a lot of extra stress on top of this with completely unrealistic demands, early morning and late night messages, lies and extra drama, to the point I got very ill myself with stress and related physical issues.

She’s also completely tight with money and expected me to cover all the travelling costs, hotel costs, food costs myself. She actually seemed to resent us spending any spare time away from them, and kept expecting me to be my Dad’s carer, although they had a really good package from the council.

My kids were still very young when all this started and I work too. Didn’t want to put Dad in a home (they were eligible for state funding for the whole thing), didn’t want to move somewhere less remote, but wanted me to throw my household under a bus to prop them up.

Any health issues I had or my remaining sister had (sister got cancer which fortunately was treatable) she was almost sneering about; nothing was allowed to take the spotlight off her and Dad.

She’d also been completely awful during my sister having cancer – she was dismissive initially, then, without asking my sister, called around relatives making out the cancer “wouldn’t respond to chemo”, which was a very selective way of putting it, and I had a very upset call from a relative who though my sister was terminally ill. When my sister went in for surgery she sent a message around on the day asking for us to go and see her, even although my sister had already said she wouldn’t be able to travel.

Anytime she wanted some extra attention Dad would have a bad turn, I grey rocked as much as I could but, after months and months of trying to keep a distance, finally blew up at her when she tried to ruin a family holiday with an invented crisis.

I eventually went NC with DM a few months before DF died, a bit more than a year ago.

I had hoped she might have considered why we’d ended up where we did, but around the time of the funeral, when I had some contact, she was back to the same old tricks of manipulating me into doing stuff I said I didn’t want to do, I got put in a position where I ended up having to pay for some things I really shouldn’t have and she told my sister she wasn’t intending to pay me back (I did get the money eventually).

My husband saw her to get the stuff Dad allegedly left me. The list was really vague and dated with a year (no day or month) after he wasn’t really able to make decisions. I wasn’t expecting a lot but got a box of random shit pertaining to one of Dad’s hobbies but without essential items that would mean it was useable to pursue the hobby – and one item of sentimental value. Plus some other crap that belonged to me in the first place.

A few days later I got a message off her on the only platform I hadn’t blocked her on saying she wanted me to get back in touch because of my sister’s cancer checkups so we could “work together to support her”, and that she hadn’t told my sister she was asking me this.

So basically using her old tricks around family illness to garner attention for herself, and definitely trying to create a situation, again, where I was the bad person for saying no.

She used to contact my deceased sister and wind her up, even although everyone else repeatedly asked her not to, and it’s just like she’s hellbent on repeating all these patterns over and over again. And removing the option of her contacting me is the only way to stop it.

Sorry this is long but just… I had to write it all down somewhere. Hope everyone else is doing ok, particularly those of you who have been here a while!