Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

Elderly parents

Responsibility for Elderly Parents? Support thread right here!

997 replies

Needmoresleep · 01/09/2014 09:08

Several of us are on the same journey. Some more difficult than others, some longer than others, but none easy. Feel free to share tears, rants or laughter with others who will understand.

OP posts:
whataboutbob · 16/08/2015 21:05

Hello everyone and hope things blow over CMOT and you enjoy some well deserved peace for the rest of your holiday. NMS I agree buy to let is not for the feint hearted . As you know I have at times been majorly stressed over the last couple of years managing Dad's 2 properties. Maybe those TV property progs have a lot to answer for, it seems 1/2 the nation thinks being a landlord is easy cash.
SPT what you said about your mum's behaviour being her, not just the dementia rang a few bells. Dad always could kick off and my childhood was punctuated by crushing embarrassment at his erratic and sometimes downright aggressive behaviour. Police were involved on a few occasions. Accompanying your Dad to the cop shop is no fun when you're 13. Lately he managed to get himself banned form the barbers, for using profanities in the presence of a child. H e has also been banned from the hairdressers he used to call in on the way home, for kicking off when a new member of staff stopped him from helping himself to a bowl of peroxide (to drink it). Sadly she said she'd resign if he came in a gain. One silver lining to dementia is we are no longer in police being called territory, or if they are, they know he has dementia and don't entertain any ideas of detaining him.
My bigger issue at present is with my brother, I'm afraid I let rip and about 5 years worth of frustrations at supporting him and Dad (and at bro's odd behaviour) came out after I burned myself with a pan of boiling water and told him I would t be staying for dinner during my last visit. I more or less character assassinated him in an angry tirade which predictably made him very angry. We haven't been in touch since. It's Dad's birthday on Wed but I'm not going to go, I want a clean 2 week's' annual leave and no visits home for the 1st time in years. I'll work at building bridges later. Ho hum.

Needmoresleep · 17/08/2015 01:33

CMOT and SPT However hard it is, your oldies have got what they want, whether Thailand, Spain or staying at home. And it probably would not have been easier anywhere else. Given your in laws inability to agree perhaps the neighbour was not such a bad choice, though the email suggests she is encouraging visits. It can't be easy for her either.

Bob. Yes my mother was never going to be sweet old lady. Oddly the dementia has helped me come to terms with some things in my past, and perhaps allow the children to understand where I came from. The break sounds a good idea. Actually letting rip is not always such a bad idea either. Yes your brother has problems but presumably some capacity to take responsibility. And along with your parents poor medical management of his condition I assume there was a tendency to let him off the hook in terms of personal development. Letting rip also tells you something about where your stress points are and what is too much.

Two weeks won't be enough given what you've been through. Once things became stable I sort of absented myself for about six months, and indeed am so pleased that she now has a carer who has the measure of her. (The carer was away the first week I was away and my mother stopped getting out of bed.) she's back now and so no phone calls! We are in the middle of our first and last (DS is 19) long haul family holiday. It is fab. (Google Tanjung Aru and be envious.. Doubly nice for me as I am returning to somewhere I used to live so a chance to catch up with friends plus again show the children that I used to be more than just 'mum'.)

The BTL seems to be a first world problem, and I felt a bit guilty about moaning. However when I took (with a boiler and washing machine which were 25 years old) over, the agents told me unmaintained rental properties owned by the elderly were a significant problem. Even six years ago my mother was not able to work out how to sign a contract and I used to have to drive 300 miles to get a signature in the right place. At this point DB was claiming she was fully capable of managing on her own. Even now I think it suits him to think property is simply another form of pension and hassle free. Problem is that if you put in the work, returns are a lot better than simply putting the money in the bank. So though if these were my own assets I could make a decision to simply sell, they are not and as Attorney I am legally required to manage investments actively. And indeed am potentially liable should I make any financially poor investment decisions without explicit agreement of other beneficiaries. DB does not want to discuss but instead expects me to run decisions past a Financial Adviser who I assume will need to focus on monetary returns, as the potential liability is then passed to them, rather than on my desire to have an easier life. At some point when my mothers dementia has progressed to the point where there are no further meaningful care decisions to be made, I might dump the lot with OPG and run!

OP posts:
whataboutbob · 17/08/2015 11:13

It looks nice NMS, but not as nice as the Yorkshire Dales (insert green emoticon).
You are right about my brother, I know I am going to "inherit" him to a certain extent and i am not chuffed about it. My Dad brushed his mental health problems under the carpet, simply could not accept he had a son with a defect (which held up a mirror to his own fears, he had a breakdown in his 20s) and instead of taking what would I believe have been a productive approach of getting diagnosis and mental health care involvement, just kept repeating the mantra "there's nothing wrong with him, he needs to go to church/ back to university" (Dad's 2 therapies).
re BTL, I have to admit it has been a good and steady income to pay for a portion of Dad's care that's why I have held on to up till now it rather than selling, but it's been a tough learning curve as I am an accidental landlady. Am bracing myself for this year's intake of students, we have issues every year (boiler/ damp/ burst pipes/ threats to withold rent so far). Let's see what this year brings. I have joined the RLA which I have already found quite helpful. And thanks too for all your good advice
The OPG is always an option, I have thought about it too. I like to think it would give our respective siblings some perspective if we just walked away from managing everything. Personally, I find it a nice fantasy to fall asleep to, but maybe I'm just bitter and twisted!

SugarPlumTree · 17/08/2015 14:19

That must have been tough a a child Bob. My Mother was far more subtle about things and had a tendency to bugger off all summer. I didn't realise a lot of her abnormal behaviour until recently as just accepted it. A friend said how she had always been toxic and it was a bit of a lightbulb moment seeing it through someone's eyes.

Really I'm surprised you haven't exploded at your Brother before now. Definitely think a break is a good thing then deal with it all when you're ready Flowers

Can definitely see how the OPG is a good fantasy to fall asleep to. You don't really realise what you're signing up to at the start, just really want to get POA before it's too late , then reality gradually hits.

I think the neighbour has done really well by the sound of it, SIL said he has fantastic care and I am getting a sense of more family unity which I think DH finds comforting.

Lovely you're having a family holiday NMS, have googled, looks lovely. I'm staying in the UK next summers, had enough of Europe and want to do some more local exploring, somewhere with no mosquitos Hugely relieved we made it through the Belgium motorways in one piece, the driving was appalling this year. Arrived home to a letter from my Aunt inviting us to Germany which is very kind but can't face it at the moment, need to get Spain over with.

CMOTDibbler · 17/08/2015 17:14

I don't think anyone could blame you for letting rip at all Bob. Dads mum had very significant mental health issues all her life (was in and out of hospital, sometimes in there for years), and she was a master manipulator in addition.

Mum is no better, and has gone to a localish hospital for assessment today as her GP practice can't get out to them, and she needed blood tests etc. No beds at that hospital though, so if she needs to stay in then they will have to transfer her.

DH, ds and I have cleared ds's room to start decorating it, been for a run in the woods (me) while dh and ds walked the dogs there, had lunch in the sun at a cafe, put a picnic table together and are about to have a bbq dinner.

SugarPlumTree · 17/08/2015 19:28

Sorry to hear that CMOT. That's good that you've managed to do a few nice bits and pieces together. I bet DS is excited about his room. Why though do these things always happen just as the people that need it the most are about to get a well deserved break.

DH's phone gone a couple of times this evening , back to no food and just little sips of water. He is going to die Wednesday night or Thursday morning just as GCSE result nerves at their highest, can feel it in my bones. I woke this morning with a strong sense of impending doom and had to remind myself this is probably quite normal when your FIL is about to pop his clogs and your daughter is perilously close to not getting enough GCSE's.

Poor DH is doing so well, I just want to make it all better for him and of course I can't. You'll all think we're nuts but week before last when the nurses thought he was going to go we found out later, something a bit strange happened. DH and I were in the kitchen and he suddenly said he could smell matches. I suddenly got a waft of it too. No idea where it came from, we checked out all possibilities, never had it before.

CMOTDibbler · 18/08/2015 09:21

Any more news SPT?

Mum spent the afternoon/evening at the medical assessment unit (it turns out its for people who need more input than their GP, but keeping them in the community), after an hour of trying they got a cannula in, took blood, gave her a litre of saline as she was so dehydrated, did x rays, urine tests and then sent them home to be recollected by ambulance at 10.30 this morning for them both to spend the day there today.

The IL team have continued to be great. Dad now has podiatry appointments again, a physio appt this week to sort out mobility aids, the OT is coming back this week, and their medication has been changed and dad is more comfy. His ulcer hasn't healed yet though.

Their carer is coming twice a day for the forseeable now, which is an acheivement.

SugarPlumTree · 18/08/2015 13:24

All quiet as far as I know so far CMOT, I jump when the phone goes though.

That does sound like a good system where they live, fingers crossed the investigations will shed some light on what's going on. How is your Dad bearing up?

bigTillyMint · 18/08/2015 13:34

Oh SPT what a roller coaster and what bad timing.

CMOT, that sounds positive. How's the decorating going?

CMOTDibbler · 18/08/2015 13:54

Well, we've filled a skip this morning with a big clearout of stuff, and this afternoon I get to start sanding down in ds's room.

Dad isn't doing very well as as his anxiety goes up, so does his breathlessness. But at least the two of them are safe and looked after today

bigTillyMint · 18/08/2015 17:17

Wow, a skip! Rather you than me sanding down - I hate that job.

It's good to know that they are being looked after - it does sound like a good system.

CMOTDibbler · 18/08/2015 17:21

So, the verdict is that theres nothing physically wrong to explain this, and this afternoon she started to pick up. Dad is in a huff because 'he got told off' for calling people out. When the team leader is back, I'll ask him if they can write a care plan out for dad as to who is appropriate to call when, as he doesn't listen to me.

whataboutbob · 18/08/2015 19:48

Thanks for your words of support everyone. A lot of the time i cruise along looking for ways to be supportive of my brother and skirt around the multitude of topics one is not allowed to broach with him (such as - ever considered looking for work/ going for therapy/ washing more often/ not adding butter on your roast potatoes/ being polite to Dad's carers/ chucking out that stuff in the fridge that's 1 month past the best before date/ doing a spot of tidying). It is trying, painstaking work, the effort can be weighed in kilos and the rewards in grams. A few months ago I told him I had taken 2 days out to come to his town and sort out his bank issues (he'd be utterly incapable of doing so himself) and that what hurt was that i knew he wouldn t even say thank you. He looked shocked, assured me he was grateful and then ,made a point of saying thank you subsequently. So there can be progress, it is just so slow and the efforts are so large.
Anyway just heard form the carers who are not practical geniuses that Dad needs a mattress protector. Duh, he has one, it's in his house but they just couldn t spot it. Bro actually got off his backside and found it when I phoned him to ask him to. I know i have to work at the relationship and it's in my, his and Dad's interests, but boy it's hard work.
CMOT good to hear the team took charge of the situation and gave your mum some appropriate care. It must be trying to be the butt of your dad's grumpiness, but I guess you have to grit your teeth and let him vent.
SPT thanks again for your supportive words and i hope the next few days are peaceful.

SugarPlumTree · 19/08/2015 07:34

Really pleased she's picking up CMOT and hope you can enjoy the rest of your holiday. That's a good idea about the care plan for your Dad and very encouraging that the whole thing was dealt with without you needing to go.

Bob can imagine how hard work it is. Good though that progress does get made but can imagine the amount of teeth gritting.

Quiet here though pre-contract for fIL's flat sale was signed yesterday which is a relief as thought it woukd sit around for ages and sad as poor man not gone yet. Not really sure how it has all come about but it has. Please let him keep going for another 48 hours.

bigTillyMint · 19/08/2015 07:49

Bob, that must be hard, dealing with your brother as well as your Dad. Does he do anything for him off his own initiative?

whataboutbob · 19/08/2015 09:19

thanks BTM. he does cook for Dad and I think also helps him to bed. Lately he told me Dad is getting up at night more often and he re -settles him. He is very keen for Dad to stay at home partly because he feels he'd be abandoned (by statutory services, me) if Dad wasn t there anymore. I've tried to reassure him that wouldn t be the case. I'm hoping that with some mentoring from me (but not a caring role which I would refuse to take on), he'll be able to live independently when Dad's no longer there.

SugarPlumTree · 19/08/2015 10:25

Bob is there a local charity who could act as a sort of Mentor/Advocate for your Brother maybe ? He has his own needs and there should really somewhere be someone to support him I feel.

bigTillyMint · 19/08/2015 10:39

Oh dear bob - "care in the community" leaves a lot to be desired - I know from my friends experience.

thesandwich · 19/08/2015 20:52

TT reincarnated!! this hacker lark has addled my brain. Hello to all-
SPT been thinking of you-hope you have not had more worrying calls and that you and dd are coping-fingers crossed for tomorrow. There is light beyond-whatever happens.
CMOT I hope you have had some fun skip-filling and that you get some sunshine in Wales
Bob I hope your DB continues to take a bit more on and that you get a break too.
NMS hope things are ok for you too-and a wave to Tilly.
Working here on planning for Yr14-reimaginingSmile

SugarPlumTree · 20/08/2015 17:37

Well have made it through GCSE results without news from Spain. DD just got what she needed to get into 6th form including an A in Japanese which I'm very proud of her for achieving. She'll have to resit Maths but they are letting her do it without dropping a subject which I think is an ambitious workload for her and will closely monitor.

The coming off Galantamine has gone very wrong and CH are in crisis with her without my Brother there. He mentioned the possibility of looking for somewhere back over here which I squashed firmly.

CMOT have you heard anything today and how is your DS's room going ?

CMOTDibbler · 20/08/2015 18:22

Oh, I'm so glad your dd can go forward to 6th form SPT. A in Japanese is very impressive!

I spoke to my parents carer today - she's going to go twice a day now, and is organising more cleaning. Also she's going to take mum to the day centre and see if that settles her in, so dad has a break regularly. Mum is still needing a lot of persuasion to eat/drink, but has accepted the spouted cups and is doing better with those.

Mum has a speech and language therapist coming next week to look at her swallow as the ILT were concerned about that. She only eats soft, wet food now anyway.

Ds's room looks lovely. I keep thinking the light must be on in there as the colour is so light as you go up the stairs. Just the gloss work to do now

SugarPlumTree · 20/08/2015 18:36

Thank you CMOT. She got very anxious and threw up a lot during the exams so she hasn't got many, but just enough to get her onto the courses she wants to do - mostly coursework which will suit her better. I will sleep well tonight.

That sounds pretty encouraging, a break for your Dad and more joined up thinking happening. Really glad you've not had to go running up and have been able to spend time witn DS - bet he's very excited about his new room Smile

bigTillyMint · 20/08/2015 20:29

SPT I'm right behind you on squashing your brothers idea. What is he like?

CMOT, it sounds like a really good plan for your dad to get a bit of respite - it sounds like he really has his hands full. Well done on the decorating!

Mini-drama here last night/this morning (just what you want on GCSE-eve!) as DM locked her front door the night before then couldn't find the keys. All complicated by not being able to understand what she was trying to say and the Panic Alarm people (council has changed providersHmm) saying the wrong keys were in the key box... Then she rang before 8 this morning to say she had found the keys! All would have been easy to sort if I lived nearby, but a bit of a kerfuffle with phone calls from here!

Hope you're relaxing with a Wine SPT - just waiting for DS and DH to get back from footy training to crack open the fizz!

SugarPlumTree · 21/08/2015 09:10

Hope you enjoyed the fizz last night BTM, we chilled out with takeaway and scrubs snd I retrieved the Baileys from depths of fridge.

What a nightmare with your Mum at an already really stressful time. Very hard doing it from a distance.

Spike to my Brother this morning and he does know she can't come back, think he was just feeling a bit desperate. She's going over to the Dementia Home on Monday to meet the guy abd hopefully he will accept her when they have space. At that point my Brother will be able to step back.

Think she's had another TIA which has sent her off the deep end again. She's creating havoc - tied the emergency alarm cord to her walker, pulled it tight to set the alarm off and refused to let anyone touch it to turn it off so they had alarms going off all over the place . Quite clever really and so glad I'm not having to deal with it !

DH had a text from his sister, she spoke to FIL and he was more with it.

thesandwich · 23/08/2015 17:52

Hello all TT in disguise hope no posts mean things are calmer for you all BTM,SPT post results and CMOT you are enjoying a holiday.

Swipe left for the next trending thread