How do Long Covid sufferers earn a livelihood?
I’ve switched to 100% online teaching. I bought a tripod and a flexible arm device holding thingie, so if I need to recline back I can adjust the camera so with the right angle and a blurred background it kind of looks like I’m sitting up (ish). I’ve fired my “hard to teach” students. Replaced them with new ones. Spread the workload over 6 days instead of 4 and limited the number of lessons each day accordingly. I’ve left adequate space between each lesson so I can rest. All clients are offered 100% flexibility with no penalties so I can ask the same in return, cos some days are Not Good.
I can’t regenerate brain matter to replace the holes left by covid. I can’t guarantee I’ll be able to stand without falling over everyday. Some days I just can’t stand up. But I’ll be damned if covid is going to take the business I built from nothing from me.
I personally would prefer it if people could consider not using the entirety of people with long covid and permanently harmed by covid as a trump card that bundles us into a club to whack at those who disagree with them.
We aren’t a homogeneous clump of now destroyed human beings who can’t work or be productive. And some of us have spent more time and energy on the solutions to get around the limitations we’ve been left with than we get credit for when we are labelled “sufferers”.
I’m not who I was, but I’ll be damned if this stupid virus gets to take bits of my brain AND redefine me as a sufferer rather than the whole, rounded, multi faceted, resilient human being I turned myself into through decades of slog, sweat, tears and lugging my locus of control to the more useful side.
Perhaps consider at least sticking a “some” in front of “long covid” and trying “people with” rather than “sufferers”.
Apologies for the language policing but as somebody who has been stuffed in victim boxes before, it can be most unhelpful for some people to see and hear themselves relentlessly described in a positivity squishing light.