Page 3 | Plan for people who are CEV?

Curiousmouse · 2022-01-05T16:22:17+00:00

What is it? Most of us had our boosters in September and early October. We know that protection from Omicron is significantly reduced after 10-12 weeks, from a variety of studies. The government now appears to have decided not to give fourth doses. Surely that means that the most vulnerable people are now ironically the least protected, given most others were vaccinated so much more recently. It's hard to see how we are going to avoid a deluge of CEV people hitting the hospitals. I don't feel confident at all. (Yes I realise the small number of severely immunosuppressed will get fourth doses, but that isn't the same thing).

Northsoutheastwest76 · 05/01/2022 19:09

@Abraxan DH had a mix up too with his vaccinations too. His missed the letter re a third primary dose and ended up with a booster.
At least he WFH. So much harder when you have so much exposure.

MargaretThursday · 05/01/2022 19:15

@EnjoyingTheArmoire
No walk ins around that are doing children. I asked 119 and checked online. Not many doing adult walk ins either at the moment.
I'm going to try speaking to one of the vaccine volunteers I know at the local one and see what he suggests.

So far I've tried my GP, 119, online and sent an email to the local CCG vaccination enquiry group with no success (CCG hasn't responded even).

herecomesthsun · 05/01/2022 19:16

We were told to go to a walk in for children on Saturday. I

Youmeanyouvelostyourkey · 05/01/2022 19:25

I'm immunosuppressed and have only had 2 plus the booster. No mention of the 3rd jab. I'll ask my consultant when I see her next. I do have the priority pcr test though. Currently WFH but run the risk of the kids being at school.

My DD got the jab before general for her age because of me but that was a nightmare trying to organise as GP said they couldn't do it. So I really don't understand the lists they get

girlsyearapart · 05/01/2022 19:34

Anyone with the priority pcr as soon as you get a positive result be proactive at contacting your doctor as the anti virals have to given within 5 days of symptoms and due to the bank holiday lack of communication I have missed out on getting them.

Original poster

Curiousmouse · 05/01/2022 19:36

There is confusion here about CEV and severely immunosuppressed. Both groups are vulnerable.

CEV (clinically extremely vulnerable) have had no third dose, but did have a booster. I'm in this group. I had a booster in September.

Within the CEV group , there is a further cohort who are immunosuppressed, which is an additional burden. Those people were offered a third primary dose plus now a booster.

It is the former group I am referring to-we will not get at further dose but we are more vulnerable and are likely to get quite ill . Some of us have in any case conditions which predispose us to permanent damage in the event of a covid infection.

I disagree with the poster above who says we are well catered for. We were initially. However, we now have less protection than most vaccinated people because of the passing of time since we had our boosters, whilst at the same being more vulnerable than them. How is that right or fair?

OP posts:

Original poster

Curiousmouse · 05/01/2022 19:37

@Youmeanyouvelostyourkey there is complete confusion about the difference between these two groups, even among GPs . It a mess.

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Bobholll · 05/01/2022 19:41

The data doesn’t suggest you are less protected from serious illness or death though? Just effectiveness of catching it? The booster still offers significant protection against hospitalisation?

And omicron has absoloutly filtered through to the elderly & vulnerable. A local care home here has had a massive outbreak. Not a single resident has needed hospital as yet. It’s not definitely omicron but it almost certainly will be with the rate it’s whipped round!

Sparklingbrook · 05/01/2022 19:42

@girlsyearapart

Anyone with the priority pcr as soon as you get a positive result be proactive at contacting your doctor as the anti virals have to given within 5 days of symptoms and due to the bank holiday lack of communication I have missed out on getting them.

I'm sorry to hear that. The BH weekends must have made a difference to being able to send off the PCR in a priority postbox too.

Original poster

Curiousmouse · 05/01/2022 19:42

@Bobholll how do you know this. Please can I have a source document if you have one?

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MaybeHeIsMyCat · 05/01/2022 19:43

I'm waiting for my 4th vaccine. Still haven't had the priority PCR yet either
Still trying to shield as much as possible, WFH. I've basically been alone for the best part of two years

Newyearnewme2022 · 05/01/2022 19:48

@MaybeHeIsMyCat
Not CEV myself but laying low with my teen son who has Down Syndrome, he is due his booster in less than a month.
I’m a single parent, it’s been a very lonely couple of years.

MaybeHeIsMyCat · 05/01/2022 19:50

I just get so when people say they can't possibly isolate for a week
Or that the vulnerable should just stay home. What, forever?

Original poster

Curiousmouse · 05/01/2022 19:52

That's hard for you, MaybeHeismtcat. It must be very isolating.

In my house I have young adults who work, so I'm not actually able to shield at all. It's quite angst making. I'm aware quite a lot of us are in that situation, despite the view amongst the ill informed that we are all elderly and able to shield.

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hereiamagain07 · 05/01/2022 19:53

I'm CEV, tested positive at the weekend, had a priority pcr already in the house but went to a walk in instead with my two children. NHS were in contact within 24 hours of positive pcr results about anti vitals and very quick at sorting.

Watapalava · 05/01/2022 19:53

I honestly think many CEV have a heightened perceived risk- i know people with cancer, heart disease and over 90 have covid since vax and all been very mild. The data currently does not support the notion that cev are at anywhere near the risk they were last year.

Watapalava · 05/01/2022 19:55

They stopped shielding months ago because the data doesnt support it and people have had further vaccines since then.

mynameiscalypso · 05/01/2022 19:55

@Curiousmouse

There is confusion here about CEV and severely immunosuppressed. Both groups are vulnerable.

CEV (clinically extremely vulnerable) have had no third dose, but did have a booster. I'm in this group. I had a booster in September.

Within the CEV group , there is a further cohort who are immunosuppressed, which is an additional burden. Those people were offered a third primary dose plus now a booster.

It is the former group I am referring to-we will not get at further dose but we are more vulnerable and are likely to get quite ill . Some of us have in any case conditions which predispose us to permanent damage in the event of a covid infection.

I disagree with the poster above who says we are well catered for. We were initially. However, we now have less protection than most vaccinated people because of the passing of time since we had our boosters, whilst at the same being more vulnerable than them. How is that right or fair?

That also not quite right - I'm not CEV but was in the group that gets three primary jabs plus a booster because of the medication I'm on. There are so many different lists!

MaybeHeIsMyCat · 05/01/2022 19:59

@Watapalava

They stopped shielding months ago because the data doesnt support it and people have had further vaccines since then.

They stopped it as in stopped supporting it/advising it Some have carried on shielding. I'm taking my advice from my consultant, because my condition is so rare they don't have a clue what covid would be like I know I can't fight infections so it's the stuff like pneumonia that's an issue so the stuff that comes with Covid I mean yes, I might be fine but how do you judge it and take that risk?

Kitkat151 · 05/01/2022 19:59

@mynameiscalypso. ...Many different lists....I’m no longer CEV but am still eligible for the 4 jabs

treeflowercat · 05/01/2022 20:00

@rrhuth

No, it is nothing like bloody flu. And the flu vaccine provides protection for longer.

Back in 2020 I'd have agreed with you, but things have changed. I'm not saying it is precisely the same, more that the risks of the two now seem to be comparable rather than Covid being an order of magnitude (ie 10 times or so) more deadly.

Also, I appreciate that the flu isn't trivial to someone who is CEV (and look up the vaccine stats - they're not great for the flu either!) so comparing it to the flu isn't to trivialise it, but to try and place it, and our response, into perspective. The sheer numbers of infections at the moment mean the absolute risk from Covid is worryingly high for someone with CEV, but I don't think ever greater restrictions are the way to deal with it. The only compelling argument for continued testing and isolation rules at the moment is to protect the CEV...

The quickest way to low numbers is to let the wave crash through as fast as we can whilst maintaining critical services and protecting the CEV. Stringing it out by lockdowns and the like just prolong the agony and don't really solving anything.

herecomesthsun · 05/01/2022 20:00

Not everyone has stopped shielding.

There are some still shielding on medical advice.

There are people who remain at very high risk.

I don't myself feel as much at risk as I felt before vaccines.

However, with children at school we are all very exposed to covid; and it remains a real risk.

It's pretty unhelpful to downplay people's realistic concerns.

herecomesthsun · 05/01/2022 20:01

[quote treeflowercat]@rrhuth

No, it is nothing like bloody flu. And the flu vaccine provides protection for longer.

Back in 2020 I'd have agreed with you, but things have changed. I'm not saying it is precisely the same, more that the risks of the two now seem to be comparable rather than Covid being an order of magnitude (ie 10 times or so) more deadly.

Also, I appreciate that the flu isn't trivial to someone who is CEV (and look up the vaccine stats - they're not great for the flu either!) so comparing it to the flu isn't to trivialise it, but to try and place it, and our response, into perspective. The sheer numbers of infections at the moment mean the absolute risk from Covid is worryingly high for someone with CEV, but I don't think ever greater restrictions are the way to deal with it. The only compelling argument for continued testing and isolation rules at the moment is to protect the CEV...

The quickest way to low numbers is to let the wave crash through as fast as we can whilst maintaining critical services and protecting the CEV. Stringing it out by lockdowns and the like just prolong the agony and don't really solving anything.
[/quote]
No, it isn't like the flu.

Can you stop repeating this tripe please.

girlsyearapart · 05/01/2022 20:03

@Sparklingbrook I did my pcr New Year’s Day and dd posted it at the priority post box I was super sceptical of a fast result but got one the next day
So I thought great this is all working how it says
Meant to wait 24 hours and if no one from nhs has been in touch to call 119 or GP
Called 119 as GP was closed. No one answered even though I followed the number prompts for the reason of my call

Called GP yesterday who sounded utterly clueless and told me the hospital would call today which they did but it was too late for the anti virals to be any use

MaybeHeIsMyCat · 05/01/2022 20:03

For me, it's how quickly I can get unwell and not realise it. I was out shopping with a cold, ended up making an out of hours appointment
Sat in the waiting room coughing when a doctor came out with a nebuliser. I'm nosying round about who is unwell...
turns out constant coughing means you can't breathe
I had pneumonia - literally went from a cold in the afternoon to 3 nebulisers that evening, steroids, 4 courses of antibiotics
Also high risk for sepsis