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Elderly parents

Cockroach Cafe - newly refurbished for the summer

961 replies

MereDintofPandiculation · 30/06/2021 22:26

Welcome into our newly refurbished cafe. We've got rid of the Bad Daughters' bench - it was getting too small - and refitted the main room as a Bad Daughters' room, with comfy sofas, coffee, chocolates and drinks of your choice. (There is a good daughters' room - go down that corridor there and you'll find it tucked behind the stairs. It's not yet been fully furnished - we haven't had a visit from a Good Daughter in I don't know how long).

Anyway, come in when you want to share good news, or to rant, or to ask a small question that doesn't warrant its own thread. Or just to hang out with others who understand what you're going through.

For newbies: why cockroach? Previous long term resident of "Elderly Parents" Yolo's DM attended a 'small animal event' in a nursing home, and was presented with a "small animal with a hard back" the name of which species she couldn't remember. Her ever helpful DB suggested cockroach, and it has become a toast on here. So cockroach mes amis/amies, and may you all live to fight another day.

OP posts:
TonTonMacoute · 05/09/2021 10:32

She has also taken to ringing up our friends at all hours, it's really embarrassing but they have all been very understanding.

She called an old friend N last night, it was after 10. They got cut off Hmm and she rang us, furious, because DH had obviously caused this by sabotaging her computer, and she was demanding that he ring his friend N to get him to fix it.

MintyCedric · 05/09/2021 12:50

Oh Tonton that sounds very familiar.

My mum went through a phase a couple of weeks ago of accusing me of taking things home with me from her house.

Random messages and phone calls 'but I didn't call you/press anything' are also a regular feature, as are 3 or 4 phone calls a day when I don't see her asking tenuous and trivial questions.

Her ability to deal with technology is definitely going south.

I did an online writing retreat yesterday and pulled out the house phone, which I've not plugged back in yet...bliss!

Am also back at work...which is not so much fun.

TonTonMacoute · 05/09/2021 14:05

We actually discovered there had been over 100 calls! When we eventually listened to them she was saying 'It's really urgent and important, not just for my life but for all of yours too' in tones of utter doom. The problem? She had managed to miniaturise the keyboard on her iPad.

It's hard not to feel guilty as they do get so distressed but you just can't be at their beck and call all the time doesn't really help and just wears you down. By the time DH had sorted the problem she had forgotten all about it.

OnthePiste · 05/09/2021 15:07

@TonTonMacoute I sympathise with you and your DH. DM had a period of calling numerous times a day and through the night. I woke one morning to 35 voice mails, all of which were getting increasingly hysterical. She wanted to know why it was dark..Confused However, once on medication (Donopezil for Alzheier's) and various medical issues (constipation and UTI) resolved, she is now back to sort of normal..still very forgetful but fully aware not to ring too often or at night!

TonTonMacoute · 05/09/2021 15:42

Thank you @OnthePiste, it is a relief to know there is hope. The complex care team have only just managed to carry out an assessment on her, but hopefully they can implement some improvements soon.

StopGo · 05/09/2021 20:50

Well my "D"M excelled her self this evening. Accused me of 'sleeping around' as I was widowed last year after 30 years it's broken me just at the moment. Ironically she left us the DF when she embarked on an affair many years ago.

Mum5net · 05/09/2021 21:04

StopGo hard as it is, just ignore. It’s not your real DM this evening. My DM accused my DF of having sex in their car with two teenage boys that he’d parked across the road. Then she told everyone she met for about a week including the social worker and the Avon girl. Hopefully, she’ll be less muddled tomorrow.

BinaryDot · 06/09/2021 12:58

I haven’t posted in a while. I have read sometimes though and I wanted to just wave to posters with their own health issues, it must make everything twice as hard.

He's scared of her being unhappy, so always placates her

This popped out at me from Wombat’s post – I see a pattern here for elderly partners who are not co-operating with offers of professional help and also in my own relationship with my DM: even when I reject it, that impulse to placate for this reason is strong. I’m actually picking up some counselling support for myself at the moment and this is something we’re discussing. It’s interesting to go a bit further and ask ‘What if she is unhappy? What will the fearful consequences be?’

On the dementia topic, my DM has evaded diagnosis (she’s likely to have Parkinson’s dementia, which is like Lewy Body) – the GP suggested she attend memory clinic 18 months back but she declined to go and she’s since had an attempted cognitive assessment in the care home by a different team as part of a wider check but she didn’t want to do the test so although we can see she is ‘confused’ and the care home just do their thing accordingly, there’s a bit of a limbo there, especially as some (e.g. financial institutions) can ask for ‘capacity’ statements from a professional but I have found professionals are reluctant to commit to one.

I do believe that it's partly because they have fond memories of a time when women stayed at home, looked after their kids, then switched to looking after the elderlies. They just don't get that life has changed now for the vast majority of families.

Agreed Minty and I don’t even know if these are real memories or impressions gathered from the public face of other families or even TV families. Because in reality women were still overburdened – in my (w/class) GPs days, the women had to look after old people because there were no alternatives, and institutions were feared, but there was not much cosy about it and many of those women’s lives were eaten up by care of all kinds. And ditto to Permanent’s comment that my DM’s generation mostly didn’t have ancient extra-frail elderlies to look after, my DM’s parents both died without much invalidity in their early 70s.

Hairbrush these expectations lurk and while parents in their prime don’t acknowledge them, the neediness emerges when the other partner goes, the idea that children will substitute for the partner is ingrained somewhere. You have done everything you can.

There are always martyred women to be held up to us, who have selflessly cared for oldies unlike us. I feel there should be an Etsy shop selling icon paintings of these saints (“Shirley across the road who has always been so good to her Mam”, “Monica who sees her Mum every day and takes her out in the car”, “Ma Larkin”) so our DMs can put them on the wall behind their beds.

I have been sticking to my monthly travel (train) to DM’s care home to visit under crap Covid rules. Depending on how long I stay, I see her more than once. The first stay was quite long (2 weeks of my annual leave) and many things were sorted out but I suspect DM’s levels of appreciation will only dwindle. I’m taking a friend next time and the time after that another friend is offering to accompany me and hire a car we can both drive so we can take her out locally. But I manage to keep her out of my head more when I’m at home, which is necessary as my job is about to kick off (term time).

We are all doing everything we can. Everything.

Cockroaches Ho!

notaflyingmonkey · 06/09/2021 13:25

Thank you for the suggestion of the icons Dot, first time I can remember laughing for a long while!

thesandwich · 06/09/2021 13:31

Agree with nota about the icons-thanks dot a business idea?
Together with the sainted sons of course basked in golden radiance….
Good luck with the hospital nota

Zolrets · 06/09/2021 15:30

@Knotaknitter I read your comment on hospitals and wanted to vent share my experience. Eye op - took to consultation, took to covid screen (drive through by appointment one location only), took to surgery. All this involves a 40 minute journey to pick them up. A 20 minute journey to the hospital. Then the same in reverse. When I went to pick up I did the rictus smile as the nurse simpered on about ‘parent needing special care and looking after’. Having managed to keep my mouth shut during that little speech she then went on to tell me that ‘first thing tomorrow, you must take them to the optician to get their glasses adjusted’. I was WTF? You are telling me this now in an emotionally manipulative manner? I was just furious. Why do medical staff assume you have no other commitments? Even my parent said ‘oh they just assume you have a huge family available to step in’. I have a full time job and a child at primary. One day I will ask medical staff what they want me to do - leave my child uncollected or do their bidding. I’m not expecting clinicians to solve all problems, just to quit the saccharine assumptions and manipulation. It’s not good for the elderly person either to paint a picture where they are the only ones with this problem.

Zolrets · 06/09/2021 15:32

And Grin at the ‘icons’ series. That made me chortle.

PermanentTemporary · 06/09/2021 15:59

Tbh in the 50s/60s the geriatric wards in hospitals looked like nursing homes do now. I saw a clip on telly just recently on a documentary- serried ranks of wheelchairs in a corridor containing frail but likely medically well people from our perspective (tbh most of them looked around 70). For sure women were expected to nurse/care for people at home but that's not to say it actually happened.

TonTonMacoute · 06/09/2021 16:03

@Zolrets

Oh I can empathise totally.

MIL is due a heart op at a hospital which is an hour and a half round trip. I have taken her for a pacemaker check, a scan (at 8am), a drive through Covid test (on Sunday afternoon), an angiogram, and a check up with a nurse consultant.

The hospital letter told us that the procedure takes 3 or 4 hours so I dropped her off at lunchtime and went back home. I erred on the side of caution and went to pick her up at 5 - rush hour so traffic was terrible - to be told 'oh, she has only just had the test and can't leave for another 3 hours'. I was shattered (I'm no spring chicken myself) so DH said 'Come back and I will pick her up at 8'. So that was the day and evening messed up, and this was May when we had torrential rain evey day, MIL was really embarrassed but it was not her fault.

Surely the department could take a mobile phone number for the collector and send a text an hour before she was ready!? How long would that take? Seconds. They probably only see 4 or 5 patients per day, many of whom would be able to text their collector themselves.

Zolrets · 06/09/2021 16:04

Just a snap shot but in the 80’s I volunteered in a cottage hospital and the ‘geriatric ward’ had patients in there from the start of the year I was there pretty much to the end. I think hospital stays were generally longer then. I remember my sibling had several minor operations. Went in the night before then stayed two weeks after. For no reason other than to ‘keep an eye and check’. So yes, I’d agree that some of the ‘slack’ was taken up there.

countrygirl99 · 06/09/2021 16:05

In 1978 I spent a summer working in a local hospital. There were 5 wards and were purely medium term geriatric patients in for several months. 2 wards were for patients who were never going to leave. Primarily like MIL, very disabled after a stroke, or dementia. I remember 1 lady had a photo of "my Charlie" next to her bed and kept telling me they were going to get married when he came home. He was killed in WW1.

Artdecolover · 06/09/2021 16:23

"Icons" series
Arf 🤣

Ieatmarmite · 07/09/2021 17:53

😂 Laughing at the icon. One of them would have to be of my DM who went everyday to visit her mum, did her shopping, washing & housework for her and now can't understand why I don't go to see her everyday to do similar. Everytime I visit I hear stories of how since she was 8 she was being told by my grandpa to help my gran. Tbh it makes me feel quite sad - it sounds like she was a servant rather than a beloved child.

countrygirl99 · 07/09/2021 21:29

Mum is in a state again. Dad was discharged to a temporary care home place last Thursday and mum can't remember whether he is in the home or the hospital so phones DB or me to cry that she doesn't know where he is and "no one is telling me anything". Between us we have had this conversation a dozen times over the last couple of days. On top of that she remembers that it's 14 days until she can see him but in her head it's 14 days from "today", not from last Thursday so never getting any closer when it's now 9 days. Had that conversation 4 times today.

thesandwich · 07/09/2021 22:22

Does she have any sort of whiteboard to write messages-and countdown of days? Helps with dm.
So hard🌺🌺

IthinkIsawahairbrushbackthere · 07/09/2021 22:25

That must be so hard. And for her to think the fourteen days starts every day. She must be so scared. I think you are doing an amazing job in supporting her even though it is so stressful for you.

countrygirl99 · 08/09/2021 06:13

DB has put it on her calendar last week and crosses off the days but she forgets it's on the calendar or gets confused and thinks that's when he is coming home or going to the care home from hospital, even though it clearly says what it is. I'vehad the same with reminders I have put on the calendar/ fridge notes. When dad was in hospital before she couldn't remember what was wrong or what they were doing so I wrote it down, showed her and stuck it to the fridge. Next day I found she had ignored the note because she didn't know what it was.

Knotaknitter · 08/09/2021 08:09

I ended up with a sheet of A3 paper taped to the living room door, letters in marker pen big enough to read without glasses and visible from the whole room. Notes needed to start with her name otherwise they were written for someone else. It is hard struggling to find something that works but it's worth trying because it reassures them and makes your life easier.

notaflyingmonkey · 08/09/2021 08:13

It's the cognitive part of the brain- when I ask DM to write a shopping list and give her a notebook she writes the same thing over and over. Each line says 'toilet paper', and despite the fact she can see that she's already written that 10 times, she will write it another 10. It's like the scene from The Shining.

And yet - she can knock out a crossword in no time at all.

The brain is a strange and complex thing.

countrygirl99 · 08/09/2021 09:06

The brain is very complex isn't it. Mum can remember that dad has been moved. What she can't remember is that dad has been moved from the hospital to the care home. Because she can't remember which way round it is she panics and then it's "I don't know where he is and nobody will tell me". Last night DB messaged me to warn me as he'd just come away from spending half an hour explaining where dad is, when she can see him, showing her the calendar again etc. I left it 15 minutes and phoned her and it was back to square one.

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