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Elderly parents

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Need some help. Visiting my elderly father is excrutiating.

475 replies

needsomehelpwiththisone · 14/10/2018 17:17

I've done a new account for this post but I've been here for a long time.

I am desperate for some advice about visiting my elderly father, because I feel like the world's biggest bitch and I don't know what to do.

Background: We have nothing in common. We did not get on well when I was growing up. I am an only child (relevant). My mother is dead (also relevant).

A few years ago, dad, by then in his mid 80s (now late 80s) moved into sheltered accommodation about a half hour drive from me having previously lived seven hours away at the other end of the country. There was really no other option as due to my own poor health I could not make the visit to see him any more and he was all alone and beginnig to struggle on his own. Until the point where he moved, we saw each other once a year, perhaps twice at the very most - I would go "home" to visit for a couple of days at a time and we'd both be climbing the walls after a day. Visits were only ever two days at the most. My father is very insular. Conversations consisted of "Do you watch this television programme?" and nothing more. He was never interested in anything I had to say, so I didn't bother to tell him what was going on in my life. It was painful.

Now he lives near me and is older and still on his own, I am expected to visit once a week. In principle I agree with this, he's on his own after all and I'm his only living relative. But I find the visits absolutely excrutiating and I'm beginning to put off going. We are not close, and we have nothing to talk about. He doesn't listen to anything I have to say, so there's no point telling him anything. I arrive, I take him to the shop, but this only takes half an hour at the most, and then I don't know what to do. We sit there in silence. He doesn't do anything except watch television, so I can't ask him about his day. He's also very deaf, so conversation is almost impossible, even if he was interested in anything I had to say.

He also insists on phoning me twice a day just to "hear my voice" (he can make out my voice on the phone, apparently, but nobody else's). I understand why, he's very lonely, but I don't know what to say to him then either and vice versa. I have no clue how to relate to him at all and never have done. Our relationship growing up was fractious and argumentative and unpleasant - he's mellowed with age - but there are no nice memories to sit and talk about. I sometimes take him out for lunch, but again, conversation is so difficult that we sit and eat lunch in the pub in silence and then I take him home again.

Please, what can I do to make these visits more bearable for both of us? Not going is not an option, since he will call me and beg me to go if I don't. I dread going. I put it off for as long as humanly possible. And I feel terrible.

OP posts:
Janel85 · 16/10/2018 23:42

Does he physically dial your number then? If so could you not change it in his phone book or tell him you’ve changed your number. I know that a different phone wouldn’t stop him actually calling but if you could turn it off and on when you wanted it would give you a little bit of control back, yes you would still see the missed calls when you turned it back on but you don’t have to turn it on until you feel ready to.

needsomehelpwiththisone · 16/10/2018 23:58

Yes, hes got a sticker on the phone with the number on it and he presses the buttons to dial. He wouldn't be able to work a phone with a phonebook, he wouldn't understand it.

It's seeing all the missed calls that stresses me out so much. It's like being stalked. I mean, even with my current phone I can set the ringer to silent but when I pick it up and see how many times he's called I get the adrenaline rush and the red mist. I can't bear it. I don't know that a new phone number would solve the problem if I could still see how much he was calling me.

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needsomehelpwiththisone · 16/10/2018 23:59

Unless I could find a type of phone that didn't show missed calls. I've got an iphone at the moment and it does.

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simplepimple · 17/10/2018 08:16

Only you can decide whether or not to stress about the number of missed calls.

Perhaps it might be an opportunity to learn to let go of some stress. Have a think about why the amount of calls gets to you - does it affect you more in relation to a higher number. I know it's not going to happen as your Dads pattern is to keep calling but would you feel any different if it was only one missed call? Is this reminding you of something else from the past?

Would you consider looking at EFT techniques on youtube to help you deal with all the emotion that is coming up? It sounds like you really are at the end of your tether and need a good break - when was the last time you had a break?

Be very gentle and kind to yourself whilst you explore all the options available to you op. Flowers

IrmaFayLear · 17/10/2018 09:49

My mum had one of those phones and I programmed in everyone's number, eg no. 1 Irma, no. 2 Joan, no. 3 Jim etc etc. So only needing to press 1 to reach me.

Your df is not stalking you, he has early dementia. He won't remember yesterday's million calls, or care. He has a one-track mind and that is to reach you. There is no point in telling him not to call - he won't remember.

You have to be the one in control and the way to do that is to ignore the calls and to pick up once a day. Shouting at him won't help either of you - it's not stopping him and you are getting more and more worked up about it.

needsomehelpwiththisone · 17/10/2018 11:47

He does remember the calls. He knows he is calling repeatedly. He thinks it's acceptable behaviour. We've had the conversation. He does not see anything wrong with the behaviour. And he does not have a dementia diagnosis.

Why am I getting stressed? Wouldn't you be stressed if it felt like someone just WOULD NOT LEAVE YOU ALONE?

People aren't listening. Again. HE IS NOT FORGETTING THAT HE'S PHONED.

OP posts:
needsomehelpwiththisone · 17/10/2018 11:48

I'm sick to fucking death of it. I'm sick of his fucking obsessive behaviour. I'm sick of his fucking "anxiety". He's ALWAYS been like this. I've bloody well had enough of it.

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needsomehelpwiththisone · 17/10/2018 11:49

He knows he has "anxiety", but refuses to do anything about it. He knows he is calling repeatedly. He says as much. He says it's the only way he can alleviate his anxiety, and that he has nothing else to do all day but "sit on my bed and worry about you, so I have to keep phoning you". I'm sick to bloody death of it.

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SassitudeandSparkle · 17/10/2018 12:08

OP, you sound extremely stressed and anxious yourself so you really need to speak to someone about some help for yourself. You can only change your reaction, not his. You are only increasing the stress on yourself by setting up unrealistic expectations of his behaviour (stopping the calls).

GoldenMcOldie · 17/10/2018 12:15

I think the time has come for a higher level of care. A facility where laundry and personal hygiene are adequately monitored and facilitated. More importantly a place where his mental wellbeing (dementia or otherwise) will be continually assessed, diagnostic criteria applied and an appropriate plan (medically or psychologically therapeutic) is put in place.

Your dad is obviously struggling. You are clearly doing your best but also struggling.

Record the times/calls for two weeks and use this as a starting point.

JuliaJaynes9 · 17/10/2018 12:15

OP, this sounds absolutely terrible and very very hard to deal with I'm so sorry for you.

needsomehelpwiththisone · 17/10/2018 12:27

I've spoken to him about moving into a home and he won't do it.

Plus, who would move him? Who would pack all his stuff up and lift and carry and sort his room out? I can't do it because of my health conditions, and there's nobody else. There is no other family, no friends, nobody to help him, and he wouldn't allow it anyway.

His laundry and personal care is already monitored where he is, he has carers come in once a day to do it, but he refuses their help. They tell him he needs to change his clothes and have his bedding washed. He sends them away. He gets distressed and agitated and tells them to leave. I don't know how many times I have to say this. Moving him to a care home would not solve anything - there's already someone on hand to do this stuff for him and he will not allow it. Nobody can force him, they''re not allowed to force him to have this stuff done.

OP posts:
needsomehelpwiththisone · 17/10/2018 12:30

Also, you're making it sound like I'm not taking him to get tested for dementia and that he needs to be in a home that can do that. I HAVE DONE THIS. I've said this about twenty times. We've been to the memory clinic, he's had the assessments with the memory nurse (I was there, I saw it happen), he's been to the hospital for his brain scan two weeks ago, and now he's waiting for the diagnosis appointment with the doctor at the memory clinic. Why aren't people actually reading what I'm saying? Do you think I'm just leaving him to rot in his room and not taking care of this stuff?!

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MintyT · 17/10/2018 12:40

I wish I knew what to do to help you, I'm so sorry this is your life for now, and I know your doing your best but he is controlling you, which you know. But anyway I am thinking of you and hope you find a solution x

SnuggyBuggy · 17/10/2018 12:45

All you can do is say no and refuse to engage with his behaviour

JuliaJaynes9 · 17/10/2018 12:46

Your dad really does have you over a barrel, this is a totally shit situation, you really are between a rock and a hard place and I'm not sure what to suggest
What do you see as your options, what will happen if you continue with the current trajectory?

JuliaJaynes9 · 17/10/2018 12:49

Seems to me that one thing that is missing is some real life support from someone who is on your side
you're very alone with this, there is no one to share the emotional load with you

needsomehelpwiththisone · 17/10/2018 12:57

Well no, there's nobody, I am an only child and Dad has no relatives.

I have just emailed the care agency and told them that I insist on these jobs being done. That the carers need to stay long enough to put a wash on and return it to his room. That they need to make sure he is showering (he smells of pee, so obviously isn't). I don't know what the hell they're being paid for, currently they just call on him, prompt his medication and leave because he refuses to let them do anything else. If they can't insist under his current care plan then they need to get a new one in place because I'm sick to bloody death of it not being sorted out. They will probably just come back to me and say "he has capacity, we can't insist" like they always do but what the bloody hell are they being paid for if that's the case?

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needsomehelpwiththisone · 17/10/2018 12:58

What do I see as my options? I have none. There aren't any. I can't see a way out. Cutting him off is impossible, that would be unbearably cruel.

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Tawdrylocalbrouhaha · 17/10/2018 13:18

I think you've done the right thing emailing the care agency, OP. I understand their difficulty, but if they are unable to provide the care he needs, they need to say so rather than going through the motions so that it appears he is being cared for.

Hope it focuses their mind on ways to manage him better.

Fortysix · 17/10/2018 13:18

To escalate help for him and you why don't you raid your savings, pack a bag and leave town tomorrow for a least a week and taking a new SIM card for your mobile.

Tell his assisted care warden that you will be absent until the 25th, 28th or whatever... Tell his social worker as well

Go off grid for a week, Get yourself on a train if that is less stressful and book a trip to York, Edinburgh, Bath etc and let it unfold without you.
You need a change of scene fast.
He needs this pattern to break.

needsomehelpwiththisone · 17/10/2018 13:25

I wish I could. I have a full schedule of students, and if I were to be off grid for a week he would go absolutely insane. Seriously, the man phones thirty seven times in a row if he can't get hold of me for one morning.

Breaking the cycle does not work with him. Neither does "not giving into it so he learns not to do it if there's no response". Believe me, I've tried.

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AlmaGeddon · 17/10/2018 13:34

He needs to be in a home so he can ring his buzzer 30 times a day and they will come running eventually .
The only consolation is that this isn't forever. I'm not sure of the law regarding people refusing help. The Human Rights Laws mean they can stay dirty if they choose to I think.
www.tcsw.org.uk/social-workers-and-the-mental-capacity-act-2005/

What happens ime is that the elderly person has a fall leaving them unable to get about. Then they have to go into a care home.

zippey · 17/10/2018 13:38

Have you thought about the following? Apologies if mentioned already.
Trip to cinema, art gallery, zoo, tea outside, local park
Ask to write his memoirs. Get a tape recorder and ask him to go over his life and people he knew
Insist on turning the tv on when you go over
Listen to music, maybe ring some old tunes together or separately

needsomehelpwiththisone · 17/10/2018 13:39

He's got a buzzer already, where he is. He doesn't need to be in a home for that. It's right by his bed. He doesn't use it.

He doesn't want "them" to come running. He wants to be in touch with me. His obsession is with me. It's "I get so anxious if I can't get hold of you".

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