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Dementia and Alzheimer's

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My dad is dying, sit with me?

115 replies

SheSnapsThenSheFarts · 06/06/2019 19:52

Just that really, had another stroke, end of life care plan in place. Got him transferred back from hospital to the nursing home where his pain is being managed and he's comfortable.
He's fighting this every step of the way but is slowly deteriorating.

I'm here on vigil all night so I'd appreciate some company....

OP posts:
MummaD209 · 06/06/2019 19:54

So very sorry to hear this. X

kalinkafoxtrot45 · 06/06/2019 19:54

Handhold here. X

sincethereis · 06/06/2019 19:55
Flowers
MythicalBiologicalFennel · 06/06/2019 19:55

How sad Flowers Bumping for you.

My grandad died of dementia 10 weeks ago. He lived 1000 of miles away and I couldn't be there during his last hours. Hope you being there is giving your dad some comfort.

littlecabbage · 06/06/2019 19:56

So sorry OP. How are you feeling?

Girlies1019 · 06/06/2019 19:56

So sorry to hear about your dad.. I have worked in many nursing homes and the best most amazing thing for those at the end of their life is of course being comfortable but as well there is nothing like the comfort of family..

Newmumma83 · 06/06/2019 19:57

Ah so sorry your dad is coming to the end.
He is lucky to have such a caring daughter and I am sure he can sense your closeness
I can’t fully understand what you are feeling as this is your dad, I was there when my grandad passed much like you keeping an eye on him (we all did as a family but I had the privilege to be there with two cousins when he passed ) it went very peaceful all of a sudden in the room I remember that x

It’s hard though to be there and to watch and it must be awful to be on your own.

They say the hearing is the last thing to go, so say all you can think of , and failing that perhaps read aloud.

My grandad was meant to die almost instantly by expectation when he came off his breathing mask ... he lasted 3 days ... so be kind you may need to go home to sleep on occasion

How are you doing at this point? X

stucknoue · 06/06/2019 19:58

Thanks. It's so hard, will be thinking of you tonight - I'm a terrible insomniac so will look in later ... hugs

Mustbetimeforachange · 06/06/2019 20:01

Thinking of you. Had to do this recently myself. Be warned, it can go on much longer than you expected. I sat with my dad for 3 nights & he passed when I was catching a few minutes sleep in a room the care home had made up for me. Keep talking to him. I played music as well.

I hope he goes peacefully.

WhoKnewBeefStew · 06/06/2019 20:01

Thanks have just gone through this with my Mum. I used to read to her, no idea if she understood but it kept me sane for a while.

So sorry OP

Hotpinkangel19 · 06/06/2019 20:01

Hand holding OP - I was in this situation 2 years ago with my mum after her stroke. Are you on your own? X

EAIOU · 06/06/2019 20:01

Here for a hand hold.

MrsMozartMkII · 06/06/2019 20:01

I'm so sorry lass.

A handhold from me. I'll be on and off here tonight. Will check in.

Flowers
FairyBatman · 06/06/2019 20:02

I have been where you are and I whilst it’s never going to be the same for everyone I can understand some of what you are going through.

The thing that helped me through it was talking to him, he was unresponsive and we spent two days sitting by his bed telling funny stories, sad stories, reliving memories and reading to him.

I am convinced that he knew we were there right to the end, and he knew that we loved him.

Talk to him and keep him company on his way.

Sending you lots of love and strength Flowers

tryingtobebetterallthetime · 06/06/2019 20:05

So very sorry you are going through this. I sat with my Dad as he passed. Make sure you take care of yourself as the process is not always predictable. Keep hydrated for sure. You are a wonderful daughter. I held my Dad's hand. It was so very very hard. Thinking of you.

SheSnapsThenSheFarts · 06/06/2019 20:07

Thank you all, he had a stroke on Monday afternoon but, like the hard ass he is, is still fighting.

It's so hard. I hope the end comes soon for him and it's not too traumatic. We thought he'd passed at lunchtime today as she showed signs of agitation and his breathing really slowed. We were all talking to him and stroking his hair / holding his hand. But then he started breathing again and has done since then.

Even the manager of the nursing home was gobsmacked!

Apologies if I don't respond straight away but I truly appreciate all the support

OP posts:
CastleGin · 06/06/2019 20:08

I'm so sorry ThanksThanks

RomanyQueen · 06/06/2019 20:09

I have been where you are, my dad had cancer.
So sorry, you are such a lovely daughter and doing everything you can to keep him comfortable.
Keep talking to him if it helps you, or read him something maybe he would have enjoyed in the past.
Somebody told me that if you tell them it's ok to go now, they slip away pretty soon. It worked with my dad, although it felt horrible saying it.
Nothing can prepare you for this, however long you've known the day is coming.
Lots of hugs for you Thanks

BedraggledBlitz · 06/06/2019 20:11

Sending you lots of love and strength xxx

SammySamSam09 · 06/06/2019 20:12

I'm so sorry to hear this Flowers

SheSnapsThenSheFarts · 06/06/2019 20:13

This afternoon I told him if he wanted to go then he should, I'll look after mum and I'm a big girl so I'll be ok too. That's when he fought his way back!

He obviously decided to stay a little longer. He's been through so much over the past nine years bless him.

OP posts:
Happyandglorious · 06/06/2019 20:40

So sorry for you.
The advice I wish I had was to tell them the following (if relevant)
Thank you...
Sorry...
I forgive you...
I'll miss you and I love you
Sending strength and love to you

Torvi · 06/06/2019 20:41

Sending love and lightThanks

Newmumma83 · 06/06/2019 20:41

Your amazing he will appreciate you being there x x

KavvLar · 06/06/2019 20:42

Thinking of you OP. Hope it is peaceful.

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