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I have a situation........

77 replies

MistressoftheDarkSide · 09/01/2022 13:59

I'm going to start this by saying, predictably, I am not intending to start any sort of bunfight or controversy, so while this is a personal situation, in order to avoid any more emotional overload I am going to frame it almost as a scientific abstract, because I have questions that as yet cannot be answered officially, and I need help - neutral, fact based help please, in order to correctly frame those questions when the time is right without pissing anyone off.

On Wednesday my DP, male, 52, collapsed with a serious brain bleed. Within 6 hours he was having life saving surgery to remove a clot from the brain. He came through it and we are now waiting to see the long term outcome. I am getting updated 2/3 times a day by ringing the ward as instructed.

At hospital number 1 he tested positive for Covid - he was asymptomatic, double vaxxed and had his booster almost one week exactly prior to this happening. He had complained of a couple of headaches in that week but they responded to normal painkillers. He and I had a quiet relaxed weekend. We did not go out at New Years and had one friend who visited, just recovered from Covid and negative on LFT. He worked on Tuesday, was fine in the evening, and his collapse occurred at around 5am on Wednesday morning.

My questions about this are:

Would the test be a blood test or a swab? I ask this because when I was allowed to see him before transfer (because at that stage I was being told death was absolutely a possibility, he was in semi seizure and I can't imagine swabbing would gave been an option, even prior to intubation and sedation which happened after we were notified of his test.

If it was a blood test result, might it be residual from the Covid we had mildly around the end of August?

As a close contact, and unvaccinated (just don't go there) when I got home I did an LFT which was negative- todays test is also negative and I will continue to test and isolate of course because after 14 days they will test him again and we might be able to visit - although we have to take that under medical advisement.

Test and trace called him (hollow laugh) and if course i answered- as ut was the day after and Asymptomatic Covid is the last thing on my mind they have graciously said they wont pursue me till Tuesday but contact details are mandatory. Everyone who was a contact are aware of the situation and as yet there are no reports if positive tests. Omicron has not been mentioned.

Further questions - he was on a ventilator due to the collapse and surgery for around 36 hours, and is now on minimal oxygen support but has a mild chest infection treated with antibiotics in the last 24 hours which the doctors say is 99% due to being on the ventilator not Covid, as it hasn't affected his breathing much.

Next 48 hours are obviously crucial, but they are already talking about transfer back to our local hospital rather than staying at the specialist unit, which us very encouraging but will of course depend on many variables so I remain pragmatic, stoic and a few more inches below the ceiling than I was on Wednesday (possibly the longest scariest day if my life so far and I've had some doozies, believe me)

Other issues are confusion, agitation etc - normal in the circumstances I'm told - but he's asking for me so I believe his memory might be okish so far. His left side is paralysed, but he has speech though slurry and jumbled- this is likely to improve as various medications are reduced.

A medication given to deal with agitation caused a spike in blood pressure, obviously not ideal in the circumstances so that has been stopped and he is stable again. His drain has been removed, and he has staples (actually he's probably going to live that down the line for various reasons.....yes I know ut sounds weird but if you knew him you'd totally get it).

Disclaimers - I not a fragile nor hysterical person. Knowledge and power are my watchwords, and I can absolutely ignore anything that I recognise as unlikely or unhelpful.

I'm putting this here objectively to gather any insights from those who may have knowledge or insight or can point me to anything I've missed in my forays around google.

I appreciate every case is different and ultimately it will be his Doctirs who can give me the accurate picture, but one if the ways I process trauma is to work through as much as I can until it "levels out in my brain". Compartmentalising is my thing.

So have at it if you like. Or not. I have a great family and friends support network so am covered emotionally, but my tendency to to analyse can be a little tedious especially as I am mindful everyone around us is in shock and highly anxious too.

So in some ways I'm hoping this might be the other outlet I need in order to keep the pressure if them to a minimum.

I really don't want this to become any sort of battleground- I don't want the thread deleted but if it offends, so be it.....

Oh, the phrase used is "intracerebular haemorrhage" but none if the medics have said stroke..... yet.

Thank you in advance.

OP posts:
MistressoftheDarkSide · 16/02/2022 09:39

Just popping in to say thank you for all the kind words, they are so much appreciated Flowers

Current state of play is that I am trying to organise a funeral and have the support of so many people, it's truly beautiful and overwhelming to have my family and the wider community rallying around me both emotionally and practically.

A post mortem has been carried out - first I was told that it was unlikely this would happen at the hospital, then it was said it was because it's routine because he'd had a general anaesthetic. Results were inconclusive so further tests are being done via histopathology, which may take up to five months.

In the meantime, he can be released for burial but i'm still waiting for the funeral director and the coroner to sort that out. I am aware bureaucracy is a slow moving creature so it is what it is.

Valentines Day was very hard as it was his birthday, and it was the only day available to visit the cemetery to choose a plot.....the irony is that his profession was body piercer, so deciding on his "final hole" on his birthday did have a macabre flavour. I then went out and got royally hammered at a favourite pub with a group of friends, his best friend and another played a beautiful music set that had me a weeping, Gothic mess in public, but it was very cathartic.

Our local paper did a beautiful tribute piece to him and I'm not in the least bit worried about being "outed" on here, as I'm not exaggerating when I say thousands are aware of all of this already, and I can't really maintain anonymity.

We kept cause of passing out of the piece though - short illness sufficed as I'm not going to feed speculation on too wide a scale.

Obviously I do still have questions, but until I see the post mortem report and the histopathology report, it's pointless trying to frame them succinctly, and while I try and sort out the Gordian knot of our lives on the admin front, I am keeping this aspect of it all on the back burner.

It is interesting that a number of people who have no agenda whatsoever have uncomfortably shared anecdotes about friends and relatives who have had strokes and collapses after vaccines or boosters. Quickly followed by both of us saying that it could have been a coincidence, and moving quickly on. But there is an uneasiness around it all which I hope may be addressed at some point.

So thank you again for the good wishes and kindness. I'm raw and numb and angry and sad and bitter and miss him so much.

I feel like those poor confused dogs on the videos where their owners make themselves "vanish" ......

Good wishes to you all xxx

OP posts:
nojudgementhere · 16/02/2022 21:28

Hey, Good to hear from you again - I was wondering how you were getting on. I'm glad your family and friends have been rallying around and looking out for you. Take care Xx

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