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Original poster

Diabetes chat - general

455 replies

Oblomov · 29/07/2014 20:30

wow. new topic. cool.
I am a type 1, since aged 1, so 40 years. I have had a pump for the last 10.
Any questions, please ask. I am ALWAYS Happy to help.

OP posts:
Threesoundslikealot · 04/08/2015 01:15

Hello, everyone. Could I ask for opinions? I had borderline GD with my last but one pregnancy. Scared me stupid and I went on a low carb no sugar diet and lost quite a bit of weight. Hba1c a year ago was 5.1. Then I got pregnant again, and self-monitored, and my sugars seemed much better. Only a couple of out of whack readings when I really pushed it! I have my annual Hba1c tomorrow morning and self-tested tonight out of interest, finding to my horror that it was 7.2 three hours after eating. I was out tonight and had tarte tatin for pudding, so obviously a dreadful option, but even so... Am I in for a nasty surprise with my hba1c? My FBG was 5.3 last week, so on the high side. My baby is almost three months old now and this is the first time I've tested since. I'm feeling very worried tonight.

Hexiegone · 04/08/2015 09:48

Sorry Three I don't have any words of wisdom, just wanted to hold your hand while you're stressing and hope you get good results for your test today. Sounds like you've done all the right things and hopefully they'll pay off.

The HBa1c is a more long term reading, as you probably know, so one reading of 7.2 isn't going to alter it terribly much if you've been lower most of the time. I know it's easy for me to say but try not to worry and let us know how you get on Flowers

SpottyTeacakes · 15/08/2015 08:02

Eugh 2.9 and my tester says to eat 28g of carbs?! Seems a bit extreme...

paddyclampo · 15/08/2015 12:23

How are you doing Spotty?

SpottyTeacakes · 15/08/2015 12:25

Good thanks. Still no rhyme or reason to things sometimes. I think I need to up my basal on the days I work as the stress seems to push my levels up. Worth a try anyway. I'm also still awful for over estimating my dinner to avoid going high Hmm

paddyclampitt · 20/08/2015 23:47

I'm pretty stable at the minute, maybe cos it's the summer! Didn't use the Freestyle Libre while I was on holiday as the sensor would have been on show but am going to go back to it now I'm back I think!

SpottyTeacakes · 21/08/2015 06:58

I went swimming for the first time with my pump the other day. Was annoying as can only be disconnected for an hour Hmm

paddyclampitt · 22/08/2015 18:32

I never really thought about that with the pump. Do you remove the cannula too?

SpottyTeacakes · 22/08/2015 19:13

No you leave it in but put a clip on the end to plug it Smile

paddyclampitt · 22/08/2015 23:58

Do people stare / ask what it is? A few people did with the Libre, admittedly only people who knew me! :)

SpottyTeacakes · 23/08/2015 06:48

Nope no one asked. Sometimes when I'm at work it will start beeping and vibrating though which is annoying as I have to excuse myself to turn it off. Otherwise when I'm dressed you can't see it.

BelindaBagwash · 22/09/2015 20:16

DS (21) just diagnosed with Type 1. Quite scared of needles, so very apprehensive about injecting himself.

Is the pump easy to use and is it suitable for everyone?

Thanks

paddyclampitt · 24/09/2015 23:20

I don't know how soon after diagnosis they give the pump out, because of the honeymoon period causing a lot of fluctuations in levels.

He will get used to the injecting. I can't remember a lot about being diagnosed but it really doesn't bother me now at all!

Was he very poorly at diagnosis?

BelindaBagwash · 28/09/2015 17:15

No - he wasn't poorly at all - just a raging thirst. Still struggling to get levels stabilised before he can start carb counting. We have very good diabetic specialist nurse (who is Type 1 herself) and she explains everything really well.

As a result everything is making more sense

SpottyTeacakes · 13/10/2015 18:08

.

SpottyTeacakes · 13/10/2015 18:46

I would be surprised if he gets a pump in the next year. Children tend to get them automatically but NICE guidelines are strict on adults and (IIRC) actually advise that they're removed once the patient is 18 Shock

I find the pump amazing but it's certainly not easy, there's a lot of testing and calculating etc.

It will be hard to start with but he will get there and you sound very supportive which is great.

paddyclampitt · 19/10/2015 23:09

Funny you should mention the pump Spotty as I have got the opportunity to change hospitals :) Not sure what to do yet though!

Had my flu jab today and my arm is SO painful. Why does it hurt so much more than an insulin shot?!?!?!

SpottyTeacakes · 20/10/2015 05:46

Paddy do it!! My flu jab didn't hurt but I had it done at work by the top nurse Wink

2TWINSmum · 10/11/2015 22:42

Hi everyone, my 12 yo just diagnosed T1 we've been home 2 days I'm heartbroken and terrified.
the consultant said he can't be left alone, I have no idea how to plan the future, and how to work. I've googled for childminders who understand T1 but nothing. Doesn't seem to be any support out there..I'm a single parent with twins, mum lives abroad. Anyone have any tips on childcare after school and Saturdays? Many thanks

WicksEnd · 10/11/2015 22:49

Gosh that's tough, I've no advice re childcare I'm afraid, but I'd get in touch with your HR dept and ask for some special leave. Would that be a possibility? Or a temporary change in hours until things are more stable?
My employers were very good when I was diagnosed with type1 earlier this year but I know not all employers are.
I'd register on the diabetesUK forum. There is a whole section for parents and I'm sure you'll get plenty of advice, not just about the work side of things. I'll come back with a link in a mo.

WicksEnd · 10/11/2015 22:50

Here you go:
www.diabetes.co.uk/forum/

LinzerTorte · 11/11/2015 08:37

Hi 2TWINSmum, my 13 yo DD was diagnosed in April so I have some idea of what you're going through (we live abroad and have no family support). Not sure about childminders/childcare as we're not in the UK, but if you're on Facebook the CWD UK group might be a good place to ask for advice.

2TWINSmum · 11/11/2015 08:51

Thank you WicksEnd and LinzerTorte for reading I hope you get this reply as I hav'nt used mumsnet before. I'm self employed I have a vintage furniture shop, but now I can't go to 6 am markets buying, or be in the shop Saturday. I can't employ anyone yet so the only way is childminder or fold.

LinzerTorte · 11/11/2015 09:28

Are you using any childcare now or do you leave him alone while you're at work?

I can imagine it must be hard as it's such early days, but I would think your DS is at an age - or soon will be - where he can take more responsibility for his diabetes management than a younger child would be able to.

That's not to say you can leave him alone (although I now have no qualms about leaving DD for an hour or so), but as long as you have an understanding childminder and can leave a care plan for your DS with the CM - what to do if his blood sugar is low/high, etc. - then it should be doable once you've settled into more of a routine with the diabetes (if diabetes is ever "routine").

SconeForAStroll · 11/11/2015 10:56

I never even knew this thread existed!

Hello, I have a type 1 DS - diagnosed just about 15 months ago (on his 9th birthday). He had been very ill, despite 5 trips to the gp it took a trip to ooh when his breathing had worsened to get a diagnosis. The consultant said that they hadn't had a child that poorly for more than 6 years.

Anyway, he's coping really well. Injects himself, and tests himself, and has fairly good control (although losing hypo awareness until he gets to about 3). I am hoping he might be able to get a pump soon.

Ha last hba1c was 47.

I hadnt heard of the sibling testing before, or the sensor thing..I am going to have lots to catch up on!